Subtle awareness

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Regular Member

Date Joined Aug 2009
Total Posts : 31
   Posted 8/13/2009 9:29 AM (GMT -6)   
I am finding that after RP I have needed to develop a subtle awareness of the state of my bladder. Before surgery, I would wait until there was an obvious strong urge to urinate -- now the impulse could be easily missed if I'm not paying close attention. By being more aware, I'm finding more success in gaining continence. Is this the case with anyone else? Is this the way things will be from now on? I'm just eight weeks past the surgery and still getting used to the changes.

Living in the northern Atlanta suburbs.

Good health and no symptoms when my annual physical uncovered an elevated PSA.

Diagnosis at age 55: PSA 4.6 - positive biopsy 3 of 12 cores - Gleason 3+3=6.

Open Radical Retropubic Prostatectomy with bilateral lymphadenectomy on 6/18/2009.

Pathology report after surgery showed negative margins, cancer contained in capsule.

PSA at 4 weeks after surgery <0.1 (all other problems are minor considering being cancer-free)

Catheters required on-and-off for 34 days after surgery due to recurring urinary retention.

Currently using 3-4 pads during the day, dry at night (7+ weeks after surgery).

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 8/13/2009 10:11 AM (GMT -6)   
Oops, racing oyster, looks like you got lost in the static the first time you posted on the 8th also. A belated welcome to you and thanks for your contribution. The Welcoming Committee promises to try to do better. For those who wonder, the Welcoming Committee is anyone who has posted at least once before. In addition, any card carrying, dues paid member of the Zero club is encouraged (required?) to be a Greeter, according to the bylaws and membership requirements of that august, exclusive organization. As you can see , we have a very select membership... All welcomed and none turned down. smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery

Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2461
   Posted 8/13/2009 10:23 AM (GMT -6)   
I seem to have the opposite effect. I often feel the urge to urinate only to find that my bladder wasn't really full at all. I asked my doctor if my bladder has shrunk but he told me that it may have because of the enlargement of my prostate and that eventually it will get better.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1

Regular Member

Date Joined Oct 2005
Total Posts : 489
   Posted 8/13/2009 10:58 AM (GMT -6)   
Welcome RacingOyster (do you have a sailboat by that name??) ...

As for Bladder Awareness, I too seem to be always aware of building urges, but cannot say that I would be unaware of them til too late, or anything like that. I had BPH before, so I assume I developed a 'Muscular Bladder' due to all the forcing urination that that entailed. After that the bladder likes to continue on with urges even when only a little urine has collected. For me that has mostly subsided, but if I do drink a lot, I do have to go oftener, but at least when I do go its a great whooshing amount, not the old piddling amounts. When I go to the Uro I just laugh at the urine flow tests now and fire away full speed ahead.

Speaking of urge to urinate, I had the strangest dream the other night that featured me doing firehose gushing urinations -- multiple times -- with amazed admirers cheering me on even -- sheesh. And then when I woke up ..... surprise .. .dry as anything (but I did have to get up and do a real unleash ...) Funny stuff.

Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 07/2009).
04/01/09, 07/07/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray showed no additional stones.
Next up (so to speak) -- MUSE(1000mg) -- on 08/07/09.

Regular Member

Date Joined Feb 2009
Total Posts : 74
   Posted 8/13/2009 11:52 AM (GMT -6)   

First, welcome to the Other Side! What I've noticed 8 months after RRP is that I can hold it okay but once I decide to go, I'd better be well on the way to the bathroom and nothing better get in my way. If something does, I've got problems. I get up once a night just as before but, other than that, life is pretty good.

Hang in there and continue to improve!
DOB: Q4'46, HT: 5'9", WT: 180
PSA: <2.5, DRE: Slight enlargement, one node
Biopsy: 12/08
Cores: 4 of 12+ positive, Gleason: 3+3
Surgery: RRP on 1/21/09
Catheter: 15 days
Adenocarcinoma occupying 5% of prostatic volume (right posterior aspect)
Gleason: 3+2, No extraprostatic extensions, Perineural invasion within prostate only
No angiolymphatic invasion, No seminal vesicle invasion, Clear margins
AJCC: pT2a
Post-op PSA's
3/10/09 < 0.014 (undetectable by machine)
6/10/09 < 0.014 (undetectable by machine)

Steve n Dallas
Veteran Member

Date Joined Mar 2008
Total Posts : 4849
   Posted 8/13/2009 1:17 PM (GMT -6)   
" By being more aware, I'm finding more success in gaining continence."
I think in time you'll see that it takes much less awarness abd will be much more natural.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 8/13/2009 1:23 PM (GMT -6)   
Hello Oyster,

Welcome aboard to our merry gang. When I was going dry, I often couldnt tell the difference between having a full bladder or just a dribble, just a strong urge to urinate. As time went by, was much easier to tell the two apart. Good luck to you.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18,
meeting with Rad. Oncl on 8/14 about lastest PSA

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