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oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 8/1/2009 3:55 AM (GMT -6)   
I am getting ready to start on a VED to help my ED and for rehab (suppose to help return you (it) back to presurgery fitness). I just received my package yesterday. Tried it last night and it seemed uncomfortable but not painfull. It has been two months since surgery and I have only had partial erections. I am taking daily cialis. Any comments would help on the VED to make me feel more comfortable. It is a little odd feeling, but I am sure with use this will pass.
Thanks for any help or suggestions.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Had my 6 week post op doctor visit. PSA was <.05 so I am pleased.
Still some ED problems but seeing improvement. May try VED. Started on daily pills.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 8/1/2009 4:17 AM (GMT -6)   
Course, the concept behind the VED is to get blood flowing through willie to keep him healthy. Just don't over inflate him..

Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 8/1/2009 4:33 AM (GMT -6)   
I only used once so far. You can certainly tell that he is inflated but can't really tell how he feels. Did not use the ring yet, just kinda a trial and error on how it works. How do you know when to quit vacuuming, when it gets uncomfortable? I hate to sound so naive but I want the best results without any harm to the old boy if you know what I mean. I am sure with a few days trial, I will feel more comfortable with the results.
Again, thanks for any help.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Had my 6 week post op doctor visit. PSA was <.05 so I am pleased.
Still some ED problems but seeing improvement. May try VED. Started on daily pills.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 8/1/2009 6:11 AM (GMT -6)   
There is nothing erotic feeling about a pump. Uncomfortable is about the best word. Yes, You stop when it starts to get to the painful stage. Also, if you are uncut, be careful not to turn the foreskin into a doughnut. Pump it up to the point where you can tell it would hurt a lot if you did any more. Then wait. the discomfort will cease as the penis fills with blood. Pump it again...wait again...pump wait..etc. Leave it on for about ten minutes...but there is nothing magical about that number. Just listen to you body. Work it slowly at first then increase duration as you get comfortable. I let mine hang on me in the shower while I wash up. It tugs a bit, but no big deal. Also trim or shave pubic hair in the area.
You're right. In a few days it will be old hat. You will KNOW when to quit...it will hurt.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 8/1/2009 6:52 AM (GMT -6)   
Thanks. Guess it sounds dumb to ask questions but this really helps me know I am not doing wrong. I am sure it will help others also.
Seems to work good just new to me. The rep said that out of 500 patients, 500 had good results. He also stated that the therapy used helped regain lost size and helped get back to a normal state like before surgery. So far so good.
Again, I appreciate the answers.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Had my 6 week post op doctor visit. PSA was <.05 so I am pleased.
Still some ED problems but seeing improvement. May try VED. Started on daily pills.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/1/2009 4:05 PM (GMT -6)   

Hey Flying,

I bought a VED based on suggestions here. Personally, it's done more than meds and I was starting to shrink in normal state. It hasn't given me anything useful for intercourse, but it has made my flaccid state almost pre-surgery (I was getting major shrinkage). It takes a bit of getting used to. Get a brush-cut in the underwear hair dept. and use the lube they supply to help get a better seal. Don't overdo it and be patient. Paul's suggestions would echo mine and there are others here with lots more experience than me.

Good luck!

 

Mike


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 8/1/2009 5:25 PM (GMT -6)   
Don't be afraid to experiment, and as with anything new, you will get better with practice. The best advice here is if it hurts, stop or ease off in that session.

I find that I can comfortably pump to about 1/2" beyond my natural length. And contrary to the myths out there, I haven't seen a permanent increase in length. With the bands on, I have an increase in girth (also temporary), to such an extent that my wife complains it is "too big". After 40 years of marriage, she has gotten used to "puny". :-)

I pump at my office desk -- I should mention it's a private office, and find it to be a pleasant experience usually leading to orgasm.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 8/7/2009 9:55 AM (GMT -6)   
I have a question for experienced users. At the bottom , how do you keep unwanted body material from getting pulled inside the VED? That seems to be my only problem at this point.
Thanks for any help.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Had my 6 week post op doctor visit. PSA was <.05 so I am pleased.
Still some ED problems but seeing improvement. May try VED. Started on daily pills.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/7/2009 3:20 PM (GMT -6)   
I haven't found any way to keep it out, using the Encore and Vacurect. I think it's just a built-in side effect of using them. I even ordered a couple of add on sleeves to put in the opening to reduce the diameter. It worked fine when starting, but once I got pumped up[, I was too big to remove the pump with sleeve. So I don't know if there's a good option. I usually just go ahead and pump up, apply the ring and then use my fingers to push back the excess out of the ring. You lose some of the erection, but that's the best I have found. Good question- want to see what others have come up with.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 8/7/2009 6:05 PM (GMT -6)   
I think it has a bearing on the diameter of the VED cylinder in relation to your penis. My cylinder is almost exactly 2 inches internal diameter which is a close match for the base of my penis when erect. So under that condition, there's no room for anything else to get sucked up in there.

However it's a different story when flaccid. Then I find it helpful to position the tube so that there is a gap above the penis, not below. And when starting pumping, I push the cylinder firmly against my pubes so that only the top of my scrotum is trapped against the cylinder rim. If more scrotum or testicles want to gatecrash the party, they're outta luck -- there's no way for them to get in. :-)

If you find they are getting in -- ouch!, stop and restart. At that point you should should be at least a little more erect, so the gap to close off should be a little less.

That's my experience with my anatomy and a single cheapie pump. As always, your mileage may vary.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 8/7/2009 9:58 PM (GMT -6)   
Piano, That sounds like a good idea about positioning the cylinder that way.
Also using one hand to hang on/stretch down the scrotum/testicles/tissues -- is easy to do with the battery model since you can run the pump and steady the cylinder with one hand and handle the materials with the other.

With the Encore there are two cylinder diameters you can get -- 1-7/8" comes with the kit and you can also order the 2" I.D. taller cylinder. Although it does not sound like much difference, when you get em the difference looks huge. The 2" I.D. definitely allows more stuff to get dragged in if it used first from flaccid state. What I have been doing is to start with the smaller one and if only for rehab, when I get that one filled up, decompress and quickly switch over to the larger one start er up from there.

If using rings I will pump with the smaller cylinder and not too much gets drawn in at the base .. add the rings and then switch to the larger cylinder -- which will accommodate Willey, Rings and all, inside the cylinder and can pump a bit more with that. That makes an erection you can really write home about!
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 07/2009).
04/01/09, 07/07/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray showed no additional stones.
Next up (so to speak) -- MUSE(1000mg) -- on 08/07/09.

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