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Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/30/2009 11:14 AM (GMT -6)   
Hi all just to say that in the end things went well still in hospital I think that I will be allowed home on Saturday the doctor told me that he had a few problems like I lost a lot of blood which we new about the prostate was stuck to the rectum couple of Lymph nodes were found to be enlarged and he took out one of the nerve bundles because they were a little bit hard the surgery took over 5hrs got the lab results back yesterday and according to the doctor the nodes were clear and the cancer was enclosed in the prostate I will know more when I get a copy of the report I hope that it will be in English
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/30/2009 11:27 AM (GMT -6)   
Colin, welcome back, brother, to the other side, you are now on the recovery side, things should only get better. Sounds great that they think the PC was contained to the prostate. Rest well while in the hospital, and take all the meds you need, don't suffer needlessly from pain. Hope to hear again soon on how you are doing. You are through the worse part, get better now.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/30/2009 11:35 AM (GMT -6)   
Thanks David just been catching up on your saga at least I can understand about the catheter know good luck on Monday
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/30/2009 11:52 AM (GMT -6)   
Thank you, Colin. Hope they are treating you well there. Yeah, my never ending saga of being on catheters, perhaps I should write a book about my life with a latex snake.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 7/30/2009 12:02 PM (GMT -6)   
Colin, welcome to the other side. I'm glad to read the initial results are good. I wish you a quick and easy recovery. Now then- like a broken record- start drinking plenty of water to flush out the bits and piece's, the toxins and left over surgery drugs. You got a portable bathroom with you, so don't limit your intake. Secondly, get on your feet as soon as they will allow and start walking. If it's only 10 feet the first time, keep at it. Combine as much walking as you can do with plenty of recliner rest in between. Do more walking each day..As you become more active, your bowels will start functioning well and your urine will turn bloody at times and have chunks of junk and gunk in it. This is normal. Don't panic, its a natural process of healing from your surgery. There's lots of bad stuff in the bladder and forming as part of the healing process, so the urine will be different things different days... smilewinkgrin I hope your recovery speeds right along...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/30/2009 12:11 PM (GMT -6)   
I am grateful for your help and all the others I think that I made the right decision with the help of you all it seem like it might of been a problem operation for Robotics and if I had done A/S I wonder how much more difficult it would have been after having more biopsies done.

On the being looked after front I think that they only train the good looking women over here and you have not had a bed bath until you have had one in this hospital the only pity is that I could not rise to the occasion and to make things better I even got upgraded to a better hospital room for free
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/30/2009 12:21 PM (GMT -6)   
Colin, I wasnt that lucky in the hospital, my wife did all the bed side bath, as a nurse, she kept all the other nurses away from as much as possible. And I thought I was going to be getting 4 days in paradise, lol.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 7/30/2009 12:22 PM (GMT -6)   
Welcome to the other side.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 7/30/2009 12:39 PM (GMT -6)   
Welcome Colin...Yeah those adhesions to the rectal wall from the biopsy can be pretty nasty to work with, regardless of the procedure used. I had adhesions and it took additional time and blood loss as a result. And mine was robotic. So it still is the skill of the surgeon that makes the difference. If it hadn't been for the skill of my surgeon and the willingness to take his time...I could have very easily been dealing with a colon that was resectioned.

Anyway, glad to see you here on the other side and the advice that James gave you is spot on. Take care and let us know how the final path report looks.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/30/2009 1:11 PM (GMT -6)   
Colin, great news, and great to hear from you so prompty. You must have a room with wireless and a laptop with you.

I join the others in welcoming you over from the dark side. Before surgery it's all worries about doing the right thing and just the plain old terror of someone mucking about inside you. Now it's all about recovery. Drink, walk, drink, walk, take your pain meds, drink, walk, drink, walk. And, don't forget the pain meds.

Looking forward to further reports. Soon you'll be in the ED-and-what-do-I-do-about-it club!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/30/2009 3:00 PM (GMT -6)   
Colin
Great news. I think that the bleeding was the biggest worry and now that is over. Given the complexity, going with the more experienced surgeon sure seems like a good choice.

As everyone else has told you, heal well so that you are in shape this fall when it is time to start teaching your boy football.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/30/2009 4:33 PM (GMT -6)   
Keep looking at those nurses. Can't hurt, or should I say it probably won't hurt.

