Senator Chris Dodd

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Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 7/31/2009 5:27 PM (GMT -6)   
For those of you who may not have caught the evening news tonight, Senator Chris Dodd has been diagnosed with early stage PCa.  Here is the story from the Washington Post.
 
 
Tudpock
Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/31/2009 5:33 PM (GMT -6)   
Yeah, I saw that and wondered if he'd show up here. Poor guy, I don't suppose he'll have the luxury of recovering out of the spotlight.

I wish him all the best.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


FiftiesMale
Regular Member


Date Joined Mar 2009
Total Posts : 75
   Posted 7/31/2009 5:40 PM (GMT -6)   
I really hate to do this, but I got to edit out your post. The politics of our disease is kept out of the Forums. Rules violations quoted below. Sorry about that...

4. No posts that attack, insult, "flame", defame, or abuse members or non-members. Respect other members of the community and don’t belittle, make fun off, or insult another member or non-member. Decisions about health and well-being are highly personal, individual choices. "Flaming" and insults, however, will not be tolerated. Agree to disagree. This applies to both the forums and chat.

11. No posts of an overtly political or religious nature OR posts promoting advocacy of particular personal, medical, legal, religious, political, or non-profit causes. The forums are intended for offering mutual personal support. Debating controversial subjects should be taken elsewhere. Limited religious references are allowed (ie. "my prayers are with you" or a brief quote as part of a larger post), but the forums should not be used to convert others.

Post Edited By Moderator (James C.) : 7/31/2009 5:41:52 PM (GMT-6)


Piano
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Date Joined Apr 2008
Total Posts : 847
   Posted 7/31/2009 6:00 PM (GMT -6)   
I expect if Senator Dodd does show up here, it won't be under his real name. The beauty of forums such as these is that they allow us to be as anonymous as we please.

If you're already with us Senator, welcome to the club nobody want to join.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/31/2009 6:56 PM (GMT -6)   
Tud, thanks for the story, hadn't heard of it until I read your post. PC gets the rich and the poor, and the unknown and the famous both for sure. Thanks for sharing.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 7/31/2009 7:42 PM (GMT -6)   
I understand his Doctor will be Dr. Scher from Memorial Sloan-Kettering Cancer Center in NYC. Does Dr. Scher perform the robotic surgery?
Age at diagnosis 54, PSA 5.1
Father treated for Prostate Cancer in 1997 with Proton
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7
              2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery Scheduled 08/12/09 at Vanderbilt, Nashville TN. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/31/2009 9:42 PM (GMT -6)   
If it takes a big name, a celebrity, or a politician in this case, then so be it. PC research and treatment improvements have a long way to go. Still baffles me how "dumb" the public is concerning PC and how lucky we are for having the easy cancer, the slow moving cancer, blah blah blah. We know better here.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/31/2009 10:25 PM (GMT -6)   
Well David, I don't consider myself lucky to have PCa, but since my surgery four and a half weeks ago, I've had two friends die of other cancers, one diagnosed in April about the time I was, and the other about the time I had my surgery. All in all, if I've got to have a cancer, this one ain't the worst.

That said, I'd agree that the public is not well informed about PCa. Your point that people in general don't realize just how debilitating PCa can be is an excellent one. And, no matter that we may be doing well at a point in time, the Sword of Damocles is always hanging over our heads. The trick, I think, is to be aware of this, but not let it define who we are, or what we do with our lives. We just happen to know that sword is there. I may have other, far more dangerous swords hanging over me, get whacked by a truck tomorrow, but I don't let that impact the attitude I have today. Nor should I let PCa's possible future control of my life impact my life today.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 8/1/2009 6:09 AM (GMT -6)   
I didn't like his comment in the press conf.  "if you are going to get cancer, this is the one to get" relaying that through surgery you could get rid of it if it's caught early and it is slow growing.  That doesn't help the cause.
 
Too many people think this way now.
diagnosed sept 2006 @ 54 years old, live in Georgia, gleason 3+4=7, (r) lobe only

psa 4.7 (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern. If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006. Path-negative margin, negative lymph nodes, negative SV, both Lobes involved, 40% gland involved
multifocal perineural invasion, Gleason 3+4=7

1st psa April 2007-<0.04, 6 mos-<0.04, 9 mos <0.04, 1yr <0.04, 21 mos <0.04, 2 yr 0.04 (rising?) 26 mos-0.05, 27 mos-0.04, 29 mos 0.06


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/1/2009 7:43 AM (GMT -6)   
We may now have someone to help us with Inusrance issues (ED Meds).  He probably will not have the same issues as us.  Their insurance is primo!
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


offpsa
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 8/1/2009 8:57 AM (GMT -6)   
Chris is stage one, and they do HIFU at Sloane-Kettering (clinical trials) I wonder if goog is busy telling him the wonders of HIFU nono

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 9:08 AM (GMT -6)   
Sheldon, I don't consider any man, woman, or child lucky to have cancer, any kind of cancer. This is my 4th bout with cancer in my life so far. The non-PC cancer I had 3 times, took a total of 5 surgeries, including extensive plastic surgery on my scalp, and 35 days of radiation to bring it under control. It was no fun, no aspect of it.

One reason I was so devastated last fall when I got my PC dx, it was like, come on, haven't I been through enough? Appearently not. So like you, and the rest of the men here with PC, we fight a new fight, day by day, night by night, and try hard to return some semblence of our former lives. All our treatment options come with no guarantees, and as you can seen from hanging around here, side effects vary immensely from person to person.

There is no "good" cancer. Sometimes its just a case of the lesser of two evils. Probably won't see it happen in my lfie time, but perhaps one day in the future, most if not all, forms of cancers can be cured or eradicated.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/1/2009 10:29 AM (GMT -6)   
Hi David,

Your penultimate and prior sentences, "There is no "good" cancer. Sometimes its just a case of the lesser of two evils." is a great insight into the two camps ---- those like Senator Dodd who express some measure of luck in having a not-so-bad cancer, and those who find saying anything good about a cancer abhorrent and yet are able to see that there can be a situation of 'lesser of two evils.'

I think there are those who cope by meeting cancer head on, facing the downsides up front, admitting to the horrible aspects mentally and physically, and then, having slain the dragon try to put it on a shelf and move on. Then there are those who cope by trying to ignore the horrible aspects and then going beyond to say, "boy, am I lucky! Just think if ...." and find the pot of gold at the end of a rainbow they construct.

The first camp, the realists, find the second camp, the positive spin people, to be a problem. To them the positive spin isn't just Pollyanna it's a threat to the way they cope. Meanwhile, the positive spin people find the realists to be a problem. The realists aren't just dwellers on the dark side, they are a threat to the way the positive spin people cope.

My thoughts above may be shallow foolishness, but it's what my mind is churning on this Saturday morning.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 10:53 AM (GMT -6)   
Sheldon, your thoughts are as valid and welcome as any of mine, or anyone else for that matter. It helps to talk through the myriads of feelings.

Based in your description of the two camps of thinking, the positive spin folks either never had PC or any other serious cancer, perhaps not even had a loved one close to them with cancer, and can easily spin away the negative side of dealing with cancer.

On the other hand, the realists, they are us, they are the victims of cancer, or perhaps one of their spouses/other halves, or other close family member. They are the ones like me (not singling me out for any particular reason) that sitting here on a sofa with a catheter up my penis 9 months after a surgery for PC that was said to be successful, knowing then I may already have reaccurance this soon, and may have to start radiation treatments soon if that is true.

Despite my grumblings here time to time, I try to express an honest day by day accountability of my travel, I don't like to blow smoke up anyone's a**, I don't find that helpful or honest. Life isn't all bad by any means, but its not all bon bons and long stem roses.

I am a realist. I can say, it could be so much worse, and I know people in real life dealing with much worse. But I can also say, wouldn't it have been nice if this never have happened to me, was quite content with my life as a whole prior to my PC dx last fall.

This past year is a blur to me. I can't believe it is now August. Still not convinced anything has been solved, with the exception that I no longer have a prostate gland, no longer can ejaculate, no longer can pee like a race horse or hold my bladder all day, etc.

For me, my life will never be the same again, no amount of positive thinking courses is going to change that reality, so I do what ever other realist does, you adapt. Yesterday's normal is gone, tommorow normal may be it, and even that may change once again in the future.

The single biggest thing that holds me together enough not to simply fall apart, is that of the love of my wife and immediate family. They give me the hope to fight, to hold on, to live to fight another day, to continue the struggle, or even the reason to want to struggle. I couldn't even comprehend how one deals with something like this if they are truly alone in this world.

The news media does no justice to men who have PC when they down play or sugar coat or simplify Prostate Cancer, it leaves the wrong image, and sure doesn't help all the poor men dealing with treatment choices, bad side effects, and the constant fear of reaccurance.

That's my thought on a Saturday morning.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/1/2009 11:18 AM (GMT -6)   
I found myself a positive type before surgery, a realist after. I had time to see how serious the surgery and after was/could be. Now, 2 years later, I am a positive realist. I've had 2 friends die of lung cancer and 2 survive PCA in that time, and am thankful I didn't have to go the lung cancer path.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 8/1/2009 2:28 PM (GMT -6)   
At least he can just walk into the Capitol Hill medical facility and get the best care in the US.
 
    1. Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis.  Post Op Biopsy : No malignant cells in lymph node. Gleason 3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia. Right and left seminal vesicles free of neoplasia. No invasion of prostatic capsule of the resection margins are noted by the tumor. Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO, MX- Group staging II.  Focal areas of perineural invasion by tumor are noted. 80% natural erections and full erections with 10mg Cialis. 9/22/08-Took 10mg Cialis on Monday night, had very usable full hard erection at night, the next morning, and the following Thursday morning, 60 hours after original dose !! Orgasm quality Excellent.!!!!! I am pleased with the progress so far. Married to same wonderful woman for 39 years. She is still beautiful and sexy as ever. A great help in my recovery !!: 3/12/09: Full natural erections with penetration. 10mg Cialis makes them easier to maintain but I have had several med free full erections lately, Yipieeee !!!!!!!  3/24/09: One year PSA <0.1.  3/28 & 3/29: had sex with full naturals with no meds. Erections are gained and maintained with very little manipulation. Getting more like pre op every day. 5/30/09, I take only 5mg Cialis every 2 or 3 days. This greatly assists my full naturals and provides great staying power and no manipulation required and allows sex anytime !! Lenght and girth are back to pre op size due to regular "workouts".
    1.  


      Tudpock18
      Forum Moderator


      Date Joined Sep 2008
      Total Posts : 4274
         Posted 8/1/2009 3:48 PM (GMT -6)   
      When I first started this thread, I just noted the news and did not see this quote from the senator (as shown in the Hartford newspaper):  "If you've got to have cancer, I am told ... [this is] the best one to have."
       
      I don't know him but figure he was just trying to put the best political face on this by minimizing the issue.  I suspect that, in his heart as a newly diagnosed patient, he does not really feel that way.
       
      In any case, I emailed Senator Dodd and, besides expressing my condolences at his diagnosis, I let him know that those quoted remarks might be offensive to some prostate cancer patients and/or their families.  This is especially in light of the fact that this disease is the second leading cause of cancer death in men, claiming over 25,000 of us last year.  Plus, there is immense heartbreak involved for some patients due to urinary and/or sexual problems...
       
      Tudpock

      Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
      Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

      Purgatory
      Elite Member


      Date Joined Oct 2008
      Total Posts : 25393
         Posted 8/1/2009 3:54 PM (GMT -6)   
      Tud, that was a good deed you did, you will be well rewarded by the Squire. You told him exactly what I was thinking. As a public figure, of course they have to put a positive well chosen spin on it, or else his opposition in the next election will play up his health. I agree with what you did.

      David in SC
      Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
      3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
      Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
       Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
      2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
      Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
       
       


      Piano
      Veteran Member


      Date Joined Apr 2008
      Total Posts : 847
         Posted 8/1/2009 7:05 PM (GMT -6)   
      At one level, I can understand why people say PCa is is the "good" cancer. It is slow growing, and if caught early is very treatable.

      However there is another common slow-growing cancer which, if caught early, is also very treatable: colon cancer, and I have had it. Treatment involved some serious surgery: a third of my colon removed and seven days in hospital. The only lasting effect is that I now have a three-monthy blood test (CEA). To my surprise, my bowel function is perfectly normal and there are no adverse side-effects.

      I agree that there is no good cancer. But if I had to nominate one, based on my experience, I would place colon cancer well ahead of PCa.
      Pre-op:
      Age 63 at diagnosis, now 64.
      No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
      Operation:
      Non-nerve sparing RRP on 7 March 2008.
      Two nights in hospital; catheter out after 7 days.
      Post-op:
      Continent; no pads needed from the get-go.
      Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
      PSAs:
      6-week : <0.05
      7-month: <0.05
      13-month: 0.07 (start of a trend?)
      ED:
      After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
      14 months: Occasional nocturnal erections.


      Purgatory
      Elite Member


      Date Joined Oct 2008
      Total Posts : 25393
         Posted 8/1/2009 7:18 PM (GMT -6)   
      Piano, glad you did well with that one, hope I can skip that one in my life time. Two different cancers has already been enough for me.
      Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
      3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
      Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
       Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
      2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
      Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
       
       


      Bob D
      Regular Member


      Date Joined Mar 2008
      Total Posts : 199
         Posted 8/2/2009 12:41 AM (GMT -6)   
      As a man in his position and a frequent public speaker he should know better than to say
      such a thing. I never made this statement prior to and after being diagnosed. He should not
      perpetuate the myth that prostate cancer is a "good cancer".

