Well it's time for that dreaded special 6 weeks PSA test

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/15/2009 4:38 PM (GMT -7)   
Well, thought I would pop in for a quicky visit.  I go in at 0930 tommorow for the blood draw for the special PSA test my dr. ordered.  I have to wait till next Monday to sit with him and find out the news.  This has been the worse PSA anxiety time I have experienced so far ,its not like its just another test that comes and goes.  If it has moved up any from the .10 mark six weeks ago, then it means reaccurance, and so soon after surgery.  The game plan is to move me along to an oncologist and radiation facility.  There is that micro chance the 6 month PSA read was wrong or a micro spike, and this one will be better, but my logic and luck doesn't tend to go in that direction.  Would love to be proven wrong on this one.
 
I know there is nothing special about me or my case, I am just one of many here, my life isn't worth any more or any less than any other man, this I know in my heart.
 
I thought the surgery would do it, at least for several years out, the pathology report was so squeaky clean, I am a Stage 2, not a 3 or 4, so my mind can't reconcile why this is happening so soon after surgery.
 
I am fully continent, and as most of you regulars know, I was blessed with no-ED after surgery.  Will all this gain be lost after I go through salvage RT?  Don't know either, had to have made such good progress, and then lose it all.  Then I think, if I need RT this fast, is it really going to work or do me any good in the long run?
 
Just airing fellow PC guys, it is what it is, after all this time, parts of me still feel like I did something wrong to make the PC happen, and if so, I don't honestly know what I could have done differently.
 
It will be a long wait till next Monday, I could force the result before then, but its not my style, I am too compliant with my drs, and knowing this week won't change a thing with the ultimate results.
 
Still plan to be back here full time soon.  I just have to know what is really going on here with me.
 
David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 6/15/2009 5:41 PM (GMT -7)   
David, you will be in our thoughts and prayers. I hope you receive good news but I know you are prepared for either case. In any event, you have a lot of folks pulling for you.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Ironman1600
Regular Member


Date Joined Aug 2008
Total Posts : 44
   Posted 6/15/2009 5:54 PM (GMT -7)   

Dear David,

Good to hear from you again.  You have been a positive read since I joined the club a year and 2 months ago.  I have some idea about what you are going through.  I suspect every member of this club goes through this every time they wait for the results of their PSA test.  I remember every one of mine and am already bracing myself for the next one which will be August.  From the very beginning my surgeon prepared me for the day I might have to admit that the cancer was back.  I guess it correlates with as “prepared as we were,  we weren’t prepared.”

We could talk about all the possibilities of tomorrow, but I will leave that to whatever happens.  Good or bad, I want to thank you for all you have done for so many people that have faced our situation and had nowhere to turn.  You have been a positive hope for so many people I doubt if you will ever realize the impact you have made.  If this turns ugly, and I pray it does not, I expect in time you will be again be on the front lines telling all of us what to expect and how to overcome the disappointment of recurrence.  I also expect you may very well tell us of a near scare.  I much prefer the latter and not the former. 

I believe in one of your earlier messages you stated that your wife said you knew too much about this disease for your own good.  That means you already know there are lots of options with good outcomes available to you.  Yes,  we don’t want to abandon the first defense of a perfect surgery, but step two and step three still mean we can beat this and still live a normal life.   I know you feel alone right now and a little disgusted with your situation, but if you look over your shoulder there are legions of Healing Well Community cheering you on.  If we don’t win in the first round we will win in the second or third, we just need YOU to continue to tell us how.   Seize the Day.

Age 61 at diagnosis

PSA Jan 2006 2.8, PSA Jan 2007 3.7, PSA Jan 2008 4.4

DRE Normal, Biopsy positive 1 core in 10,

Clinical T1C, Pre surgery Gleason 3+4=7

Bone scans Normal, Cat Scan Normal

da Vinci robotic Surgery April 30, 2008, Fremont Nebraska

Post surgery Gleason 3+4=7, Pathological P2C

Lymph nodes clear, Margins clear

Hospital stay 2-days, Catheter out 10 days

1-pad a day for 3 weeks

Back at work 7-days after surgery, desk job

Both Nerves spared, 100% with assistance of sildenafil citrate

Post 3 month PSA-undetectable, Post 9 month PSA-undetectable

 


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 6/15/2009 5:56 PM (GMT -7)   
David,

I hope you will not need it, but if you do... I met with Radiation Onc. If I could put a little bit of your mind at ease - he says, the continence and ED progress is usually not reversed with RT, just stopped. So if you are fully continent and ED free right now, you are likely to keep it. The salvage RT is different in this regard as it delivers lower doze than during the primary treatment.

