Awaiting 1 year PSA results

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Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 8/29/2009 5:57 PM (GMT -6)   
Been a while since I posted, but I'm a daily lurker. Just had blood drawn yesterday for my one year PSA, have had zeros so far, but with my high PSA when diagnosed I'm on pins and needles every time I await results. From the info I've been able to gather, having a PSA over 27 seemed to make it a foregone conclusion that the cancer had left the prostate and was spreading. My doctor is somewhat surprised that I've had as many zeros as I have to this point, and frankly, so am I, but I'm also very grateful.

On the ED front, I'm starting to see a small reaction from oral meds, but nothing near usable. I've tried trimix, up to a dose of .5, and all I get is a slight "plumping" that lasts 20 mins or so and goes away. I'm really hesitant to use a higher dose, but was wondering if anyone else needs a dose that high or higher?

Best Wishes to all my PC brothers

Ralph
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0


DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 8/29/2009 6:42 PM (GMT -6)   

Hi Ralph,

Just a note to wish you the best of news with your 1 year psa.  I hope that you don't have to wait too long for the results.  I didn't think I would have psa anxiety last week at my test, but I did have a little.  I was glad to get the results the following day.

Dan


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
25 mg Viagra nightly;100 mg:not ready for prime time
Followup PSA 05/28/09, 08/20/09 <0.1
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/29/2009 6:51 PM (GMT -6)   
Good luck on awaiting your one year PSA, trust me, we all understand PSA anixety. Hope you stay in the zero club for a long time ahead.

david in sc
 Age 57, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
 Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsule, one post. margin, clear lymph nodes 
2009 PSA   2/9 .05, 5/9 .10, 6/9 .11, 8/9 .16
Lastest 7/13 met with Rad. Oncl, considering options, 7/20 Catheter #6 after complete blockage, 8/14 met with Rad Oncl, 8/18 - laser scope surgery to clear blockage, now on Cath #7, 8/26 - cath removed
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/29/2009 7:35 PM (GMT -6)   
Good luck Ralph and please keep us posted. Do not let the once high PSA scare you. I plan on you being in the zero club for life.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/30/2009 7:36 AM (GMT -6)   

Greetings, Ralph.  I'm now at the 18 month point and still get some PSA anxiety when I go to have my blood drawn.  I used to get it the week prior then the day prior and now I only seem to get it as I go to the doc's office to have the blood drawn.  As I have said before, I am grateful that my doc gives immediate (almost) results for cancer patients so I only have to wait 20 minutes but that can be a nerve wracking 20 minutes. 

Glad your results are great so far and we'll look forward to hearing you received another big zero when you get your results.  Hang in there!  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 8/30/2009 9:12 AM (GMT -6)   
Wishing you a long life in the Zero club.
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED. Levitra works well for me
PSA 0.00 at one year post op


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 8/30/2009 5:16 PM (GMT -6)   
Ralph,
Good luck. I hope you get a good fat zero. PSA anxiety is unavoidable no matter what your original PSA your pathology report was. We learn to live with it and enjoy it when we get a zero.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 375
   Posted 8/30/2009 10:10 PM (GMT -6)   
I am praying you have the 0 PSA at 1 year we all hope for. For some strange reason I've had 3 0 PSA"s in a row since surgery, last was in April> I know my MD said he would test every 3 months the first year, but his nurse insisted he said retest in 6 months after PSA in April. I could not get her to budge on this. I'm scheduled for October. Nervously awaiting my 1 year PSA too...
 
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 8/31/2009 9:06 AM (GMT -6)   
The years test is a big milestone on the road and I join the other guys in wishing you another zero, followed by a lifetime of them...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
22 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix 30/1/20-.05ml 2X week continues
PSA's: .04 each test since surgery


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 8/31/2009 4:04 PM (GMT -6)   
Thanks for all the words of encouragement guys, it truly is appreciated. The reason my results take so long to get back, is that altho the blood is drawn at the hospital at Ft Knox, it's shipped off to Walter Reed for the actual test.

Not sure if that's a good thing or not................ rolleyes
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 9/14/2009 3:11 PM (GMT -6)   
PSA test results were .014. Previously, test results were to the nearest 100th, but this one was to the thousandth, don't know if that is in the ultrasensitive test category or not. Have an appt next Monday with the Doc to discuss the results, needless to say, I'm worried.

I suspect radiation will be in my future, but I'll have to cross that bridge when I get to it.

