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lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/12/2009 6:38 PM (GMT -7)   
I had robotic surgery 3 1/2 years ago and I am cancer free with a regular psa of neg 0.1.  However, I have not been able to get a satisfactory erection even after the failures of Viagra, Levitra, Cialus.  Yes, I have a pump, that has worked but is unnatural and frankly, the ring bothers my partner and therefore, it isn't used.  I recently went to the urolgist and he injected me with .01 Trimax.  Yes, I did get an erection after 10 minutes, that lasted for s short time, then it softened and unfortunately, was stil in an uncomfortable partial erection for almost 7 hours.  I had to go to the ER but it finally softened before they were going to inject a 6 inch needle to clean out the blood.  I tried a second time with half that low dose and it worked 90% but again was in a partial erect state for 4 hours.  I know that you need to experiment and the doctor doesn't know the proper formula, so have you had this same experience and can you suggest what to do or what to suggest the proper formula might be.  I would appreciate the help.  This would be my onoy dolution, but I can't inject and stay erct and somewhat hurting for so many hours. 
 
 

CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/13/2009 7:35 AM (GMT -7)   
Greetings, lookieloo.  Welcome to the forum.  I haven't used the injections, but have known those who do and know that there are several guys on the board who do.  Many of them have discussed about the trial and error they have had to go through to find the right dose - the disappointments of using too little and it not working to what you have experienced with too large a dose and having to seek treatment for the extended duration.  I'm sure that some of those who have used injections will give you some guidance soon.  Best wishes for a successful outcome.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 6/13/2009 5:22 PM (GMT -7)   
It seems your last dose may have been about right. If you have aching with trimix, it may be the alprostadil component responsible -- it's a common complaint. You may be able to get a brew with less alprostadil. Remove the alprostadil entirely and you have bimix which is what I use.

I find that after injection, I am larger that normal for about 6 hours, but after about 3 hours it does not qualify as as an erection. There is no pain or aching, and in fact it feels rather pleasant.

To help get it up after injection, I use a lot of physical stimulation -- musterbation. You may find that gets you from 90% to 100% too.

It's a very good sign that you have been able to get the erections you have -- it's now a matter of experimenting to find the mixture and dosage that works without pain.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 6/13/2009 8:18 PM (GMT -7)   
lookieloo
 
Do you know what your prescription is? My Trimix is 20:30:1, with the 1 being the amount of alprostadil. I do know that this is about the lowest combination of the drugs that can be compounded.
 
I then use the 0.3/31G Insulin Syringes and only fill the syringe about half full. This gives me an erection for about 2 hours. Most of the time I don't have any pain but if I do, I take an Advil or two.
 
I have also discovered that if I take a Levitra as I'm going soft, that I can get hard again on and off for the next 6 hours. It does require stimulation and without it, I just sort of fade away. But it is nice to almost get back to what used to be normal.
Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/15/2009 6:22 PM (GMT -7)   
CPA said...
Greetings, lookieloo.  Welcome to the forum.  I haven't used the injections, but have known those who do and know that there are several guys on the board who do.  Many of them have discussed about the trial and error they have had to go through to find the right dose - the disappointments of using too little and it not working to what you have experienced with too large a dose and having to seek treatment for the extended duration.  I'm sure that some of those who have used injections will give you some guidance soon.  Best wishes for a successful outcome.  David


Thanks for your welcome.

 

Joel


lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/15/2009 6:25 PM (GMT -7)   
Piano said...
It seems your last dose may have been about right. If you have aching with trimix, it may be the alprostadil component responsible -- it's a common complaint. You may be able to get a brew with less alprostadil. Remove the alprostadil entirely and you have bimix which is what I use.

I find that after injection, I am larger that normal for about 6 hours, but after about 3 hours it does not qualify as as an erection. There is no pain or aching, and in fact it feels rather pleasant.

To help get it up after injection, I use a lot of physical stimulation -- musterbation. You may find that gets you from 90% to 100% too.

It's a very good sign that you have been able to get the erections you have -- it's now a matter of experimenting to find the mixture and dosage that works without pain.
 
 
Thanks for your reply.  6 hours for you is a long time.  That is my complaint..  I am happy to get an acceptable erection but 4 hours is way too long and if I am out and about with my clothes on it does hurt as it presses against my clothes. 


lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/15/2009 6:31 PM (GMT -7)   
hb2006 said...
lookieloo
 
Do you know what your prescription is? My Trimix is 20:30:1, with the 1 being the amount of alprostadil. I do know that this is about the lowest combination of the drugs that can be compounded.
 
I then use the 0.3/31G Insulin Syringes and only fill the syringe about half full. This gives me an erection for about 2 hours. Most of the time I don't have any pain but if I do, I take an Advil or two.
 
I have also discovered that if I take a Levitra as I'm going soft, that I can get hard again on and off for the next 6 hours. It does require stimulation and without it, I just sort of fade away. But it is nice to almost get back to what used to be normal.
 
 
It sounds like you are the right track for me.  What is the mix of each of your 20:30:1.  The trimix I am prescribed with is PGE-1 8.33mcg/ml, Phentolamine 0.83 mg/ml, Papaverine 22.5mg/ml.  ??????????  How does mtach up to your mix?  That will give me a better idea of the formjula.  Thanks for your help and I will be looking forward to your reply. 
 
Joel


lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/15/2009 6:35 PM (GMT -7)   
Strange at it seems, after I talked with my doctor explaining to him the second injection, he actually backed off because of his concerns, and suggested that I look into the pump. That I have and will not use again. I was hoping the doctor would advise me on a proper mixture but I guess I need more feedback from you guys and then get back to him. Maybe they will call me doctor too????? Ha Ha.

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 6/16/2009 8:24 PM (GMT -7)   
I suggest you look into bimix. I don't have pain or discomfort with it and I don't recall anyone else here reporting such.

For your pump, what kind of ring are you using? My cheapie pump came with different sized sleeves which I tried once, but didn't go any further with as it seemed a rather large obstruction -- even if it worked!. However I have found office rubber bands, doubled over, to be entirely satisfactory, being both cheap and very adjustable.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


lookieloo
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/17/2009 4:00 PM (GMT -7)   
Piano said...
I suggest you look into bimix. I don't have pain or discomfort with it and I don't recall anyone else here reporting such.

For your pump, what kind of ring are you using? My cheapie pump came with different sized sleeves which I tried once, but didn't go any further with as it seemed a rather large obstruction -- even if it worked!. However I have found office rubber bands, doubled over, to be entirely satisfactory, being both cheap and very adjustable.

THANKS FOR YOUR REPLY:  tHE PUMP AND RING ARE OUT.  TOO MUCH OBSTRUCTION AND PARTNER SATISFACTION OR LET'S SAY, SHE SAYS, NO WAY.  AS FAR AS THE BIMIX ONLY, I WOULD HAVE TO ASK THE DOCOTR OR PHARMACIST ON WHAT THEIR THOUGHTS ARE.  I WAS TOLD THAT IT IS NOT AS RESPONSIVE AS THE TRIMIX BUT SINCE IH AVE HAD PROBLEMS WITH THE FEW EXPERIMENTS, IT WOULD N'T HURT TO ASK.  THANKS

JOEL

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