Best of luck,

Greg

Previous 5 biopsies over 4 years negative

PSA going from 3.8 to 28

Father died from PCa @ 78 - normal PSA and DRE

Dx Nov 2007, age 46

PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke

6 rounds of chemo (Taxotere+Avastin)

1/8/2008

33.90

1/11/2008

29.50

1/31/2008

38.20

2/21/2008

32.00

3/13/2008

26.20

4/3/2008

26.60

4/24/2008

20.60

followed by RRP at Duke (Dr. Moul) on 6/16/2008

Pathology

Gleason downgraded 4+3=7

  Duke: T2c N0MX, one positive margin

  Sloan Kettering: T3a N0MX, extraprostatic extension, two positive margins

PSA undetectable for 8 months, then

2/6/2009

0.10

4/26/2009

0.17

5/22/2009

0.20

6 Months ADT starting 6/12/2009

IMRT to start mid-Aug


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 6/15/2009 5:56 PM (GMT -7)   

Hi David,

No I dont fully undestand either, as your path was clean, actually very similar to mine.

I am really hoping we hear back from you on Monday, with good news, and a slight drop in the PSA.  Lets hope you have had a micro spike, and it will now return back to .05 or lower.

Mate I can't hear the fat lady singing yet.  Stay positive, and visualise in your mind those low numbers.   idea Cheers Kev


Age 51yrs
DX 11/11/08
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4
Gleason 3+4=7
Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason 4+3=7 (60% Grade 4)
Stage T2c
Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week.
ED- taking Meds/ No results yet/still "NotHard"
PSA 1/09  .03
PSA 2/09  .03
PSA 5/09  .03
"Everyday in Everyway I get better"


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 6/15/2009 5:59 PM (GMT -7)   

David,

Best wishes and positive thoughts go out to you. There is no way to blame oneself, so go easy in that department and give it to the docs and, of course, give it to God.

TeddyG


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/15/2009 6:23 PM (GMT -7)   
To all the posters above this post, thanks for the kind words and encouragement. I am most thankful for this place, HW, and all of you, old friends and new. I have been through a lot of medical fights in my life, according to my own mother, the first being that I nearly died of whooping cough when I was six months old, to my first major surgery at age 28, 3 bouts of another ultra rare cancer that involved 5 other surgeries and a full regiment of RT and a year of physical therapy, and then of course, the PC. I think part of my current problems and feelings, is that I underestimated the evilness of PC, it doesn't fight fair or consistent, thats for sure. I can only speak for myself, but I am not sure I will ever feel "safe" the rest of my life, regardless of how things turn out. A shrink once told me, that I was unfair to myself, set too high a standard on my life, and punished myself too severely when I didn't meet the bar so to speak. There may be some truth to those words. Ultimately I will come to terms with what I perceive to be a set back, and then I will be ok again. I am trying, I really am, to deal with everything that has transpired since my 3rd biopsy came back positive last August, its just been a big swirl of things, the surgery, the 63 days on the catheter, the corrective surgery, and all the rest of it.

