Am I being rushed, again? Looking for honest input.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/13/2009 7:39 PM (GMT -6)   
My birthday celebration is over, had the whole gang over for a bbq, was good, helped take my mind off of PC for a few hours a little.
 
Now my mind is racing again, thinking of eveyrthing the Radiation Oncologist, my wife, and I talked about today.  He wanted me to start the process this very week, on Thursday.  I did have enough sense to say no to that, but he wants to have the next appt. next week.
 
What I am wondering, is how much time would be safe to wait, before moving on to salvage radiation.  The dr. said the threshold for it to have any chance of working is .50 PSA or less.
At 8 months out from surgery, my PSA is .11.
 
Don't know if I am just scared, or am I being rushed into still another treatment with lots of positive talk of course, from a Cancer Center that obviously would love to have me for 35 sessions and full health insurance.  I never used to be that cynical, but after what I learned today, now feeling paranoid.
 
I wouldn't want to miss my only window of opportunity for a salvage rad cure, but am I being led to jump the gun with the PSA being .11?
 
Need some good help here.
 
Deeply concerned in SC, David


Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 

Post Edited (Purgatory) : 7/13/2009 9:24:22 PM (GMT-6)


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4186
   Posted 7/13/2009 7:43 PM (GMT -6)   
David,
Why don't you get a consult from a noted prosate oncologist. A phone consult could work well as you have all the data. You will get a good unbiased opinion from someone who is familiar with advanced PC.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DX BPH and continue to get biopsies yearly. Positive Biopsy in 10-08, 2 cores of 25, G6 less than 5%. Scheduled Surgery as recommended.

2nd Opinion from Dr Sholtz, an Oncologist said DX wrong, path shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G 4+3 approx 2.5cm diameter.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and burining urination. Daily activities resumed day after implants.

Scheduled for 5 weeks IMRT in July

JohnT


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 7/13/2009 7:50 PM (GMT -6)   
David, I agree with John T. We have told so many here get second opinion. A phone concult will probably do what you need. My guess is your resloved to radiation. My guess is that you other concern is should you start HT to kick this monster to the curb. Only you can make that decision. We are all on you side you have helped so very many of us. We are here for you.

By the was Side Note Happy Birthday
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 ED- 5 mg Cialis daily, pump daily,


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 7/13/2009 7:59 PM (GMT -6)   
David,
I have read both of your posts and all of the replies. In my opinion, having been in this club for 3 months and read more than I ever expected, I think that the new information that you received today, not surprisingly, has put you in to hyper-drive in regard to what to do. First, as you often advise new members, slow down, take a deep breath and think it through. As most of the guys have opined, seeking a second opinion will give you significant comfort as you work through the decision process. Since you are in SC, what about a short drive to Duke in NC for another perspective? It will give you additional confidence going forward.
It sounds just like what we all went through following our initial diiagnosis: who, what, where and why? Once you feel that you have covered the bases, make the decision and do it. Sound familiar?
Best wishes and we know that you will make a good decision. Trust yourself .
Ted
Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 7/13/2009 8:03 PM (GMT -6)   
I am very impatient but I would go for a second opinion (soon). I sit here wondering why the XXXX the doctor didn't tell you about the margins. I specifically asked my doctor if margins were clear and he said yes. It is time you moved on to greener pastures. I think I would say that doctor had peformed the last DRE on you!
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


CapnLarry
Regular Member


Date Joined Apr 2009
Total Posts : 75
   Posted 7/13/2009 8:13 PM (GMT -6)   
I don't know whether it helps, but I suspect that his focus on PSA of 0.5 comes from www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed&pubmedid=17513807. Note that the nomogram (figure 3) is wrong. The corrected nomogram can be found at jco.ascopubs.org/cgi/content/full/25/26/4153.

The net of this is that with respect to PSA, lower is better, but 0.5 isn't a cliff that you fall off of.
Larry Shick
Personal homepage incl. PCa story: www.sv-moira.com.
01/09: Diagnosed (age 60) biopsy PSA 4.4, free PSA 9%, T2c stage, Gleason 7 (3+4), 7 of 14 cores; 6'2", 200 lbs.
03/09: Robotic surgery (Dr. Kawachi, City of Hope) 47 gms, 10% involved, staging/Gleason unchanged (pT2cNXMX), margins clear, no ECE/sem ves involvement, fully continent from day 1, some success w/Viagra 50mg/day.
Followup: 05/09 0.006


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/13/2009 9:31 PM (GMT -6)   
Thanks for the replies above this post, all sounds like good advice to add to the pile. I asked the new dr. today, what if I wait another 3 months or even 6 months and the PSA never rose any more or just barely moved upward? He said they wouldn't make any difference, because it would still keep going up at some point, and it might make a big jump in the future. Not even sure how factual that statement really is. Hard to be trusting right now, and I am probably the most compliant patient you will ever meet. But now?

