Penile Implant Question

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jayjay25
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/1/2009 9:50 AM (GMT -6)   
Hello,

I had a quick question about Penile Implant for you guys. Let me give a quick history of myself.

I'm 25 years old, and I got into a really bad car accident almost 3 years ago. After dealing with the multiple problems I had (stricture, bladder problems, etc.,) I recently got an implant to resolve the ED. Its been almost 3 years because I literally tried every other solution (only one working for me being injection which was unsatisfactory). It's been about two weeks since I got the AMS 700 LGX. I have an appointment on August 3rd for my six week appointment where the doctor shows me how to activate it. My surgery was done by Dr. Milam from Vanderbilt.

My question: Since the surgery my penis has been in a quasi-erect state. I remember asking my doctor about it when I had a post-op visit from the doctor but I don't quite remember what he said because I was so hopped up on Morphine (I believe he said something about it being normal and making it easier to place my penis against my abdomen which is what I should be doing for six weeks). Anyway, I'm just getting nervous, and I was hoping to get some comments from people who have been through a similar experience.

I understand that my situation differs from you guys and I am in no way attempting to say my situation is equivalent to prostrate cancer, but this specific situation (implant) is similar and I was hoping to get some feedback. Thanks you guys.

Post Edited (jayjay25) : 7/1/2009 8:58:59 AM (GMT-6)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4834
   Posted 7/1/2009 12:50 PM (GMT -6)   
Hey JayJay...Hang tight and I'm sure someone with some experience will be along to help answer your questions.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


jayjay25
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/1/2009 1:03 PM (GMT -6)   
thanks steve.

The doctor should be contacting me in the next day or two. This was really for the peace of mind of hearing experiences from people who have also gone through penile implant surgery, especially with the AMS 700 LGX. Hopefully some people will chime in.

Thanks again.

jayjay25
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/1/2009 5:26 PM (GMT -6)   
so the doctor miraculously called me later today. He said that some of the fluid were put in the cylinders to make it easier for me to put it up against the abdomen and activating it on the upcoming appointment will remove all the fluid. cool. crisis averted. while the thread is around, anyone have any questions about penile implants that I can answer? about Pre-op and post-op as I cant attest to the efficacy, quite yet :)

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/2/2009 10:40 PM (GMT -6)   
Jay
Please stick around. I could really use you as a resource for other guys thinking about the implant. Email me.
thanks so much
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 7/3/2009 10:20 AM (GMT -6)   
jayjay,

I had my PCa surgery done at Vanderbilt and I am now considering implants to be done by Dr. Milam. How did you find Dr. Milam as a concerned surgeon? My experience with Vandebilt has been great but that has all been with Dr. Smith and his staff. I have been told Dr. Milam has extensive experience with implants.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 7/5/2009 8:28 PM (GMT -6)   
JayJay,
 
I received a penile implant & AUS last July.  I understand some surgeons do leave a little fluid in the implant after surgery.  Mine did not, but I thought he did because the penis now hangs larger when it is flacid due to the cylinders being implanted.  I didn't like that at first but now I'm used to it.  The good thing is it never retracts.  It's always there to easily find. I have several posts on this forum regarding the implant, but they're gone way down on the list by now.  You could probably do a search.  There is also a Yahoo group dedicated the implants and also a blog.  Both addresss are somewhere on those post I made.  Sorry that you need such a device, but it should serve you well.
 
Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 7/7/2009 10:57 AM (GMT -6)   
Hey JayJay...
Welcome to the group. It is common (but not exclusive) to have some fluid in the new implant - so I am glad that you were able to get the question resolved. JWP on the yahoo penile implant group had Dr. Milam as his implant doc after an erlier botched implant attempt by another Uro. - he was very happy with the outcome. Hope all goes well - just take your time and soon you will be enjoying your new equipment.
All the best
Art
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.

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