Next big deal is bowel movement, and walking. After that, its on the next obstacle in the course, continence.

Good news, good luck !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/30/2009 6:53 PM (GMT -6)   
Colin, Welcome to the other side. Now is the time to concentrate on healing and getting back to you new life. Good luck welcome to the brotherhood.

JEFF
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/30/2009 7:05 PM (GMT -6)   
Colin --- I forgot. I said walk, I said drink, I said take your pain meds. I forgot THE single most important bit of advice I can give: Don'l under any circumsatnces, no matter what, never, never, sneeze.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/30/2009 7:33 PM (GMT -6)   
It was only after a week that a nurse told me: "If you have to cough or sneeze, wrap your arms around your abdomen first." The same goes for laughing although catheters don't produce a lot of laughs.

Looking forward to when you can hoist a beer to your recovery -- in the mean time I'll hoist two (wife willing) tonight just in your honor.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 7/30/2009 8:37 PM (GMT -6)   
Great news Colin, welcome to the other side

Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/30/2009 9:52 PM (GMT -6)   
Collin, hope you are resting well tonight and without pain.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/30/2009 10:49 PM (GMT -6)   
Hi Colin,

Welcome to the other side of treatment! I hope things continue to go well with you.

Kind regards,

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/30/2009 11:42 PM (GMT -6)   
Colin happy healing.
Now you need to take it easy, and if you feel up to it, short walks increasing daily. Welcome to the other side...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/31/2009 12:42 AM (GMT -6)   
Hi I got the report this morning I do not think that is the same as in the USA I will re-write what I got

1 Lymph nodes (3) left iliac orturator, dissection negative for malignant cells

2 Lymph nodes (3) right iliac orturator, dissection negative for malignant cells

3 Prostate Gland and seminal vesicles, radical prostatectomy Prostatic Adenocarcinoma, Gleason's pattern 3+3 score 6 Glandular Hyperplasia

Commemt: Tumour is noted in 3 of 18 sections of totally submitted prostate gland. Tumor clearly is not close to the prostatic capsule. Prostatictissueat urethral resection margin and seminal vesicles are not involved by tumour
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/31/2009 12:46 AM (GMT -6)   
It is a great report...It says you are likely cancer free...

Very nice...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 7/31/2009 12:47 AM (GMT -6)   
Greetings to all. Found this great forum a few days ago on my 3 week post op anniversary from RALP. I could not be happier with the procedure and doctor. Also happy with the results of the path. report. As a general surgery resident many years ago, I did several radical retropubic prostate removals. Boy! Things have changed! I had one neurovascular bundle spared, and to my pleasant surprise, I am now experiencing some tumescence. Time will tell.
Downside? I have some stretch injury to nerves to right thigh, but this is resolving rapidly. Good luck to all!
70 years old USA citizen
Prostatic carcinoma dxed June 2009 by PSA and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0
Neg. CT and BS
Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland
pT2c G3 pN0 (0/14)
Catheter out in 5 days (home in 3 days)
No incontinence
Potency: beginning tumescence??? at 3 weeks post-op


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 7/31/2009 1:01 AM (GMT -6)   
The trouble being different time zones is that when you wake up you have a lot of questions to answer but here goes sorry if I miss anybody and thanks to all of you

Sleepless The hospital does have wireless but it is a bit expensive for what I want to use it for so I use my mobile linked to the computer


Goodlife Managed to do the BM a couple of times already and can walk with little pain but I have been taken of medication today so I will see if it changes

Geezer the other halve gave me a tip on coughing to breath in deeply and then cough softly she was told that after her C-Section
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/31/2009 9:13 AM (GMT -6)   
Colin
Your pathology report sounds excellent and it seems your systems are returning to normal. I hope you find that the pain meds are no longer necessary. Getting home tomorrow should be really good -- you will still be tired and finding places where you ache a bit, but not being in a hospital is a real psychological plus.

Oh, one cultural question. On leaving the hospital I was told that I should avoid spicy foods for a week or two. We suspected that this was just American cultural bias since spicy food tends to be "foreign." I wonder what they advise in Thailand. (In Thai restaurants we generally ask for nam pla pik on the side)
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads

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