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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 6/21/2009 9:29 AM (GMT -7)   
I have not been here for awhile and come back with a somewhat strange topic. I am 9 months out from ORP. In zero club but still have some leakage. I only use 1 or 2 pads a day depending on my activety level which is usually high. Here is my routine. When I wear briefs that are snug everything stays in place properly. With looser briefs I can get problems around the edges. I am considering getting the old school jock strap to use instead of briefs. I feel it will keep pad and all in correct postion without adding to much additional layers. I could then if needed use boxers over that. With warmer weather hear it is important for comfort to keep things to a minimum.  Any thoughts on this. All is well otherwise.
 
Summerfest starts in Milwaukee this week. Come join us for 11 days of peace, love, music and beer.

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 6/21/2009 10:59 AM (GMT -7)   
Hmmm. If briefs are working, why bother? Having asked that rhetorical question I found that Jockey now has a brief style that has more of a jock strap type pocket that holds all the goods and it works perfectly in keeping pad in place.

Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 6/22/2009 3:49 AM (GMT -7)   
This reminds me of wearing boxers to the docs office the day I got my cath out. Not sure what I was thinking, but I leaked all over myself all afternoon....Being a boxer guy - wearing breifs here in Texas in July wasn't too bad. I did sleep in the buff to help give the boys some fresh air at night idea
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
01/16/09 - 2nd Quarter PSA -> less then .01
xx/xx/xx   - 3rd Quater skipped
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 6/22/2009 12:01 PM (GMT -7)   
You don't mention what brand of pads you use. Depends seems to get the highest marks on this list but it might be worth it to try a different brand and see if it suits you better.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3 + 4 = 7
CAT scan 1/09 negative, Bone scan 1/09 negative

Robotic surgery 03/03/09 Catheter Removed 03/08/09
Post surgical pathology report. Lymph nodes negative, Seminal vesicles negative
Surgical margins positive, Capsular penetration extensive Gleason 4 + 3 = 7
At 6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.


Jersey Boy
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 6/22/2009 3:08 PM (GMT -7)   
You still Kegelling?
Jersey Boy
 
Age 63
Surgery 2/19/08
Gleason 6
Last Post-op PSA -- non-detectable
On trimix -- good results
Levitra/Viagara -- not good enough


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 6/22/2009 4:08 PM (GMT -7)   
yes I am still Keggeling. My goal is to try to get proper coverage with the least amount of materials. Having to wear a pad or 2 inside of jockeys is quite warm this time of year. I can deal with it but always looking for more comfort. I use prevail extra absorbent pads. I recently noticed a small improvement leakage wise. I am a service person so my day is filled with in and out of truck, bending lifting etc. I also work out and run . I have always felt it would take me a full year to dry up. That will be October 1st.

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/22/2009 4:29 PM (GMT -7)   
I have found a pad made by Serenity that is triangualar shaped and is aq little more effecient at catching Willie when he lays sideways.

Unfortuantely, it is ony a medium use pad, so I put a high absorbency one on top of that one. I rarely get leakage unless my pad is full.

I only have to change the high absorbency one, so I use around 2 pads a day.
Age 58
PSA 4.47
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09
Nerves spared
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable. 


Charlierobert
Regular Member


Date Joined May 2009
Total Posts : 24
   Posted 6/30/2009 8:20 AM (GMT -7)   
I have reached the point where I am wearing women's pads, which are much thinner.  I had the same problem with the briefs, and found that string bikini underwear work well.  Light weight, but tight fitting and hold the pad well.  A bit risque for a 70 yr old, but what the heck!  LOL
70 year old male
PSA of 5.1
3/9/09 robotic surgery
non nerve sparing surgery
5/5/09 PSA Non detectable
5/24/09 slowly regaining bladder control. 
6/8/09 graduated to thinner liners at night and most of the day.  Pads when doing physical work, or going out of house for short trips.
 

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