My best thoughts to one and all, as you continue you own battles, your own victories, your own positive steps in your fight against PC. For those of us that have wonderful wives or other halves and good families, may we always feel thankful and blessed. Without mine, in my life, I would feel with little hope or encouragement. Just like the kind I feel when I am here at HW.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2455
   Posted 6/15/2009 6:58 PM (GMT -7)   
Dave,
You are in my prayers every day. I'm hoping for that you will get good news on Monday. PSA test and anxiety go hand in hand. I'll be having my second on in 3 weeks and I'm already getting nervous. Today, I received a letter from the Urology Team in Austin (my doctor is a member of the team) stating that they are looking for men who have had treatment for PCa and have had a rising PSA after the treatment. I hope that you will not need it but if you do, here is their email:
research@urologyteam.com
phone: 512-231-1444 ext. 291
Age: 67
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
Dx 12/30/08
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09
Surgeon: Dr. Randy Fagin, Austin TX.
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx
Negative margins
seminal vesicles clean
Lymph nodes: not dissected
1st PSA test 4/7/09 result <0.1


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 6/15/2009 7:15 PM (GMT -7)   
David,
If nothing else your post above shows that not only are you a survivor but a real fighter as well. We all hope that our initial treatment does the job but in our heart we all know that this bloody disease may always be lurking. You have my best wishes for a good result and I'll be thinking of you over the next week. yeah
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01

Post Edited (BillyMac) : 6/15/2009 8:28:25 PM (GMT-6)


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 6/15/2009 7:25 PM (GMT -7)   
David, I'll send a prayer on your behalf tonight.
Age 51, (50 at DX)
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, No issues. Levitra no longer needed!
First post op PSA 11/11/08, 0.00
Second post op PSA 2/10/09, 0.00


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/15/2009 7:48 PM (GMT -7)   
Thanks Ed C and Billy. Thank you too, Coxjajab
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 6/15/2009 8:11 PM (GMT -7)   
Hi David,
I know how you feel; I've been through the same issue a few month back. I'm due in July for my 6 month post EBR check up and hoping like you, that it will be a low PSA test result. For me the pre test anxiety doesn't get any easier with time.  On the positive site, ED and continence have not been negatively effected by the radiation.
Hope fully your increase in PSA was just a spike and that your test result on Monday will give you a reason to celebrate.
All the best to you and all my friends here at this forum.
 
Magaboo


Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05. PSA tests now every 6 month


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/15/2009 8:37 PM (GMT -7)   
David-
I know the anxiety of PC seems too much to bear at times, but I hope that Monday brings good news and in my heart of hearts, I believe it is possible. Until then, do what you have to do to stay positive and calm your fears. As many of the other's have posted, there are options and there are prayers. We will be holding you in thoughts and prayers. I agree with your comment about underestimating PC, I feel like my biggest mistake was banking on the odds. PC is ugly, but you are a fighter. All the best this week and always!

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 369
   Posted 6/15/2009 8:40 PM (GMT -7)   
Good luck man, only the guys here and all the other pca survivors in the world know what you're going through. I hope you buy a break and your number stays down.........................
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive for Prostate Cancer on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 3+3=6 both cores,
Clinical Stage T1C
 
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery,
No signs of spread, organ contained,
3 0's in a row now, 7 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/15/2009 11:32 PM (GMT -7)   
David,
You have been through much but you have weathered it well. And I do remember completing surgery and my doc saying we didn't get it all. Still we both have come a long way and I believe that your next options will get you to where I am. Undetectable. So much to look ahead good with, I wish you well on Monday.

BTW, welcome as a new moderator. Your sincerity will be a great asset. Peace to you, my friend.

Tony
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 6/16/2009 4:24 AM (GMT -7)   
Prayers sent for a low lab report number and no freakin re-occurance.


Age 62, Sex Male
PSA - 3-20-08 2.7; 4-17-08 3.1; 9-18-08 3.6; 1-22-09 3.8
DRE negative
Ultrasound/biopsy 2-12-09, 50cc
4 of 12 samples positive 3+3=6, Right mid-medial <5%, Right mid-lateral 10-20%, Right base medial 10%, Right base lateral 10% adenocarcinoma

open RRP completed 5-5-09
Post surgical pathology report:
Gleason 3+3=6
Lobes involved - left and right
Extraprostatic extension - none
Surgical margins - very small area of margin involvement in right lobe
Seminal vesicles - Free of neoplasm
Vascular/Lymphatic invasion - none
J-P drain, staples and catheter removed on 5-13-09
pT2cpN0MX
No incontinence issues, no ED issues.
Back to work (desk job) in 9 days from surgery.
Surgeon: Dr. Gary B. Bokinsky

Remember, don't let the bastages get you down !!!


