No question is to embarassing after prostate surgey

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engineer55
Regular Member


Date Joined May 2009
Total Posts : 121
   Posted 7/26/2009 5:18 PM (GMT -6)   
OK here we go, I am doing fairly well with incontinence or however it is spelled.  Have a had a little postive movement with sexual function as the doctors like to call it, but if I even start to get hard at all it starts going off like the Bellagio Fountains.  I am still early in the program but is the pee while going  erect a difficult one to  master.  My surgeon warned about this but didn't give much of a solution.
Dx'ed 5/08 one core 2%  out of 12  3+3 gleason
DREs all negative
PSA was in the 3-4 range then jumped to 7
I have the enlarged prostate, on the order of 100cc.  After taking Avodart for 3 months  my
PSA was cut in half.
I did Active S for a year but concluded that I didn't want a life
of biopsies and Uro meetings.
DaVinci on 6/24/09  UCI Med Center  Dr Ahlering, long surgery based on size and location
Final was 5% one side all clear, but had a huge 90 grm prostate
Now we work on pee control, ok at night but sitting is a big problem.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/26/2009 5:42 PM (GMT -6)   
From my experience, this is all part of re-gaining overall urinary function control. It is frustrating, but will get better.

General control can get better as you strengthen your pelvic floor muscles. Like many of us, you will need to learn how gain control all over again and it will be different than before surgery.

I tried doing the Kegel exercises on my own with some success, but not enough. Finally, I obtained a referral to a trained physical therapist associated with a local hospital who used bio-feedback to re-train the pelvic floor properly. The program takes several weeks, but it is well worth it.

After you regain basic control, there are several remedies for the problem you just posted about. One of several pharmaceutical drugs can help. A specific drug is named "Vesicare" that has helped many. Yet, there are several others. An experienced urologist should know about these options.

I hope this helps!

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


CapnLarry
Regular Member


Date Joined Apr 2009
Total Posts : 75
   Posted 7/26/2009 5:55 PM (GMT -6)   
You've probably thought of this, but it helps to piddle before you cuddle.
Larry Shick
Personal homepage incl. PCa story: www.sv-moira.com.
01/09: Diagnosed (age 60) biopsy PSA 4.4, free PSA 9%, T2c stage, Gleason 7 (3+4), 7 of 14 cores; 6'2", 200 lbs.
03/09: Robotic surgery (Dr. Kawachi, City of Hope) 47 gms, 10% involved, staging/Gleason unchanged (pT2cNXMX), margins clear, no ECE/sem ves involvement, fully continent from day 1, some success w/Viagra 50mg/day.
Followup: 05/09 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/26/2009 6:47 PM (GMT -6)   
And stay away from anything carbonated, juices, anything with caffine, these all irratate the bladder and make it harder to stay dry. My doctor was dead on right about this advice. But don't dehydrate yourself, drink plenty of water.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/26/2009 6:55 PM (GMT -6)   
it will almost certainly go away - or diminish to the point where you don't notice it. My Doc told me to JO everyday. If you empty your bladder it will help a lot, but position makes a difference. On your back is best to prevent any leaking. Even now if I don't pee and am standing up, I'll squirt a bit. not enough to matter, tho. Relax. You're normal.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/26/2009 8:11 PM (GMT -6)   
If you really get it hard, a condom will catch a lot of it.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 7/26/2009 10:39 PM (GMT -6)   
Engineer,

You didn't mention this, but I found that the last 5% of erection was associated with sharp pain. Sort of a bummer. It has decreased a lot with time (now at 7 months), but it's still noticeable. Another thing that just gets better, slowly, with time.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09 still undetectable!


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/27/2009 8:27 AM (GMT -6)   
I had the same problem and it went away slowly.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/27/2009 9:14 AM (GMT -6)   
I am working hard to develop the problem ( the rock hard part anyway ). I'll deal with the dribbles/firehose somehow.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/27/2009 9:32 AM (GMT -6)   
At one month post-op I had pretty much this problem although with not much erection. Now it is more in the range of dribbles. This issue seems not to be uncommon but, for most it does subside. Fortunately my wife is good spirited about putting down towels and enjoying my pleasure. She says that after getting squirted in the eye while changing diapers, this is not even interesting.

Remember that walking is one of the best exercises.

P.S. I am working at home this morning and I just realized that I am sitting here with no pad on. I have been at the computer (and up and down) since about 8:00. Progress happens -- have faith.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


RickinDallas
New Member


Date Joined Jul 2009
Total Posts : 6
   Posted 7/27/2009 9:39 AM (GMT -6)   
Four months after RRP, ny erections are so-so on Viagra and better if I add an erection ring. I J/O a lot trying to keep blood re-visiting those two infernal cavernosas. The injections give me a very hard erection, but my penis hurts somewhat because the blood is now flowing all the way through the two chambers after a long time of NOT flowing completely, and I apparently have more nerve damage than most. The pain is not enough to keep me from completion, and I hear what you are saying about the huge ejaculation of urine. I never shot semen like I do the urine now. However, it's good to read what you are saying. My doc says I'm ahead of the curve, and the pain will dissipate with time. My erections are better than many, but I will look forward to the day of not using the erection ring with the Viagra. For now, the injections are good when the spirit moves me. Thanks for your post.
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