That was a good and helpful posting there, one worth saving and remembering.
It is an important point, we with PC are not victims, we may be patients, but not victims. We have to be pro-active at every stage, including pre-dx, dx, treatment choices, recovery from treatment, post treatment issues, and even salvage treatments if ever needed.
Being married to a nurse, I understand what it means to be a compliant patient. There are those that go to doctors, get good advice, treatment options, meds, etc, and the like mules, refuse to listen to sound advice. They get charted simply as AMA, against medical advice, and the doctor moves onto the next paitent. My own 81 year mother is in this category, and it makes it hard for any of us to work with her.
For those new to all of this, the doctors, specialists, treatment centers, hospitals, etc, are suppose to be working for you, you and/or your insurance is paying for it. Get the best doctors, the most experienced ones you can find and that your coverage or resources can afford.
And most importantly, constantly ask questions, no matter how silly you think they might sound. Doctor's aren'ts gods, they put his/her pants on the same as you. Take a note book with your questions all in order. Write down the answers. Bring a mini recorder with you, and tell the doctor you want to tape the conversation for your own use. Ask, ask, ask, until you are completely sure you understand. Bring someone with you, if you are not good at this part, doesn't hurt to have a second set of ears and eyes.
A good doctor will never be offended if you seek a second or third opinion, and often will even reccomend it.
As far as getting info off the net like we all do, or we wouldn't even be here, is to remember everything you see or read isn't 100% accurate or factual, no matter what "big" name is behind it. There is a lot of dilution and deception on the net. I use the information I find on the net to cross check things that my doctors tell me. More often than not, the information is the same, especially if you use doctors that really keep up in their field.
When you have cancer, any kind of cancer, you have to get the mind set that you are #1 perhaps for the first time in your life, you have to watch out for you first. I know that my wife of 35 years loves me 100% and that as a nurse she has a good general understanding of my situation, but she would be the first to admit that she doesn't know 1% what I have learned about
prostate cancer in the past 18 months or so.
Be pro-active, newly dx. brothers of the PC, its your life and your body, and your peace of mind.
David in SC
57, 56 at DX, PSA
7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes
First PSA Post Surgery 2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions