Change of Status from Moderator

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/9/2009 5:32 PM (GMT -6)   
So that you can hear it from the horse's mouth  (or mule in this case), I asked Peter of HW to remove me for now from the moderator's position.  I am under too much personal pressure right now to feel effective in the role.  I appreciate dearly the opportunity to have been entrusted with the role, perhaps one day things will be better and I can try again.
 
I have no problem being neutral and "fair", having played that role for 30 years in business as an even minded mediator in legal proceedings and general negotiations.
 
Here, my heart is heavy sometimes, for all those that are new here, knowing that they need our "services".  My heart is also overwhelmed with my own situation.  Depsite overcoming other major medical maladies in my life, including 3 other bouts of a rare and potenially malignant cancer, the entire process of PC for me has been tough, more mentally then physically.
 
We are fighting a very contrary and evasive enemy.  Normal protocals and rules don't cut it with PC, too many variables, too many contradictions, too many inconsistent outcomes.
 
I will continue to be here and posted as I see I must.  Sometimes, and those that have known me for awhile, its best if I can just post from the heart, and not the head, and sometimes it's hard to do that in the moderator role.
 
I really love this place, will always be a place in my heart for HW.  Just being here has helped me immensely, and improved at least a portion of the quality of my life while dealing with this wicked cancer.
 
Not going anywhere, just returning to my normal role, aggervating as it may be to some of you sometimes.  lol.
 
My best to all my brethren,
 
David in South Carolina
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/9/2009 6:04 PM (GMT -6)   
Dear Purgatory,

Thank you so much for your contributions to the forum!

As a former moderator of this wonderful group, I understand somewhat concerning how difficult this decision was for you to make.

May you continue to gain hope and to make progress in your fight against this terrible disease.

I really appreciate your support.

Kind regards,

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/9/2009 6:21 PM (GMT -6)   
Thanks for your roles, both as moderator and member.

We will pray for you !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 7/9/2009 6:44 PM (GMT -6)   
David,
You did a great job as a moderator, hope you will be one again some day. Glad to hear you are still going to be posting.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DX BPH and continue to get biopsies yearly. Positive Biopsy in 10-08, 2 cores of 25, G6 less than 5%. Scheduled Surgery as recommended.

2nd Opinion from Dr Sholtz, an Oncologist said DX wrong, path shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G 4+3 approx 2.5cm diameter.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and burining urination. Daily activities resumed day after implants.

Scheduled for 5 weeks IMRT in July

JohnT


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 7/9/2009 6:45 PM (GMT -6)   
Hi David, Thanks for your great posts as always and for your  time as mod. It is a hard job - and you have done it well - take good care of you now.  Lana & CJ
Creed_three - Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable <.1 PSA since, specifically, June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 7/9/2009 7:00 PM (GMT -6)   
David,
You have been of great help and support to all of us. I know that you will always be fighting along with all of us.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
1st PSA test 4/7/09 result <0.1


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 7/9/2009 7:20 PM (GMT -6)   
David,
 
I think you have done a wonderful job as a moderator. I think you have done just as wonderful a job of helping the many of us personally...myself included. You sharing your advice and experiences has helped more than you probably realize.
 
Not much more I can say...except a sincere and heartfelt thank you. I hope you come back as a moderator again. In the mean time, stay focussed on your battle and...Good luck on Monday with your oncology appointment and also a Happy Birthday wish from me and my family.
 
Mike
 
 
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/9/2009 7:40 PM (GMT -6)   
Thank you one and for all, pressure in one's mind is a very personal and subjective thing, just making this simple change, has relieved some of the pressure cooker feeling. It would also help guys, if I could become fully employed again. This is the longest period of unemployment in my life, 11 months now, and it's taking its toll on me too, and I don't just mean the loss of income. Us men tend to quantify our very being with our employment, and I am no different. I know the economy is one of the worses ever, but it bother's me that I have almost 30 years of experience, great reputation and references, and I can't even get a simpleton's job right now. I am grossly over qualified for entry level jobs, and company's know that and know that someone with my background wouldn't stick for long. And when I do get a favorable response on my resume, I usually here how the company was getting slammed with 200-300 resumes for everything I am applying for.

It's just frustrating, I am use to providing for my wife and family, for over 35 years, and now my wife supports me financially, and she has been wonderful about it, never rubs it in, but still, it bothers me.

