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Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/7/2009 8:30 PM (GMT -6)   
In the time I've been a member here, I've never visited another illness group.  But, if I log in through the home page I notice the recent posts to all forums on the right hand side.  One there tonight says:  anxiety; my teenage daughter is having SEX!   There's a notice about ostomy bags.  A post on mental illness.  While I am acutely aware that many here are facing challenges larger than I at this time (and that I may well be in their shoes in the future) nevertheless this scan of topics again helped me put my perineum ache/pain into perspective.  I'm glad I don't have teenagers, an ostomy, or mental illness in the immediate family to cope with. 
 
In another thread David and I discussed how some of us deal with PCa by saying we're lucky to have 'the good one,' while others deal with PCa by being more realistic and aware that there is nothing good, and much horrible, about PCa.  Both are legitimate coping strategies as far as I'm concerned, and I find myself flopping back and forth.  My public face to friends, family and co-workers, tends to be in the positive spin ain't I lucky camp.  My own self talk tends to be more in the realistic camp but levened by telling myself, no matter what, I'll handle it. 
 
In yet another thread Worried Guy talked about using humor to cope.  I think he said it was better to laugh than cry.  I can identify with that.  If I can laugh, especially at myself, it makes bad things better.  It's hard to be upset about pain in a swollen scrotum while laughing about the thought of streaking a football game.  "The purple nut bag hits again," would read the headline. 
 
So, what's all this about?  I don't know, except we all seem to have our own way of coping with PCa and each is a valid for that person.  David, Dale, Worried Guy, geezer, Amy, Bob, Tony, Siewife, Bob D, Ed C, Colin, James C, possum, and all the rst of you, approach coping from their own unique perspective.  While I continue to cope in my own way, I thank all for sharing their perspective on PCa.  Not only is each interesting, each makes my own journey a little bit easier.
 
Thank you
 
Sheldon  AKA   Sleepless   
 
 
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/7/2009 8:54 PM (GMT -6)   
Sheldon,
Great post, at a great time. Our differences, and many they can be at times, is what makes our brotherhood here so strong and so determined, and so comforting. We are a good mix of men, along with our other halves, from all over the place, from all walks of life, with a million experiences to share.

How one copes with the great beast PC, varies as much as we vary. There is no right or wrong here, in the end, we may fight the same enemy, but we fight different battles on different days, but we are all on the same side, in the same war. Many of us will win in the normal course of our destined lifetimes, and some of us won't, just like in war.

Our strength will always be our common ground, not our differences. All for one, and one for all, I say.

Speaking only for myself, I would be 10 times worse off, if I didn't have all of you to talk to, to vent, to laugh, to weep, to rejoice along with. It would be a much lonlier battle without you guys.

David in SC


Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 

Post Edited (Purgatory) : 8/8/2009 7:51:40 AM (GMT-6)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 8/7/2009 9:28 PM (GMT -6)   
Sheldon,
Great post. We all deal with adversity in different ways. I find myself switching from not thinking about PCa but then there are moments when I'm alone, negative thoughts hit on the head with a hammer. I often wonder what the future holds for me. When I tell friend that I had undetectable PSA they assume that I'm cured and have nothing to worry about. They don't understand the seriousness of Gleason 8 PCa and they wonder why I keep reminding them of the likelihood that it will come back. I try to live as if nothing is different but I find myself worrying about my wife who is totally dependent on me. How will she cope with every day life.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 8/7/2009 9:46 PM (GMT -6)   
You can't know how much this site has meant to me. I wrote my first post in pain: mentally, physically, emotionally -not at all sure of the outcome. Sheldon, David, geezer, goodlife, TC, WD-40, Ed, Barry, et al. jumped at the chance to reply and the quick response left me in tears. I read your signatures that night and realized I was not alone. Here I was, not sharing my PC with anyone, and you guys were opening your kiminos to me. My humor (if not willie) came back.
Heck, I even started to making a list of funny things that happened during my recovery. You wouldn't think anyone can laugh about our situation but some of these posts really crack me up and lighten the load. Who else can I share this stuff with?
My wife has rightly noted that conversations with you have done more for me than talking about it with her. (She's admitted to being a little jealous but understands this site is GFMPH).
Thanks for being here and helping me cope.
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/7/2009 10:13 PM (GMT -6)   
My wife is jealous. Says I spend more time on this forum than with her. Hey, I sleep with her for 8 hours, not you guys.

