mood swings? feeling low

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Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 7/27/2009 7:03 PM (GMT -6)   
Did anyone have problems with anger after surgery feeling low? It has been 7 weeks since my surgery and I started back to work last week One day good the other not so good. I started my 1/4 dose Viagra last week and just received my pump I should be in heaven but not so. I have been really agitated the last few days Stress at home stress at work normal stress. Kids living at home a whole different forum . Everybody has it but I seem to lash out. confused Did anyone else have these problems we do not have hormones do we? It has been so long since the surgery I felt that all this should be past now.
48 yrs old
Robotic RP
6-15 2009
Surviver


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/27/2009 7:13 PM (GMT -6)   
You have been through a lot, so it is not surprising to have depression. Depression sometimes manifests itself with anger.

I have a depression and am taking antidepressants as well as weekly trips to a psycologist. Helps great deal. I recommend a psycologist - they should be able to help figure this out.

Hang in there. Half the battle is recognizing there is a problem.

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/27/2009 8:00 PM (GMT -6)   
Yes, you still do have hormones -- the prostate has nothing to do with those. In addition, your mind and your body have been horribly assaulted. They have sliced you open (even if small slices) sniped out parts of your insides, rearranged the rest, and then stuffed it all back together. You have been given to think about the idea that Cancer = Death Or life-long disability.

I too am taking antidepressants -- hey, if the chemistry of your brain is messed up, you should un-mess it. Professional help is a good thing. Anger -- yeah life has dealt me a bum hand, but I have to learn not to take it out on those closest to me. That is what professional help is for.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/27/2009 8:35 PM (GMT -6)   
I think it is safe to say that most guys who have been through a cancer diagnosis and surgery suffer from depression. Depression is an illness like any other. It doesn't mean you are necessarily feeling depressed, but anger, frustration, sleeping poorly, waking up extremely early in the AM, restlessness are all signs. It is a chemical imbalance brought on by many things, not the least is stress. Gee, sound familiar?

I have often said every diagnosis of cancer should be accompanied by an appointment with a therapist.

It is nothing to be ashamed of. Get going. Call your family doctor. They will be VERY helpful. Many PCa guys are on antidepressants. After any major trauma it is to be expected. You aren't alone.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.
One year PSA - undectable!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/27/2009 9:37 PM (GMT -6)   
Tim, seven weeks isn't long to be from a major life changing surgery like you underwent. It's most common to go through the whole spectrum of emotions: anger, resentment, pain, hate, guilt, etc. I still deal with so of those issues and I am 9 months from surgery. Most times I am alright, a few times I still feel raw and on edge. If you need help or meds to help you ease off a little bit, talk to your doctor or your GP if you have one. Stay in touch with us hear, we are here for you, good times and bad times. Hope you feel better.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/27/2009 9:40 PM (GMT -6)   
I have tried to redirect my "anger" into different emotions. We can all say its not fair that we came down with PC, but then what is fair about any illness? It just is . Nothing I can do about it.

If I can work hard to help others who are going through tough times, if I can work harder at loving my wife, who may also be able to say it's not fair, if I can be a better neighbor, a better friend, a better parent, then maybe this PC can be a positive to those around me.

I have told my friends to hit me up side the hed with a 2 x 4 if I becoime grumpy or whiney, or hard to live with because I think it's not fair.

And yes to anti-depresants if you need them. But try to re-direct these feelings and I think you will begin to feel better !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/27/2009 11:21 PM (GMT -6)   
Timmy: I just had a battle with my wife over whether our daughter's huge dog with garbage dump breath and a need to pant when in the car was going to ride in the back seat huffing all over us, or in the back of her SUV. What you need to understand was the trip was for perhaps ten blocks. Sort of thing that a few weeks ago was no big deal. I'd suck it up and put up with it, as she was. Now, since dancing with daVinci, these sorts of things have become a major issue. I'm about as sweet to live with as an overflowing catheter bag. What I can't figure out is how so many guys here have an ED issue. My ED isn't the issue. My attitude has got me so far in the dog house I could be flagpolling like a boy scout trapped in a girl guide shower and I'd still be sleeping in the guest bedroom.

