Does anyone else smile inside?

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wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 8/3/2009 1:10 PM (GMT -6)   
When sitting around with the guys and they start complaining about their enlarged prostate i can't help but smile inside. They ***** and complain about getting up in the night or scared to drink a cup of coffee before a morning walk. When asked I just say no, I sleep through the night and drink 3 cups of coffee before a two mile walk and piss like a horse.

Getting the old walnut cut out isn't all bad.

cool
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/3/2009 1:36 PM (GMT -6)   
That is the plus side for many men after the PC surgery.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/3/2009 5:04 PM (GMT -6)   
Sure has been a big plus for me, outweighing my current concerns. The last couple years before surgery was a miserable time, urinary wise.llo
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/3/2009 5:50 PM (GMT -6)   
Well I still have my prostate and still get up several times per night, however I smile all the time inside and out. I feel so blessed to just be here. I have great friends especially here at HW.
Life truly is great when you are livin a dream

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009

cancer in 4 of 6 cores

92%

80%

37%

28%


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/3/2009 5:56 PM (GMT -6)   
I have also found a big plus to the whole PC situation. I could get or do anything as long as I prefaced the request with "I heard that _____ was good for mens' prostate health." (GFMPH)
For example: "I heard that eating a 1 pound box of chocolates was good for men's prostate health." "Would you like me to one get it for you, dear?"
"I heard that a trip to Cancun is GFMPH." "Would you like me to book tickets for you, dear?"
Heck, I even got a Leupold VX-II rifle scope because "I heard it was GFMPH."
What I am doing to do now? Um... I've got it! "I heard that a daily massage is good for prostate surgery recovery."
By the way, reading this note is GMFPH!
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/3/2009 5:59 PM (GMT -6)   
And I am hoping this next corrective surgery will return my ability to return the race horse status that I have had all my life before my PC surgery. Never, ever had a problem, so hoping soon to pee free and strong like the old days.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 6:55 PM (GMT -6)   
I figured I could pee across the street by now. Not so, unless I take a really good run at it. But that activity has it's own inherent problems.

I do like the GFMPH, I got a dandy new Les Paul Standard Gold Top Guitar out of that. So, I am so much smiling. But, the maxwell house coffee tin is empty.

All things considered, tonite I'm smiling.

Mike
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/3/2009 6:59 PM (GMT -6)   
Hey, this GFMPH thing didn't make it to my house. I didn't get to get any new toys along the way. Still spoiling my wife and buying her things. Perhaps you guys should get together and write my wife a sob story and help me get some overdue toys too.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/3/2009 7:05 PM (GMT -6)   
GFMPH worked for me.....I now have a Clavanova Keyboard to add to my collection of keyboards. Sleeping all night a big plus also. Only one hurdle to jump over now....
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 7:21 PM (GMT -6)   
David, as soon as get my 68 firebird ragtop back that I had to sell last time for college, I'll send a GFMPH note to your wife. Actually, I'd rather settle for a 67 or 68 camaro SS. That would be some really good GFMPH for me.

Mike
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/3/2009 7:27 PM (GMT -6)   
I'm just came back to the kitchen after watching a couple of episodes of Big Bang Theory from the first season DVD. I heard that lying on the couch with your feet up watching TV is GFMPH.

David, Mike and I will write you a note. But, you have to act quickly while she still feels some guilt about the camping weekend.

Mike, Wow! A Les Paul Std GoldTop! That's doing it right! Now if you can just mount a VX-II on it somehow...

Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 8:33 PM (GMT -6)   
Thanks Worried/Jeff,

I had saved for a while to get it. My thoughts were that when the catheter was in, I would use that time to relearn all the stuff from years gone by. It turned out I couldn't sit long enough to make practising viable with the cath in. Too much discomfort let alone a heavy piece of expensive guitar lumber on your lap. But, I'm making progress there now. It's not so much the guitar itself (even though it's a great instrument) as much as what that instrument is doing for me. A new spark of sorts. So, I'm smiling. All things considered.
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/3/2009 8:47 PM (GMT -6)   
How's this for a GFMPH ?

How about picking a town somewhere this fall and meeting up for a weekend and tell stories to each other's faces?

