Welcome to the Peyronie's Club! We are a small group I guess given the number of postings. I too have Peyronies, mine developed after doing trimix injections for about
six months. My urologist/surgeon wasn't very helpful at all on this issue, He said there wasn't much I could do about
Isn't that great. He did tell me to take Vitamin E, which I have. I also added l-arginine which I saw on a Peyronie's website somewhere.
The other thing I did to try and help this problem is purchase a Quick Extender pro traction device. The device is recommended by the Chicago Urology Institute, a reputable clinic. This is a light weight metal brace with springs on it that puts your penis in a stretched position when wearing it. Some guys use this device to make their penis longer, all I want it to do is make it straighter. You wear the brace and tilt your penis in the direction opposite the curve you have by pulling on the plastic tubes. I wear it all day long, taking it off only when sleeping, exercising, or going to the bathroom. I've worn it for over a month now. At first it does take some patience to get used to wearing it, it doesn't really hurt but is awkward at times when sitting and going into standing. I don't remember now that I'm wearing it most of the time. The doctors say you have to wear this thing 8 hours/day for up to 8 months to get rid of most of your curvature.
The question is of course does it work? I dunno, my penis may be slightly straighter than it was a month ago. It certainly isn't curving more and more like it seemed to be before I started wearing the device. I do notice that when having sex with wife that my penis is easier to straighten for penetration than it was before so I think the scar tissue from the Peyronies Disease is looser. I will continue to wear it because, frankly what else can I do? Like you said the vitamins may or may not help. In theory this device should work, anyone who has seen those African girls with long necks from the rings knows you can stretch tissue. I also only inject trimix once/wk now to minimize further scarring, using the lowest possible dose to get a penetrable erection. I supposse I should quit using the trimix altogether but then no sex at all would really suck. If after 2 years from surgery I haven't improved anymore I will seriously investigate getting a penile implant.
my age=52 when all this happened,
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains, still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now