So afraid I am starting to block up again

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/19/2009 6:10 PM (GMT -7)   
It's been six months to the day that I finally came off my nightmare world of 5 catheters after surgery.  My stream at best has been no more than 40-50% pre-surgery.  By the end of a busy day peeing, I hurt a lot up there on a good day.  The doctor who did the corrective surgery thing on Jan. 13th, said he was afraid to open it up much more, for fear of leaving me incontinent for good.
 
Since Thursday morning, I feel like the flow is now 50% of the 50%, every pee hurts any where from a 2 on the pain chart to a 6 or so.  When I woke this morning, after not peeing at all for 8 hours, I was certain that I couldn't pee at all despite the pressure in my bladder.  Took me 3 painful attempts to empty that.
 
My doctor does come to his sattelite office right up the road from me on Mondays, might have to call and see if he can squeeze me in somehow.  I am so afraid of another complete blockage and ending up in the ER with a painful catheter insertion after all this time.  I am wondering if the scarring is starting to cause problems again.
 
I hate all of this, seems to be no real end to the suffering and torment.  I write this aching up high in the bladder neck area where all the trouble started.  It's going to be a long night I am afraid, just don't want to end up in the ER, they so botched it that time before.
 
a very sore David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/19/2009 6:51 PM (GMT -7)   
Sorry to hear all this, David, in the midst of the other decisions your pondering.

I hope you get some relief very soon!

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/19/2009 7:04 PM (GMT -7)   
David,

Hang in there. I wish there was something I could do to help, but afraid thers's not much we can do but say a prayer .
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/19/2009 7:15 PM (GMT -7)   
Thank you.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 7/19/2009 7:36 PM (GMT -7)   
David, I hate to hear more bad news coming from you. You sure don't deserve any more worries and problems. I hope this new bladder problems can be cleared up without any surgery or side effects. Good luck buddy.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 694
   Posted 7/19/2009 8:36 PM (GMT -7)   
David, all good thoughts coming your way. Hope you get some relief soon.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/19/2009 8:53 PM (GMT -7)   
Hey David, rotten news.

My father-in-law had some major pee issues and he had a very narrow diameter catheter which he was able to insert himself and drain his bladder.

He did this for a number of months --- perhaps over a year ---- when he needed to. This gave his system time to heal/adjust, and in the end he didn't need to do this anymore.

Don't know if it would work for you, but he found it an easy thing. No big deal. Slide it in, pee, slide it out. And, of course, keep it all sterile.

Best, Sleepless, AKA Sheldon
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/19/2009 9:01 PM (GMT -7)   
Hi David,
 
Sorry to hear about your little setback. Hopefully the Doc will fix you up on Monday. Hoping and keeping my fingers X'd that this is only a little blurb in your recovery.
All the best to you my friend.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05; 17 July 09=<0.04


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 369
   Posted 7/19/2009 9:11 PM (GMT -7)   
Best of luck to you. With all you've been through you have more courage than most of us here. You have a steel will to continue on, here's hoping the catheterization goes easy tomorrow.
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 7/20/2009 3:51 AM (GMT -7)   
Now isn't that just what you need right now. Sorry to hear of this bit of extra trouble David but hopefully your doc will squeeze you in and pin point the trouble or, at least give some relief. Hope you have a reasonable night mate,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4019
   Posted 7/20/2009 4:16 AM (GMT -7)   
David:
 
I'm really sorry to hear about your latest troubles.  Hopefully you will get an early appointment with the doc and he will find an easy fix.
 
I know many of us will check back today to get your update.
 
Tudpock
Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 7/20/2009 4:19 AM (GMT -7)   
David,
 
The Doc better see you today! Hopefully, in the S/term he can prescribe something. However, it does sound like the scar tissue may have something to do with this.
 
I am sorry that you are having this recurrence and hope that it can be fixed easily.
 
JoeyG
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 5:13 AM (GMT -7)   
Monday Morning 0800 - longest period of sleep I got was 4 hours, my bladder was full of course when I woke up a while ago. It took me over 25 minutes spread out over 4 to 5 trips to the toilet to painfully squeeze out what I could. Then, almost embarrassed to say, I put on a Depends pullup for the first time in 5 months, that way as I was walking around the house, I could let gravity do its job, and I am purposely wetting if I feel the urge. Any thing is better than that feeling of blockage, the sharp radiating pains coming up my back as I write here. The dr. office will be open in minutes, I am hoping they will see me asap, as I feel this is an urgent situation, my dr. will be there and he knows the complication from his own surgery on me. It was a miracle we didn't end up in the ER yesterday. It was a painful miserable weekend, I felt so sorry for my wife, because she wasn't able to enjoy her self after working a hard week. I feel guilty for that. Will update later.