I also asked him, that what if I chose to do absolutely nothing, no further treatment or testing, what would happen. He said that with a slower velocity case, might make it 10 years, or with a faster velocity rate like I have exhibited, 5 years or so. I don't know if I should believe that literally either.

Actually sitting here this evening more confused than anything.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/13/2009 9:34 PM (GMT -6)   
I think you are correct in feeling rushed. I have not found any studies that can really tell us how fast these things grow, and apparently it is different for each Gleason type, patient, etc.

I think a deep breath is in order. A second opinion, including a second or third pathology opinion would also be good things. We have all watched PSA's rise and fall. Lab variances, body chemistry, stress, etc. can all effect PSA, particularly at that low level.

Some rad oncs might even want to do HT beforehand. I keep saying here that it is what it is. Don't do something you don't feel convinced it is the right thing to do. Let your research, medical advisors, and your heart let you know when it is right. A spouse certainly has a big say also.

You appear to be a man who thinks deeply, and has a great understanding of the subject. Walk, don't run. Things will work out.

God bless you.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/13/2009 9:38 PM (GMT -6)   
goodlife, you bring up some of my very thoughts and concerns in the matter. I don't want to be rushed into making another major treatment choice, based what is still a small trace amount of post surgery PSA. It may be the start of something very bad, and will keep rising and rising, but what if it doesn't, or if it holds steady, etc.

thanks for the advice
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 370
   Posted 7/13/2009 10:50 PM (GMT -6)   
Purgatory,
     I guess I have no business posting here on your problems, since so far my post-op PSA has remained  at 0   but i feel  somewhat burned since my ED issues, trimix for sex, are much more severe than yours. Nonetheless, if my PSA starts rising tomorrow  I'm gonna wait awhile and talk to a couple other radiaton guys about when to begin radiation and if I need HT with it. At .11 it seems like it would take awhile to get to .5. See a couple of more specialists in your area before starting the process. Down the road you'll feel you did all you could to make the right decision on this call.........
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/13/2009 10:51 PM (GMT -6)   
Hi I am no expert but looking at your last 3 PSA readings have you thought about having another one done sooner than later it might show if one of the 2 last result were a blip it might also give you an idea about the velocity of your PSA and point you in the correct direction


 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 

Post Edited (Colin45) : 7/13/2009 11:05:28 PM (GMT-6)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/13/2009 11:09 PM (GMT -6)   
Hi David,
 
I think a key factor here is for you to decide whether or not you actually have a biochemical recurrence following surgery.  This is a tough decision as you've mentioned.  The literature is not perfectly clear on this topic. 
 
Experts look at PSA doubling time and PSA levels.  Some believe that follow-up therapy should occur when the post-surgery PSA reaches 0.1.  Others prefer to wait for the PSA to rise above 0.2.  Still others wait until 0.4.
 
Here is one article I have been reading lately at a government site:
 
The Impact of Definitions of Failure on the Interpretation of Biochemical Recurrence Following Treatment of Clinically Localized Prostate Cancer
 
I hope this helps.  I have found no expert or surgeon in the literature yet, who wants the PSA level to progress beyond 0.5 before considering follow-up treatment.
 
I also found this article at the link below that looks like pretty good news for people chosing radiation in conjunction with biochemical recurrence following surgery:
 
Radiation therapy prolongs life in men with recurrent prostate cancer
 
I wish you the best in your decision making, David.
 
Barry
 
 


Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/13/2009 11:21 PM (GMT -6)   
David,
The second opinion thing is golden. You need it for the pathology and the direction. That stated, your have time, but you know you likely have a relapse. 0.2 is standard for proclaiming a relapse. But so is three consecutive rises in PSA by some doctors. You have time enough to get those seconds and watch the PSA. Ask for another test frequently.

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/14/2009 12:15 AM (GMT -6)   
A lot of wisdom in Mr. T's post. -- Barry

Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/14/2009 1:08 AM (GMT -6)   
I had a very silar history. PSA rose to 0.1 at 8 months. I waited another 2 and had another test. It was 0.17. I called my Onc, spoke to two radiation soca and my surgeon. The Onc recommended a retest in three weeks, all others recommended radiation. One of the radiation docs from MSK advised HT. I retested in three weeks and PSA jumped to 0.27. Doubling te changed from 3 months to 1.5. I have started HT and will begin radiation soon. Bottom line - get more opinions, do more tests, but be ready to make a quick decision if test show rise in PSA.

