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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/25/2009 10:43 AM (GMT -6)   
Well its been 5 days now since I had my total urinary blockage, where the doctor had to scope me, and dialate me, and re-cath me for the first time in six months.  I would have never guessed that I would be in this horrible situation again.  Still having periodic amounts of sharp pain through the penis  (to be expected of course after the dialation process), been passing small bloody clots of various sizes through the catheter.  Even though I was on one for so long before, I forgot blissfully some of the misery of being on a cath.  I experienced 2 - 4 sharp bladder spasms a day, least this time I know that despite the pain nothing terrible is happening to me, though it doesn't lessen the pain any.  Dr. doesn't want me on the ditropan for the spasms unless I absolutely have to, because he wasnts the bladder to be as normally active as possible.
 
Big advice tip:  don't try mowing your yard with a walk behind mower while wearing a catheter.  Big mistake yesterday, got about 80% done, and between the sun (about 90f at the time) and the pain below, I was toast the rest of the day.  My bag was filled with blood tinted urine and I learned a new level in pain.  Got cleaned up, took a pain pill, and was just lying down to chill and rest.....and then had endless unexpected company the entire rest of the afternoon!  As soon as one bunch left, another showed up, stayed that way until my wife came home from work.
 
I will have to make myself act like an invalid until this catheter is out and the latest blockage issue is resolved.  At least last time on the cath, I was weak and healing from the surgery, and it was easier to do nothing.  Now, I am use to doing almost everything as normal, and can't because of the cath.  Can't get in the hot tub, or take a sit down bath, and at a time when my winky works fine and is willing and able, can't even think about that part, because I sure don't want the pain of an errection while wearing the catheter.
 
Ah, life keeps getting gooder and gooder as they say down here in the south.
 
David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 7/25/2009 3:52 PM (GMT -6)   

Hi David,

You mentioned in one of your earlier posts about self-cath.  Is that still an option down the road?  Would give you a little more freedom.  I know of some fellas who self cath and it is tolerable.  Get well.  I hope they resolve your problem soon.


Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 7/25/2009 4:23 PM (GMT -6)   
David,
You don't deserve all that is happening to you. You seem to have been put through the grinder. I hope that this is your last catheter and that your pain will be gone forever. Hang in there. God Bless you.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Bilateral 10-20% involved
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/25/2009 6:52 PM (GMT -6)   
boot heel, there's no way i plan to self cath, it would be physically and mentally difficult for me to do that. I want my doctor to get things right on me one way or the other. Plus with this last bockage, even he said there was no way that would have worked.

edc - thanks, yeah, been through my share. The pain part gets old in this game for sure. Well, I know it won't be my last catheter, because whatever is done to me to finish unblocking me in a week in a half or so, i.e. another surgical correction, will involve at least one more catheter to heal up from that, so that will make #7. Thought that was suppos to be some kind of lucky number.

david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 7/26/2009 11:36 PM (GMT -6)   
Boot,

I seriously considered self-cath after having a painful blockage, and even asked for it. But, while lots of people self-cath, they generally push the cath through healthy tissue, whereas I (and many of us) would be pushing through tissue that is not yet fully healed. Such is what my NP pointed out to me, so I put that option aside. And so it wouldn't seem to be an option for Dave either, for now.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09 still undetectable!


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/27/2009 9:41 AM (GMT -6)   
David - I'll be thinking about you. Get better soon.
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