But thanks again for all the support.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 5:20 AM (GMT -7)   
0815 - got through to dr office, they said as soon as he walks in the door, they will call me back and tell me when to go there. I live like 3-4 blocks from his office so wont be a long drive.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


london2000
Regular Member


Date Joined Jun 2009
Total Posts : 36
   Posted 7/20/2009 5:27 AM (GMT -7)   
Hi David, So sorry to read of all your problems. My thoughts are with you and I hope your next post will bring better news.

Take care, Roger
Diagnosed with PCa in April 09, aged 59. PSA 9.5 ng/mL, Gleason 3+3, 3/8 cores positive on biopsy.

Had laparoscopic radical prostatectomy in 21 May 09. Histopathology raised Gleason score to 3+4 but cancer confined to capsule with surgical margins being negative. Stage T2c. Nerves spared.

Catheter removed on 4 June 09. Currently coping with incontinence issues, but making progress!


Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 7/20/2009 6:06 AM (GMT -7)   
David,

Sorry to hear that you are experiencing such discomfort. Has your doctor determined whether you would be a candidate for AUS implant?

Wigs
Diagnosed @ age 47 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 6:23 AM (GMT -7)   
Thanks Roger. And Wigs, I am 100% dry and have been for some month, this has to do with surgical complications at the bladder neck, been trouble from day one.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 6:25 AM (GMT -7)   
UPDATE: dr. is going to see me at 1:30, they are going to fit me in, but he wants to do a scope on me, was afraid of that, guess he needs to see what is blocking or narrowing at the bladder neck to urethra connection. Won't even be surprised if I leave his office wearing a catheter. Right now, I need some relief from the pain and suffering.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 7/20/2009 6:32 AM (GMT -7)   
Hi david,
Sorry to hear about your urinary problems. I was half way through IMRT when I had a serious bladder neck constriction and I could not urinate at all. It was indeed a very painful experience. The Dr. put me on Flomax and it cleared up the problem almost immediatly. I also know of a guy at the cancer center who uses a dialator every day for relief. Might be better than the cath. Ask your Dr. about that. I don't know if this will be of any help to you. Hang in there. This PC is an ugly beast sometimes.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 7:18 AM (GMT -7)   
Thanks bootheel, what is the dialator? haven't heard of that. just watching the hours go by till i get into the dr's office.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 7/20/2009 8:07 AM (GMT -7)   
Dear David,
From what I was told, it is a flexible rubber tube you insert with a little KY jelly until it passes the restriction. That's about all I know. I'm sure most Uro's will know about it. They are available at pharmacies. It won't hurt to ask. it sure would be easier than a Catheter.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/20/2009 8:15 AM (GMT -7)   
Hi David,

The loud noise you hear from the north-north-west is me cheering you on from up here in Canada.

Best, Sheldon, AkA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/20/2009 8:40 AM (GMT -7)   
Hi David,
I took the weekend off from the net, so I didn't see your posts...And now that I'm back, I wished I had found better news for you. I, too, am sending prayers of hope for you, and I am awaiting your doctors assessment...

Tony


 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 7/20/2009 10:14:31 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 7/20/2009 9:12 AM (GMT -7)   
Thanks, Tony

Another 90 mins. to the appt., then no telling how long I will have to wait for some relief. For someone that has never had an urinary blockage going on, no way to discribe how much it can hurt, and for how long it can hurt. Keep trying to distract myself doing busy things. Right now, even the smallest amount of pee cause severe pain as it tries to force its way through whatever is blocking it. Makes me wonder if a piece of something came loose, as I was fine even as late as Wednesday night, then as soon as I woke up Thursday, been going downhill ever since. Hope for once its an easy answer. I would beg for a catheter right now, if it meant relieving the pressure and pain.

David
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 7/20/2009 9:16 AM (GMT -7)   
David:

I’m sure every problem is different. However, here is what was done for a stricture caused by my IMRT. This took place about 19 months ago:

1. Dilation followed by three weeks in a Foley. As you know, no fun and inconvenient, but most activates are possible (sometimes with a bit of pain) if not over done.
2. After the Foley was removed I was shown how to perform clean intermittent self-catheterization (CISC). The reason for the CISC was to keep things open over time. CISC entails washing your hands carefully, washing a catheter carefully, lubricating the catheter, cleaning the end of your penis, inserting the catheter until there is some flow and then leaving it in for 30 seconds or so. No big deal.
3. My CISC program started at 3 times a day for a few weeks, 2 times a day for the next few weeks then once a day. I did the once a day for about 6 weeks, the a few times a week…ect. Now I do it once a week. So far so good.

In my case the CISC was done to ensure the urethra stayed open, not to specifically drain the bladder. Also, in my case, CISC is done after urinating so it also works as a check to see if the bladder is draining well. If/when it gets to the point where it starts to be difficult to insert the catheter, I’m supposed to contact my Uro.

I don’t know if something like this is possible after your Uro has already cut the stricture once. But it might be worth asking about.

Best
@ 53 yrs PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72
PSA 12/08 - 1.06
PSA 6/09 - 1.02

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