husband recently diagnosed with prostate cancer

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possum
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/5/2009 3:25 PM (GMT -6)   
Hi All,

I'm looking for people who have prostate cancer, especially those who have undergone radiation as a treatment.  I'm also looking for support and info to help us through this experience.
                                           Thanks and take care,

                                           Possum

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 8/5/2009 3:29 PM (GMT -6)   
Possum, this is a great website. I too am the wife of a PC patient and found the folks here just great. My husband chose surgery so I can't offer any advice on radiation therapy. I know there are many out there who will be checking in soon with lots of info on radiation. It would help everyone greatly if you would post your husband's stats - his Gleason score, PSA, age, etc.

I wish you and your husband the best of luck.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage updated to T3a with one microscopic extension into but not through capsule. Surgical margins, bladder and SV negative for tumor. Gleason 3+4 (no change from biopsy). PSA of 0.0 every 3 months since surgery. Incontinence is very good to excellent. Making progress with ED.


55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 8/5/2009 3:42 PM (GMT -6)   
Welcome Possum,
 
There is a lot of good information here to browse through, from people who have traveled this road before.  Everyone here is great and full of good advice.  As Sephie said, it's most helpful if you go to the "Control Panel" at the top part of this web page, then edit your profile to compose a "signature" for your posts that has all your relevant medical information, however much you have available.  You can always update it later.  We're all here for you.
 
Greg

Age 55
PSA history: 2.9 (Oct 04), 3.7 (Dec 05), 2.79 (Nov 07), 4.54 (Jan 09), 4.9 (Feb 09)
05/18/2009 - Robot-assisted (daVinci) laparoscopic radical prostatectomy by Michael Esposito, M.D. and Vincent Lanteri, M.D. http://www.roboticurology.com/ both nerve bundles spared
Surgical Pathology: Prostate gland 51.8 grams; Gleason score 3+3=6; Pathologic stage T2c, N0, Mx; Left/Right Pelvic lymph nodes clear (no tumor present); No presence of extra-capsular invasion;  No margin involvement
05/26/2009 - Catheter and incision staples removed
05/30/2009 - Started Viagra 25mg 3x/week
07/06/2009 - 1st post-surgery PSA <0.1


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4834
   Posted 8/5/2009 3:52 PM (GMT -6)   
Welcome to the site and sorry you have to be here. There is a lifetime worth of reading in what we call a sticjy thread. (at the top of the list)
 
Here is a direct link:
 
Prostate Cancer Resources and Direct Links to Sites, Videos, Books...etc. 
http://www.healingwell.com/community/default.aspx?f=35&m=52996
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/5/2009 4:07 PM (GMT -6)   
Greetings, Possum.  Sorry you have to be here but welcome to the forum.  There truly is a wealth of information on this site and it is real experience from real people. I chose surgery, but there are many here who chose radiation and I'm sure they will be chiming in soon.  Best wishes.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Siewife
New Member


Date Joined Jun 2009
Total Posts : 14
   Posted 8/5/2009 6:18 PM (GMT -6)   
Hi Possum,
 
My husband was also recently diagnosed (May) and had surgery last week.  Unfortunately, I can't comment on radiation but I know there are folks here - who are all incredible! -  who can give you that information.  I can say that as a wife this has been a journey for us.  One of my roles has been a listener and recorder - I bought a notebook right after his diagnosis and take it to every appointment and record everything doctors say.  Ditto when he was in the hospital - wrote down everything - so we have record and so we can keep track.  I do find that much is said quickly and it's hard to remember it all. 
 
We're still very early in this journey - he still has catheter (we call it his sidekick) but looking forward to feeling better day by day.
 
All the best to you and your husband....
husband, age 56
psa 4.3
biopsy 5/20/09 - 2/14 positive, 3+3=6
consultation 6/4/09 - revised to 3+4=7
open surgery scheduled 7/31/09


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 8/5/2009 6:55 PM (GMT -6)   
Possum,
Good luck to you and your husband on this journey. I've having Surgery next week. My father was treated in 1997 with Proton Beam radiation. You might want to resesarch that. The draw back is there are only 5 centers in the USA that use the proton beam so don't know if you can go to one of those areas for treatments. My dad is doing good 12 years post treatment. I had looked at the Proton Beam but my insurance would not cover it so have opted for the Davinci Robotic surgery.

Remember that you have to choose what you and your husband think will give you the best chance depending about age, etc.

You will find a ton of information on this site.

Larry
Age at diagnosis 54, PSA 5.1
Father treated for Prostate Cancer in 1997 with Proton
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7
              2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery Scheduled 08/12/09 at Vanderbilt, Nashville TN. 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/5/2009 6:59 PM (GMT -6)   
Patti replied in another thread (No Subject) with a sig. with details of her husbands stats.

Patti, when replying to others answers, hit the Post Reply botton, rather then the New
Topic button, ok?

