Bladder Training - Useful Info

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IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 6/19/2009 2:35 PM (GMT -6)   
Hello All:
 
I am sure most of us still recovering from surgery are seriously Kegeling to try to control incontinence. But what about bladder training In conjunction with the Kegels)  to enable the bladder learn to store urine again?  I found the below very helpful (see section under bladder training).
 
 
Thanks
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.


CapnLarry
Regular Member


Date Joined Apr 2009
Total Posts : 75
   Posted 6/19/2009 3:47 PM (GMT -6)   
My browser was confused by some extra markup that got inserted by the HW "URL" button, but was able to find:

http://www.continence-foundation.org.uk/publications/pdfs/Prostate%20Operation%206.PDF

so if others have trouble it may work to just cut-and-paste that string.

Anyhow it's odd that if you go up to the home page (http://www.continence-foundation.org.uk) you get the notice that they've gone out of business, being replaced by the "Bladder and Bowel Foundation" (comes trippingly off the tongue, doesn't it?) which has a similar document on "bladder retraining" at:

http://www.bladderandbowelfoundation.org/bladder/infomation-and-advice/bladder-retraining/
Larry Shick
Personal homepage incl. PCa story: www.sv-moira.com.
01/09: Diagnosed (age 60) biopsy PSA 4.4, free PSA 9%, T2c stage, Gleason 7 (3+4), 7 of 14 cores; 6'2", 200 lbs.
03/09: Robotic surgery (Dr. Kawachi, City of Hope) 47 gms, 10% involved, staging/Gleason unchanged (pT2cNXMX), margins clear, no ECE/sem ves involvement, fully continent from day 1, some success w/Viagra 50mg/day.
Followup: 05/09 0.006


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/19/2009 5:26 PM (GMT -6)   
I am too darn lazy to get out of bed at night. I perform my own bladder training through laziness. I am now sleeping through the night, with no leakage.

P.S. I wouldn't get up when I had my prastate either.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


STW
Regular Member


Date Joined Jun 2009
Total Posts : 292
   Posted 6/20/2009 9:47 PM (GMT -6)   
I found this most interesting.
I'm up at least five times a night, far more than before surgery.
This is the first I've heard of urge incontinence.
Now I know that'll pass too. Of all the muscles I had to have in shape....
Diagnosed at 54
PSA 8.7
Biopsy 1/7/09
4 of 6 cores positive, one at 90%
Gleason 3+4=7
Neg bone scan 1/15/09
One shot Lupron Depot 1/27/09
Tax Season
RP 4/29/09
Neg lymph nodes, postive seminal vesicle, 1 positive margin
Gleason 3+4=7 with tertiary 5
Catheter out at 2 weeks no nighttime incontinence
Pad free week 5
PSA 6/6/09 <0.1


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 6/21/2009 8:33 PM (GMT -6)   
Here is a more correct link
http://www.continence-foundation.org.uk/publications/pdfs/Prostate Operation 6.PDF
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7
At 6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.


CapnLarry
Regular Member


Date Joined Apr 2009
Total Posts : 75
   Posted 6/27/2009 9:30 AM (GMT -6)   
From this article on the subject of "after dribble":

Continence Foundation said...
The loss of a small amount of urine almost immediately after the bladder has been emptied is common both before and after prostate operations and tends to increase with age. It may be because your bladder does not quite empty, or because urine becomes trapped in the bladder outlet, where the prostate used to be, and leaks out afterwards. This problem usually improves with time but may be helped if you sit down on the lavatory and lean forwards to pass urine, or else if you push up behind the scrotum and massage gently to expel the last few drops.


Hot darn, (that's not what I typed, and you know it) it works!
Larry Shick
Personal homepage incl. PCa story: www.sv-moira.com.
01/09: Diagnosed (age 60) biopsy PSA 4.4, free PSA 9%, T2c stage, Gleason 7 (3+4), 7 of 14 cores; 6'2", 200 lbs.
03/09: Robotic surgery (Dr. Kawachi, City of Hope) 47 gms, 10% involved, staging/Gleason unchanged (pT2cNXMX), margins clear, no ECE/sem ves involvement, fully continent from day 1, some success w/Viagra 50mg/day.
Followup: 05/09 0.006

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