Good post sleepless. I think PC can either bring the worst out in us or the best. Hopefully, a good coping mechanism is the best. But anger, bitterness, denial, and depression are also ways that people use to deal with issues.

Like you, I am here to take it head on. It's kind of driving a train. We can't stop in time, or turn to avoid it, so we've got to figure out how to face this thing for what ii is, and what we are.

Frankly, none of us are immortal. I'm not afraid to die, because I have a great confidence in what is to come. I do want to be remembered however as a someone who took this like a man, with grace and diginity, and not a bunch of whining. I find such an inspiration in men like Purgatory and many ot the rest of you.

I have chosen humor publicly to cope with it, and realism privately. Being a control kind of guy, I am telling my doctor what I have decided, not really asking him what I should, altho of course I do consider his opnions.

God Bless the HW gang. I have a release, and fun on this forum, another coping mechanism.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/7/2009 10:19 PM (GMT -6)   
This site as also been a great help and comfort to me in the normal run of life I can make all the decisions that I need to make through my own thought process but not with this PC problem this site gave me what I needed a wide view of ideas which I needed I still had to make the decisions which is is the way it should be It is still helping it is so good to know that any problems that might come I can come on this site and within a few hrs I know that my problems are no different to most people that have been there before and is the normal recovery process by the way what does GFMPH mean


 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/7/2009 10:30 PM (GMT -6)   
Good for Men's prostate health
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 8/8/2009 5:25 AM (GMT -6)   
Before PC, I had the attitude – if I’m going to go, I might as well go out in flames.  Part of that entails “smoking two packs a day has its good points.”
 
After PC, I’m leaning towards the ol George Burns motto: “If I knew I was going to live this long, I’d taken better care of myself!”
 
Now when I get a flyer from the hospital one mile away about cholesterol testing – I go. (went four days ago)
 
Also this week I made an appointment with my long time friend Doc Don. He’s the head shrinker I’ve visited about 20 times over the past 20 years or so. He also does Quit Smoking Hypnosis and his office manager says he has a 99% success ratio.
 
It really cracks me up when I think about had I quit in January, my long over due bathroom remodel job would be done and paid for with the money I’ll save when I quit.
 
 


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/8/2009 6:07 AM (GMT -6)   
GREAT POST!!!!! Many of you have responded my my questions and comments. This PC has its learning curve. We all deal with it differently. It hits us in so many way alike yet also different for most of us in many ways also. Treatments are different but in many cases the fears are the same, the angers are the same, and we all hope or prey for the same outcome.

Side effects are the same for most of us in one degree or other. I guess the moral support , advise and the ability to ask questions that we certainly cant ask our reg buds about (ED and incontinence) has been a great help to so many of us.

Thanks to each of you.

Jeff
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 8/8/2009 6:50 AM (GMT -6)   
Colin45,
GFMPH means: Good For Men's Prostate Health. If you end a request with "...is Good For Mens' Protate Health." Your significant other will always agree.
For example: "I heard that eating all the brownie edges in the pan is Good For Men's Prostate Health." Or "I heard that having a $700 rolling tool organizer in the garage is GFMPH." or "I heard a trip to Cancun is GFMPH. " or "I heard a daily back massage is GFMPH."
It's amazing! Give it a try - (but don't tell her I said so. Genital removal by hand is definitely NOT GFMPH!)
I gotta' tell you, the GFMPH concept has certainly helped me cope!
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/8/2009 9:01 AM (GMT -6)   
Goodlife, I appreciate the compliment, but for the sake of accuracy, I am no different than any other man here. I do my share of whining, feeling sorry for myself and my current situation, I get angry (though I try hard never to take it out on anyone else), give me enough pain, like when I went through the emergency dialation with no pain meds, and I cry, I hurt. I think if I had real enemies, where I would annoy them, is that no matter what happens to me, I keep bouncing back up, or like the bad penny, I always show up. Showing up is half of life.

