Husband continues to be "special" (Advanced Prostate Cancer)

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Amy41
Regular Member


Date Joined Jan 2009
Total Posts : 30
   Posted 8/6/2009 1:20 PM (GMT -6)   
So a year after diagnosis - 51 yo hubby has now failed docetaxol chemo and will be starting mitoxantrone plus a clinical study next week - hopefully the cancer can be beat back abit.  So send some more good thoughts our way - would like another year with him - but also don't want him miserable and in pain - I do think the chemo has worked to a certain extent and the zometa has also helped.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/6/2009 1:23 PM (GMT -6)   
Amy, sorry to hear the news. I'm sending kind thought, prayers and strong wishes to you and he, hoping and praying for a reversal. Stay strong, take time to take care of yourself and keep in touch.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 8/6/2009 1:32 PM (GMT -6)   
Amy,
My prayers go out to you and your husband. May the Lord be with and him on this journey.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 8/6/2009 1:40 PM (GMT -6)   
Will be thinking of both of you. Be strong.

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4108
   Posted 8/6/2009 2:17 PM (GMT -6)   
My thoughts and Paryers are with you both....This jurney has so many bumps...

Jeff
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2229
   Posted 8/6/2009 2:18 PM (GMT -6)   
Amy,
I wish for you and yours the best. Like the rest of us I will have the two of you and your entire family in my prayers.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when dx
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better
hope to start ed tx 7/17
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/6/2009 2:45 PM (GMT -6)   
Dear Amy,

My heart goes out for you and your husband, and I know how hard it must be for you to watch what is happening to him. I hope he can still make a turn around, or something new or clinical will be there to help him. May God bless you and keep you both.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 8/6/2009 3:32 PM (GMT -6)   
Amy,

Sending kind thoughts and prayers from the wife and I both. Stay strong.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
Fully continent on 4-09-09, no more pads
2nd Post-op PSA 7-21-09   0.00
Switched to bi-mix injectable 7-21-09


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/6/2009 4:04 PM (GMT -6)   
We are very sorry to hear this. My wife and I are sending every good heartfelt thought we can your way. Be strong.

Mike
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/6/2009 4:15 PM (GMT -6)   
Greetings, Amy.  Thanks for the great support you are providing your husband.  I know he appreciates it - my wife is my biggest supporter and I'm more grateful than words can ever express.  We will be praying for both of you in these days.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/6/2009 5:01 PM (GMT -6)   

Hello Amy,

I don't post here often..........but I read your thread and had to leave you a message of hope and prayer.  You are an amazing person and what a loving wife.  Sending you many gentle hugs to help your get through each day and may your husband feel some peace.

Kitt


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/6/2009 5:38 PM (GMT -6)   
Wait a minute, stop stop, do not say you want another year with him. You want many many years with him. I am praying right now for the emotional and spiritual healing that I feel is important in fighting off this disease. If our words have away of manifesting themselves into reality then by all means everyone in your family needs to be wanting years and years. I do not stick my head in the sand and fully understand what refractory cancer can do. I myself am stage 4 gleason 9. I surround myself with positive information, from the things I read, write, say, do, people I am around. This cancer is bad enough to deal with please please remain positive.
Please write to me sometime and lets talk about the aspects of this and life itself. We are all going to live this thing out. Call me silly I am ok with that. I just want all of us to be around for years to come.
I love you all and yes I am sending many good thoughts and well wishes.

peace love and joy
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009

cancer in 4 of 6 cores

92%

80%

37%

28%


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4108
   Posted 8/6/2009 5:57 PM (GMT -6)   
Dale: I could not have said it better. Thanks for you wonderful words. I second them!!!!

Paryers each day are for the families that are living with cancer!

Jeff
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 8/6/2009 8:28 PM (GMT -6)   
Amy, the prayers of myself and my wife will be with you.

My wife was diagnosed with cancer in November 2005. She has undergone chemo and stem cell transplant. Her immune system is weakened and she continually fights against flus, colds and pneumonias, Her latest episode resulted in a 7 week stay in the hospital (3 weeks in ICU on a ventilator). This trial ended today when she came home to me.

My own journey with cancer started 3 days after she went into the hospital when I got the results of my biopsy that confirmed the presence of PC.

We both feel very strongly in the power of prayer. Many of the professionals that delat with my wife over the last seven weeks call her return to me a miracle.

If we are a little closer to God's ear in our prayers, rest assured that our prayers will be with you and your husband.

You are not alone. I have been the caregiver and now will be the patient. My faith has not waivered and my hope is still as strong.

I know in my heart that my wife and I will enjoy many years of life together yet.

Our prayers are with you.

Sonny
60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/6/2009 8:41 PM (GMT -6)   
Amy,

Look at the signatures of some of these guys trying to encourage you ! In this thread alone there must be 6 miracles going.

Prayer is an important thing, but so is hope. Keep your heads up and don't quit fighting.

New things are happening every day. I don't know your history, so I don't know everything you guys have tried, but keep on looking, getting more opinions, and of course ,keep loving each other more every day. Without the love of my spouse, it would be a weary road .
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/6/2009 9:20 PM (GMT -6)   
Amy, I'm sorry to hear this. It takes a lot of love to face a loss rather than have him suffer. If it was my wife of 43 glorious years I don't know how I'd be able to be as selfless and reach the point you have.

Unlike Dale and Jeff, if I read them correctly, I don't see your facing one of the possible outcomes and reaching decisions concerning it, as being either negative, or precluding having a gung ho positive outlook. Matter of fact, I think having looked death in the face, and called its bluff, you can be far more positive than if you hadn't. For me an important part of being positive is my understanding/belief that adding life to my years is far better than simply adding years to my life. Of course, one wishes for both, but I don't think any of us who have prostate cancer, regardless of pathology numbers, are unmindful of the fact that we may yet wind up in the small group that doesn't do well and are resolved to cut the cloth of our lives accordingly.

I applaud your stance, and admire your love. You are a rock.

Where Dale, Jeff and myself likely do come together is in encouraging you, as I'm sure you are, to also be a sunshine person for your husband and yourself. Be his span 20 months or 20 years (and you will be on my prayer list this evening that it is 20 years) fill each day, hour and minute with the sunshine of positive energy. There is a world of difference between acknowledging and accepting worst outcomes and allowing that to then be the central theme of life.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/6/2009 9:33 PM (GMT -6)   
Amy your husband sounds like a great man. He certainly has a wonderful lady looking out for him and that is a true blessing for him I'm sure. As a man who relies heavily on prayer and faith, I pray for you and your family for that year and peace to go along with it.

May God bless you and your family...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/6/2009 9:49 PM (GMT -6)   
I am reminded of the line of poetry;
"Though much is taken, much remains"
If your worried about pain and you husband's future I urge you to talk to his doctors. If it proves necessary, there is much that can be done to mitigate pain and they may be able to reassure you.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/6/2009 10:07 PM (GMT -6)   
Hi Amy,

You and your husband's courage to keep up the fight is a great help to others.

I hope you find an effective treatment soon.

Our thoughts and prayers are with you.

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


Amy41
Regular Member


Date Joined Jan 2009
Total Posts : 30
   Posted 8/7/2009 1:20 PM (GMT -6)   
Thanks for the support - Yes of course I'd love more then one year - but like I said he continues to be special - hormone therapy worked for a bit, and now the standard chemo has quit working - so I'm hoping the "special" husband has good luck with the new im clone study and the old school chemo and the cancer can be held in check and he can be feeling better and back at least partway to his old self. It's hard to believe just 2 years ago we were in France participating in a huge endurance cycling event. This is way harder then any endurance event.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/7/2009 2:25 PM (GMT -6)   
I've got the im clone study on the prayer list along with the two of you.

Please, do keep us posted on events as they unfold.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 8/7/2009 6:09 PM (GMT -6)   
Amy,
Of all the twists and turns on this journey, the one that angers me the most is knowing some real advances are being made in prostate cancer research, but the time to get those in public use doesn't match the timetable some of us are facing. I say go for the clinical study. And I agree with what others have said, stay positive! Faith, Hope and Love are the spiritual virtues that keep us going.
You and your husband will be in my prayers.
Bless you, both.
Bill

Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/13/08) (3/13/09) (7/10/09): all <0.1


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 8/13/2009 7:25 PM (GMT -6)   

Amy. I too am advanced. Stage 4. 45 years old.Look at my signature. It aint pretty.

     Pau d' arco. herbspicetea.com. 500mg caplets. It wont hurt. It will not interfere with any other treatment. I am here after 38 months when at the time of dx my psa was 3216.11. It is now 0.05. My lung bone and lymph node mets are gone. My only other treatment was ht. I take ten caplets a day. They cost 20 bucks for a thousand of them plus 20 bucks shipping. if you buy 2000 of them they waive the shipping. To me its a no brainer. I was givien 6-12 months. It has been 38. I can not promice it will work but it's only 40 bucks and it just may work. Todd

 
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

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