I don't know if it's depression, or what, but you sound pretty normal to me after what you've been through. And, as the guys say, clinical depression is simply an imbalnce of brain chemicals you can do something about, or rather, your doctor can. Don't be shy about seeking help. Heck, if we're willing to talk to doctors about pumping for Willie, it doesn't seem to be such a big deal to add brain chemistry to the discussion list.

I think there are two huge things in your favor. One is that you can recognize you are low and that your attitude/behavior is the issue, not the events that set you off. As Shakespeare might have observed it then follows as the night the day that having identified the problem you have an excellent chance of solving it. The second is that you've reached out to the members here for advice. You may be a little unhinged, as I suspect we all are, and you may benefit from some brain chemistry help, but all in all I'd say you had reasonably good mental health for a man in our position.

Since starting out on this PCa adventure I've often thought of a visit to the Tower of London and a pub near by called the Drawn and Quartered. On a plaque outside is a quotation from Samuel Pepys, October 13, 1660: "I went to see Major General Harrison hung, drawn, and quartered. He was looking as cheerful as any man could in that condition." I think we are all about as cheerful as we can be in our condition, Timmy. You included.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/28/2009 8:21 AM (GMT -6)   
Tim,
My emotions have been all over the map and will usually hit late in the afternoon as I grow tired. I have lashed out a few times but most of the time I stop and think before I say something that is hurtful. As men no one really gave us a roadmap on how to deal with emotions so anger sometimes is the easiest route, and usually is a secondary emotion. But boy there are some moments when I want to be the old me and the new me has changed and still adjusting to not being 100%. I am working on an "attitude of graditute" and also focusing on the things that bring me joy. Jumping in a cold moutain lake or going for a walk also seems to help. If the Dr. says take medicine,take it and it might just be temporary. Hang in there and focus on the good as much as possible. And when your down, the only thing you can trust is movement, because our thinking becomes distorted. So go do something when it occurs.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when dx
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better
hope to start ed tx 7/17
Michael


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 7/28/2009 8:55 AM (GMT -6)   
Tim,
I had minor depression few weeks after my surgery. With incontinence and ED I felt inferior to all people around. I thought of myself as different. I use to tell my wife that I was a defective product. All of that is behind me now and will be behind you as well. Once you become continent and you solve the ED problems naturally or with medication/pump/injections you will feel normal again. Then all you will worry about is the PSA test.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 7/28/2009 10:31 AM (GMT -6)   
Tim,
I'm glad you posted your question. I've been dealing with the same issues though I'm pre-surgery but coming up fast. It helps just to know that I'm not alone in these at times huge mood swings and feelings. I appreciate the comments that members have posted on dealing with all of our issues that affect us.

Larry
Age at diagnosis 54, PSA 6.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7
              2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery Scheduled 08/12/09 at Vanderbilt, Nashville TN. 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 7/29/2009 9:57 AM (GMT -6)   
Tim,
I am one week post op and quit my vicodin cold turkey two days ago. I too have been having mood swings. I got so mad at this stupid situation I decided I had to "get moving here!" I put on my leg bag for the first time since leaving the hospital and went for a 1 mile walk wearing one pound arm weights for extra effort. I got as far as 1/4 mile and re-checked my plumbing to find the tubing full of old blood and chunks of pasta bits. (Those were pasta bits in there, weren't they?) Rather than leave the gumbo mix and my stomach contents as a donation to the neighborhood deer and horseflies, I turned around and came home for some recreational TV watching.
I knew I was doing something stupid but emotions got the best of me. Thanks for the heads up.
Listen to the experienced guys here. They really know their stuff - unfortunately.
I wish you the best.
Jeff
Today's soup of the day is chicken broth. Whew!
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My doc does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
No pathology report yet.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 7/29/2009 11:16 AM (GMT -6)   
Jeff, that walk wasn't stupid. Walking is what is gonna get all those nasties out of your bladder, so keep at it. Drink lots of water before hand, then walk. If you can find a little private spot to empty the bag during your walk, once you see the after-parts of the surgery in the bag, then drain it out on a tree root or something...lol People will think you are just tieing your shoelace. smilewinkgrin Don't let that junk spook you, its good to get the gunk out...makes healing much easier. Walking or other purposeful activities will give you a sense of purpose and help with the depression. Sitting in the chair and moaning just makes it worse, so I found out, when I had my post-surgery bout of it.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/29/2009 11:34 AM (GMT -6)   
Jeff, James is quite right.
You need to get the gross stuff out of your body, its too bad we have to see stuff like that, but its part of the healing process. The walk taught you an important healing lesson, to listen to your body, on that outing, at 1/4 mile, which I think is great btw, you did the right thing and turn around. Like James said, and I can tell you from long term catheter wearing, you soon become a master of doing a dump outside and no one ever notices. The old kneal down and pretend to tie your shoes. If you are wearing a leg bag, you do not want it to over fill, so if you have to dump it, you dump it. Doesn't bother me a bit knowing that thousands of dogs, squirels, birds, etc are pissing and crapping all over the place. Good luck to you in your recovery.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/29/2009 11:39 AM (GMT -6)   
Special Note to Ed C:

