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Gerbe
Regular Member


Date Joined Sep 2008
Total Posts : 42
   Posted 6/12/2009 7:31 PM (GMT -6)   
Upfront let me state that my problems are small compared to those faced by many here.  Every day I thank G-d for my blessings, which have been plentiful.  But it is a perversity of human nature that we cannot be satisfied with what we have.
 
At six months, I find myself grieving.  Part of it is sexual.  After a good start, I seem to be loosing, not gaining (though I have strong hopes that time will help).  I have slid into the category of men who need strong constant stimulation to become aroused, and my body seems to have forgotten how to slip over the line into the unstoppable ecstacy of orgasm.  My wife has been a truly supportive partner, and has not voiced any complaints.  But the times are now a memory when she would open up in readiness to me as a woman does to a strong man, where she could let herself go and I could give to her.  This goes to the core of how we men define ourselves.  To have to lay back and be 'administered to' causes shrinkage of our soul and diminishment of our sense of self-worth.
 
The other part is physical.  To the outside world, I appear the same.  But inside, I know I've taken a knock.  It simply aged me.  Impossible to quantify, but on the smooth curve of life I would say it took something like 2-5 years off of my lifetime.  I feel older.  I don't step up so quickly to the more rigorous tasks at work, field trips with long hours.  I guess it is the 'step-change' nature of it compared to the smooth aging process that makes it stand out.
 
Would I do what I did again, the robotic and such?  Yes.  Of course.  I think it was the best choice given the circumstances.  To engage in "I wish I didn't do that" thinking is really a substitute for "I wish I didn't have PC".  Before the procedure I knew that it was the quality of life, not its continuation, that worried me.  And now I know the answer.  As I started out above, truly I am grateful for the blessings that G-d has bestowed upon me.  I am grieving, but I have grieved before, and I know that this too shall pass.
The past is gone, the future yet to come.  This moment, here and now, is nothing less than the totality of existence.  I can't control my life, but I can shape this moment.
Age 59
PSAs 1.6, 1.8, 2.0 at yearly intervals, mild DRE finding (hindsight unrelated) lead to biopsy
3/08 1st biopsy, 18 core. Pathologist 1, HPIN and ASAP, 0.5mm 1 core. Pathologist 2, carcinoma
7/08 2nd biopsy, 16 core. Pathologist 1, 1 core carcinoma. Pathologist 3, 3 cores carcinoma
12/22/08, Davinci at U of Washington hospital, Dr. William Ellis, 6 hr procedure, both nerves spared.
12/31/08 catheter out, dry immediately 
Final path report:
79 g prostate gland
<5% cancerous, bilateral, T2c, Gleason 3+4, margins & seminal vessels clear, 14 lymph nodes negative
Aftermath notes:
ED - some nocturnal erections even with catheter. 1st orgasm at two week mark. 50% erect.
1/10/09 - Lymphocele post-surgery complication.  Kidneys threatened. 2 days hospital, drain installed. 
1/22/09 - Drain blocked, CAT scan, repositioned, continue drain
2/10/09 - The lymphocele drain comes out.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4108
   Posted 6/12/2009 8:06 PM (GMT -6)   
Great post: I feel much the same. I am grateful for the successful surgery. Just missing my young self.
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 ED- 5 mg Cialis daily, pump daily,