Combine that with the battle with PC, and I can feel defeated at times. But I am trying, the best I can to deal with both issues in my life. That's why it helps to try to help others, it takes one's mind off their own problems.

Not really complaining as much as it may sound, just relieving some more pressure.

David in SC

You are all a really great group of men, only wish the distances between most of us weren't so immense, it would be nice to get together and hang out.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 7/9/2009 8:08 PM (GMT -6)   
Just wanted to express my thanks to you for having been one of our moderators. Sorry that you must decide to take a rest, but fully understand and appreciate your reason. Many thanks to you also for all your valued opinions, words of wisdom, compassion and of cause, your work as our moderator. It will not be easy to fill your shoes. Please keep us informed about yourself. I'm looking forward to your continued input and comments.
All the best to you.
 
Magaboo


Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05. PSA tests now every 6 month


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4275
   Posted 7/9/2009 8:53 PM (GMT -6)   
OK...I was getting tired of calling you Squire anyway! 
 
Seriously, I think you did an excellent job as a moderator and we will miss you in that role.  But...on the positive side...I rather enjoyed the old David where you got pissed from time to time and really jumped in with a strong opinion...and it's tough to do that as an even handed moderator.  So, I will look forward to seeing the opinionated David once again!!!
 
And, now that you are one of the masses again, I guess I will have to start sending you those commission checks when you give me a referral.
 
All the best to you,
 
Tudpock
Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/9/2009 8:59 PM (GMT -6)   
Tud, brother, easy there, the Squire is my heritage from strong Irish roots, so let's keep it going, and I will keep sending the "Seed" people to you, sounds like a fair deal to me.

Thanks Magaboo, you are a good friend here too, always enjoy your comments.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 7/9/2009 9:30 PM (GMT -6)   
Well, if ya don't want to be a sheriff, be aware we have no current openings for the comedic sidekick role, ok?  David, thanks for your help and work for us here.  Maybe sometime in the future?????  Sure hope so.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
21 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/9/2009 9:41 PM (GMT -6)   
David,
You deserve a breather. You have little too much going on at the moment to worry about the additional burden of keeping us from each others throats and helping guard the forum. Your contribution to date has been much appreciated and this will continue in your role as a straight out member. Well done,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/9/2009 10:28 PM (GMT -6)   
I am reminded of the lines from Tennyson

Tho' much is taken, much abides; and though
We are not now that strength which in old days
Moved earth and heaven; that which we are, we are;
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find, and not to yield.

and so you remain -- one of the heroic hearts...
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0


london2000
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/10/2009 2:43 AM (GMT -6)   
Hi David,

Thanks for sharing your feelings and problems. I'm fairly new to this forum but already I've come to appreciate what a helpful and supportive group it is, in no small part to the role played by the moderators, yourself included. In a non-moderator position, you may be better placed to draw your own help and support from the group, at this time when you most need it.

You've had more than your share of bad luck and I hope all works out well for you and your family.

Take care, Roger
Diagnosed with PCa in April 09, aged 59. PSA 9.5 ng/mL, Gleason 3+3, 3/8 cores positive on biopsy.

Had laparoscopic radical prostatectomy in 21 May 09. Histopathology raised Gleason score to 3+4 but cancer confined to capsule with surgical margins being negative. Stage T2c. Nerves spared.

Catheter removed on 4 June 09. Currently coping with incontinence issues, but making progress!


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 7/10/2009 5:58 AM (GMT -6)   
Hang in there and best to you in whatever role you have in the fight against PCa.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/10/2009 8:00 AM (GMT -6)   
James, that's a distinct possibility, I will know soon what is really going on and what the next direction in my path will be, that might be enough to settle me back down.

Billy and Geezer, thanks a million

Roger, not sure how much luck, good or bad there is in the world I see things more in terms of the "it rains on the just and unjust alike" theory. No matter how bad I think I have it at times, and when I was in the worse of physical pains or the worse torments of the mind, I know in my heart that there are so many more, in much worse situations. I could just use a little positive news in my life, at least sometimes, lol.