Ralph
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0
14 Sep 09 PSA .014


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 9/14/2009 4:02 PM (GMT -6)   
Gunner...a PSA of .014 is pretty darn low. Bout as low I have seen. What makes you think you are headed for radiation or should even be worried at this point. As far as I can tell...that is another big Zero in my book. Congrats are in order for you my friend.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/14/2009 4:24 PM (GMT -6)   
gunner, IF you are reporting the test results correct, that's a third generation test, which goes to thousands. That is a good result, think of it as the same as a .01 second generation result or a less than .1 first generation result. Said another way, my doc say the second gen. test is accurate only down to .04, so yours is much lower than that.. Zero's all around for you, no matter how you look at it.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: ED- 50 mg Viagra 3X week, pump daily,
Bimix-30/1/20-.20ml 2X most weeks continues using plump and ring technique
PSA's: .04 each test since surgery


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/14/2009 5:18 PM (GMT -6)   
Gunner, that is a very low ultra low reading, if you reported the numbers right, nothing to worry about there

best to you brother, david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 9/15/2009 8:14 AM (GMT -6)   
I would check to see if you are injecting correctly. .5 sounds more like a dose of bimix. I started using bimix about 6 months out. Took about 10 injections to figure out how to get good results every time. I get the best results at .5cc. Bimix and trimix bypass the normal path for erections and work for just about everybody. Just a thought.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/15/2009 9:10 AM (GMT -6)   
I agree that you needn't be thinking about further treatment just yet. The most common value for "pulling the trigger" on radiation is 0.2 and your score puts you at only 7%. If we put this in terms of an IQ test, you need a minimum score of 20% to qualify as an imbecile. Below that you are an idiot. You may have to resign yourself to being a PSA idiot for the rest of your life!
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 9/15/2009 10:14 AM (GMT -6)   
Ralph,
Are you saying that your trimix injection is .5 cl or .5 ml? I started with 1 ml dosage and had to go up to 3ml dosage to get a good erection that lasts almost 2 hours. I'm starting to decrease the dosage to see how low I can go especially since I use the VED with a ring before I inject myself. I keep the ring on for about 3-5 minutes then I take the ring off.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 9/16/2009 4:31 AM (GMT -6)   
Hmmm, seems I may have over reacted on the PSA score, but all my previous tests came back as undetectable, and having one come back with actual numbers threw me for a loop. I'll be discussing it with my Doc on Monday.

As for the trimix failures, using a standard insulin syringe, I'm up to the .5 mark on it, that is half full. As far as I can determine, the injections are done correctly, but so far, no go. I'll be seeing my surgeon next month, and make sure I'm doing it correctly.

I want to thank everyone who responded with words of wisdom and encouragement, they are truly appreciated.

All the best,

Ralph
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0
14 Sep 09 PSA .014


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 9/17/2009 8:51 AM (GMT -6)   
I was at the Urologist/Surgeon's office last week for my one-year follow-up visit, including the PSA test.  The test result was 0.0 (as were the prior 3) and the Urologist has repeated told me he doesn't report anything more than that because he and the hospital/university don't think there's value in doing that.  All of my testing has been done in the same laboratory, using the same methods/procedures/protocol.  If you research the test result matter you'll come across many comments that test results often vary depending upon the laboratories/protocols used - so some of the comparisons guys make are apples-to-oranges.  It's a very frustrating situation for the guys who get these conflicting, seemingly elevated, test results.  Maybe your variances are due to different testing protocol, maybe not.  I've decided not to push my medical advisors to the point where I'm looking for the results down to the "nth" degree.  Each of us finds our own comfort level and I'm personally satisfied where I'm at in that process at the moment.  Best wishes for a healthy and happy future. 

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


Kark60
Regular Member


Date Joined Jun 2008
Total Posts : 91
   Posted 9/17/2009 8:59 AM (GMT -6)   
I had the same conversation with my urologist/surgeon last week. He told me he is NOT concerned at all about the PSA reading UNTIL it gets to .1. The way he explained it... the prostate antigen has many "cousins" that can be picked-up by the more sensitive blood tests and so a PSA below .1 is considered "undetectable." He also said no lab really should report a 0.0, the best number actually should be reported as <.1.
Husband and father of two (current ages 5 and 7).
Age when diagnosed: 47 (currently 48)
Pre-surgery PSA: 13.7
Pre-surgery Gleason: 4+3=7
CT Scan, Bone Scan, PET Scan: Clear
Robotic Surgery on May 28, 2008, at Barnes Hospital in St. Louis.
Right nerve bundle spared; left bundle removed.
POST-SURGERY PATH REPORT:
Gleason: 4+3=7
Involved 10% of prostate; all quadrants involved
Extraprostatic extension at left base and apex
Extensive perineurual invasion present.
Bladder neck, lymphvasular space, seminal vesicles, 17 examined lymph nodes, and all surgical margins FREE of tumor.
T3a
Four-week post-surgical PSA = 0.1
Seven-week post-surgical PSA = .01
October 2008 PSA = 0.0
January 2009 PSA = 0.0
April 2009 PSA = 0.0
July 2009 PSA = 0.0
Next PSA scheduled for October 2009.


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 9/17/2009 7:29 PM (GMT -6)   
I would agree that you are in good shape. I have my blood drawn and wait for the results. It is a long 20 minutes. I believe someone posted our problem a long time ago here. P.I.S.S. "PSA Interval Stress Syndrome".

I would take deep breath and feel good about myself!
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better

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