What to Expect at Dr. Visit

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Regular Member

Date Joined Jun 2008
Total Posts : 91
   Posted 8/31/2009 3:46 PM (GMT -6)   
My surgery was in May 2008 and my follow-up with the surgeon was in mid-July 2008. I traveled for this surgeon and so my PSA tests have occurred through a local uro. When I had the follow-up in July 2008, the surgeon told me to come back to see him in a year. I originally had an appointment in early August 2009; however, his office rescheduled me for September 1 (tomorrow).

Anyway... I was wondering what I can expect at this appointment and would appreciate any thoughts or experiences from guys ahead of me in this journey. I seem to be doing well, excellent PSA scores, total continence, natural erections (better with Viagra or Cialis) so I'm just curious what is likely to happen tomorrow morning. Thanks...
Husband and father of two (current ages 5 and 7).
Age when diagnosed: 47 (currently 48)
Pre-surgery PSA: 13.7
Pre-surgery Gleason: 4+3=7
CT Scan, Bone Scan, PET Scan: Clear
Robotic Surgery on May 28, 2008, at Barnes Hospital in St. Louis.
Right nerve bundle spared; left bundle removed.
Gleason: 4+3=7
Involved 10% of prostate; all quadrants involved
Extraprostatic extension at left base and apex
Extensive perineurual invasion present.
Bladder neck, lymphvasular space, seminal vesicles, 17 examined lymph nodes, and all surgical margins FREE of tumor.
Four-week post-surgical PSA = 0.1
Seven-week post-surgical PSA = .01
October 2008 PSA = 0.0
January 2009 PSA = 0.0
April 2009 PSA = 0.0
July 2009 PSA = 0.0
Next PSA scheduled for October 2009.

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 8/31/2009 3:56 PM (GMT -6)   
You might be travelling unecessarily. If all is well you basically, will be telling him just that. But I don't fault his follow up visit. If I were you I'd ask about any new news for a stage 3 guy like yourself. Since you have not had a recurrance then he will likely tell you status quo is the best move. But asking what he thinks should be a good question. I am certain you know much more about this disease than you did a year ago, so if anything, try to use the time constructively.

Just a note: I have not seen my surgeon since my surgery. We spoke on the phone after surgery, that's when he gave me the bad news, and that was the last time I saw or spoke to him. Technically, I don't need him anymore. He was a great surgeon, and he did what I needed him to do. My case is now with an oncologist, and he will be with me until I don't need him any more...


 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
My Journal is at Tony's Blog  

Post Edited (TC-LasVegas) : 8/31/2009 3:08:37 PM (GMT-6)

Veteran Member

Date Joined Apr 2009
Total Posts : 990
   Posted 8/31/2009 4:02 PM (GMT -6)   
With a full year of 0.0's perhaps you should ask if he has the forms that let you apply to be a poster boy for RRP. Seriously, this looks great, congratulations and thanks for the encouragement to those of us not as far along the trail.

Just one slightly down remark. Don't let up on continued regular PSA tests.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads

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