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 6/12/2009 8:12 PM (GMT -6)   
Gerbe,
Sometimes we forget the reasons that took away the things you are missing now. We have a horrible disease that if left untreated will kill us. We had to stop it but, the cost in quality of life is very high. For me, 4 months after surgery, I'm just barely continent. Sex has to be planned ahead of time, no more spontaneous love making. Because of my aggressive cancer, I wanted my doctor to do whatever was necessary to get the cancer out and that meant removing the nerve bundles along with the prostate. Did I make the right choice? I don't know but, As long as my PSA remains undetectable I'm satisfied. I chose life over pleasure and I'm grateful for that. Every day when I wake up, I thank the Lord for being alive and feeling well, playing golf, enjoying my grand children and my friends. I do miss what you mentioned but that is the price I had to pay.
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/12/2009 9:24 PM (GMT -6)   
Thank you for the heartfelt post. To say I understand would be an understatement. I speak often about the feelings and emotions that go with cancer and for us specifically PCa. I know we are not suppose to speak to much about religion on this forum and I try hard to abide by the rules, however serving in the missionary fields of the kingdom is my love and those missionary fields are helping people to deal with the loss of spiritual and emotional self. Cancer takes away so much, yet it also gives us so much. Yes our sexual identity is lost however the ability to express love without lust can grow and endure forever. I recall visiting a 14 year old girl that was dying of cancer back in Feb and she told me this "life isn't always what you hoped for, but in the end it is better than what you expected".
Grieving is a natural process that we go through and I am not sure it ever ends, however we can help by finding the glory in the wonderful world in which we exist. I know once i was diagnosed the things that were once important suddenly meant nothing because they were material. The things that became important are the relationships that we claimed to treasure and the love we claim to have. As we battle through this disease we have to be mindful of our finite existence and start living life to the fullest every day.
I feel your pain my friend. I have a ministry that all we focus on are the deep emotional and spiritual wounds people face while dealing with cancer. Sorry to make this long. I usually do not post much as it relates to this topic. I would however love to chat via email sometime
peace and grace
dale
My PSA at diagnosis was 16.3
age 47 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
Testosterone keeps rising, the current number is 156, up from 57 in May
T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%
 


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 6/13/2009 4:00 AM (GMT -6)   
Gerbe, I have complete ED so far, fortunately my wife and I after 46 years of marriage at our age, were moving towards a happy state of our love life becoming shall we say less frequent. However it was strange at first to find that after the op when I cuddled her, or she me, no arousal took place, I am wistful and a mite sad at this, but this, among other things, is the price that I have to pay, I have discussed this with my wife, and all she want's is to have me here with her.

These things are important to me, I am still alive, I feel well, I can fish, ride my bike, garden, play bowls, and the other day I was sitting in a chair, on my property, under a clear blue sky, thinking how fortunate I am, today, I went to see 4 of my grandchildren, the joy of them running towards me, and jumping into my arms, takes my breath away, so I feel that although one part of my life is gone, I thank God for all the other things that I can and still do experience.

Just my thoughts, regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.

PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.

Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 0.5


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 6/13/2009 5:54 AM (GMT -6)   
Amen brother-you have said it all Gerbe.
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
Brachytherapy- May 19, 2009 -so far, so good.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4831
   Posted 6/13/2009 6:20 AM (GMT -6)   
I feel a GROUP HUG coming on…
 
Heck I’m happy to just be alive turn
 
What little grieving I’ve done has been more like self pity. I haven’t been on a date in several years. Before surgery I was ready, willing and able to perform my manly duties should the right person come along.
 
Now I have ED to deal with. At what point after meeting someone do you bring it up? “Hi, my name is Steve…I’d like to rock your world but I can’t!!” Well, actually I can, but we have to go to my place first so I can raid the refrigerator and get my Tri-Mix.” smhair
 
I’m not overly concerned about needing to use Tri-Mix. I mentally resort back to a lesson I learned from my shrink: “Find joy and happiness in all areas of life but the opposite sex. Fill your own cup up first.” So that’s what I’ve been doing. When I meet the right person I’ll know what to say and when to say it. As long as she doesn’t laugh and say she wants a real man – we’ll get along just fine yeah
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
xx/xx/xx   - 3rd Quater skipped
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


WEDsr
New Member


Date Joined May 2009
Total Posts : 15
   Posted 6/13/2009 8:05 AM (GMT -6)   
Gerbe

Your post is Awesome and compelling! However I would like ask what if:

What if you didn’t get the operation?
What if you didn’t have an awesome wife?

To me after 50 years of sex, (36 yrs married) it’s like so what. I know sex defines us men sometimes, but I rather have my wife to think of me as her man who will defend, love and be with her forever than anything else.

You said “But the times are now a memory when she would open up in readiness to me as a woman does to a strong man, where she could let herself go and I could give to her.”
Right now she feels that you have enough to worry about and don’t want to add to it. But as a strong man that you are, you should take her by the hand to somewhere (part, a walk, etc…) and tell her to open up to you. Let her know her thoughts, concerns, problems are still yours to help with and it is far worst not “unloading” on you. (Swallow the male pride).