Its funny that you mentioned the term "defective" in referring to yourself. When I am hurting and or depressed about my current plight, I have often told my wife that I don't understand why she wants to hang around me, because I am defective. As a nurse, she sees much worse on a daily patient, including at least 1-3 deaths a week at her facility, so she assures me that I am not.

When you don't pee normal anymore, or have the ED problems that many have here, when you don't have your former energy and endurance, when you have severe mood swings, when you are always fighting psa anixety, etc, it's easy to feel less a man, or at least a normal man. We, myself included, forget about our good traits and attributes. That's when one of my adult children will say something out of the clear blue that lets me know that I am still the same dad in their eye. It's so d*** hard sometime dealing with this hellish PC, but we all do, and we get by day by day by day, and not to sound lame, but life goes on, with or without us.

All we can do is to be thankful for what we do have, work with what we have been given, and do all best in our new altered states because of PC. Easier said than done? Yes, but I try to do that, and I am sure you all do too.

David in SC


Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 7/29/2009 1:18 PM (GMT -6)   
It's a very good question.  I thought I was ready to handle all that they through at me.  I was wrong.  These are the things the doctor told me not to worry about because they only affect a small percent of PCa patients.
  • Surgery was delayed becaused the bone scan found something.
  • Prostate surgery recovery was delayed because I sprung a leak
  • ED problems were no progressing.  At the 18 month mark doctor informs me that he's not supprised as I had lost one set of nerves and the other had been damaged.  News to me.
  • My PSA bumped up for two tests.  It's gone back down thankfully.  They have no idea why it went up.

Two months ago I lost it when the doctors gave me my PSA results and ED news.  With the economy and all, I was already under a lot of stress.  I ended up in hospital and am now seeing a physiatrist.  I'm hoping to have a plan in place for when the next shoe drops.

I have such admirations for those of us who fight on, when they know the light at the end of the tunnel is a train.

Are you ready?


Age: 44 (42 when diagnosed)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
01/2008: Still working on ED.
 
 


Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 7/29/2009 6:08 PM (GMT -6)   
Worried guy I am in awe of you taking that walk. My big walk of the day was walking to get the mail on a short driveway. I remember one day coming to a big ant hill I stared at it for a few minutes and said what the hell and walked around it. Stepping over it was to much. walking they say it is good to do but i did really short jaunts because I did not like the feeling of the cath. The best info I can give you is listen to these guys and ask questions. I did and they helped me as you can see I am new a month or so but these guys have helped me so much. More then any DR has and we d not have to pay them. Ask and Ask some more they have showen me that as all people recover different allot of people have the same problems you have. As you can see I started this topic and I am still struggling but I am working on this with them . By the way I am having soup to day so I think I will just have the sandwich and skip the soup
Timmy
48 yrs old
Robotic RP
6-15 2009
Surviver


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 7/30/2009 6:47 AM (GMT -6)   
Timmy,
I just rolled out of bed and had to check and see how you were doing. There's a spark of that all important humor.
I've got 1500 ml of room temp chicken broth that I would be honored to share it all with members of this esteemed group.
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

Post Edited (Worried Guy) : 8/1/2009 8:55:45 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/30/2009 8:24 AM (GMT -6)   
Timmy and Worried,

You guys are half way home I think. If you both can keep that sense of humor, and learn to just laugh about the crazy things we have to do, or see, or endure, you guys will be fine.

