Missing Prostate observations

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wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 8/14/2009 2:19 PM (GMT -6)   
Guys I often thought that the hollow feeling we have after prostate surgery is akin to loosing a finger or toe. You know something should be there but it isn't. Well now that I am 18 months out from surgery, that empty, hollow feeling between my hips is gone for the most part. At the same time that feeling diminished, sexual feeling started coming back. i can only assume it is the nerves slowly healing or my brain is getting use to the missing prostate.

I had my gallbladder removed and I never missed it in the least so I feel sure this is a solid observation.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 8/14/2009 2:47 PM (GMT -6)   
You know, I never considered it hollow inside. I just pictured in my mind that the space left was immediately filled by the bladder, intestine and other things, so never had any sense of loss or anything about it. I always pictured it as a nasty thing (cancer) being removed. Of course my sexual ability hasn't returned yet, either... turn
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.10ml 2X week continues
PSA's: .04 each test since surgery


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/14/2009 11:23 PM (GMT -6)   
I do not have that missing feeling but if I did they gave me a photograph of my prostate with the Path report to remind me what it looked like
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/14/2009 11:30 PM (GMT -6)   
I don't know I have a missing feeling but Willie Wonka misses it --- at least I assume he does, he's busy chasing back up there looking for it.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/15/2009 11:18 AM (GMT -6)   
I don't have that missing feeling either. Gosh darn I still have a prostate. I do miss the sexuality so if that counts I do have those missing feelings to.
Great post

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 8/15/2009 12:01 PM (GMT -6)   
No "missing" feeling here either.  In fact, but for a few small holes in me from the robot, I couldn't even detect anything had happened.  Until the catheter came out and I experienced the reality of ED.
 
It made me feel like the little guy was ambushed from behind.  He never had a fighting chance.
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


TheoTeacher
Regular Member


Date Joined Jul 2009
Total Posts : 47
   Posted 8/15/2009 2:36 PM (GMT -6)   

I don't miss it at all.  By the time I got to surgery I was beginning to see it as the enemy within.  "How dare you bring that cancer into my body!"  But at least it kept the pee in check and lubed up the plumbing and in that regard I do miss it.


Dad dx at 72 with Pca; RP at 73; Died 11/08 at 88 from Pca met.
3 Uncles have had Pca; 2 deceased from Pca met.
Me: Age 51: Joyfully Married; father of 7!
Routine Physical 11/07 PSA 1.73 DRE normal
Routine Physical 1/09 PSA 2.77 DRE abnormal.
1st Urologist visit 2/09 DRE normal, small - PSA 6.3!
Biopsy 3/17- St. Patty's Day! 3 of 12 cores positive with 5-8% Pca
3+3 Gleason; Visit Johns Hopkins 3/26/09 and decide for surgery.
Lapro RP 6/29/09; discharged 6/30/09
Gleason unchanged 3+3; "larger amount of cancer" than expected.
Organ confined Pca, positive margin as "artifact" of surgery.
All other tissues clear.

"We walk by faith, not by sight."


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 8/16/2009 9:18 PM (GMT -6)   
I don't miss it at all, what I miss is the spontaneous erection that it allowed to have.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/16/2009 9:37 PM (GMT -6)   
I never thought of missing it at all. To be honest, until I started getting PSA tests at age 50, never ever thought about a prostate, let alone my own, and until I had my first biopsy at age 55, never worried about it.

Gall Bladder, lost that at age 28 to a severe case of pancreatitis. Had it removed in the old days with about an 8 inch ragged scar in my lower regions. Don't miss that either, keeps me from wanting to eat too much fried or spicy food, even to this day.

David in SC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18,
meeting with Rad. Oncl on 8/14 about lastest PSA
 
 

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