Weekend getaway with the guys in New York

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goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/24/2009 8:27 PM (GMT -6)   

Attention all members of the HW Prostate Forum :

It has been decided !  Sept. 25. 26. 27 will be the first GFMPH (Good For Men's Prostate Health) weekend getaway/retreat/convention/ organizational meeting.  Everyone is invited.

We have been talking about getting together and putting faces with names, organizing a more structured group meeting approach, and potentially organizing as a positive force for Prostate Cancer Awareness.  Tony mentioned a conference in Wash DC that had some potential, but it was decided that relative short period of time/costs/logistics would make it hard to accomplish what we would like to.

Jeff (aka worried guy) has graciously opened his property near Rochester NY as an initial meeting place.  Camping is available with water and electricity available, motels 10 miles away, and even twin beds and a hide-a-way on a first come first serve basis are available.  It is close to Lake Erie, has a birding area, apple orchards, a film festival, plus Rochester NY as things to do.  Shuttles to the airport can be organized with some advance notice.  Bon fires at night, good conversation, and hopefully some organizational

activities will be accomplished.  

It is our vision that several guys will step up and and initiate some regional meetings like this in whatever format you choose, and then maybe all of us come together annually like in Florida, or Texas, or wherever we deicide will work.  ( I like warm winter places)

It is also hoped that we could go beyond a forum and consider alliance with existing organizations, or even create a new organization thet will work to increase awareness and support of Prostate Cancer issues in the U.S., Canada, and the world.

Please email me at lemsco@aol.com if this is something you want to do.  We would love to have a big turnout for this first event.  If timing is bad, let us know that too, and we will see if we can have something else soon.


Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/24/2009 8:34 PM (GMT -6)   
while i would love to be able to come to this first meeting, i doubt i would be able to pull it off, however, my heart will be with those that can make it. i will still offer up western South Carolina if someone wants to be thinking of the n ext time in a warmer climate, especially for a winter or mid winter meet.

david in sc
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, still talking option, 8/18 - had laser scope surgery to clear blockage, now on Catheter #7
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/25/2009 5:51 AM (GMT -6)   
Guys,
Our place is near Braddock Bay on Lake Ontario about 1.5 hours from Niagara Falls.

That is a busy weekend in the area. Grape Festival in Naples, many winery tours, Manhattan Shorts Film Festival at the Little Theater in Rochester. Friday night is Braddock Bay Paddle Sport's adventure tour. For $20 they give you a kayak, give you a lesson and take you on a tour of Braddock Bay for 2 hours. It is a super deal if you've never done it before. Best of all, since the bottom of the kayak gets wet anyway they can't tell if your Guard leaked!

Our washing machine will be all fired up and ready to go and we will have every pad, depend, Tena combination known to man in the bathrooms.
Great food, conversation, s'mores and you'll be giving me the perfect excuse to burn the giant brush piles I have out in the orchard.

It would be great to put faces to some of these comments I've been reading and see how close our internal guesses were. (Hint: I'm not the 6' 2", 180 lbs, ripped Adonis you picture. - I have straight hair not curly.)

Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
One Month Status:
Potency - 9/7 7 weeks Still no activity
Incontinence - 8/20 3-4 full pads per day
9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea, I know)
Post Surgery PSA - 9/3 6 weeks - 0.05

Post Edited (Worried Guy) : 9/10/2009 8:13:29 AM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/25/2009 8:47 PM (GMT -6)   
Jeff,

Don't forget to tell them aboit the newly developed pressure measuring lab !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/26/2009 11:56 AM (GMT -6)   
After hearing of David's successful divorce from "Cathrine the 7th" I figure we can have a ceremonial bag disposal event. I've still got mine. Filled with Oxy-Acet and ignited with a .38 tracer round, he'll hear it in SC - if he's not here enjoying Northern BBQ. It's the least we can do as a sign of solidarity.
DX Age 56. First routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
One Month Status:
Potency - No data
Incontinence - 3-4 pads per day


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/26/2009 4:13 PM (GMT -6)   
Jeff,

I will be p*ssed on if you don't make sure the bag is clean first !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/27/2009 12:12 PM (GMT -6)   
All,
That weekend there are quite a few activities in this area. We don't get many nice weekends up here in the north country so the locals make the best of them when we can.
I checked the Rochester metromix calendar for list of events in the area: http://rochester.metromix.com/facets/events/date.relative.nextmonth
Oktobertfest in Irondequoit. 20 minutes
Mary Beth's the Bay Bar and Grill 5 minutes
Braddock Bay Paddle Sports 5 minutes Friday night Kayaking (gorgeous and not difficult to do.)
Grape Festival Naples NY 50 minutes
Custom Brewcrafters MicroBrewry Tour in Honeoye Falls 45 mniutes.
Manhattan shorts Film Festival 25 minutes
Inside Downtown Tour 25 minutes

Of course you can hang around my place and just enjoy the company: eat, drink, spit, pee, burn old tax records in the bonfire, and just relax with a great bunch of guys.
Mark your calendars.

goodlife: I don't think you have to worry about getting anything on you. When that bag detonates it pretty much goes to Jupiter and beyond. We'll be lucky if we find a trace of it anywhere. Now that's{/i] proper disposal!
DX Age 56. First routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
One Month Status:
Potency - No data
Incontinence - 3-4 pads per day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/27/2009 2:42 PM (GMT -6)   
Worried, trust me, I don't miss Cath the 7th, that was pretty good. She was a nasty ***** in the end, glad to be rid of her and all her previous sisters. The two big bags are outside in plastic bags awaiting next Tuesdays trash pick up.