Laughing, even tho it may not be truly funny, is a more pleasant emotion than crying.

Reminds me of a time I was loading some manure into a manure spreader from a local farmer for my garden. Just as I got the bucket up to the edge of the spreader, a huge glob of fresh manure fell off the back of the bucket and hit my foot, which made the bucket go even higher, which in turn made more manure fall on my head, in my lap, and fill the Bobcat cockpit. I distinctly remember sitting there, and telling myself, just laugh, this could only be funny, and after a while, it was funny.

We are all sitting in piles of crap. Some bigger piles than others. If we don't learn how to find some humor in our situations, then crying, anger , and depression are sure to set in.

Good luck guys, and keep on smiling !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 7/30/2009 11:58 AM (GMT -6)   
@goodlife Oh man! Where's a video camera when you need one. That would have easily qualified for AFV any day - at least $10,000 worth.

I just can't help finding the humor in things. Some of the posts here really crack me up. There are some many times during the day I look down and think of an analogy and have no one to share it with. You guys understand perfectly! We are talking about PC but still, you find humor where it is. ...

I'll have to remember your quote: "We're all sitting in piles of crap..." I'm sure it will come in handy. Thanks!
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My doc does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
No pathology report yet.

Post Edited (Worried Guy) : 7/31/2009 2:03:25 AM (GMT-6)


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 7/31/2009 12:13 PM (GMT -6)   
We all process these things differently, and some of us are more seriously ill than others - so there's no one solution that works for everyone.  Some people let the cancer and it's removal dominate their lives and dictate what they do post-surgery, others just get on with their lives and don't pay much attention to what happened.  You're at a point not long after surgery, so don't expect too much too soon - and keep things in perspective.  You're alive - the sex life and normal urinary functions will sort themselves out and are largely out of our control.  And don't read too many sad stories of others - make some good ones for yourself.  Be well.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/1/2009 4:00 PM (GMT -6)   
This is a great post. I followed for a little while before I finally decided to write. Timmy it is absolutely normal to feel stress after a life changing event such as cancer and especially surgery. Not knowing what stress was in your life prior to this I am going to assume there was some. Usually a diagnosis of cancer magnifies what was in your life and then when you include what we feel has been taken away. As time goes on you will find a peace and a level of normalcy even though it will be different. Relationships with our loved ones and with ourselves are being redefined. Give yourself time to adjust and if possible get some exercise. The mood swings will hang around for awhile. I would encourage to think about life and all the positive aspects of it. Trust me Timmy there are more good things than bad.
I could write forever about this topic because peoples feelings and emotions are near and dear to me. For the sake of space and the forum I will keep it short. Please know I, like many here care deeply about you. Hang in there and regardless what you feel please share it with us.

Peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009

cancer in 4 of 6 cores

92%

80%

37%

28%


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 8/1/2009 10:13 PM (GMT -6)   
Timmy,
Yesterday, the LPN at the Uro finalized my divorce from Cathy. I no longer have to make it through the day, putting one foot in front of the other, trying not to step on my tubing.
Soup won't be served at this restaurant any more. All out of gumbo, and chicken broth. Now it's layers of Lasagna. Lots of layers of half cooked lasagna...
Life sure throws some wicked curve-balls . Four months ago I'd never would have believed I'd be doing my own version of "Changing of the Guard" in a porta-john. I seem to find this whole situation strangely funny. Maybe that's is a defense mechanism or I'm just crazy. Who knows.
I do know that if my wife hears me sing "Look at me I'm Walking." one more time, she's going to send me back to the Vet, I mean "Uro", to have my vocal cords modified.
Sleep well,
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

Post Edited (Worried Guy) : 8/5/2009 2:35:50 PM (GMT-6)

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