I liked the quote above about George Burns, knowing what I know now about men's health, there would be many things I would do different if I were younger, but when you are young, you really do think you are immortal.

Smoking, I quit the day before my surgery, so I haven't had one, or the desire to smoke, since November 13th of last year. No judgement on any smoking brothers here. I figured I had enough going on wrong with me without adding to it. Plus in the current economy, it's an easy way to save 4-10 bucks a day.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/8/2009 9:49 AM (GMT -6)   
Greetings, everyone.  Great post, Sheldon.  I do appreciate everyone here and the comraderie we share.  I regret our common bond is this disease, but whatever the reason, I'm glad I found this group.  It's always good to have a group of people who know what we're going through to bounce issues off of.  Thanks to everyone.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 8/8/2009 4:14 PM (GMT -6)   
This is a great post. I found this post soon after diagnosis. I kept googling some thought I had about the pc and most hits came to this forum. Although we've never met, I find myself close to a lot of you becuase we have shared so much. I have my case of fear. a couple of months ago I was about to make a large purchase. I immediatley thought "should I get a PSA test before the purchase". I know that is a horrible thought but at times I do live my life worrying. I also said when I survive this surgery I am not going to let work get to me or stress, etc. etc. etc. I find myself falling back in the same trap as before. I am going to try to start over. One thing pc taught me is we should always try to enjoy every day and find the best in everyone! Now if I can only accomplish my own desires!
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/8/2009 4:22 PM (GMT -6)   
This indeed is a great post. My coping mechanism is really to stay so busy helping others that I do not think about what I have. Sounds silly I know but gosh it works. I love to read stuff here on HW it is always eye opening and thought provoking. Every person here has a unique way of dealing with PCa and its impact on their lives. I love everyone here and even though I probably use my faith often but that to is a part of me. All my ministries I am involved in and work and exercise keeps my mind somewhere besides cancer.
I love all you guys and more than anything I love sharing our views on topics..

peace to all
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8

I had 44 IMRT's

Casodex

Currently on Lupron

I go to The Cancer Treatment Center of America

Married with two kids

latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009

cancer in 4 of 6 cores

92%

80%

37%

28%


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 8/8/2009 4:28 PM (GMT -6)   
What a stupid post!

OK, just kidding, making sure you are all paying attention!
It is one of the best posts I've seen in a long time (IMHO).

How we cope is as different as we are individually.

I start with this: "It is what it is". I can't control it, I can't change it, I can't cure it.
What's left? Get up everyday and try to make a difference in the world, even if it's something small.
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th

Current (7-20-09)
PSA: 97.14
Treatment: Lupron, Zometa, HDK+HC
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 8/8/2009 4:48 PM (GMT -6)   
OK. David E. You gave me my first laugh of the day...
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Siewife
New Member


Date Joined Jun 2009
Total Posts : 14
   Posted 8/8/2009 5:38 PM (GMT -6)   
Many thanks to all of you "guys" for allowing this spouse to participate in this conversation and to gather support both for myself and for my hubby who is far too shy/private to post himself although I quote you to him frequently and he appreciates enormously the advice/good thoughts/camaraderie.
 
I was struck by a comment Sleepless 09 made about "having the good one" - as that is an issue I have struggled with.  When I have told folks my hubby has PCA I often get a response of "oh..he'll be fine" or "he's lucky that's nothing."  Well in the great pantheon of horrible cancers (to which I have lost too many loved ones and friends), yes he has a "good" cancer and thus far a "good" prognosis.  But he still has cancer and now he is incontinent and impotent and while those are not fatal, thank heavens, they are devastating to an otherwise healthy man.  I don't mean to say we aren't grateful b/c we are, but to rant a bit about those who minimize this cancer.  No cancer is a good cancer.  End of rant.  Good evening to all!
husband, age 56
psa 4.3
biopsy 5/20/09 - 2/14 positive, 3+3=6
consultation 6/4/09 - revised to 3+4=7
open surgery 7/31/09; discharge 8/4
catheter out 8/7
T2a, N0, Mx, Gleason 7 (3+4)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/8/2009 6:33 PM (GMT -6)   
Siewife, you opinion about cancer in general is well understood here by all of us, well spoken.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/8/2009 6:54 PM (GMT -6)   
Hi Siewife,

I agree, there is no good cancer at all!