Your get together sounds better all the time.

David in SC "Still a flowing and a glowing"
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, 8/18 - laser scope surgery to clear blockage, now on Cath #7, 8/26 - cath removed
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/27/2009 3:33 PM (GMT -6)   
David,
Wouldn't an earth shaking detonation be a far more spectacular ending than Tuesday's trash? That seems like a dénouement to your story. I promise, if you bring 'em we'll blow 'em up. You can push the button. (By the way, I will extend this invitation to anyone who comes. All I have to do is notify the neighbors so I don't scare the cr*p out of them. I already have the top soil and grass seed to fill in the craters.)

I can't wait to hear why this surgery wasn't done 80 days ago. (Is it true that Cather days are 5 times longer than regular days? I hope you never need to find out again.)
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. My GP does not believe in general PSA screening so I did not get results during my 50 year physical.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
One Month Status:
Potency - No data
Incontinence - 3-4 pads per day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/27/2009 4:18 PM (GMT -6)   
Jeff, my poor weiner doesn't know what to say or think after this long stint ended. Woke up to max. wood which surprised me, as I was asleep and not even an xxx thought in my head. Hasn't seen any action since the 2nd week of July, so might just have to get frisky this weekend. When you have a cath long term, you learn how to tune your mind out of anything that can make a stiffy. Not a comfortable feeling with a large diameter catheter, trust me. And women think men think about sex all the time, lol.

Blowing it up would have been fun, but homeland security might not like it, might have been considered a toxic or chemical weapon.

david in sc
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, 8/18 - laser scope surgery to clear blockage, now on Cath #7, 8/26 - cath removed
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/27/2009 6:49 PM (GMT -6)   
David,
We do this kind of stuff all the time here. It's one of the advantages of country living.
You should see this place on July 4th!
Jeff

Post Edited (Worried Guy) : 9/10/2009 8:11:23 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/27/2009 8:33 PM (GMT -6)   
Jeff, don't know about that. South Carolina is one of the few states where there is basically no restrictions on the sales and use of fireworks, thus the reason there are firework stands everywhere that are open year round.

during 4th of july here and new years, so much noise and the smell of gunpowder, gives me flash backs to nam, lol.

the thought of a bonfire of guards and pads, glowing hot, while melting away a stack of catheters and leg bags, is very enticing in my mind.

david
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, 8/18 - laser scope surgery to clear blockage, now on Cath #7, 8/26 - cath removed
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/28/2009 9:41 AM (GMT -6)   
Just don't start cooking the weiners before the aroma of burning plastic and absorbent material subsides ! (hotdogs that is )
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/28/2009 9:48 AM (GMT -6)   
hoping for a different cooking source for the eatable weiners, jeff. had enough toxic fumes in my lifetime.

david
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, 8/18 - laser scope surgery to clear blockage, now on Cath #7, 8/26 - cath removed
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/28/2009 11:28 AM (GMT -6)   
Fear not! I have a conventional gas grill for conventional cooking. We have a dedicated spot for "testing" located a few hundred feet from the house. (Not that we have ever done this before ;-) but I've heard your reaction time is so slow, you see the flash, feel the concussion and hear the sound but cannot tell what came first. Your brain can't figure it out.) Exactly 5 ms after the button is pushed, the plastic pieces are hurtling through space at Mach 1. There's very little chance your hamburger will be seasoned with bag bits. Mmmm. Tastes like bacon!

Post Edited (Worried Guy) : 8/28/2009 11:32:54 AM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/28/2009 9:23 PM (GMT -6)   
I can't figure out why we don't have to start turning people away. This weekend is sounding like more and more fun !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/29/2009 3:45 AM (GMT -6)   
I hope they don't think "organizational activities will be accomplished" means actual work. The only activities required of attendees is to eat, drink, and pee. I figure most of us can handle that reasonably well.

It will also be educational. Heck, just look at the discussions we have here. Imagine what they will be like when they're not being recorded for posterity.

