Peeing as I stand

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Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 8/18/2009 4:39 PM (GMT -6)   
I have had wonderful control lately except when I stand. People think my back has gone out on me or they are very concerned when I get up. I feel like a gallon has come out but if I check it has been just a little. I do the kegals before I get up but to no avail. I start to stand up and I have to stop, then I can stand up a little more then stop? it takes me about 3 different levels of standing and about 2 minutes? rolleyes but when I check not much has come out. Of course I do not way it . Also the pop and caffeine has made a difference cry On weekends I will let myself have some when we go out to eat but I notice that I have more leakage then. Or have to Pee more. I have got more and more power back.
48 yrs old
Robotic RP
6-15 2009
Surviver


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/18/2009 5:13 PM (GMT -6)   
Just takes time my friend. Why don't you sgn up for the GFMPH retreat and we'll talk about it ?
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/18/2009 5:26 PM (GMT -6)   
Tim, when I was going through the period of going dry, as per my dr's instrucitions, I did not drink anything with caffine, no fruit juices, no beer or wine, or anything carbonated. He said all of them irratate the bladder wall and make it harder to become continent. I faithfully followed that for about a month and I think it did help.

David in sC
Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, scarring closed up bladder neck, corrective laser surgery scheduled for 8/18,
meeting with Rad. Oncl on 8/14 about lastest PSA
 
 


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 8/18/2009 9:47 PM (GMT -6)   

Timmy77,

If you are noticing any improvement at all, that is a good thing! Be patient.

Dan

 


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
25 mg Viagra nightly;100 mg:not ready for prime time
Followup PSA 05/28/09 <0.1
 
 


Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 8/19/2009 12:16 AM (GMT -6)   

gfmph?? goodlife what is this? I am trying to get hooked up with groups but I know I need to be patient am I am not. so I am woking on that also

 

Timmy7


48 yrs old
Robotic RP
6-15 2009 Da Vinci surgery
8-10 2009 almost dry big step
Still ED
Recovery is a process not a switch to turn on and off.
Using support groups like this and in person to make it through
Surviver


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/19/2009 6:32 AM (GMT -6)   
Greetings, Timmy.  Progress is progress and that is a good thing.  It does take time.  Like others have said, I avoided caffiene for a few weeks and it sure seemed to be a factor in helping me.  I know it is hard, but it takes time and patience.  Let us know how it's going.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/19/2009 7:09 AM (GMT -6)   
Tim,

We are starting to talk about what we tell our spouses and others when we feel the urge to purcahse something or do something that will help us through the issues of PCa.

Just tell them that you read it is Good For Men's Prostate Health. Some guys are getting pretty creative with this phrase.

Worried guy is hosting a weekend at his place near Rochester NY on Sept 25 for any one on this forum who wants to come. We figure it will be GFMPH to come and relax for a weekend with some other guys who are experiencing the same problems we are. Good food, bon fires, camping, etc. See the thread for more info.

Hope you can make it !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 8/19/2009 9:13 AM (GMT -6)   
Timmy,
I discovered if I phase any request as "I heard that xxxx is Good For Mens Prostate Health" my wife will agree to it.

Me: "I heard that eating all the brownie edges in the pan is GFMPH." Her: "I'll bake brownies."
Me: "I heard that relaxing at the beach is GFMPH". "Shall I pack a lunch for you?"
Me: "I heard a week at Colin's place in Thailand is GFMPH." "Shall I book tickets for you."
I even bought a Leupold VX-II rifle scope because it was GFMPH.

Goodlife and I figure this retreat is GFMPH. It will certainly be entertaining.
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

Post Edited (Worried Guy) : 8/19/2009 11:55:18 AM (GMT-6)


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/19/2009 12:48 PM (GMT -6)   
Hi Jeff did she say whether it would be a return ticket or not
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 8/19/2009 12:59 PM (GMT -6)   
Colin,
Now that you mention it, I don't recall hearing her say anything about return...
I heard real estate is very reasonable. Can anyone use an engineer? (A shaved engineer!)
Jeff
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/19/2009 3:45 PM (GMT -6)   
Most people want a high pressure engineer. How many inches of H20 are you up to now ?
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 8/19/2009 11:20 PM (GMT -6)   
Jeff On the Real estate side I am having a 180 sq mtr house built on a 1 acre site for about $90000 all in including grade "A" materials (20% cheaper for normal grade) and furniture but your big problem would be the engineering side the things that I have seen here (being an engineer myself) I am so glad that I have retired but I have not seen inside any factory units

But I an sure a visit would do you the world of good you could always bring your wife with you but then avoid Pattaya if you ever want to come back again on your own
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 8/20/2009 2:38 PM (GMT -6)   
I think we should all chip in a few bucks and build our own GFMPH Retreat. We can hold classes there, invite guest speakers, provide educational services. Establish it as a non-profit 501 and write off our trips as a deduction.

Just thinking about this is causing a warm glow of tumescence. Oh! Never mind. It was just pee... Sigh...
Age 56. Perfectly healthy with no problems until getting the results of my first routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: 23.2.
June 10 Biopsy 7 out of 12 cores positive, Gleason 6=3+3.
Bone scan and C/T scan negative.
----------------------------------------------
7/21/2009 Radical prostatectomy by Da Vinci @ University of Rochester
Left nerve gone, right spared.
----------------------------
7/31/2009: Catheter removed and Pathology report received
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX

Post Edited (Worried Guy) : 8/20/2009 1:41:13 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/20/2009 2:53 PM (GMT -6)   
We'll pass the plate around the bonfire.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)

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