My wife lost both breast to cancer and it was a hard for her. She felt she lost her “femininity”, lost what defined her. Though I told her over and over again that her breast wasn’t what turned me on about her, it still took time for her to understand that I was hers (breast or no breast) and that she still turned me on.

It took me to sit her down and explain that with PC or not I am still her man who she could confide in, hang her worries on, and discuss whatever is on her mind.
Your passion shows in your writings, now go say it to her!
God speed!
Walt
Current PSA 2.0
Biopsy done on May 27, 2009
Results on June 11, 2009


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/13/2009 9:30 AM (GMT -6)   

Greetings, everyone. Gerbe, you have said it well.  I do find myself feeling sorry for myself on occasion - mainly for what I have lost physically.  If you let it get to you it certainly can affect you in ways you don't want it to.  I am grateful that every time I get down, something happens to pull me out.  Often it is my wife and her great support.  Like Dale, I also have a missionary background and so my faith helps.  Like Dale, I also understand and support our commitment for this not to be a board about religion and I respect that.  But there are subjects that come up - and this is one - where it is hard not to mention faith and the role it plays for many of us in our healing.  Let me just say that the Lord has never promised us there would be no valleys - and prostate cancer can be a pretty deep valley - but He has promised us that when we are in those valleys He is right there with us.  I am grateful for that promise. 

There is not a lot we can do about the choices that we have had to make in dealing with the cancer.  Yes, I'm glad to be cancer free at this point and I'm grateful for my wife and family and friends as they encourage me and walk through this with me.  David

 


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/13/2009 12:01 PM (GMT -6)   
What a beautifully written and real post. I would say that my dad feels the exact way. Is he grateful to be alive yes, is he thankful for treatment, yes. Does he miss his old life? Absolutely. Cancer is heart breaking and I think so many people can relate to you and your post. My wish is for continued healing and break through medications for all. Thanks for sharing.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/13/2009 4:33 PM (GMT -6)   
Beautiful post.
I believe that we have simply been living His plan and that really takes the anguish away. I will keep up the prayers for our membership for peace and love to continue to grow mach faster than any cancer could. And also for continued healing for all.

May God bless you, and thank you for your post.

Tony
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 6/13/2009 6:42 PM (GMT -6)   
For another perspective I look at it this way:

One, maybe two hours a week of my life has changed. The other 166/167 are the same as before. My life continues, but with changes to that hour. It's not that one hour of sex has gone -- it's just one hour of different sex.

Would I like to go back to the old way? Of course, but it ain't gonna happen. Life deals us a hand of cards and we should play it to the best of our abilities -- no good wishing we had a different hand. Compared to many, we still have great hands -- let's make the most of them.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


GoodFriendTim
New Member


Date Joined Jun 2009
Total Posts : 11
   Posted 6/13/2009 6:51 PM (GMT -6)   
To All of You Guys Who Answered This Post:
I know exactly what you're going through or went through. I too felt that I had lost an important part of my life when I realized that I never again would be able to just jump in the saddle with great joy and merriment and have fantastic sex. Even bad sex feels good (grin). Yes, I understand the grieving, I really do. And I grieved too. I mentioned to my personal phsycian that at times I was a little depressed following my surgery. She assured me this was normal for both men and women. In our culture and society, we are so defined by our penis and it's abilities, or our breasts and curves, that to lose those definitions makes us feel as if somehow we are "less" men or "less" women. But I believe in dealing with problems with a little bit of a sense of humor. And I'm able now to laugh at being a Prostateless Wonder. I share this humor with my friends and family and it has astonished me how many of them have laughed with me and THEN told me of their deep, deep concern for me. I'm still a man. I garden. I swim. I'm active. And for the time being, sex and orgasms are beyond my reach (although I hope it won't always be this way), I have a deep and extremely rich relationship with my partner of 27 years who is extremely supportive. As a matter of fact, we BOTH have medical issues. Mine being, obviously, surviving prostate cancer, but he has MS. Just the other day, we were saying to each other that oddly enough, although we thought we were as close as any two people could ever be, my cancer and his MS have somehow made us even closer. Our relationship is almost tangible, at last according to our families. We look after each other. We help each other. We live for each other. We love each other. We laugh together. We cry together sometimes. But we STILL have each other and ultimately that's the most important thing of all. Yes, I miss the nights of wild or gentle love-making, the glow afterwards, and I miss snuggling up to him and NOT getting aroused. I miss those things very much. However, I can feel the light of his love the moment I walk into the room where he is, and more so now than ever before. Yeah, I feel like I've lost something important to me, but I also feel that in an odd way, I've gotten something richer and more rewarding in return.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/13/2009 6:53 PM (GMT -6)   
I must say I haven't called it grief, even the word probably fits. It is probbably more a form of self pity, whch is probably healthy in many ways. I think the important thing is that we don't become consumed by it and let it run our lives.

