Last IMRT treatment tomorrow.

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John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4223
   Posted 8/4/2009 2:36 PM (GMT -6)   
It'a been a long 10 year journey and hopefully it ends tomorrow with my last IMRT treatment. The treatment of seeds and IMRT has been much better than I had expected. No bowel or fatigue issues at all. The only side affects I had was frequent urination for about 4 weeks following seeds.
There have been some definate pluses, I've knocked 5 strokes off my golf handicap and grew some hair while on Proscar, but most of all I've been able to communicate with some brave and dedicated individuals who are struggling with this disease.
Because I was misdiagonosed for so long, I got a wake up call and really put a lot of effort in researching PC, because I knew it was my life on the line and I better know just about as much or more about PC as the doctors treating me. I also thank God I finally found a great doctor who explained things and made sense. Whenever I had a question about something I read or heard I would email him and recieved back a logical explaination within a day. He taught me a lot and helped me understand how this disease works.
My future progonosis is good, localized PC, even with a PSA of 40, which is quite unusual. My prostrate has been nuked with 13,000 greys, which should take care of any PC in or around it. If it doesn't it will sure slow it down for a while. I'll be off Casodex in three weeks, and I can get back to a normal sex life. It's wierd not having any libido, because you really don't miss anything or care if you do.
For everyone out there, there is one thing I learned the hard way: Get 2nd opinions on everything and do your own research so you can question and determine if your doctor knows what he is doing and is putting your best interests 1st.
I'll be leaving for Idaho this week for the rest of the summer and will be glad to get out of this 120 degree desert heat.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DX BPH and continue to get biopsies yearly. Positive Biopsy in 10-08, 2 cores of 25, G6 less than 5%. Scheduled Surgery as recommended.

2nd Opinion from Dr Sholtz, an Oncologist said DX wrong, path shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G 4+3 approx 2.5cm diameter.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and burining urination. Daily activities resumed day after implants.

Scheduled for 5 weeks IMRT in July

JohnT


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/4/2009 3:35 PM (GMT -6)   
I remember my last IMRT and what a joyous day that was. Glad you are at the end of that journey. Life will begin to take on new meaning now.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009

cancer in 4 of 6 cores

92%

80%

37%

28%


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/4/2009 4:09 PM (GMT -6)   
John, I am thrilled to hear that you are at the end of the treatments. I remember when I had radiation years ago, I never thought I would make it to number 35, but I did. I hope it nukes every last PC cell in your body, and gives you a break for the rest of your life.

Hope you enjoy your trip to Idaho.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/4/2009 4:11 PM (GMT -6)   
Hi JohnT,

Looks like you're doing well. One more treatment and that part is over. I'm glad to see you're not having any bowel or fatigue problems.

Thanks for all the things you are doing on behalf of PCa awareness, too.

Glad you knocked 5 strokes off your handicap and even growing some hair. Ever since RRP, I've been losing a ton of hair. Any insight on that? I added 10 strokes to my handicap. Must be the weather here.

All the best,

Mike
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 8/4/2009 8:12 PM (GMT -6)   
Hi John,
I hope that this is the last time you have to deal with PC. Now that you are done with IMRT, you can relax and enjoy some cool weather in Idaho. This summer has been extra hot and dry in central Texas and I can't wait for some cool weather and some rain.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/4/2009 9:33 PM (GMT -6)   
My dad brought his camera and took pictures in the machine and with the staff on his last day. It was like a graduation ceremony:) Cheers to you and may tomorrow be the first day of the rest of your cancer free life!!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/4/2009 9:54 PM (GMT -6)   
Big congrats, John,
I look forward to meeting you one day, a privilige my brother got before me...Peace to you and your wife and happy healing!

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 8/4/2009 10:32 PM (GMT -6)   
John, as a graduation gift, may you get a lifetime membership in the Zero club.

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


Franchot
Regular Member


Date Joined Jun 2009
Total Posts : 130
   Posted 8/5/2009 3:39 PM (GMT -6)   
Congratulations, John.

Reading your posts got me interested in seeking out Dr. Scholtz and his clinic.

Hope things continue to work the best for you.

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4149
   Posted 8/5/2009 5:00 PM (GMT -6)   

Hi John:

By now you have had your last treatment and I wish you all the best.  One silver lining in your disease is your presence on this forum which provides a wealth of information to your fellow PCa survivors as well as to candidates for different treatments.  We all benefit from your experience and knowledge.

Best regards,

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!
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