My daughter had thyroid cancer and even though it is "very treatable" it was no picnic in the park for her, or for her Mom and me.

I think many people go along in their own "pink perfect" world (I think it was blue colored world for David in SC) and worry more about jobs, relationships, kids schooling, etc. until a real health crisis comes along.

When a health challenge occurs, many of us then appreciate the good health we may have experienced before.

I don't think there is one good way to cope, except to say that eventually you have to get back to some normalcy of work, school, daily routines, etc.

What really helped me is this and other forums like it. I was able to see that I was not the only one with this disease. I saw others with more challenging instances of prostate cancer that were making it day by day and thought I should be able to do it to.

I have lost friends to this disease, but they have also strengthened me in the way in which they handled the overall challenge.

Another method that helps me very much is doing service for other people including my wife, my family, friends and neighbors. It helps me forget about myself a little bit and enjoy being with and helping other people.

Well, that's my two cents worth.

Kind regards,

Barry
Da Vinci LRP July 31, 2007… 54 on surgery day
PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate
6th PSA 06/09 still less than 0.1


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 8/8/2009 9:22 PM (GMT -6)   

To all of you great guys and gals - I suddenly realized that I had not really "adjusted" to having PCa until this past week - even though I was dx'd in Dec 07.  The posts in this forum are awesome! and have helped me to accept it and go on with my life despite early depression and fatigue (Lupron).  I have two wonderful kids - boy and girl (actually man and woman) and the dearest wife, who threw me a surprise 70 year birthday party today at a local park.  It was also awesome and included some close friends and a priceless collection of photos of important friends and events in my life. 

I don't feel 70 and most people say I don't look it.  So what's my point?  The point is that it IS OKAY to GO ON LIVING.  Just because we have PCa doesn't mean that we lie down on the sofa and give up.  We CAN continue to enjoy life and to learn and do new and different things.  This past week, I bought a treadmill and have begun to use it daily. I am also doing light weight lifting with 5 lb barbells.  Plan to revisit Tai Chi when the next session starts at the local "senior" center.

In Sept. my wife and I will fly to Maine to celebrate a reunion of her family there.  And I will be visiting my relatives and some high school friends there also.

One last thought.  I recently heard a lecturer on TV say that he sits down with his wife and son each evening and they each tell the others four, five, or more things that they are thankful for.  I have started doing that with my wife and have recommended it to our children.  Today I am thankful for all of you, for my wonderful children and friends, for being able to get on a treadmill, for a glass of red wine I had this evening, for looking forward to another day of hot Maryland weather (not really).  But you get the idea. You might give it a try.

Actually, another thought - will probably get my latest PSA results Monday.  Hoping for 0 or equivalent.  But I won't be devastated if it isn't.  Mentally, I'm as positive as can be.  Physically, I'm a 70 year old trying to pass for 25 tongue .

Love and hugs to you all,

Gene in Md


Hopeful in MD
Age 69.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six biopsies positive. Gleason: 6 (3+3). Seed implants Iodine 125 Jan 08. PSA's 3.9, 1.7 after implants. Rising PSA's: 2.3, 3.4, 3.9, indicating  seed therapy not working.  April 2009 began hormone injection therapy with Lupron 30 MG ea. 4 mos.   So far so good. Slight fever and aches 2nd day after shot. Buttock soreness 2-3 days.  June - hot flashes.  Lot of fatigue in morning which has eased as of mid July.  Next PSA Aug 09.
 
Oncologist Jun 17.  DRE negative for nodules - hooray!  
 
