It's been six months to the day that I finally came off my nightmare world of 5 catheters after surgery. My stream at best has been no more than 40-50% pre-surgery. By the end of a busy day peeing, I hurt a lot up there on a good day. The doctor who did the corrective surgery thing on Jan. 13th, said he was afraid to open it up much more, for fear of leaving me incontinent for good.
Since Thursday morning, I feel like the flow is now 50% of the 50%, every pee hurts any where from a 2 on the pain chart to a 6 or so. When I woke this morning, after not peeing at all for 8 hours, I was certain that I couldn't pee at all despite the pressure in my bladder. Took me 3 painful attempts to empty that.
My doctor does come to his sattelite office right up the road from me on Mondays, might have to call and see if he can squeeze me in somehow. I am so afraid of another complete blockage and ending up in the ER with a painful catheter insertion after all this time. I am wondering if the scarring is starting to cause problems again.
I hate all of this, seems to be no real end to the suffering and torment. I write this aching up high in the bladder neck area where all the trouble started. It's going to be a long night I am afraid, just don't want to end up in the ER, they so botched it that time before.
a very sore David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes
First PSA Post Surgery 2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions