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Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/1/2009 3:14 AM (GMT -6)   
I think that I will aim this at David (I wonder why) but anybody can join as anybody tried wearing the bag on the inside of the leg I no it might make walking a bit more difficult but I was wondering if there are any other reason not to 
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 8/1/2009 5:19 AM (GMT -6)   
hmmm. I wore mine on the inside of the leg for five weeks smhair Didn't know it was suppost to go somewhere else.

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/1/2009 6:48 AM (GMT -6)   
Well I was fitted one by a nurse today that put it on the outside which I could not understand so I thought that I would ask the people that know
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/1/2009 7:06 AM (GMT -6)   
Stupid Nurse.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 8:53 AM (GMT -6)   
Of all my many catheters, all were installed with the leg bag on the outside of the leg, I have never heard of one on the inside. Because I have short legs, inseam of about 29" at the most, and due to the length of the catheter hanging off my penis, half of the bag is above my knee, and half is below my knee. So it makes it awkward to walk when it starts to get full. I do pull up some slack on the cath so that when I am walking, its not pulling on my penis the whole time. If I feel it slipping, I reach through my pants leg and pull the whole gizmo up a little bit.

So once again, everything about PC seems to vary from person to person. Even the placement of a catheter bag.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/1/2009 9:55 AM (GMT -6)   
David why I ask was by fitting it to the outside it means the pipe comes over the leg at some point and when sitting in a car every bump that you go over it pulls on the penis and after a 2hr ride my penis is twice the diameter it was this morning and very sore i was wondering if it was some of your problem
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 10:27 AM (GMT -6)   
Collin, I have never had that as a problem. The most important thing, whether hooking up to the big "night" bag, or the leg bag, is leaving enough slack at the outside end of the catheter, where the "Y" is located. If enough slack is there, sitting down in a chair or driving a car isnt a problem. I also like the comfort of touching the connection from time to time where the bag meets the cath, and also with my current leg bag, it uses the simple flip up or flip down drain release. I can feel through my pants to make sure that the flip device is secure. I guess it's what you are use to. Not sure this is a right or wrong thing.

The biggest problem to me with the leg bag, is that is not designed to work as a closed, vented system like the big bags are. The extra length and diameter of tubing with the big bag allows the pressure between the bag and your bladder to equalize all the time on its own (unless you are in the middle of a bladder spasm, then all bets are off, lol).

Now that it is summer here in SC, meaning high temps and humidity, the leg bag under long pants gets miserable after awhile, feels like my leg is burning and sweating, but I guess its just the natural temperture of the urine sitting in a plastic type bag.

Like all of us, I learn to adapt to my "new" enviroment quickly, to try to make a miserable situation less miserable.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/1/2009 10:33 AM (GMT -6)   
Hi Colin, for what it's worth I wore mine on the inside of my right leg, just barely above my ankle. Had no problems with it there.

And, if I'd taken a two hour car ride so soon after surgery as you have I'd think I was lucky if my penis had only doubled from the bumping. Ouch. Just the thought of your ride makes my teeth ache.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 10:39 AM (GMT -6)   
Sheldon, I went home from the hospital after my surgery with the big bag, didn't want to deal at that tender moment worrying about changing and positioning the leg bag. I wasn't going anywhere but straight from the hospital bed to my waiting bed at home, about a 10 miles drive at the time. And yes, every bump, tar patch, and pebble in the road made me ache all over, kept begging my wife to take it easy (and she was of course). When I finally made it home, was never so happy to lie back down in bed.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/1/2009 11:37 AM (GMT -6)   
David when you say a Bladder Spasm what is one like I hope it is not a stupid question
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/1/2009 2:02 PM (GMT -6)   
For whatever this is worth,
I wore sweat pants while I had the catheter on, and I didn't care much for the leg bag. I used the larger bag and strapped it below the knee. Also, I learned that boxer shorts were uncomfortable as my "mini me" moved around and would catch the catheter tube once in a while. So loose pants, and tight boxers was the most comfortable combination for me...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/1/2009 2:21 PM (GMT -6)   
I don't think inside or outside the leg matters. I found that switching legs every few hours was helpful. Your bumping car ride, for which we extend our sympathy, is unfortunately typical of moving about with the catheter. Whenever I would walk with the catheter in I would put on jockey shorts to keep my penis from flopping about and then tape the tube to my leg so that my sweat pants didn't jerk it around. I hated pulling off the tape but it was better than the alternative.

P.S. I think that the guys who design the leg bags use the thinnest cheapest straps that they can get away with. Even a half full bag makes them dig into your leg. I hope that there is a special place in hell for them
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/1/2009 2:37 PM (GMT -6)   
LOL, Geezer, that PS is funny in a painful way.
Maybe that special place is near the Lawyers or banjo players...lol (I can say that as a country musician...)

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 3:52 PM (GMT -6)   
Colin,
Not a stupid question, no such thing here. A bladder spasm is a painful contraction of the bladder usually caused by a foley cather. My dr. explained that the bladder walls contract trying to force the catheter out (a foregin object), but it can't of course, because the balloon end of the cath is resting inside the bladder at the bladder neck-urethra junction.

If feels like your bladder is filled to the max, and then wants to explode, except there is no release until the spasm subsides. When I was on a 63 day run of catheter time after surgery, i had them ofen. Some were so bad that I would drop to my knees and it would bring tears to my eyes.

They will prescibe ditropan, a cheap generic drug that really helps. Depending on your doc, you can take it 3 - 4 times a day max. It relaxes the walls of the bladder, since with the cath in place, the bladder is just a holding tank of sorts, and makes it less likely to contract and thus cause the spasms.

On my current cath, I take just one a day, which helps. Since I know that the spasm really won't kill me and no physical harm is being done, I have learned to tough out the lesser ones. Some guys never get them, some like me, get them all the time. The larger the diameter cath, the more likely the chance.

It was funny yesterday. I came home from errands, took off the leg bag, was cleaning the end of the big bag to put back on, and all of a sudden, a large painful spasm came out of no where, never happened to me before without one bag or the other on. Well, pressure will find its way out, and a major burst of urine shot out of the end of the catheter, all over my clothes and the bathroom floor, nothing I could do until it ended. It amazed me how much pressure it came out at, no way of s topping it, so no wonder a spasm hurts so bad when it has no way to relieve itself. Yes, it was a fun mess to clean up.

Hope that answers your question properly. And I hope you don't have any.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/1/2009 5:11 PM (GMT -6)   
I found sleeping with a catheter a real problem because it restricts your range of motion. I used lots of tape to be sure that the tube wasn't jerking me (around) Some guys shave their leg so that taking the tape off is not so painful. A nurse suggested that I lay down a 5x5. square of tape that I just left there and then at night use tape on the tube over the top of that.

Actually the big problem for most of us is that it takes a week to figure out how to live with it, but they take it out after seven days.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 8/1/2009 5:51 PM (GMT -6)   
Geezer, your last paragraph was my situation exactly. I had minimal instruction on how to use the system and by the I time I had figured it all out, my week was over. (I wasn't a member of this forum back then.)

I wore the smaller leg bag during the day on the lower outside of the leg only because that is where the nurse put it. I see no reason why it shouldn't go on the inside (or front/back) if it is more comfortable there and doesn't interfere with your normal walking gait.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/1/2009 6:19 PM (GMT -6)   
Just have to mention - You DO have the tube taped to your thigh with a good loop in it, don't you? As the tube comes out of your penis, it should go straight out for a few inches, then have a nice generous slack of a dip in it before it tapes to a thigh. Best if you alternate thighs daily. This way, if anything should catch the tube or the bag drops or anything like that, it will pull on the tape on your thigh and NOT directly on your penis. This is a real safety thing. Just making sure...
Paul

PS - shave your thighs and it is a LOT less painful removing the tape!
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/1/2009 7:22 PM (GMT -6)   
geezer and piano, you are right, most men have it taken out about the time they figure out how to master the rubber snake. it frightens me how much i know about the nuances about catheters, you would almost think i liked them. not.

david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 8/1/2009 10:33 PM (GMT -6)   
Hi Colin

I went home from the hospital with the leg bag. I didn't like it so I used the big bag the rest of the time until I had the cath taken out. It was summer time and I put the big bag into a cloth bag and ran the tube out of the bottom of my shorts. Most people didn't even notice it.

Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 8/1/2009 10:52 PM (GMT -6)   
When I was constrained to the catheter I used the big bag most of the time unless I was going out. I wore the leg bag on the inside of my right leg with enough slack that it was almost comfortable. At night I used the big bag and slept in a recliner. The day I went to the doctor to have the catheter removed the leg bag ruptured while in the car for no apparent reason.

I wore the catheter for about 19 days, and it was a huge pain in the butt. Well, maybe not the butt. During this time I experienced two bladder spasms that were really mild compared to what others on this site have described. I just can't imagine how David puts up with the catheter saga that's been forced upon him.

Oh, I like Bluegrass music which means I might be a little too close to the lawyers that Tony referred to. I hope not.

Just keep sluggin',
Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/1/2009 10:59 PM (GMT -6)   
Thanks for your advice I think that tight boxer shorts might be the answer I have till Tuesday to sort it out I have to go back to have the staples removed so that is a return journey I did not have a loop in it because after the operation there was not one then and after 4 days I had not problem at all but they did fix it good and I could not work out how they did it in fact there was only about 1 inch between the end of the tape and my penis there was a lot of tape but it was not straight across it made a "V" pointing down the leg it was very comfortable
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery planned for 7/27/09
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/2/2009 11:55 AM (GMT -6)   
This thread seems to have two themes -- catheters and banjos. I believe that there is some confusion -- it is actually amateur bagpipers who are adjacent to the lawyers part of hell. Heaven, on the other hand, is run by a kind and loving God so that if you don't fancy playing a harp for all eternity he will issue you a five string banjo along with free lessons. You have not really heard the Lord's praises sung until you have heard it accompanied by some real serious pickin'.

Colin. Given that the muscles in the leg run up and down at sort of angles, then having tape more or less on top of one muscle rather than across several does make sense
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 8/2/2009 6:40 PM (GMT -6)   
Colin,
I wore mine on the outside also. I did have to tape it to the top of mi thigh at the point where it goes over the leg in order not to pull on the catheter. I was able to walk 4 miles with the bad that way.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/2/2009 7:02 PM (GMT -6)   
Ed, I admire you, for sure, I couldn't imagine walking a mile with a leg bag, no matter how its fastened, let alone 4 miles. My hat is off to you.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 8/3/2009 11:42 AM (GMT -6)   
I was instructed by my Dr.'s nurse to place the leg bag on the outside of the leg and, for me, it worked fine . . . no lproblems.  Had the bag been on the inside of the leg I believe it would not have been as comfortable when I walked and that it would probably have brushed up against the opposite leg.  I wore baggy pants, sweat pants mostly, the entire 12-days I had the catheter and, overall, the catheter was a "non issue" for me.  I think some guys make too much of the issue and for the majority of us it's on for a short time period.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 

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