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kak
Regular Member


Date Joined May 2009
Total Posts : 85
   Posted 7/11/2009 12:16 AM (GMT -6)   
Has anyone out there had trouble with penile pain and burning.  As you can see from my signature I had radiation treatment and am currently on lupron and casodex.  lately have had problems with penile ache and burning.  I have had the burning before and had a urinary test for infection, was clear.  Just wondering if anyone has had the same problems.  I have been drinking cranberry juice and I think it's helping.  Any advise or ways to deal with this?
AGe 54 diagnosed March of 2007
PSA 107
Gleason 8
Stage T2 or T3 (weren't sure was out of prostate capsule)
Bone scan march 2007 and Aug 2008 both clear
ct 2007 clear
started casadex/lupron March of 2007 (casadex only for 4 months)(lupron for 2 yrs)
Aug 2007 had 37 treatments (also radiated lymph nodes)
psa spr 07-107,went down to .34 by Dec 08, March 09 0.7, May 1.54
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/11/2009 2:45 PM (GMT -6)   
Hi Kak,

Brenda, the lady who removed my catheter, said if I had any pain/burning to mix half a teaspoon of baking soda in half a glass of water and drink it down. I did have some burning/pain yesterday, and so I drank the potion with excellent results, although I must warn you that while it goes down easy afterwards your mouth tastes much like a chicken barn smells. But, another glass of water cured that. And, wonder of wonders, it worked.
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good  


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 7/11/2009 6:25 PM (GMT -6)   
When they yanked the cath out I was sure my penis had been riped off and would be dangling from the end of the plastic tube the nurse yanked out and held in the air. It really hurt. The burning/ pain persisted after that. That was last year but if I had the post above I would have sure given it a try.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/11/2009 9:06 PM (GMT -6)   
Whoa wd40, that's awful. My experience was very different. Frankly less stressful than getting my teeth cleaned. Less discomfort, and if lasted only a couple of seconds. No big deal. I don't know if I was lucky, or if you had an unskilled person on the yanking end. Brenda who took mine out, told me she'd been yanking catheters for 34 years and never had a complaint. If you ever have to have another catheter let me know when it's time to take it out and I'll introduce you to Brenda.
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good  


london2000
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/12/2009 4:17 AM (GMT -6)   
I experienced no pain when my catheter was removed, just a strange sensation bordering on mild discomfort. But I don't recall it being "yanked" out - a more gentle approach was taken by my nurse!

Problems can arise when the balloon hasn't deflated properly and, under those circumstances, "yanking" would be ill advised.

Roger
Diagnosed with PCa in April 09, aged 59. PSA 9.5 ng/mL, Gleason 3+3, 3/8 cores positive on biopsy.

Had laparoscopic radical prostatectomy in 21 May 09. Histopathology raised Gleason score to 3+4 but cancer confined to capsule with surgical margins being negative. Stage T2c. Nerves spared.

Catheter removed on 4 June 09. Currently coping with incontinence issues, but making progress!


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 7/12/2009 5:04 AM (GMT -6)   
I have had two experiences with catheter removal. My first was after my TURP procedure. The catheter removal was the most painfull thing I had ever experienced. Then after my RRP two weeks later my catheter was removed. It hurt some but it lasted only a minute or so. It wasn't no ways as bad as my first removal. I guess there are different factors that make the difference.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Waiting for post-op doc visit July 16, 09 with fingers crossed


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 7/12/2009 10:16 AM (GMT -6)   
I had 5 catheters removed over the period of 63 days, none of them hurt, none of them were yanked out, in fact, the various nurses involved seemed very sensitive to the task, and knew that I was scared to death. On my very last cath, my dr/surgeon removed it in a different manner, he had me stand up. He release the fluid in the balloon, and without him touching a thing, the nasty cath just dropped out from between my legs like a snake to the floor below. Gravity did the trick.

The only technical problem I ever heard from talking to the nurses, was they have to allow a moment or two after the balloon is deflated before they start the cath removal. If it is not fully deflated, of course it would meet resistence and cause pain.

Sorry you had to experience such pain.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 7/12/2009 10:17 AM (GMT -6)   
PS

As far as the burning part urinating, has your doctor have to tried pyridium, a presecription low cost med? My only experience with burning was instantly cured after being on it for a day or two.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 7/12/2009 1:29 PM (GMT -6)   
Hi kak,

I would recommend pyridium as a pretty sure cure but if the baking soda in a half glass of water works, that would be preferable. Pyridium makes your urine turn orange and will stain anything it touches. It will also discolor contact lens if you wear them.

Dave
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months.
July 2001 - Intermittent ADT. Lupron only, MDAnderson biopsy revised Gleason (4+5=9).
March 2007 - Diminishing returns with Lupron, Prostate biopsy (5+4=9) in unradiated lobe.
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
Sept 2008 - PSA 0.45, Nov 2008 - PSA 0.67,
Dec 2008 - Resume Casodex, Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.

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