Probably much like we have a funeral for a loved one, we need to mourn the passing of our items that we miss most, (a different list for different men), and then bury it somewhere and move on.

I heard a fellow who has no arms and legs, He has one small foot like appendage that he had kearned to use to enable him to stand. He injured that appendage, and was not able to stand for 3 weeks. He said that it was a turning point in his life. He began to thank God for what he did have, and not complain about what he didn't have.

I have a loving wife and family, good friends, a good house, fishing poles, hunting guns, and the ability to do most of what I want. That is what I am focusing on. I have buried the old friends that I used to know, which incidentally at age 58 was beginning to fade a little anyway. Sometimes needed a little help for erections, and I certainly didn't have the stanina I had when I was 20.

This is a great thread tho. This is the real meat of thus forum.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 6/15/2009 12:07 AM (GMT -6)   
Gerb, the Christian missionary Jim Elliot wrote the following words:

"He is no fool who gives what he cannot keep to gain that which he cannot lose"

You gave up your cancer which you cannot keep, that you may gain life which you cannot lose! It's that simple. Forward Ever!
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/15/2009 12:36 AM (GMT -6)   
Great post all you guys.
 
Mal, you as well,
You can cook too, I've seen the BBQ. And one of these days I will make it to Perth and have you serve it up...

Peace to you, my dear friend.

Tony


 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 6/14/2009 11:39:59 PM (GMT-6)


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 6/15/2009 1:18 AM (GMT -6)   
Hey Tony, I have a big pizza oven too, cooking for 20 adults & unknown number of kids,this weekend, come on over!! turn

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.

PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.

Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 0.5


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/15/2009 1:40 PM (GMT -6)   
IKE-D,

What a great post !

For those who didn't see the movie about Jim Elliot, he was murdered by a band of natives, who eventually found the God that Jim Elliot died trying to tell them about Him.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


STW
Regular Member


Date Joined Jun 2009
Total Posts : 292
   Posted 6/15/2009 2:19 PM (GMT -6)   
My father had a RB long before nerve sparing surgery was possible. He was 52. Only 2 of us kids had even graduated from high school. I never heard him speak about the effects of the surgery and never pried. He was a proud man and it was none of my business. My mother alluded to things on occasion, however, which gave me her perspective. To her everything else was secondary to simply having him around. I don't believe they ever second guessed the decision and enjoyed a rich 34 years afterwords.
This, of course, colored my own expectations and I've been mentally prepared to loose everything if I ever got PC. I see anything after surgery as a bonus and a gift that I wasn't expecting.
I'm just thankful that I live in this day and age. I count 2 ways I would have been dead and another couple that would make me a cripple before PC even came up. All in all I'm mighty blessed.
Diagnosed at 54
PSA 8.7
Biopsy 1/7/09
4 of 6 cores positive, one at 90%
Gleason 3+4=7
Neg bone scan 1/15/09
One shot Lupron Depot 1/27/09
Tax Season
RP 4/29/09
Neg lymph nodes, postive seminal vesicle, neg margins
Gleason 3+4=7 with tertiary 5
Catheter out at 2 weeks no nighttime incontinence
Pad free week 5
PSA 6/6/09 <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/15/2009 8:33 PM (GMT -6)   
Gerbe,

A most excellent post, absolutely from the heart and from real experience, you did us all a great service with that one. My best to you, brother.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 

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