On a different thread, I posted that the only real post-op pain issue I had was my bowels restarting. I made that statement in the context of (maybe incorrectly) considering only the immediate post-op period from waking up after surgery until the catheter was out.
I also dealt with severe pain in the perineum. Both before surgery and after. I'm pretty sure that for me it was triggered by how I sat and what I sat on after surgery. I had several bad bouts where the only relief I could get was taking a handful of extra strength tylenol and sitting on the toilet seat until the the tylenol kicked in (that took all pressure off my perineum). In hindsight I probably should have used the narcotic pain relievers I was given after release from hospital, but they consipate me pretty good, so I didn't really use them. Goodlife kindly pointed out to me recent reports of liver damage using tylenol, so, if the need arises again I will use the prescription ones.
This pain has been cyclical for me but the good news is it is going away. I still use two pillows at work and in my home office; the top one being a donut. It works for me.
Hope this helps.
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA.