TEST -- I ask for your comments on an ED questionnaire

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geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/10/2009 1:10 PM (GMT -6)   
I was drafted by a group of members to create a questionnaire about the return of erectile function after prostate surgery.

I have done so and I now invite anyone interested to try out the survey and to give me feedback. Here is the link to the questionnaire:

129.25.64.85/new002.htm

THIS IS ONLY A TEST – If you take the survey now please make any comments or suggestions to this thread. Also, if you do take the survey, please use the submit button at the bottom – this will give me a chance to test my data capture and analysis code. Unfortunately, if you take it now and I revise it, I will ask you to take it again.

I sort of apologize for the number of questions in the sexual function sections (before surgery and after) but I have used a widely accepted set of questions and the before and after approach that is used in the research literature. The reference is:

Rosen RC, Riley A,WagnerG, et al. The international index of erectile function
(IIEF): a multidimensional scale for assessment of erectile dysfunction.
Urology 1997; 49:822–830.

Confidentiality -- to the best of my knowledge your responses cannot be traced to you except by law enforcement or court order.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 8/10/2009 1:26 PM (GMT -6)   
That is great idea. Would knowing the doctor and hospital be helpful? That way you can get statistics on the MD performance as well.
I will fill it out when I reach the 2 week point after catheter. I'm still working on continence. And speaking of continence, I'd like to see a similar survey for that too.

I'd also like to see a survey/study about whether regular PSA testing helps quality of life issues. There are studies that show it makes a small difference in survivability- on the order of one man in 1000 or 1 in 1200. But, I'd like to know if it helps with quality of life issues: ED, continence.
My family GP is one of those guys that does not believe in the test. He checked cholesterol and other things but does not check the darn PSA box. (See my signature.) Gee, when do you think I would have discovered this otherwise? When it fell off? Would I be sitting here in my "big boy underwear" instead of diapers if my PC was discovered X years ago when my PSA was 5 rather than 22? I have not seen any studies on this.

Jeff

Oh, You have nothing to apologize for. You can ask me anything, as long as it isn't my password or bank PIN. We are all anons here anyway.
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

Post Edited (Worried Guy) : 8/10/2009 12:37:23 PM (GMT-6)


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 8/10/2009 1:39 PM (GMT -6)   

Hi Geezer:

Even though I'm a seed guy and ineligible for your study, I just wanted to tell you that I think it's a good idea and I look forward to seeing the results.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 8/10/2009 1:57 PM (GMT -6)   
Couldn't seeds be part of this survey too? I don't know how many guys are on this forum but I believe it has to be a statistically significant number. (Maybe James C Moderator can tell us.)
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/10/2009 2:15 PM (GMT -6)   
I'ts not my survey...lol This is a personal effort of some of the guys, so they get to set the rules. You can ask geezer99.

By the way, we don't want to get into having a database of rated md's and hospitals, which could make for legal problems for the owner of this site. As long as we offer personal recommendations for such, there's no problem. Peter doesn't need to be having to defend from irrate doc's and hospitals who feel they have been rated poorly, etc. , if you know what I mean.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/10/2009 2:24 PM (GMT -6)   
Geezer,
Unfortunately I have had to send this thread to our Admin.  I hope he approves this survery.  HealingWell does have a rule against survey's and here it is:
 
6. No posts regarding research studies, surveys or clinical trials without obtaining prior approval from the forum administrator before posting to the forums.  
 
This is as innocent as can be in my eyes, but it still needs to be reviewed by the Admin even though Geezer has no vested interest.  This may be better for Paul's Frank Talk site if not here.  If Peter does allow this survey, then please diregard my message here and I will pull it down myself.  If he does not, then I understand and apologize sincerely.
 
Tony
Prostate Cancer Forum Moderator

Post Edited (TC-LasVegas) : 8/10/2009 1:46:06 PM (GMT-6)


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/10/2009 2:59 PM (GMT -6)   

Hi Geezer,

Glad you guys are doing this. Just took the survey.

A suggestion...the last section asks questions in reference to intercourse only (maybe to establish a correlation to pre-surgery status?). I have not attempted intercourse because I don't have anything sufficient for intercourse yet. But, have had sex often. Maybe a section for guys who don't get anything useful for penetration but still have sexual activity?

Mike


-Hernia, mesh and large scar, surgery early 2006
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Bone scan Dec 08: Negative
-Barium enema X-ray March 09: Small diverticulosis
-MRI with endorectal coil (April 09 as part of a study)
-3D advanced TRUS (April 09 as part of a study)
-CT (April 09 as part of a study)
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/10/2009 3:07 PM (GMT -6)   
Tony,
I'm very sorry to have crossed over the line from asking questions to doing a survey. It is pretty obvious when I look at the rules that I should have gotten permission first. For the present I have pulled the survey.

I am also very sorry to have turned you into a policeman on this. I respect the efforts of the moderators and stand completely behind their judgments. It is not that I shouldn't have known, because I actually wondered it this was the sort of thing that had to go to an Institutional Review Board as a matter of protecting subjects.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/10/2009 3:17 PM (GMT -6)   
geezer99, keep the survey close by. Let's just pause until we hear back from Peter about it....
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/10/2009 3:28 PM (GMT -6)   
Yeah, it needs to be up, so Peter can see it to decide. Sorry, didn't think about that at the last post. I se that Tony thought of the same thing. lol
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9810
   Posted 8/10/2009 3:33 PM (GMT -6)   
Please send me a link to the survey so I can review it. I'm open to most surveys as long as they don't have any personally identifiable information like name, address, phone #, etc.
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/10/2009 3:54 PM (GMT -6)   
I have re-activated the link

http://129.25.64.85/new002.htm

Please do not take the survey until we have approval to do so.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/10/2009 4:09 PM (GMT -6)   
What a great survey!  Nice Job.
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9810
   Posted 8/10/2009 5:04 PM (GMT -6)   
Thanks, this is approved.
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/10/2009 5:12 PM (GMT -6)   
Great Job.

Just a comment on the 2 different sections on intercourse. I think I understand the difference, but in my case, I can't separare preparation and "doin it" I have been trying since I got the catheter out, using every tool at my disposal.

So the questions really are the same for me in both sections. Npt sure what that does to your desired results if there are many other horny guys like me,

Great survey, I am just a poor respondent !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/10/2009 5:25 PM (GMT -6)   
Geezer,
Thank you again for underrstanding. I have pulled down my post. When I get back this evening, I will participate in the questionaire...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/10/2009 7:29 PM (GMT -6)   
Worried – I am afraid that we would never get enough data to be statistically significant. We will leave rating the doctors to the government.

Tud and Worried – I have added seeds to the list. I worry about including radiation treatments because the general report is that side effects mount over time – just the opposite of surgery.

Mikey1955 and good life – The problem is my decision to use an internationally accepted set of questions. Not what I would have written, but these guys spent thousands of hours on this and I figure that makes them smarter than me. Note the question “When you attempted sexual intercourse, how often was it satisfactory for you?” which allows you to say it was fun even if you didn’t get it up

Tony and Peter – I greatly appreciate the control that is exercised over this forum and thank you for your consideration

Look for the revised version real soon -- Many thanks to all who participated, I will report as results come in.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/10/2009 7:36 PM (GMT -6)   

Thanks Geezer,

You're right. That means I've answered a few questions somewhat incorrectly. Can I re-submit or should I wait until the next version?

Thanks for doing this.

Mike


-Hernia, mesh and large scar, surgery early 2006
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Bone scan Dec 08: Negative
-Barium enema X-ray March 09: Small diverticulosis
-MRI with endorectal coil (April 09 as part of a study)
-3D advanced TRUS (April 09 as part of a study)
-CT (April 09 as part of a study)
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/10/2009 9:41 PM (GMT -6)   
What happens if we flunk this thing ?
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/10/2009 11:25 PM (GMT -6)   
I do not want to put a damper on this survey I think that it is a good idea but we must consider that a lot of people on this site are still having problems after surgery I would guess that many more people that have had good results after surgery and do not look at this site any more which I would think will have to be taken into account in the results

I would also like to add to the suggestion if continence could be included into this survey only in a thread that I am in at the moment I have noticed better short term result from open surgery but it is such a limited thread and I would like it to be expanded if possible
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/11/2009 12:06 AM (GMT -6)   
Geezer,
Control is not our job as moderators but, rather, we are facilitators. I would prefer to encourage such discussions and ideas, and simply check that we are ok with what comes out of it. From time to time, we ask if we are not sure, and that is all I did. Thank you again for understanding. For the most part I am a patient here. I have quite a bit experience that I would prefer to not have, but since I have it, I am willing to share it. It is not fun being a guy with advanced disease as young as I was when I was diagnosed, but it is what it is.  I look at your questions eager to answer, but sad to do so after having such difficulty with ED...

Tony


 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 8/10/2009 11:09:28 PM (GMT-6)


FiftiesMale
Regular Member


Date Joined Mar 2009
Total Posts : 75
   Posted 8/11/2009 4:33 PM (GMT -6)   
so how do we see the results ?
Age: 53
8/1/2008: PSA 6.2, GP recommended retake.
8/27/2008: PSA 5.8 (%free 12.1) referred to Urologist.
9/10/2008: DRE - non palpable. Urologist recommended biopsy
10/21/2008: Biopsy appt: 10 samples taken
10/31/2008: Biopsy results; 1 positive out of 10 samples.
10/31/2008: Biopsy Results: Gleason 7 (3+4) , no evidence of perineural invasion.
10/31/2008: Referred to UCSF
12/19/2008: Transrectal Ultrasound at UCSF
12/19/2008: Consultation with Surgeon.
12/19/2008: Surgeon concurred on Gleason 7=3+4 (per slides).
2/24/2009: Robotic Assisted Laparoscopic Prostatectomy (DaVinci) UCSF
3/5/2009: Cathetor removal.
3/21/2009Post Op Pathology: margins negative/clear, Gleason 4+3=7
4/9/2009: first post-op Ultrasensative PSA: less than 0.01
Currently taking Viagra (since March 2009), Levitra (tried Cialis).
6/2009: Purchased and using Osbon manual pump.
7/28/09: 5 month Ultrasensative PSA: less than 0.01


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 110
   Posted 8/11/2009 4:57 PM (GMT -6)   
Not to nit pick, but on the types of surgery, you list only open and robotic. I personally had laproscopic surgery, no robot involved,
which was a little of both, and I believe there are other members who had the same.

Thanks for putting up the survey, I look forward to seeing the results

Ralph
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/11/2009 6:09 PM (GMT -6)   
geezer, you went beyond what I was originally suggesting for this survey, its great, and it worked fine. good range of questions and variables. thanks for you effot.

david in sc
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/11 ?
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 8/11/2009 6:56 PM (GMT -6)   
Umm, Can I sign up for the incontinence survey? At least I'd be an expert on that one.
I never knew my kidneys were such busy little bees. (Hey Kiddies! Knock it off down there or I'm not going to drink anything for a week!)
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

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