Surviving Prostate Cancer at 39

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robdav
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/26/2009 8:28 AM (GMT -7)   

Hi there,

 

My name is Robert Davies, I am 39 years old. In 2008 I was diagnosed with Prostate cancer which had claimed the life of both of my male grandparents and my father also had it but had since recovered.

 I have written an internet blog which details my journey through prostate cancer and is very detailed and personal covering both the physical as well as mental aspects of the illness.

 

The blog is located at www.robdav.co.uk/blog. I was hoping that perhaps the information within the blog would be useful to others who are going through this illness, especially younger men. If you can find a use for this can you let me know?

Many thanks

 

Rob


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/26/2009 9:00 AM (GMT -7)   
Hi Rob,
Welcome to HealingWell. This is the best site I could find on the web for information sharing and support. I joined the site at 44 with advanced prostate cancer. Had I undergone screening, I might have had it at your age. We do have members in their 30's here, or at least when they started out. And I have met a few guys at your age and it pains me to see it. My initial glance at your website looks like it's very well done. I too took to blogging and have also taken to prostate cancer advocacy work. Like I intend to, you should keep it up. Awareness is a valuable donation and your experience will raise eye brows. Welcome again, and thanks for joining us...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 6/26/2009 9:10 AM (GMT -7)   
Rob-
Welcome to HW! Glad you found us here! After reading your blog, I think you will make a great addition to our family! We are a site or PC patients, caregivers and friends and represent most walks of life, stages and treatment options.
We actually just had a thread that included family history and a veteran member with a family history mentioned that he was going to have his son get tested at 35 and you are a living example of exactly the reason why men with a family history should not wait to get their PSA tested. We welcome you and encourage you to keep us posted on your progress and share with those that are newly diagnosed. Congrats on your entry to the "zero club" as we call it here and may your future be filled with undetectables!!! Welcome!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


dawgfan
Regular Member


Date Joined Aug 2006
Total Posts : 148
   Posted 6/26/2009 9:48 AM (GMT -7)   

Rob,

 

Outstanding website. I had to stop exploring it long enough to respond here. Your Honest descriptions were right on the money. Excellent reading for anyone regardless of your distance into this journey of ours. Thanks for the link.

 

Best to you,

 

Tony

 


DX 8/24/06, Gleason 6, PSA 3.32, stage T1C
age 48 at the time, da Vinci on 10/20/06
Last PSA was ZERO
6/16/09 AdVance Sling installed
 


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 6/26/2009 10:35 AM (GMT -7)   
Rob,
Your not alone!! I was diagnosed the week after I turned 37. It has been a battle both physically and mentality as you know. These are the cards we were dealt and we must make the best of it. Take a positive approach, we are lucky we caught it now!!

LIVESTRONG!!!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: <0.1 (Different Lab then 1st)
3rd PSA 3/2009: <0.1
4th PSA 6/2009: <0.1
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 6/26/2009 1:11 PM (GMT -7)   
Rob, welcome here at HW, and want to say, you have a great and useful blog. Hope you stay among us.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


robdav
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/26/2009 1:46 PM (GMT -7)   
Hi Folks,

Thank you for your kind words :)

When I set up to write the blog it was simply meant to be a dumping ground for my thoughts and feelings during my journey. I really didn't think it would turn into the size or level it has done.

One of the major realisations I had was that the information it contains could help others who are also facing the journey, and that If I could get the link out to as many people as possible then perhpas it might help someone.

There are so many men going through this, each one with a different story, each with their own mountains to climb, but ultimatley each travling the same road. Some make it, some don't, but with each step, with each push forward we come closer to understand this aweful illness and perhpas a cure. That alone is the reason why I will continue to spread the word to friends, family, co-workers, random people in the streets, on the internet, and beyound.

crewa2
Regular Member


Date Joined Jun 2009
Total Posts : 43
   Posted 6/27/2009 12:23 PM (GMT -7)   
Rob,
I'm recently diagnosed (at 43), getting ready to start the whole journey. Thanks for the blog, it is really informative, helpful and a bit scary so far (I haven't finished reading it all). Good luck to you and your journey.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2201
   Posted 6/27/2009 5:03 PM (GMT -7)   
Rob,
Welcome to Healing Well and thanks for your blog. There are many things that you have written about that I can relate to. It is clear that each of us share certain events in this journey, both positive and not so positive. Will read more Sunday, but your writings are very insightful.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when dx
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better
hope to start ed tx 7/17
Michael


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 6/28/2009 4:40 PM (GMT -7)   
WELCOME TO HEALING WELL MY BROTHER . I TOO AS ALOT OF US WERE YOUNG LIKE YOU, I WAS 43 WHEN DXD  SINCE THEN I HAVE FOCUSED MY ATTN, TO EARLY DETECTION FOR YOUNGER MEN LIKE OURSELVES , I HEAD UP A PCA SUPPORT GROUP HERE LOCALLY , AND AM 20 YRS YOUNGER THAN ANY OF THE MEMEBERS,  TOGETHER WE CAN BRING AWRNESS TO THIS AWFUL DISEASE , WERE GLAD YOU FOUND US AND GOOD LUCK WITH YOUR JOURNEY , WE HOPE YOU WILL DROP IN REGULARLY AND HELP WITH OUR NEW BROTHERS AS YOU COME ALONG  ,,,,,,,,,,,,,,,,,,,DIRT turn
Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night
continence a non issue at 10weeks
 1 year p.s.a. undetectable


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 6/29/2009 2:56 PM (GMT -7)   
Greetings, Rob.  Great blog - thanks for sharing your experiences.  I also have a strong family history of prostate cancer and have told my son he needs to get tested at 35.  It seems to affect guys younger and younger.  The best thing we can do is to get the word out and we appreciate your doing so with your blog. Congratulations on your good progress and we trust you will stay with us - you have a valuable contribution to make.  Thanks for all you ahve done and will continue to do.  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


STW
Regular Member


Date Joined Jun 2009
Total Posts : 292
   Posted 6/30/2009 9:39 AM (GMT -7)   
My younger brother first got checked at 35. The doctor thought he was nuts. I waited until my early 40's. My father was diagnosed at 52. I was 53 when my internist made the appointment with the urologist and 54 when the tests came back.

It is only too early until they find something. I moved, changed jobs, and then started a business between tests. The resultant delay almost made it too late.
Diagnosed at 54
PSA 8.7
Biopsy 1/7/09
4 of 6 cores positive, one at 90%
Gleason 3+4=7
Neg bone scan 1/15/09
One shot Lupron Depot 1/27/09
Tax Season
RP 4/29/09
Neg lymph nodes, postive seminal vesicle, 1 positive margin
Gleason 3+4=7 with tertiary 5
Catheter out at 2 weeks no nighttime incontinence
Pad free week 5
PSA 6/6/09 <0.1

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