Began seeing psychologist Jun 4 for anxiety and depression.  Anxiety from serious IBS (irritable bowel) probs.  Doctor using hypno-therapy for the IBS - talk therapy for anxiety.  Was taking Celexa for anxiety-depression but decided it was not needed so stopped it.  Depression not a problem as of mid July.   Recommend anyone having difficulty coping with PC or other chronic conditions etc. get professional help. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/8/2009 10:36 PM (GMT -6)   
Gene, what a great attitude to have and to be 70 yet. Makes me feel like a youngster at 57.
I lived several times growing up in the great state of Maryland, always a place in my heart for that.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/9/2009 8:34 AM (GMT -6)   
There are many wonderful thoughts and ideas in this thread. Thank you all for sharing. It makes what burden I carry much easier being part of such a wonderful group who are experiencing and coping with the same devils.

Another thing I find very helpful is my Personal Mission Statement which I developed a number of years ago for the express purpose of having a rock should life become less easy and I didn't have the time, energy or resources to think about anything except immediate priorities. My mission statement is: "To serve God by being a loving and supportive member of my family who makes the world a better place by helping others reach their full potential." When life is spinning and headed out of control I remember my mission. God one, family two, helping others third. With priorities and purpose, issues can be put into perspective and once in perspective are most always easier to deal with.

It is impossible for me to tell all of you how important you are to me and what a difference you've made in my life these past few months. Bless you all.

I am aware too that our time together is headed to an end. Looking back at the archives I can see that the group which was here last August, while containing a few of you, was a very different group. People have coped with the fears of diagnosis, the angst of treatment decisions, the pains and issues of recovery, reached some normalicy in their lives and moved on. I suppose every week or so the group morphs into a different skin. New people arrive and some quietly graduate --- likely unnoticed as one-time frequent contributors slow down to a point where their absence is hardly noticed as the new team tackles their issues.

I don't expect to graduate, at least not for some time yet. But, many of you I hold dear will, and before you do I want to thank you again for all your support, wisdom, honesty, positive energy and humor.

I write from my cottage near Kenora Ontario on Lake of The Woods where I've come and for the first time since surgery spent the whole weekend. Magic. Our loons have managed to raise two chicks to near adulthood without them becoming lunch for muskies underwater, or bald eagles in the air. Not an easy feat. I did a few swipes on the front lawn with the mower and today I'll take our daughter's dog for a ride in the boat. My wife has brought me coffee in bed and two of the three granddaughters here this weekend arrived in bed with us at seven. Two daughters-in-law are pregnant and will deliver at Christmas. My 95 year old mother has gone off to her cottage at Victoria Beach on Lake Winnipeg and has called to invite us to come and visit. Life is good and whatever cancer cells may still be lurking around, whatever squirts and dribbles may come, whatever aches and pains may attack my perineum, whatever lack of energy keeps me from fishing, matters not in the grand scheme of things --- at least not right now. And I know when these devils do return to overwhelm me I have the shield of my mission statement and my friends here to get me through.

Blessings to all,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 8/9/2009 9:05 AM (GMT -6)   
I enjoyed immensely following this thread and the diverse ways of coping with PC. Like Gene I just turned 70 and my wife caught me completely off guard with a surprise birthday party. One of the individuals at the party was a co-worker that retired 16 years ago and I hadn't seen since that time. I was amazed at how good he looked and how in my eyes he hadn't aged. Then I learned he had lung cancer about ten years ago and had half a lung removed. He is cancer free today and that gives me hope that I too will remain cancer free.

For me coping is complicated. The birthday party made me completely forget about PC. I felt good and enjoyed the camaraderie with old an new friends. Then every three months comes the dreaded PSA test and the fear of an unfavorable result. I'm suffering from minor incontinence and total ED but it beats the symptoms leading up to my surgery. For a number of years before diagnosis it was very difficult to relieve myself. There were times when I couldn't go at all. I would take a short walk and then I could get some relief. I can't believe I ignored those symptoms for so long.

Today is a good day. I'm looking forward to a motorcycle ride with my wife and taking in the beauty of the countryside surrounding me. Let life go on and let's all do the best we can to make it good.

Regards and good health to all,
Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/9/2009 9:06 AM (GMT -6)   
Your last paragraph sounded so wonderful and almost magical. You are a lucky man.
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 8/9/2009 9:15 AM (GMT -6)   
David, you set the standard for coping. I follow your postings because of the inspiration you pass on to others. I sincerely look forward to the day you beat the crap out of this beast.

Bob
Age 69, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative

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