Waiting on the Robot

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lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted Yesterday 12:37 PM (GMT -6)   
A man on another forum I have been reading recommended this site. So this is my first post here. I've included my info below. I would like to hear from anyone that has had one of the nerve bundles removed during surgery.
 
I've been told that they may need to do this during my upcoming surgery since I have 4+3 Gleasons which is considered borderline aggressive.
 
In particular I'm curious how sexual functioning worked for you with just one nerve bundle? Did it take some time? Did the magic pills help or did you have to use injections?

Of course I won't know the full extent of possible nerve sparing until my actual surgery but just trying to prepare my mind for the different outcomes.
 
 

Age at diagnosis 54, PSA 6.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7
              2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery Scheduled 08/12/09 at Vanderbilt, Nashville TN. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Yesterday 12:44 PM (GMT -6)   
welcome lew,

glad you got led here, great place to be if you have to deal with PC, many great men and some of their wives too.

i had similar stats to you starting out, though with much higher and fast moving psa score. i had open surgery, left side nerve bundle was removed, the right side was left untouched but noted "damaged" on the surgical report.

i am in a rare group here, with one bundle intact, i have had no ED problem, not saying it to brag by any means, just real fortunate, but to give hope that each of us is different and how our bodies respond. there are men here with both nerves saved, and having serious ed problems way out from surgery.

now i was also on a catheter for 63 days after surgery due to complications, perhaps it allowed that part of me to heal easier, thus avoiding the ed issue, not even my surgeon is sure.

please keep us posted of your case, and again, welcome to the brotherhood of pc

david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted Yesterday 1:20 PM (GMT -6)   
Prior to surgery my urologist told me that, based on the DRE and biopsy, he expected to have to take the right hand bundle. Afterwords he reported that both sides had been spared. The Moral: Don't go counting your nerves before they are hacked.

Hoping for all the best for you.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0


Kark60
Regular Member


Date Joined Jun 2008
Total Posts : 91
   Posted Yesterday 3:27 PM (GMT -6)   
I had the left nerve bundle removed and the right spared. It took about nine months before I had a usable erection with medication and the pump. However, at this point (about 14 months post-surgery), I am getting EXCELLENT results with either 100 mg of Viagra or 20 mg of Cialis, and a "usable result" with no medications, though not as firm or long-lasting.

My surgeon told me much of it has to do with the "quality" of erections prior to surgery. I also recommend using the pump for rehab to get the blood flowing and invigorate the tissues well before anything usable is happening.
Husband and father of two (current ages 5 and 7).
Age when diagnosed: 47 (currently 48)
Pre-surgery PSA: 13.7
Pre-surgery Gleason: 4+3=7
CT Scan, Bone Scan, PET Scan: Clear
Robotic Surgery on May 28, 2008, at Barnes Hospital in St. Louis.
Right nerve bundle spared; left bundle removed.
POST-SURGERY PATH REPORT:
Gleason: 4+3=7
Involved 10% of prostate; all quadrants involved
Extraprostatic extension at left base and apex
Extensive perineurual invasion present.
Bladder neck, lymphvasular space, seminal vesicles, 17 examined lymph nodes, and all surgical margins FREE of tumor.
T3a
Four-week post-surgical PSA = 0.1
Seven-week post-surgical PSA = .01
October 2008 PSA = 0.0
January 2009 PSA = 0.0
April 2009 PSA = 0.0
July 2009 PSA = 0.0
Next PSA scheduled for October 2009.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Yesterday 4:45 PM (GMT -6)   
kark, i think one's pre PC sexual condition does play a bigger role than we like to think. for myself, never had an issue even at age 56 at my dx. if anything, i had the opposite problem, for years plagued with very delayed ejaculation or never at all. had the ability to stay errect but not always to complete the act for my own pleasure. was even that way when i was a young sailor overseas in all the wrong places, lol. point being, if you had issues before, they are not going to become better as a general rule after one's pc primary treatment.

david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted Today 7:54 AM (GMT -6)   

Cark60....

Thanks for your response and also the others. You gave me the type of info I was looking for.

I filled out a questionaire at the consult with Doctor before surgery on current erection quality and I've not had any problems there so of course hoping for the best as we all do!

I would rather now the as much before my surgery as possible and deal with it in my mind now rather then later.

Larry (lewvino)

 

 

 


Age at diagnosis 54, PSA 6.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7
              2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery Scheduled 08/12/09 at Vanderbilt, Nashville TN. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Today 9:15 AM (GMT -6)   
Larry, the logic is in the right order. You don't want any surprises of major information after the fact. That's why we try to learn all we can ahead of time, the good and the bad, all possibilities, so that if something goes different or wrong, we are at least mentally prepared to deal with it, and won't have to make future decisions completely off guard.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 

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