Attention all members of the HW Prostate Forum :
It has been decided ! Sept. 25. 26. 27 will be the first GFMPH (Good For Men's Prostate Health) weekend getaway/retreat/convention/ organizational meeting. Everyone is invited.
We have been talking about getting together and putting faces with names, organizing a more structured group meeting approach, and potentially organizing as a positive force for Prostate Cancer Awareness. Tony mentioned a conference in Wash DC that had some potential, but it was decided that relative short period of time/costs/logistics would make it hard to accomplish what we would like to.
Jeff (aka worried guy) has graciously opened his property near Rochester NY as an initial meeting place. Camping is available with water and electricity available, motels 10 miles away, and even twin beds and a hide-a-way on a first come first serve basis are available. It is close to Lake Erie, has a birding area, apple orchards, a film festival, plus Rochester NY as things to do. Shuttles to the airport can be organized with some advance notice. Bon fires at night, good conversation, and hopefully some organizational
activities will be accomplished.
It is our vision that several guys will step up and and initiate some regional meetings like this in whatever format you choose, and then maybe all of us come together annually like in Florida, or Texas, or wherever we deicide will work. ( I like warm winter places)
It is also hoped that we could go beyond a forum and consider alliance with existing organizations, or even create a new organization thet will work to increase awareness and support of Prostate Cancer issues in the U.S., Canada, and the world.
Please email me at email@example.com if this is something you want to do. We would love to have a big turnout for this first event. If timing is bad, let us know that too, and we will see if we can have something else soon.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic 4/14/09 Nerves spared
0/23 lymph nodes involved pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck. Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free 6 week PSA <.03
3 month PSA <.01 (different lab)