Thanks for the feedback. I have been on Clinic .gov and attempted to wade through the stuff. my big concern is that most of these trials are what they call randomized, which I think means I may end up taking a placebo, or not getting the treatment.
I gues I don't feel like being a guinea pig at this point in my cancer. I am teetering on the edge of just waiting until something happens, then do the radiation or chemo.
Best of luck to you and your hubby. I know how I feel, and I supposedly don't have any mets yet, but this gleason 9 is apparently a nasty one. So many options, so many opinions, and not really a clear path to follow.
I don't know if you read the post yesterday about
observations, but it did point out the fact that many guys on this forum have been in some pretty bad diagnoses, but are still kickin after 10 or 15 years. The medical community is making progess.
Keep in touch and let us know how it is going.
Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic 4/14/09
0/23 lymph nodes involved
pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.
Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Thankful for early diagnosis, and U.S. healthcare
Living the Good Life, cancer free
6 week PSA undetectable.