Cause of burning solved

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 7/20/2009 5:04 PM (GMT -6)   
 Hi All,
 
Well just got back from the urologist and they finally found the reason for the constant burning.  Appartenly, I have a stone in the prostate bed that is adhered to something like a stitch or staple from the surgery.  He was able to remove some with the Cystascope but could not break it off whatever it is stuck to.  He said he had enough to biopsy and he is going to contact my surgeon today to find out what materials they used in the operation.  He said it could be removed but requires hospitalization and sometimes after removal it can caused leakage.  That is the one think I do not have and really do not want to start that again.  He said sometimes they do nothing if I can tolerate the burning however, if I required raditation for my rising PSA it could not be done until the stone was removed.  So I guess I do not have much choice.  My uroligist said the surgery would have to be done by my surgeon he wants no part of it and I need to contact him as soon as possible to make an appointment.  Everything is a rush with these guys.
 
Has anyone every heard of this or had anything similar? 
 
Jerry1
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  3+3= 6 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA <0.1
new gleason score of 4=4
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/20/2009 5:14 PM (GMT -6)   
I would gues the stone is actually in your uretha, or bladder, other wise cystoscope could not touch it. I have had stones and they do burn. My uro used a tool that crushed it in my kidney, so I am not sure why he couldn't do it in the bladder or urethra. Maybe pain of the procedure is part of it.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/20/2009 5:18 PM (GMT -6)   
Jerry, I guess your stone is your special torture, but I am glad you got an answer going, that's always a step in the right direction. Hope you get some relief soon.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 7/20/2009 5:45 PM (GMT -6)   
 
Goodlife,
 
Appartently because it is attached to something it would keep coming back until they remove the source.  At least that is what they said.
 
Jerry1
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  3+3= 6 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA <0.1
new gleason score of 4=4
 


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 7/20/2009 9:35 PM (GMT -6)   

Hi Jerry1,

Any chance of using ultrasound to blast the stone, then flushing out fragments with saline?  I would think that anesthesia would be needed.  Just a thought.  I believe that they use ultrasound for kidney stones.

Gene in Md


Hopeful in MD
Age 69.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six biopsies positive. Gleason: 6 (3+3). Seed implants Iodine 125 Jan 08. PSA's 3.9, 1.7 after implants. Rising PSA's: 2.3, 3.4, 3.9, indicating  seed therapy not working.  April 2009 began hormone injection therapy with Lupron 30 MG ea. 4 mos.   So far so good. Slight fever and aches 2nd day after shot. Buttock soreness 2-3 days.  June - hot flashes.  Lot of fatigue cause unknown.  Oncologist says Lupron not the cause.  I wonder. 
 
Oncologist Jun 17.  DRE negative for nodules - hooray!  
 
Began seeing psychologist Jun 4 for anxiety and depression (Lupron?).  Anxiety from serious IBS (irritable bowel) probs.  Doctor using hypno-therapy for the IBS - talk therapy for anxiety.  Taking Celexa for anxiety-depression.   Recommend anyone having difficulty coping with PC or other chronic conditions etc. get professional help. 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/20/2009 10:21 PM (GMT -6)   
The normal ultrasound treatment needs to have the kidney next to the source of sound. Used to put you in water, now they put pads up next to the kidney. Probably won't work like the kidney procedure.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)

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