And speaking of education... I figured out a way to save a little money on your heating bills this winter and reduce our country's dependence on foreign oil. Check out the "Incontinence - Physics question" thread. I added a new problem and solution at the end. I'd sure appreciate if someone would check my math.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 8/30/2009 3:29 PM (GMT -6)   
So how do I get the other 58 degrees of heat, or is that covered in the proctology forum ?
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 9/2/2009 4:00 PM (GMT -6)   
The XX chromosome holder of the family was getting tired of looking at dead grass so I dug out a portion of the pressure testing range and filled it in with pee/pea gravel. It looks very nice now. Like something from HGTV. Thanks for giving me the excuse to fix it up.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/2/2009 7:25 PM (GMT -6)   
Maybe you could put a little bell we can ring at the end of the pee gravel for when we really get our pressure going. You know, loke a goal, something to shoot for !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 9/4/2009 12:20 PM (GMT -6)   
I think I've come up with another great activity for the weekend. You know - an adult craft you made while you were away at camp.
I made my own incontinence clamp and it only leaks when my bladder pressure gets above 4-6" H2O. It's perfect - very low pressure. I bought a full roll of the rubber and have enough material for about 40 devices. If we need more, it's a 15 minute drive to Lowe's.
Hmm... Maybe I'll get some lanyard material so we can wear them around our necks.

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/8/2009 10:51 AM (GMT -6)   
Quick question. I am now putting this weekend in ink (instead of pencil) and need to make plans. I left all my camping stuff at our summer cottage. Are there hotels nearby? how far? etc...
Thanks
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 9/8/2009 1:55 PM (GMT -6)   
Hi Paul,
You mean you don't want to sleep outside under the stars? ;-)
I just did a quick check on google for: "Hotels Greece NY"
These are all right in the same area. 11.4 miles from my house. about 15 minutes away.
Pick the one that gives you the most frequent flier miles.

This is going to be an enjoyable, entertaining and educational weekend in honor of PC Awareness month of course. (Sounds like a tax deductible endeavor to me.)

Jeff

Here's the cut and paste list:

Rochester Marriott Airport Hotel‎ - more info »
1890 Ridge Rd W, Rochester, NY‎ - (585) 225-6880‎
Rated 4.1 out of 5.0 61 reviews - Write a review
"An excellent Marriott with great room accommodations, good accompaniments and ..."

Courtyard by Marriott Rochester West‎ - more info »
400 Paddy Creek Cir, Rochester, NY‎ - ‎
Rated 4.1 out of 5.0 41 reviews - Write a review
"Courtyard Hotel Description The award-winning Courtyard by Marriott Rochester ..."

Marriott Hotels & Resorts: Greece‎ - more info »
500 Paddy Creek Cir, Rochester, NY‎ - (585) 865-2090‎
"We spent 5 nights here (while visiting family) on Marriott points, so I can ..."

Holiday Inn Express - Greece/Rochester‎ - more info »
1635 Ridge Rd W, Rochester, NY‎ - (585) 663-8400‎
Rated 3.4 out of 5.0 64 reviews - Write a review - 1 coupon
"I'd give this hotel 75% for cleanliness, ease of check in, etc, but 25% for some ..."

Comfort Inn: West‎ - more info »
1501 Ridge Rd W, Rochester, NY‎ - (585) 621-5700‎
Rated 3.4 out of 5.0 39 reviews - Write a review
"The rooms looked brand new at this hotel and the service was pretty good. ..."

Extended Stay America Rochester - Greece‎ - more info »
600 Center Place Drive, Rochester, NY‎ - (585) 663-5558‎
Rated 3.0 out of 5.0 71 reviews - Write a review
"I booked this on Priceline for $65. I arrived late and as others have mentioned ..."

Hampton Inn Rochester-North‎ - more info »
500 Center Place Drive, Rochester, NY‎ - (585) 663-6070‎
Rated 3.9 out of 5.0 46 reviews - Write a review
"This Hampton inn was great. Hot breakfast in the morning is complimentary.

Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/9/2009 11:36 AM (GMT 0)   
Thank you. love the priceline idea. $65 is about right! Anyone else staying at a hotel? which one?
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 9/14/2009 11:29 AM (GMT -6)   
have not heard about hotels from anyone. One person is staying with relatives in the area.
You'll find that hotels here are less expensive than other places around the country. All of the hotels mentioned above are within 30 seconds to 1 minute of each other.

So far I only have about 7 replies so I'm guessing there are rooms available. ;-)
And I can dig up 2 or 3 EZ- up tents for the guys without campers.

In another thread a couple of us were wondering about the effect of electrical stimulation. Rather than fire up my Wavetek wave generator, that has the power to vaporize hot dogs in a single pulse, I decided to buy a medical grade TENS unit. Much safer! (There will be no burnt wieners at this get together.) I also ordered extra contact pads so sharing (eewww) will not be necessary.

Only about 10 days to go! Come on guys. Who else is coming?

Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
One Month Status:
Potency - 9/7 7 weeks Still no activity
Incontinence - 8/20 3-4 full pads per day
9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea, I know)
Post Surgery PSA - 9/3 6 weeks - 0.05

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