What helps in my day to day life, is having such a great family. My wife of 35 years is wonderful in every way, she alone is reason enough to keep trying, and not to get despondent. My 3 adult age children all get along with each other, lead decent, normal, productive lives, and we stick together when there is trouble on the horizon, can't ask for much more than that.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 7/10/2009 8:08 AM (GMT -6)   
Do your best to keep your chin up David...the pressures of life right now are a little overwhelming for you and you are doing right by yourself to take those steps to relieve a little bit of the pressure off of you. My advice to you would be to take some time and search for those things of inspiration to you...whether it be reading or outdoor activities...whatever it may be that lifts your spirits. (I always suggest a good book...the Big Book - hint) Associate yourself with the positive things in life...and right now cancer isn't a positive thing. When the time is right, you will feel it and hopefully you will return to offer that most valuable asset of yours...your experiences in life to share with all the rest of us.

Take care my friend.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month April 2009 .06


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 7/10/2009 8:35 AM (GMT -6)   

Greetings, David.  Great job as moderator and we trust that you may take on that role again sometime in the future.  We completely understand how this disease gets to you sometimes.  We will be praying for you as you fight the good fight.

We look forward to continued contact and interaction on this board and in this group.  I have come to feel a bond with you and don't want to lose it.  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/10/2009 9:12 AM (GMT -6)   
Les - my core faith is as strong as ever, but in the day to day living part, sometimes seems distant to me. My reading fans want me to write another book, keep thinking about it, but just can't seem to get started, would feel guilty doing that when I should be working.

David CPA - I am not going anywhere, just trying to get and keep my act together. It's a shame we live in a world where having or not having certain amounts of income or money can make and direct so much of one's life.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/10/2009 6:05 PM (GMT -6)   
Hang tough, my friend. I know what unemployment does to people. Also, uncertainty with PCa does not help. I am sure that once the economy turns (hopefully very soon) you will have no problem to find a job.
 
Getting rid of some of responsibilities is a great help for mental well being, so I think your decision to stay off moderating for a while is a good one, even if we will miss you in that role.
 
Best of luck!

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, IMRT to start mid-Aug


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/10/2009 6:40 PM (GMT -6)   
That's OK David,
Being a good contributor here is like in that old western movie "we don't need no stinkin' badges". This is a great site because of the great membership. Not because of us moderators. And you are still a contributor...Thank you for putting in the effort...And most importantly, get that cancer under control...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/10/2009 7:02 PM (GMT -6)   
Thanks Geebra and Tony, we will keep fighting this thing called PC together
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/10/2009 10:40 PM (GMT -6)   
Hi David,
 
I've been reading this thread and although a newbe, I wanted to join in sending two thumbs up.  I'm going back a ways in my memory, but I think it was Victor Frankel in Man's Search For Meaning who wrote of his time in the **** death camp and who said he came to the realization that one thing the ****'s couldn't control, no matter what they did to him, was his freedom to choose how he reacted, not physically perhaps, but his head space.   It's easy to say, but I know how difficult it is in my life to work on maintaining a positive mental attitude.  One beacon I keep is thinking that my mental anguish can't compare with what Frankel had to overcome, and so I can too.
 
I don't mean in any way to make light of the agony you face, or offer any simplistic nostroms.  Quite the contrary.  I think the struggle we are engaged in, you and I, and most here, to keep control of our head space is a heroic struggle.   In another thread I spoke of devils and slaying dragons.  These are the most real devils and dragons as they live in and feed on our minds. 
 
I wish you well in your quest to emerge the victor.  Be assured your quest is my quest.   While here, in public, we can support each other and cheer each other on, the battle we fight  is an intensly personal one fought on a playing field where we are, in the end, alone and our shield and ammunition is only that which we ourselves can create.   Our hope is the knowledge that within each of us, when we reach deep enough, and long enough, we have the resources to dream the impossible dream, to create the shield and ammunition to win and succeed. 
 
May your down time from your Moderator's role give you the space to discover yet another resource within yourself so that you might come roaring back, beating your chest, bellowing defiance, and demanding the rest of us slay our devils and dragons as you have. 
 
 
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good  


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/11/2009 1:20 AM (GMT -6)   
Hi David I am relatively new here but have received a lot of help from you and all the others which I thank all of you

You say that your fans want you to write another book I do not know what you write about but I would of thought that would be good therapy for anybody and as for thinking that you should be working that will happen one day whether you write a book or not in fact a lot of authors consider writing is a job being an ex engineer writing has always been my weak point I often wished I could give people enjoyment by writing a few books so why don't you go for it
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 

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