Our wives would have to truct most of us, pareticularly if we left all the misc harware at home.

I think it would be a hoot !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 8:53 PM (GMT -6)   
Goodlife, I'm in. I'm changing the label on the coffee tin from guitar to GFMPH and even put a couple bucks in...Mike 

Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2009 9:01 PM (GMT -6)   
Goodlife...I meant to mention in my last post...no bungee jumping though. I was just informed by the boss that won't be allowed....Mike
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 8/3/2009 9:15 PM (GMT -6)   
I smile on the outside too!
Particularly today, my 18th wedding anniversary!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (6-22-09)
PSA: 66.14
Treatment: Lupron
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/3/2009 9:17 PM (GMT -6)   
Happy Anniversary to you and your blushing bride David !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/4/2009 5:34 AM (GMT -6)   
I heard that camaraderie, friendship, and travel is GFMPH. I'm in! I think a meeting would be a riot. There are some many guys I'd like to meet. (I'd really like to meet the guy that was complaining about his orgasms. You know who you are! )

We can all meet at the site of Arnie Kegel's house and squeeze off a few in his direction. That way we can claim the trip as a medical expense. (Dear IRS Agent, I am only kidding. I would never do such a thing.)

We can order Depends, Cialis, and Super Vacs in bulk, split the cost and justify the trip as a medical expense. (Dear FDA Investigator, I am only kidding. I would never do such a thing.)
Or we could just laugh, feel good, and justify the trip as GFMPH.
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/4/2009 5:35 AM (GMT -6)   

Greetings, everyone.  I didn't use the GFMPH for much.  I did spend my time post surgery with the catheter in researching an anniversary trip to Alaska that we took a few months later. 

I know that a couple of guys have managed to get together and I would welcome that opportunity should it ever arise.  You guys (and gals) that I don't even personally know have meant more to me over the past 18 months than most of my friends I see all the time.   It would be great to meet up somewhere, sometime.  Count me in if it ever comes to pass.  David 


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 8/4/2009 8:18 AM (GMT -6)   
Worried Guy - a great place to potentially meet would be the PCRI.org conference in LA in September.
I went in 2007 and met a few folks from different on-line forums. I also walked away with a tom of information!
(BTW- I am not trying to promote not am I affiliated with PCRI - just adding as an FYI only)
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (7-20-09)
PSA: 97.14
Treatment: Lupron, Zometa, HDK+HC
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/4/2009 11:03 AM (GMT -6)   
FLHW (David) That is a great idea. It a little far for me - That is the other side of the country - at least four Tena Guards away. But no place it too far if it's GFMPH. By the way, do they take American money out there?
My wife suggested a factory tour of Augusta Medical Systems in Augusta Georgia. We could see how they make and test the SOMAerectstf and other devices. You certainly won't see that on "How It's Made".
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/4/2009 3:17 PM (GMT -6)   
Wait a second! Are you telling me that GFMPH (good for mens' prostate health) is some sort of scam? My wife has been so very supportive in my recovery – she told me about the finding by Dr. Pangloss that weeding the garden was GFMPH and she also thoughtfully tracked down the studies by the Munchausen Clinic that showed that cleaning the garage and the basement improved GFMPH by 39%. Now you have caused me to wonder if doing the dishes every night really is certain to cure ED within six months.

I will have to talk to that lady and explain that the ED cure works only if the current progress is tested every other night.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/4/2009 10:57 PM (GMT -6)   
I am serious ! Maybe I'll start a new post for a HW reunion. Maybe Mr. HW himself would show up.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/5/2009 5:35 AM (GMT -6)   

Speaking of smiling..If the following doesn't make you grin from ear to ear - nuttin will:

http://www.youtube.com/watch?v=XQcVllWpwGs&feature=player_embedded

 


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/10/2009 12:21 PM (GMT -6)   
Geezer: Thanks for spilling the beans about "cleaning the garage and the basement improved GFMPH by 39%" My wife is on the internet right now looking up similar studies. She found something about "Getting the car inspected and the oil changed. " Sheesh!

Goodlife: I see that we are not too far from each other. We might have to get together on my next Phantom Fireworks run. That won't be for a little while though. I wouldn't want my roman candles to get wet.

Steve: How can you not smile when you see that?
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

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