Two weeks post surgery

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AML
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 8/31/2009 11:04 AM (GMT -6)   
Hello:
 
I am a new member.
 
I did the Robotic surgery to remove the prostate on 8/18/09.  (please see stats below).
 
Incontinence was my major concern. I was told that at my age, I should not worry about incontinence or ED since I had none pre-surgery.  Two weeks after the surgery and five days after the catheter was removed, I still have NO bladder control except when laying down on my back.  I suppose it's too early to assess ED.
 
I called the RN three days ago.  She said that some people regain their continence slower than others.
 
Most of what I read appears to indicate that two weeks post surgery, there should be al least some control of the bladder.  That's not my case.  I have none. I mean what goes into the bladder comes out directly. I am looking for anyone who has a similar history of "no control" in the first few days/weeks?  How was recovery, if any?  Is there hope?
 
 
Stats:
Age: 47
PSA (2007)=1.8
PSA (2009 pre-biopsy) = 9.4 and 8.4
Biopsy on May 19, 2009
Diagnosis at end of May 2009
One (1) out of twelve (12) cores was positive.
Gleason Score = 3+3
Stage: T1C
Surgery (robotic prostatectomy using Da Vinci): 8/18/09
Removed Catheter: 08/26/09
5 days later (8/31/09):  No bladder control except when laying down
 
 

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 8/31/2009 12:09 PM (GMT -6)   
Hi AML,
Welcome to the other site.
You are only a couple of weeks out from surgery. Most of us take a couple of month (some a little quicker; most a bit longer) to get closed to what is considered normal continence. Do as much walking as you can comfortably manage, do your kegel exercise and I'm sure you will improve very soon. Patience is absolutely necessary for this darn disease.
Wishing you a quick and complete recovery.
All the best to you
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA on the 26 Jan., 09, =0.05; 17 July 09=<0.04


AML
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 8/31/2009 2:34 PM (GMT -6)   

Thank you Magaboo.

I have indeed been walking about one mile per day since removal of the catheter, and I find that this has helped me at least with the pain.  The only lingering pain (sharp at times) is on the left lower side of the abdomen, sometimes shooting to my scrotum. 

My surgeon indicated after (a 5.5-hour) surgery that my prostate had an unusual shape, which caused him to cut into the bladder a bit higher than usual, and do some reconstruction to narrow the bladder.  This knowledge combined with the reality of 8 pads per day is what is making me a bit nervous about regaining continence.  Yes, this is only 2 weeks post surgery ... so patience and hope at this point.

Thank you for your words of encouragement.  

AML

 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 8/31/2009 3:29 PM (GMT -6)   
Continence is something with large individual differences. In addition, sometimes there is slow progress and other times sudden improvements. That said, the vast majority do experience return to continence without further intervention. At only a week after catheter removal a lot of guys would still be using 5-8 pads a day and using the "two finger clamp" to get to the bathroom after a period of lying on their backs. I was pretty much going through one bag of pads a week for the first three or four weeks after catheter removal.

It is hugely frustrating and makes normal life a bit difficult, but for now have confidence that your path will be the one that about 90% follow.

Pain on the lower left is a frequent complaint and is likely to continue on and off for months. At four months, I still have occasional tenderness there. This is where the biggest incision was and where a lot of pushing and poking occurred. Pain is very different for different people and if over the counter meds do not give you enough relief, talk to your doctor about more prescription ones. No points are awarded for "bravery."
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 8/31/2009 3:41 PM (GMT -6)   
2 weeks is kind of soon. At 2 weeks my cath was only out 2 days and not much control at all. Each week you will see an improvement

At 3 months I had 100 percent control
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 8/31/2009 4:00 PM (GMT -6)   
Greetings, AML.  Glad your surgery went well - trust your post surgery path report will be a good one - you might add it to your signature when you have an opportunity.  As others have said, 2 weeks post surgery and just a few days post cath is not much time.  Continue to get your walking in but don't overdo it.  Your bladder control will come.  This is one of those times when we all need patience and as the saying goes, we want it now.  It will most likely take some time, but you should begin to see some improvement in the next few weeks.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/31/2009 4:06 PM (GMT -6)   
Ho AML,
Welcome to HealingWell. The guys are chiming in quite well enough. You are very soon after surgery and things will likely improve quickly. Stay with us and keep us posted...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 9/1/2009 3:07 AM (GMT -6)   
It was about three months before I attained better control of by bladder - so each of us is different.  I've never heard the projection that two-weeks is an expected period of waiting before that happens (control, or stronger control).  We read reports here from guys who come out of daVinci with little or no incontenence problems at all, and others who continue problems for months and months.  I'm just about one-year post op (9/10) and I still need one to two pads (the light absorbancy strength) a day.  Don't expect too much too soon, and be surprised, pleasantly so, when the flow stops.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0

 


AML
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 9/1/2009 5:45 PM (GMT -6)   
Thanks to all who have shared their experiences. This is surely a great support group.

Good new s from my doctor earlier today. The pathology reprot is good. Cancer was contained within prostate. I will post the details when I receive a copy of the report.
Age: 47
PSA (2007)=1.8
PSA (2009 pre-biopsy) = 9.4 and 8.4
Biopsy: May 19, 2009 - Diagnosis: end of May 2009
One (1) out of twelve (12) cores was positive.
Gleason Score = 3+3, Stage: T1C
Robotic prostatectomy using Da Vinci: 8/18/09
Removed Catheter: 08/26/09
 


IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 9/1/2009 6:04 PM (GMT -6)   
AML:
 
Welcome! Had mine taken out in May. Leaked a lot after cath removal. And then it got better and better. A few relapses along the way. Like you, I wondered if I'd ever fully recover. Today, I can say I am about 99.9% continent. I used a thin female pad just for protection. Here is my advice:
1. Know that you will regain continence (albeit it may take time)
2. Do not focus too much on it. Just change your pads as needed and take it all in stride. Just take it as part of life (for now)
3. One day sudden progress will just happen and you'd get better and better after that.
4. Do your Kegels and do some walking
5.  Dont let this affect your confidence or composure...
6. And just be happy that this is nothing compared the stress of keeping your 'suspect' prostrate...
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 9/1/2009 6:23 PM (GMT -6)   
Hey, good news on the pathology. I was your age at surgery. Your doctor may have raised your hopes unrealistically for continence - why is it that they tend to downplay any and all side effects! At two weeks, I was certainly no where near having control of any kind. Lying down I was was thrilled to be dry. I was eight weeks before getting hint of control. But once it started it progressed rapidly. ED takes one year. That seems to be the benchmark from most of the guys in my PCa support group. You are right on track. Welcome to the club.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.

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