Corrective Surgery Date is set

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 9:14 AM (GMT -6)   
Doctor's office just called.  My next corrective surgery will be on Tuesday, August 18th at 11:45, at the downtown St. Francis Hospital.  Will be my 4th op at that hospital, kind of fond of the place.  Only about 15 minutes from the house, right across the street from where both my sons work.  Even did a year of physical therapy there many years back.  Pre-op, which is long and boring with these folks, is a week from tommorow.  Then I will be good to go.
 
This part, I am not afraid of, I don't mind being put under so to speak.  Never have trouble with it, or on the recovery side.  Expected to be a 30 minute to one hour prodedure.  I am more interested in the good doctor taking care of biz for good this time.  Then the whole thing will be worth it to me.
 
My wife is my Medical Power of Attorney, officially and legally.  If you guys haven't bothered to do that, you should.  As my wife, and as a very seasoned nurse, she watches over me in  these situations, gives me a big, no,  a huge comfort factor, knowing that she will make the right medical decisions for me when I am under or unable to.  Something for you to think about.
 
david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/4/2009 9:51 AM (GMT -6)   
Good luck to you.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 10:06 AM (GMT -6)   
Yeah, but will mean this cath #6 will have been in place for over 4 weeks by the time of surgery, but again, the alternative of another blockage over rides the nuisance of this catheter. Guess life is all about trade offs.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, again
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/4/2009 10:20 AM (GMT -6)   
Wheeeeee! David

Good to go!

Here's to the glorious 18th and your flowing like the Trevi Fountain with total control.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 10:41 AM (GMT -6)   
Yep, too bad its two more weeks from today, but a least this current cath is keeping me flowing, and I don't have to get up at night to pee, and no more pains from my bladder neck area which I use to deal with daily. So I will enjoy the vacation while I can.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 8/4/2009 11:28 AM (GMT -6)   
David,
 
I guess surgery is the only way. You've been through a lot....the gods will shine on you on the 18th or else! I hope the best for you!
 
Joey G
 
 
 
 
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 11:38 AM (GMT -6)   
Thanks Joey, I am hoping for the best, and perhaps this will be the charm this time.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/4/2009 11:50 AM (GMT -6)   
David
The Medical Power of Attorney is a very important idea. You will find places on the web that will let you create the appropriate forms but it is usually possible to obtain a free form "medical power of attorney," reviewed for legality in your state, from a local hospital.

You should also consider an Advance Directive, also called a Living Will which allows you to specify what treatments you wish or do not wish to receive in an end of life situation.

This may sound a bit morbid to some, but think of it as a duty to your family. By taking on a bit of disagreeable effort now, you may spare them great pain and difficulty in the future.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 8/4/2009 11:53 AM (GMT -6)   
David,
I hope all goes well this time and you are deserving of that. I get impatient and want to be all healed, but someone else must be in charge of that timetable. Will be thinking about you on the 18th.
Michael
 
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when dx
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better
hope to start ed tx 7/17
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 12:22 PM (GMT -6)   
geezer, i agree with you completely, i had my medical power of attorney in place for years prior to my PC

michael, thank you.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/4/2009 12:53 PM (GMT -6)   
Only two more weeks. I hope you can wear the overnight bag as much as possible until then. I did not have good luck with the leg bag. It just seemed too violent.
Sit back and relax. You've earned it. By the way, I heard relaxation is GFMPH.
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
Radical prostatectomy by Da Vinci on 7/21/2009.
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/4/2009 2:33 PM (GMT -6)   

Hi David,

Hoping this next procedure will be your last and that you'll be able to pee across the state line from your back yard, at will. I'll be thinking about you, as usual.

Yours and Geezers advice about power of attorney and a living will is good and more important than many realize. Last will my wife and I did, not too long ago, includes all that. We each have medical and financial power of attorney over each other in the event of incapacitation and if we are both in that situation at the same time, other members of family will step in. Not very hard to do, but it brings some peace of mind that would save our kids and family considerable red-tape. There are D-I-Y kits that can be less expensive than using a lawyer. We did ours through my lawyer because I own a small biz also.

Good luck on your very last procedure.

 

Mike


Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 2:50 PM (GMT -6)   
Good advice Mike, hope all the men here see that the same way on the legal matters.

Back to the waiting game here. Seems that is how I have spend most of the year 2009, waiting for one thing or the other.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 8/4/2009 3:15 PM (GMT -6)   
Good luck. You have all of us pulling for you.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Had my 6 week post op doctor visit. PSA was <.05 so I am pleased.
Still some ED problems but seeing improvement. May try VED. Started on daily pills.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 8/4/2009 3:19 PM (GMT -6)   
Good Luck David. I hope this s the last time you have to deal with bladder issues and catheter.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2009 5:17 PM (GMT -6)   
Thank you, Farmer and ED C. Best to you guys too. My hope is that this time is going to do it, and the curse of the Catheter will be over with. By the time I have the next surgery, and then of course, catheter #7 for one to two weeks after, I will have spent almost a third of the time since my surgery back in November on a catheter. That's more than I care to do. Did my share.

When I read of guys having theirs out for good 5-10 days after surgery, it seems like nothing to me.

David
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 8/4/2009 9:11 PM (GMT -6)   
Good luck and hopefully you can say good bye to the catheter for good.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/5/2009 7:14 AM (GMT -6)   
Thank you Rob........right now, its just more...waiting waiting waiting....story of my life the past year.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 8/5/2009 8:38 AM (GMT -6)   
And to think David, this hurry up and wait syndrome didn't end with the Navy like we thought it would when we got out. Just make sure you step back when they ask for volunteers the next time round.

Just teasing ya bro...but sending lots of thoughts and love your way and will be thinking of you.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/5/2009 12:25 PM (GMT -6)   
Greetings, David.  I always find it is good to know all the details.  Now that you have the date set you can look forward to getting this procedure done and on to complete healing.  We'll be pulling for you in 2 weeks - please keep us posted.  By the way, the last time my wife and I updated all our documents about 4 years ago, we did all the medical powers of attorney and directives and living wills, etc.  This is all important stuff that we should all consider.  Thanks for the reminder.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/6/2009 9:02 AM (GMT -6)   
David, your post made me laugh this morning, in a good way. "It's good to know all the detail" line, we are both in the same profession, and we both know the thrill of the hunt and the devil is in the details. I can't speak for you, I know I am OCD about it, and would go nuts until every acct was in perfect balance to the penny all the time.

My father died a painful death of an ultra rare blood cancer 16 years ago, at the largest hospital group in my area (gee, the same one that I will have nothing to do with). Toward the end, he was out of his mind, and my mother didn't or wouldn't (not sure) make any decisions for him, so the doctor's, in my opinion, bullied or took advantage of him and got him to make treatment choices or losing treatment choices that took his life aways months if not a year earlier than it could have been. My father had no idea what he was agreeing too. I lived too far away at the time and couldn't be there often.

I vowed I would never be in that situation, that is why the M
edical Power of Attorney is so important in my mind set. My wife knows my feelings about quality of life issues, pain levels, organ donations, whether or not I want to be kept alive by machine only, etc. etc. And as a nurse, I feel extra blessed, because she knows the whole routine in those situations first hands. No one would be able to pull a fast one with her in the room.

Even when I spent my 4 1/2 days in the hospital after my PC surgery, she made sure all the nurses did the right thing, and kept a close eye on the monitors and IV drips so that I could rest

David CPA, perhaps one day we could meet and audit the heck out of something
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 

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