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 672
   Posted 6/16/2009 4:30 AM (GMT -7)   

Hi David,

I know it's a tough time right now. You have a ton of people here wishing you the best! I hope your test results come back with good news...we all do! You have helped a lot of us here, myself included, through the rough spots.

I see you're a moderator now. Your insight and kind words of support for others will make this site even better.

You are in my thoughts. Drop me a line when you can.

 

Mike

 

 


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4014
   Posted 6/16/2009 4:41 AM (GMT -7)   

Hi David:

I'm surely hoping for the best for you...low numbers and just a continuation of your progress as a PCa survivor.  But, if you do get bad news, I know you have the strength to handle it and the friends here to help you along the path.  Good luck!!!

Tudpock

P.S.  Now that you have been promoted to Moderator, does that mean I'll have to pay higher referral fees?  LOL
Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 6/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/16/2009 5:28 AM (GMT -7)   
Magaboo - that is my best hope of hopes.

Doting, thanks, but even the best "boxer" gets tired of holding his fists up in the air, I hope mine hold out

mspt98, thanks buddy for the words

tony, i get it, it i think, with you svi, pm, and epe and being stage 3, your journey makes a lot more sense, i just cant make sense out of my situation. but glad you are doing so very well

thanks jack and mikey, the moderator designation surprised me in the end, i hope i am capable of being a fair and caring one, like the other good one that are here.

yes tud, in my now highly esteemed position, I expect a 5x increase in fees of referal and homage for all my sage advice, lol.

Also, I will be back full time as soon as I get back from my doctor next Monday afternoon, so be careful for what you wish for, lol.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 6/16/2009 5:52 AM (GMT -7)   
Just signed on David...congrats for the Moderator position...I know that you will provide some very helpful insight in this disease for others that will travel this journey. I know that the PSA anxiety is very high right now. Just have comfort that there are things in this world that are controlled by a higher power and give that trust in faith that whatever path you will travel you are never alone.

Will be waiting with you until Monday...best of luck and my thoughts will be with you.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month April 2009 .06


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/16/2009 6:44 AM (GMT -7)   
Les, on the higher level, I believe the same way, but sometimes at the "street" level, its easy to get caught up with bad news and negative thoughts, I am no differernt than anyone else when it comes to that. If I know a situation is at hand, good or bad, I can handle things well, so far, with this PC fight, its too much uncertainty, and I always feel there is a sword over my head, that is the part of it I am fighting the most, I think.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/16/2009 12:36 PM (GMT -7)   
I am a few weeks behind you in my decsion process. Because I had a Gleason 9, they want me to do adjuvant radiation before my PSA even starts to rise. My path report is good, but not squeaky clean, becasue I did have an EPE.

I really don't want radiation, but I am becoming convinced that I most likely will need it anyway.

Best of luck to you. We are all standing with you !
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/16/2009 1:47 PM (GMT -7)   
goodlife,

In the case of your Gleason and pathology, I think you are getting sound advice, I wouldn't hesitate or delay much in going to RT. Good luck in your decision.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10 doubled in 3 months, new test in six weeks, then possibly off for salvage radiation
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/16/2009 4:23 PM (GMT -7)   

Greetings, David.  We'll be thinking about you this weekend as you wait for the results of your PSA test.  We continue to pray it will be just what it should be.  I know you are a fighter and will face whatever comes your way head-on.  We'll look forward to hearing a great report on Monday. 

They couldn't have found a better guy for a moderator of this forum.  All of the moderator's have had good experiences and have encountered trials that can help the rest of us as we battle this disease.  Thanks for taking on this additional responsibility. 

Look forward to hearing good news! David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 6/16/2009 5:08 PM (GMT -7)   
Dear David,
I just posted to your moderatorship!.... So happy that you are a moderator...You are thoughtful, caring, and creative.

" What sky! What light! Ah, in spite of all... it is a blessed thing to be alive in such weather"... samuel beckett

I read that and thought of you!

Our thoughts and prayers go with you. Diane and Pete
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09

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