      Geebra
      Regular Member


      Date Joined May 2009
      Total Posts : 476
         Posted 8/2/2009 8:45 PM (GMT -6)   
      I have used the phrase "if you had to have a cancer, its the one to have" to reassure my family. I dont feel this way, and I dont think the senator does. I believe my reaction to teh dx was pretty normal - i called my lawyer to "bring my affairs in order", even though I was told by the docs how treatable this cancer is. I saw my Dad suffer and imagined my own demise. Did any of you not think that this is the end of the world when first diagnosed? So, I agree that this is purely political statement by the senator. On the other hand, he is not just anybody and he is not just speaking to his family, so the words need to be chosen carefully, especially that he has staff who are supposed to think over every word he utteres. Just my two cents...

      Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

      5 biopsies over 4 years negative while PSA going from 3.8 to 28

      Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

      Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

      PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

      RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

      PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

      Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


      jacketch
      Regular Member


      Date Joined Apr 2009
      Total Posts : 179
         Posted 8/3/2009 11:44 AM (GMT -6)   
      My urologist told me the same thing about it being a "good cancer."

      He said he had a relative with pancreatic cancer and if he had a choice he would take the PCa any day of the week.

      It is somewhat relative since none of us gets to make the choice.
      62yo
      V10.46 Dx Feb-09
      RRP 5-5-09
      No adverse SE
      PSA 6-19-09 -0-
       
      Thriving, not just surviving!
       


      LV-TX
      Veteran Member


      Date Joined Jul 2008
      Total Posts : 966
         Posted 8/3/2009 12:48 PM (GMT -6)   
      A lot of thought provoking comments on this subject. While any of us that have had prostate cancer will scoff at the notion that this is the cancer to have if you get cancer. The bottom line, cancer if detected early enough can be treatable and possibly cured. Too many cancers grow too fast that by the time they are diagnosed, it becomes too late for a curable treatment. Even the most deadly forms of cancer, pancreatic and lung can be very treatable if caught early enough.

      For Senator Dodd or any man that will face this disease...welcome to this forum of warriors that will fight this disease every day of their life. It isn't mentioned too much...but while it might be an advantage to have a slow growing cancer, it also causes extreme emotional stress on everyone involve; the man himself, his spouse or significant other and immediate family waiting on each PSA test after PSA test for the many years after initial treatment. Senator Dodd will soon come to know this side of the disease as well and it isn't an easy path to travel, as many here know all too well.
      You are beating back cancer, so hold your head up with dignity
       
      Les
       
      Age 58 at Diagnosis
      Oct 2006 - PSA 2.6 - DRE Normal
      May 2008 - PSA 4.6 - DRE Normal / TRUS normal
      July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
      Robotic Surgery Sept 18, 2008
      Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
      Seminal Vesicles and Lymph Nodes clear
      Positive Margins Right Posterior Lobe
      PSA 5 week Oct 2008 <.05
                         3 month Jan 2009 .06
                         6 month Apr 2009 .06
                         9 month Jul  2009 .08


      Mavica
      Regular Member


      Date Joined Jun 2008
      Total Posts : 407
         Posted 8/3/2009 2:18 PM (GMT -6)   
      The Senator was repeating what he'd been told by his physician - and I think that was made clear in his statements.  It was a comment I'd heard from my physicans and what I've read in much of what I've researched about prostate cancer.  Pick, pick, pick.  Let your anger at yourself, others or your condition go.  Get over it and live your lives best you can.  And some of the comments about the Senator's insurance or the Congressional first aid clinic are inaccurate, but we're not dealing with accuracies in this discussion . . .are we?   


      Age:  59 (58 at diagnosis - June, 2008)

      April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

      June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

      Gleason's 3+3=6

      Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

      Dr. recommended robotic removal using da Vinci

      Surgery 9/10/08

      Northwestern Memorial Hospital, Chicago, IL

      Dr. Robert Nadler, Urologist/Surgeon

      Post-op Gleason's:  3+3, Tertiary 4

      Margins:  Free

      Bladder & Urethral:  Free

      Seminal vesicles:  Not involved

      Lymphatic/Vascular Invasion:  Not involved

      Tumor:  T2c; Location:  Bilateral; Volume:  20%

      Catheter:  Removed 12-days after surgery

      Incontinent:  Yes (1/2 light pads per day)

      Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

      Returned to work 9-29-08 (18-19 days post-op)

      PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

       

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