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, IMRT to start mid-Aug


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 7/14/2009 6:51 AM (GMT -6)   
David, everyone here has given the best advise I have ever read and I can't add anything different. Only thing I can tell you is with your young age, don't wait too long and loose the opportunity for a cure. That 0.5 marker is just that history shows a decline in effectiveness of radiation after that level. You do have some time to think it over, it is a big decision and one that you will need to get your head around.

As with the surgery, make your choice and don't look back. Sometimes it isn't doing the right thing...it's doing what is right.

Take care,
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month April 2009 .06


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 7/14/2009 7:01 AM (GMT -6)   
Hi David,
I am sorry to hear about this! I would be upset also and would want an explanation. As to the psa My Doc deemed mine a recurrence with 3 rises and It reached .1. I did not have any complication with my SRT other than a little tiredness into a few weeks. I worked thru mine except for a couple of weeks at Christmas. I had good results also, <0.04 and will recheck in November. I know all this is hard but I know you will make the right decision. BTW a belated Happy Birthday!! Good luck and I will be thinking of you. God Bless.

David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09 YEA!
05/14/09
1st PSA after Salvage RT <0.04..... Another YEA!


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 7/14/2009 7:22 AM (GMT -6)   

Dear Purgatory,

I was in a similar situation as you can see from my signature.  When my PSA hit .09 I decided to give it three more months to make any decisions. I consulted with a Rad Onc just in case.  It was a tough wait for me and unfortunately my PSA did rise and I opted for salvage radiation.  I  had a positive margin .  You are still undetectable and if you can wait three more months to see if it rises you still have plenty of time to make a decision if need be.  Just a thought.


Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 7/14/2009 7:42 AM (GMT -6)   
Greetings, David.  Reading down through the messages it seems like there is a lot of good advice.  We often say to take a step back and take a deep breath and take the time to consider all your choices.  While it does seem you are most likely headed for salvage radiation, it does seem that you have time to find the right doc's and the right place to do it and to get a second opinion on what you need to do.  In the meantime you will have another 90 day PSA test and you can see if you are hanging around .11 or if it continues to rise and at what pace and that will help you decide just how quickly you may need to move.  Hang in there, brother.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/14/2009 7:58 AM (GMT -6)   
From reading the posts above this post, getting all kinds of good answers and suggestions, all of them good and sound.

My gut feeling this morning is to wait for the next schedule PSA in Mid-September, that is only 2 months from now. At that point in time, see where the PSA is, using the current PSA of .11 as the bench mark.

I already know the Radiation people will work with me, already know the clinic and the doctor from the past, and already know the insurance will pay for it.

At .11, I don't believe I would lose any window of opportunity in two months. I am not much of a gambler in life, so I don't feel it's too much of a risk.

If I decide this route and it pisses off the Rad. dr, then I am talking to the wrong doctor.
This is my current thinking as of this morning.

David in SC

And thanks again, this is one of these times where good team work from the gang really helps. I certainly don't have all the answers.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 7/14/2009 9:51 AM (GMT -6)   
David

I too had a simular situation as my PSA returned at about 9 months after surgery. They checked me every couple of months at that stage and after validating the continue rise we moved on to radiation about 6 months after seeing the first return. My numbers were going up rather quickly from <.1 to .2 to . 3 and when I started radiation mine had reached .42. The feeling at the time was there was a cell or two that survied and they would be in the Prostate bed area. To date and it's now been over a year since radiation was completed but all looks good yet with my PSA dropping below .1 right away and now <.06 which is as low as their equipment can read.
I would lean towards your plan of waiting for your September appointment and see what that brings. If it is on a continuing rise a trip to your radiation specialist would begin to make sense.

Good Luck
Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
October 9, 2008 PSA <.06 or as low as my clinic can read.
March 17, 2009 PSA <.06 still as low as my clinic can read.
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/14/2009 10:05 AM (GMT -6)   
Norskie, that is my prevailing feeling as of this morning. Not into denial, just want to slow the pace down and make sure I need to use my second line of defense, Salavage Radiation.

Glad to hear you are doing so well after yours.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 5:34 PM (GMT -6)
There are a total of 2,953,347 posts in 323,994 threads.
View Active Threads


Who's Online
This forum has 162072 registered members. Please welcome our newest member, iamakitchensink.
436 Guest(s), 8 Registered Member(s) are currently online.  Details
Psilociraptor, logoslidat, 73monte, cvc, Imbeccak, Busted1, SueCAll, Jack & Diane