Here's her post copied here:

Hi All,
Thank you everyone for responding to my post. I really appreciate it. It's good to know that my husband and I are not alone. I will keep you posted once he decides where he is going to go for his treatment.
Thanks again and take care,
Patti

Husband's medical info as follows: PSA jumped from 2.7 to 11.5 in a year. Gleason score is 7 ( 3+4 ). Biopsy showed 3 cores out of 12 with cancer. Staged at T1C. Low end of intermediate risk. Recently diagnosed with Parkinson's plus disease and therefore is not being offered the prostatectomy as an option.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 8/5/2009 7:19 PM (GMT -6)   
Welcome, Patti,
You certainly have a lot to think about right now.  Be sure to take your time and consider all of your options.  Then, be confident with your choice.  Just the fact that you are involved in your husband's treatment will mean a lot to him in the coming months.  There will be times when you will have to be strong to support him, but also try to get some moments to be by yourself so that you don't get completely overwhelmed.
I wish you all the best,
Dan
PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
25 mg Viagra nightly;100 mg:not ready for prime time
Followup PSA 05/28/09 <0.1
 
 


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 8/5/2009 7:21 PM (GMT -6)   
Patti,
 I did not have radiation so no direct comments on your immediate circumstance.  But being 30 months post op for RP via DaVinci, I and others are here to work with you and your husband as time goes on.  I'm sure we all will have something valuable to share in the healing process. Welcome aboard!
Marc
64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25/07 to 11/6/08.
Vacuum pump - no help.
Trimix injections started.  0.09cc is great! 10/08/07.
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
Total ED...19 months.  URO took me off oral drugs 11/2008.
Geon


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 8/5/2009 7:47 PM (GMT -6)   
Hi Patti,
 
Welcome to the site. As others have said sorry you have to be here. I had IMRT/IGRT (Intensity Modulated Radiation Therapy/Image Guided Radiation Therapy) as my primary therapy with adjunct hormone therapy. If you have some specific concerns or questions I can answer based on my own experience and research prior to treatment. My signature has a bit more detail on my status.
 
Take care,
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/5/2009 8:12 PM (GMT -6)   
Hello and welcome Patti, so glad you found us, I am a surgery guy, but there are radiation men here. We would all be happy to help you. Please keep us posted, and ask all the questions you wish.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/5/2009 11:32 PM (GMT -6)   
Hi Patti, as others have said, sorry you're here, but that said, welcome.

You mention that Parkinson's means he isn't being offered surgery. I'm puzzled by this. Can you, or someone esle, explain why?

Thanks and best wishes --- the force is already with you: You've landed in the midst of a wonderful group.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 8/6/2009 10:26 AM (GMT -6)   
possum
There are a few different types of radiation treatments available. There are seeds, external beam such as IMRT, and proton. Each as their pros and cons. Explore all there possibilities.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/6/2009 10:49 AM (GMT -6)   
Welcome,
Siewife was giving excellent advice about going with your husband to all medical appointments. The stress and the amount of information can be overwhelming. You forget what you were told and you forget to ask questions. I started out going alone to be grown up and a brave little soldier. I was a jerk. My wife and I as a team are much stronger than either of us alone.

Also, take the advice and look at the permanent links at the top. There are some good books on the treatment of PC and you get the whole story laid out in one place.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 8/6/2009 9:44 PM (GMT -6)   

Hi Patti,

I had seeds (brachytherapy) Jan 08.  Had some probs with urinary urgency and probs passing urine, but they diminished over several months.  Also experienced burning during urination and rectal burning on urination and with BM's. Also have IBS, which prob agravated the situation.

However, in April 09, Drs declared failure of the seeds and started me on hormone Lupron.  Have had two incidents of bleeding when passing constipated stool.  Subsequent BM's negative for blood.  Not sure if due to hemorrhoid or rectal irritation from delayed effect of seeds. Lupron causing hot flashes (just like menopause in women), some loss of muscle mass (lifting light weights to help), and some breast enlargement (not severe). I'm very positive and living life pretty normally.

Despite above, I would prob choose the same treatment since I was 68 when dx'd.  Drs felt that it was as effective as surgery, which I would prob not have tolerated very well. The procedure is a breeze - gen anesthesia, home the same day, wear catheter overnight (prob took it out a little early but thought I was in the clear). Already had some ED before proced so not too concerned about that.  Wife very understanding.

As others have said however, surgery after seeds is not a likely option.  So that should be a major consideration. Good luck in making a decision.

Gene in Md


Hopeful in MD
Age 69.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six biopsies positive. Gleason: 6 (3+3). Seed implants Iodine 125 Jan 08. PSA's 3.9, 1.7 after implants. Rising PSA's: 2.3, 3.4, 3.9, indicating  seed therapy not working.  April 2009 began hormone injection therapy with Lupron 30 MG ea. 4 mos.   So far so good. Slight fever and aches 2nd day after shot. Buttock soreness 2-3 days.  June - hot flashes.  Lot of fatigue in morning which has eased as of mid July.  Next PSA Aug 09.
 
