Crotch (perineum) ache five weeks later ....

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Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/2/2009 8:01 PM (GMT -6)   
Greetings all.  Several days after daVinci worked it's prostate magic on me my scrotum turned blue and blew up in protest.  Near as fast as it ballooned, it subsided, leaving behind a very sensitive perineum.   I'd not have been able to sit on a bicycle seat for a thousand foot peddle for a million bucks.  Although for a million bucks, I'd probably have given it a shot.   This aching perineum hung around for about three weeks and I continue to bless the near by department story that put zero gravity lounge chairs on sale at 70% off.  By the end of week three I was wondering what I might get for the lounge chairs in a garage sale.
 
Week four arrived with my scrotum again swelling, but in a very, very minor way compared to the first go round, and as with the first, it righted itself in a few days.  My perineum, however, was just as angry about it the second time and for the past week I've been back in the lounge chairs and whimpering at the thought of sitting on a hard, or even well padded, chair.   When I take to my bed it feels much better an hour later, as it does when I sprawl in my zero gravity chair as I am doing now.  Ahhhhhh! 
 
Like a family dog, my wife takes me out for regular walks.   I am just back from such an outing which included a walk along our river, a ride in the river taxi, and a walk around an area we call "The Forks" where the Red River of Fargo flooding fame and the Assiniboine meet.  Coming home in the car I put the seat back, back, and slid forward so I was able to ride on my tail bone.  Ahhhhh!
 
I confess I'm disappointed to have aching crotch back when I thought I'd conquered and moved on.  It would be a huge comfort if anyone has had a similar experience and can assure me it's "normal" and will again subside.  If this hasn't happened to anyone it would be a comfort (not a huge comfort, but a comfort,) if you'd lie and still post claiming it had happened to you and had gone in a week or so.  This ache/pain has been around for a week and I'm getting fed up with it.
 
And, before you ask, no, I haven't been taking pain meds for it.  Brilliant thinker that I am,  that just occurred to me!  I carry them in my pocket all the time, but doubtless they don't work if left in the bottle.  I shall take one ASAP.  There.  Done.  The answer is, yes.  I've taken my pain meds.  No one ever accused Sleepless of being the sharpest knife in the drawer.
 
Sheldon  AKA  Sleepless 
 
 
 
 
 
 
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/2/2009 8:38 PM (GMT -6)   
Good boy, Shelden, you answered your own question. And as far as all the horrible pains and aches, that come and go in those weird cycles, most would say its very normal, you are only a little over a month from a most major life changing surgery. Hope it continues to ease up for you, and until then, let the power of pharmaceuticals work for you. It's better than hurting needlessly any more than you have to.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 8:31 AM (GMT -6)   

Hi Sheldon,

On a different thread, I posted that the only real post-op pain issue I had was my bowels restarting. I made that statement in the context of (maybe incorrectly) considering only the immediate post-op period from waking up after surgery until the catheter was out.

I also dealt with severe pain in the perineum. Both before surgery and after. I'm pretty sure that for me it was triggered by how I sat and what I sat on after surgery. I had several bad bouts where the only relief I could get was taking a handful of extra strength tylenol and sitting on the toilet seat until the the tylenol kicked in (that took all pressure off my perineum). In hindsight I probably should have used the narcotic pain relievers I was given after release from hospital, but they consipate me pretty good, so I didn't really use them. Goodlife kindly pointed out to me recent reports of liver damage using tylenol, so, if the need arises again I will use the prescription ones.

This pain has been cyclical for me but the good news is it is going away.  I still use two pillows at work and in my home office; the top one being a donut. It works for me.

Hope this helps.

Mike  


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 8/3/2009 11:20 AM (GMT -6)   
I had open surgery but I too had the perineum pain at about the fourth or fifth week.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
 
Thriving, not just surviving!
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/3/2009 11:43 AM (GMT -6)   
David, Mike, jacketch, thanks for this.

David, I'm going to take meds today. I've got a 400mg Ibuprofen in me and I'll keep on them, or the 500mg tylenol today.

Mike, I salute you for what you've done, and are doing. I'm lucky to have a son running the company and so I've not gone back to the office. I "feel" for you sitting.

jacketch, thanks for validating the experience. And, I always love your signature line, "Thriving, not just surviving!"
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 8/3/2009 9:58 PM (GMT -6)   
I have had this pain from day one not horrible but I can not sit for very long at all. I feel like I am sitting on a tennis ball not a lot of pain just very uncomfortable. I have to keep re positioning myself. Any ideas I have been 7 weeks post op. and other things are going well I now say recovery is a process not a switch that I can turn off and on. I could use a sugestion or two. I can not have these special chairs at work or carry them around all over with me
Timmy77
48 yrs old
Robotic RP
6-15 2009
Surviver


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/3/2009 11:54 PM (GMT -6)   
Timmy, while I hate to hear of others feeling the same ache/pain, at the same time it's a comfort to know that I've not popped all the stitches inside, or something.

I can't imagine needing to sit for very long at work, or anywhere for that matter. Have you tried a rubber blow up ring? And, do your pain meds. It took me a day to figure that one out! If you do the Ibuprofen, I understand from a doctor friend that it's best to take it with some food -- even a few crackers, or a slice of bread is good he said.

Today I've taken a 400mg Ibuprofen around 10 this morning, and a 500 mg Tylenol about four this afternoon. Between these two pain meds, and I think the perineum just being better today ( I had about 9 hours of sleep last night and I'm sure that down time helped) it's been an easier day for me. It's bedtime, I've had a snack (bless my wife who brought me tea and a toasted English muffin with marmalade to me in bed!) and I'll take an Ibuprofen to ward off the perineum hex.

Good luck with your issue, Timmy. Keep us posted on how you're doing.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  

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