Prostate Cancer Discussion CNN Larry King Tonight

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SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 8/21/2009 2:07 PM (GMT -6)   
Just got an email... if interested...

Mike Milken, Founder and Chairman of the Prostate Cancer Foundation, is joined by Colin Powell, Joe Torre, John McEnroe and Dr. Christopher Rose on a Larry King Live special focusing on prostate cancer at 6:00pm PACIFIC and 9:00pm EASTERN on CNN.

I will tivo this, while watching the Yankees Red Sox...

Happy a good weekend.


Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
4 Post OP PSA's from 9/2008 to 6/2009: <0.1
 
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/21/2009 3:33 PM (GMT -6)   
I wish I had Tivo. I will be throwing out the 1st pitch at a triple A baseball game tonight for Ed Randall's Bat for the Cure prostate cancer foundation. My understanding is that Larry Kings website has the shows on webcast as well. I'll catch it later...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/21/2009 4:54 PM (GMT -6)   
Thanks for this info I will be tuned in to it.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 8/21/2009 7:26 PM (GMT -6)   
The show repeats tonight at 12:00 am. 3:00 am, and 5:00 am Eastern.
 
Greg

Age 55
PSA history: 2.9 (Oct 04), 3.7 (Dec 05), 2.79 (Nov 07), 4.54 (Jan 09), 4.9 (Feb 09)
05/18/2009 - Robot-assisted (daVinci) laparoscopic radical prostatectomy by Michael Esposito, M.D. and Vincent Lanteri, M.D. http://www.roboticurology.com/ both nerve bundles spared
Surgical Pathology: Prostate gland 51.8 grams; Gleason score 3+3=6; Pathologic stage T2c, N0, Mx; Left/Right Pelvic lymph nodes clear (no tumor present); No presence of extra-capsular invasion;  No margin involvement
05/26/2009 - Catheter and incision staples removed
05/30/2009 - Started Viagra 25mg 3x/week
07/06/2009 - 1st post-surgery PSA <0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/22/2009 2:17 AM (GMT -6)   
I stayed up late to watch it. I must say we are finally making strides in awareness and getting the guys to talk. I have rated, by my opinion, some of those who were on the show...(an asterisk is a star 1-5)

John McEnroe ~ *****. John pushed hard on early screening and awareness. He was very intelligent and willing to discuss the issues from treatment options and side effects. He is new to the game but he is willing to use his name in the fight and I liked it...He was very on top of the recent change in the AUA guidlines to start testing at 40.  His Line "the name McEnroe and Ambassador don't usually go hand in hand" in describing his efforts was splendid. John, they do now!
Colin Powell ~ ****. This was an older clip. This man has incredible influence, especially among African American men. I did not care much for his decision to eliminate discussion of ED or incontinence. He had surgery and he did acknowledge issues for several months but he left the details out. I very much respect this man and wished he could be more open...I hope he would be more willing to discuss this in future interviews.
Rudy Guiliani ~ ****. This was an older clip. Rudy admitted that he had seeds with external beam radiation and hormone therapy. This is a great combination but he did not elaborate on side effects and progress well.
Dr. Christopher Rose ~ ****. Dr. Rose is a radiologist/oncologist. he was very accurate in his assessments and very straight with his information. He avoided discussion of which he thought was better, but still touched on side effects well.
Michael Milken ~ *** or ****. I would give Milken an extra star just for his work in prostate cancer. He stopped short of recommending age 40 for ALL men as a good starting point for all men to be screened. Look at my signature and that's a two star deduction in my book.  He also missed the mark on side effects.
Joe Torre ~ *****. Joe was honest, forthright, and unfortunately is dealing with advanced prostate cancer. He had surgery, radiation and hormone therapy and, as he said, is still managing the disease. This to me indicated G8 or higher plus stage 3 or 4. He spoke about ED incontinence and said he is "functioning". He told us that he is still being tested every three months and that is consistent with continuing hormone therapy.
Jerry Lewis ~ **. This was a very old clip. He said he was cured by surgery and he doesn't have to worry about it anymore...Nope I didn't like that at all.
John Kerry ~ ***. Again an older clip. Kerry had surgery. He seems to be doing well, but he does not speak about much.
Bob Dole ~ ***. Same as Kerry.
Don Imus ~ *. Uh he totally downplayed his disease. Was not informative and did not elaborate on anything. I would have liked him to be more open and less lackadaisical.
Charleton Heston ~ *. He did not die of prostate cancer and the clip really had no information other than he dealt with it.
Merv Griffin ~ **. Merv admitted he ignored a dangerous disease. And he paid the price. I really wanted to give this 4 stars.  Ignoring the disease is just plain wrong...So then I conclude also is not screening.

Larry King ~ *****. Nice job. He brought the discussion out and he did us all a favor.

CNN ~ ****. Really missing was the controversial issue of alternative treatments, effects on families and spouses, as well as outside questions. All in all it was a good program.  Only so much you can do in an hour...
 
<Note: On a second viewing I upgraded Colin Powell.  I thought after viewing the second time that I missed how well he articulated a positive attitude.  Very nice>


These are my assessments and I welcome yours...

Tony


 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 8/22/2009 11:55:36 AM (GMT-6)


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 8/22/2009 7:34 AM (GMT -6)   
We also watched Larry King last night. I was a bit disappointed for a few reasons:

I would have liked Dr. Rose to discuss RT in more detail.

I would have liked the panel to include a urologist.

I would have liked much more discussion about treatment options such as surgery, HIFU, etc. including the pros and cons of each (e.g., surgery allows more complete pathology for better staging and follow up, etc.).

I agree with Tony about John McEnroe. I have the utmost respect for Colin Powell, and felt he did a good job of stressing the importance of screening especially for African-American men. I was sorry to hear that Joe Torre's PC is advanced - I didn't know that. I too felt that he was very honest and I respect him for that.

The issues of ED and incontinence, in my opinion, were more by inference than any direct discussion.

I would have liked to have heard more about the diagnosis of PC. Alot was discussed about screening but, from an educational point of view, would have preferred a franker discussion about how the disease is diagnosed and how treatment decisions are made.

I would have also liked to hear more about how PC affects women. I'm not just talking about the sexual issues but the quality of life issues including our fear for our men.

Lets face it: PC is still cancer and I am concerned that much was made of the fact that it is generally a slow growing disease with a low mortality rate. While this is true and very good news for those who are affected by it, I' m concerned that some men will take this to mean that they don't have to worry about it.

Overall I enjoyed the show and thought the panel was good.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage updated to T3a with one microscopic extension into but not through capsule. Surgical margins, bladder and SV negative for tumor. Gleason 3+4 (no change from biopsy). PSA of 0.0 every 3 months since surgery. Incontinence is very good to excellent. Making progress with ED.


55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 8/22/2009 8:49 AM (GMT -6)   
I agree with the comments posted about the show.  IMHO, any negatives of not enough details were outweighed by the many public figures who had PC, did something about it, and spoke out in support of early detection.  Best for me was the final line from Larry King when he pointed straight at the camera and said, "if you are a male over 40, get tested."
 
Here is a transcript of the program (subject to updating/correction) for those who missed the broadcast:
[if the link doesn't work, copy the URL to a new window and it should take you there]
 
Greg


Age 55
PSA history: 2.9 (Oct 04), 3.7 (Dec 05), 2.79 (Nov 07), 4.54 (Jan 09), 4.9 (Feb 09)
05/18/2009 - Robot-assisted (daVinci) laparoscopic radical prostatectomy by Michael Esposito, M.D. and Vincent Lanteri, M.D. http://www.roboticurology.com/ both nerve bundles spared
Surgical Pathology: Prostate gland 51.8 grams; Gleason score 3+3=6; Pathologic stage T2c, N0, Mx; Left/Right Pelvic lymph nodes clear (no tumor present); No presence of extra-capsular invasion;  No margin involvement
05/26/2009 - Catheter and incision staples removed
05/30/2009 - Started Viagra 25mg 3x/week
07/06/2009 - 1st post-surgery PSA <0.1

Post Edited (55 and healthy in NJ) : 8/22/2009 8:52:10 AM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/22/2009 10:18 AM (GMT -6)   
I did not watch the show, but I hear many comments and posts on this forum about incontinence and ED. Many guys say something to the effect "If I had known it would be like this, I may not have had this or that procedure"

It never ceases to amaze me what they are saying. Most of us heard of the mountain climber who had to cut of his arm (or leg) with a pocket knife to save his life. Do you think he goes around later saying if I had known how much I would miss my arm, I surely would have just statyed there and died ? I don't think so.

Why is it we say things like that ? Would we realky rather die of prostate cancer than maybe have to use a pad or not be able to have erections spontaneously, or not have ejaculate. Why do we tend to concentrate on the side effects of the cure instead of the cure ?

I am sdo thankful I could have surgery. I will deal the side effects.

Thanks to all these men who were willing to stand up and admit that they had prostate cancer. It is not easy to do, in this macho world. Thankfully they didn't say, I would think twice about getting screened and having life saving procedures because the side effects are a bummer!
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/22/2009 10:23 AM (GMT -6)   
Here is a summary clip with blurbs from Powell, McEnroe, and Torre...
http://larrykinglive.blogs.cnn.com/

Tony


 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/22/2009 10:46 AM (GMT -6)   
Just getting back home, didn't get to see it, but glad for the comments that were made here about the show. Sounds like the nitty gritty that concerns us at our day to day living wasn't discussed in fine detail, but then again, only so much is going to be blunty discussed on a nationally aired show. I give it credit for some face time during prime time about our cancer.

David in SC
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, still talking option, 8/18 - had laser scope surgery to clear blockage, now on Catheter #7
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4226
   Posted 8/22/2009 10:58 AM (GMT -6)   

I thought it was a great show. If it causes just one person to be screened who otherwise wouldn't, it would be a good benefit. At the very least it did increase the awareness level of everyone who watched it. One good point made is it is the women that make their men get tested and who ask the questions that men are too embarrassed to ask. I think a lot of wives will make their men get tested after watching this.

JohnT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DX BPH and continue to get biopsies yearly. Positive Biopsy in 10-08, 2 cores of 25, G6 less than 5%. Scheduled Surgery as recommended.

2nd Opinion from Dr Sholtz, an Oncologist said DX wrong, path shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G 4+3 approx 2.5cm diameter.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and burining urination. Daily activities resumed day after implants.

Scheduled for 5 weeks IMRT in July

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/22/2009 11:02 AM (GMT -6)   
John, anything that wakes up the rest of the male population in general has to be considered a good thing. Early testing is still one of the cheapest and best tools for detection. I agree, hopefully there may be thousands influenced enough by the broadcast to seek out at least basic PSA screening tests.

David in SC
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, still talking option, 8/18 - had laser scope surgery to clear blockage, now on Catheter #7
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/22/2009 1:26 PM (GMT -6)   
I thought the show was ok. For me I was looking for more information on advance disease but I guess the reality is that most men are diagnosed in early stages. I do agree that if it causes men to start testing that otherwise would not then it was great. At least PCa is getting air time.

peace to you all
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/22/2009 2:13 PM (GMT -6)   
Dale,
At least three were advanced cases. Torre and Milken gave explainations on their status'. Merv Griffin's interview in 2003 told a real story about how he ignored it and knew it was a problem that he did. I appreciated these celebs going on air with their points of view. There was no real way to deleiver something granular in an hour show without putting the audience to sleep, but I thought they gave a a great view with a little of something for everyone. The show was more focused on patient experience and that was a good thing. Only one doctor was the right mix. Having a panel of doctors I have seen before and they don't really do a great job of talking about patient experiences.

From an advocacy point of view, more people can relate to patient experience than a doctor's technical speak. I believe the mantra was awareness and this show will hit many men and loved ones because it came from the hearts of those they recognize...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/22/2009 2:40 PM (GMT -6)   
I yield to you my friend. You are exactly right. At least we are getting air time. Hopefully this will be a springboard of more awareness from the media.
Thanks for your insight and dedication to bringing PCa to the forefront.

peace to you my brother

Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4154
   Posted 8/22/2009 2:58 PM (GMT -6)   

I just watched it via TIVO and thought it was generally well done.  Yeah, there are nits I could pick at but, overall, I think it was great to have an hour on "popular" TV devoted to the subject. 

Probably the most important message was the unanimity of the panel about the necessity for men to get PSA tests. 

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 7/1/09.  6 month PSA now at 1.4 and my docs are "delighted"!

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/23/2009 12:14 PM (GMT -6)   
For those who didn't see it...
 
 
Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 8/23/2009 9:13 PM (GMT -6)   
Geez!!!
I just put a comment in a thread I wrote which included Mike Milken. My surgeon told me that Mike was controlling his pca with nuts and fruit. I am going back to read the transcript as to what he actually said.
age:  46
1st psa Apr 08 3.06
2nd psa 6/16/8 4.02,  DRE showed nothing abnormal
biopsy 7/10/08 positive 5 of 12
Da Vinci 8/04/8 Parkview Memorial in FT Wayne IN 
gleason 3 + 3 = 6
prostate 27 g, 4 x 4 x 3.1 cm
Stage:  pT2cNXMX
margins:  apical margin involved
no extraprostatic extension of tumor
seminal vesicle involvement: absent
3 month psa  0.11, 11/08
6 month psa 0.12,  2/09/0
9 month psa 0.13, 5/01/09
1 year psa 0.20, 8/17/2009
 
 
 


cave88
Regular Member


Date Joined Jul 2008
Total Posts : 76
   Posted 8/23/2009 9:48 PM (GMT -6)   
I just read the transcript. There was not much mention of diet. I will have to do some research on Mike Milken and his treatment ideas.
age:  46
1st psa Apr 08 3.06
2nd psa 6/16/8 4.02,  DRE showed nothing abnormal
biopsy 7/10/08 positive 5 of 12
Da Vinci 8/04/8 Parkview Memorial in FT Wayne IN 
gleason 3 + 3 = 6
prostate 27 g, 4 x 4 x 3.1 cm
Stage:  pT2cNXMX
margins:  apical margin involved
no extraprostatic extension of tumor
seminal vesicle involvement: absent
3 month psa  0.11, 11/08
6 month psa 0.12,  2/09/0
9 month psa 0.13, 5/01/09
1 year psa 0.20, 8/17/2009
 
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/23/2009 10:12 PM (GMT -6)   
Cave man,
Take a look at this...
 
 
Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 8/24/2009 7:32 AM (GMT -6)   
I am just ahppy to see people talking about it in detail. For me it seems like the only place it is talked about is in the message board. If anyone see's anything else on TV like this please post if you could.

It just felt nice that we are not Alone. And Men need to SPEAK UP!!!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
4 Post OP PSA's from 9/2008 to 6/2009: <0.1
 
 
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 8/24/2009 8:23 AM (GMT -6)   
I saw the show, live, most of it . . . as I saw one he did on the topic more than a decade ago.  It's an hour show so people shouldn't be too picky that guests or Larry King didn't discuss things they had particular questions about - they should go to their doctor for that discussion or those answers.  Yes, I think such shows cause people to listen and some will learn and benefit from it.  I've lost most of the respect I had for Larry King - because of what he's turned into (with those tabloid-like s hows), but he  deserves complliments (and mabe the CNN staff deserves most of the kudos) for a well put together discussion/show.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 

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