Oncologist Jun 17.  DRE negative for nodules - hooray!  
 
Began seeing psychologist Jun 4 for anxiety and depression.  Anxiety from serious IBS (irritable bowel) probs.  Doctor using hypno-therapy for the IBS - talk therapy for anxiety.  Was taking Celexa for anxiety-depression but decided it was not needed so stopped it.  Depression not a problem as of mid July.   Recommend anyone having difficulty coping with PC or other chronic conditions etc. get professional help. 


possum
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 10/6/2009 12:32 PM (GMT -6)   
Thanks to everyone who replied to my post. My husband, after much thought and consideration given to the many options decided to go with IMRT radiation. He just started the day after his birthday on Oct. 5th and will be doing this for 8 weeks. His anxiety level has gone up but we are both trying to just take one day at a time and live our lives as long as we can. Our relationship has been put to the test what with his Parkinsonian disease and now cancer. We continue to find strength together and our sense of humor seems to buoy us when we are feeling down. Good luck to everyone out there who is battling this disease. I appreciate all the info and stories and the bottom line is that we are not alone. I will keep you up to date on his progress.
Possum
Husband's medical info as follows:  Age - 69.  PSA jumped from 2.7 to 11.5 in a year.  Gleason score is 7 ( 3+4 ).  Biopsy showed 3 cores out of 12 with cancer.  Staged at T1C.  Low end of intermediate risk.  Recently diagnosed with Parkinson's plus disease and therefore is not being offered the prostatectomy as an option.                                                            


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 10/6/2009 3:46 PM (GMT -6)   
Possum,
Thanks for the update. Glad the two of you have each other, and I guess if we are successful in marriage then this is part of the journey we make. That sense of humor goes a long way in helping deal with the downside. Be blessed and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/6/2009 3:50 PM (GMT -6)   
possum,

glad to hear your husband has chosen and started his treatment, radiation in this case. You can tell him, I started my 39 days of salvage radiation on the same day as he did.

medical woes have always brought my wife and I closer together over the years. I guess it has to do with the "for better ,for worse" part of the vows.

hope you and your husband do well.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 10/6/2009 7:59 PM (GMT -6)   
possum/patti
 
Hi and welcome.
 
I had a combo treatment of radiation consisting of IMRT and PROTON at the U of Florida Proton Therapy Center.  I am also into month 17 of 24 months of Hormone therapy (Casodex and Lupron)
 
My wife is my rock and our journey is on my websitte  www.gleasonscore10.com
 
Do your research, make your decision, get treatment, don't look back.
 
Rich
aka smilingoldcoot
Biopsy 1998 = Neg Bio 2000 = Neg with PIN Bio 1/10/08 Gleason 10, Stage T1C 8 of 12 samples positive all < Than 5%
Bone Scan, CTs and MRI Negative early 2008
March 2008 MD Anderson - No Surgery or Proton = No Action
Feb & Mar PET (Possilbe Lymph Node Involvement  & Prostacint Scan Negative
March 2008 U of Florida Proton Therapty Lupron & Casodek May 08 for 2 years
Completed 25 IMRT and 17 PBRT U of Florida Proton Therapy Institute 7/24/08
Latest CT June 08) showed no trace of tumor in lymph node area
7/24/2008 PSA .21, free PSA .08, Percent free PSA 38.1, testosterone 14.6
8/1/2008 2nd Lupon Shot -- 10/27/2008 PSA <.01 -- 12/9/2008 3rd Lupon Shot
12/11/08 MRI Suspicious for Metastic disease L5 & S1 -- Bone Scan 12/19/08 Indicates No Bone Mets Spinal Stenosis and Neropathy in my legs
2/06/09 PSA = < .01  -- 4/09/2009  PSA <.01 --4th Lupron shot 7/02/2009 PSA <.01 Lupron
Our Journey is on WWW.GLEASONSCORE10.COM


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/6/2009 9:43 PM (GMT -6)   
Hey Patti, good to hear from you. I took special note of you when you first posted as my daughter is a Patti with and "i" not a "y"

Glad to hear treatment is underway, but still puzzled why the Parkinson's would be an issue with surgery. I have an uncle with what I'd call moderate advanced Parkinson's who at the age of 85, a couple of weeks ago, had surgery.

Do keep us posted on the journey the two of you are making.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 10/7/2009 12:05 PM (GMT -6)   
Best wishes to you and your husband as he starts his radiation treatments. Keep us posted on how he does.

Larry
Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 10/7/2009 8:29 PM (GMT -6)   
Best of luck to both you and your husband. Keep us posted about his progress.

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next

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