Back From the Uro.....

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JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 9/3/2009 1:41 PM (GMT -6)   
Hi
 
I just came back from my visit to the Uro. Nothing exciting.
 
Seems with cryo, a failure is defined as psa nadir +2; meaning that my 0.7 is nowhere near failure yet (my nadir +2 would = psa of 2.2). Ok, it was pointed out that if I felt uncomfortable with that, we could do a biopsy and all the other good stuff much sooner. We therefore agreed that when the psa hits 1.1 we will go all out.  I asked whether a salvage cryo, if warranted by the tests, would be covered by insurance (even though all of the major insurance companies and Medicare specifically say its not covered). The answer was what I liked..."don't rely on what they say...I've been able to get coverage on salvage cryo most of the time because there is solid evidence that it works."
 
And here's what I really liked...my Uro (who knows PCa as well as any cancer oncologist), supports alternative therapy....likes the pomegranite and highly suggested the Ornish diet.
 
BTW: I requested a copy of my pre-cryo pathological report. Turns out I was not a Gleason 9 but was on the poorer side of a Gleason 7 (4+3)...still bad but not as bad as I thought.
 
What a journey!
 
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/3/2009 3:41 PM (GMT -6)   
Hello Joey,

Don't know much about your treatment method, nor what options are there in a salvage treatment. Sounds like your rise isn't that high for your type of treatment.

Just can't stand the taste of pmegranates, yuck, even if I thought it would cure me, not sure I could stomach it. And this is from someone that had to drink cod liver oil every day until I was about 16.

Dietary changes certainly can't hurt a person, might be worth trying.

David in SC

JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 9/4/2009 6:13 AM (GMT -6)   
Dave,
 
I'm taking the pomegranite in capsules---no bitterness, no calories and much cheaper. I take four 250 mg capsules/day. Each capsule is 40% ellagic acid. The studies have all been done with the juice but there is little to dispute that the extract would be much different. And if there are possibilities that some of the ellagic acid may not be absorbed in capsule form, the amount taken in capsule forms exceeds the amount in a 8 or 12 ounce glass of the juice.
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/4/2009 11:29 AM (GMT -6)   
Nothing exciting?

I would say that having your Gleason dropped from 9 to 7 is pretty darn exciting! It moves you from the outer limits to something much more mainstream.

When it comes to medical fads, pomegranate seems a good candidate to have real value. I don't think I could stand such a restricted diet, it is not just what you can't eat, it is monitoring what you do eat to be sure it is nutritionally complete. I guess I have too long a family history of chasing down animals and eating them, although I have tried to mostly lay off of cows and pigs.

I send my wishes for a long time under 1.1
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/4/2009 11:33 AM (GMT -6)   
joey, it never occured to me that you could take the pomegrante in pill form, lol. I always miss the obvious. When I lived in Morocco as a kid, we use to throw pomegranates at each other, don't remember anyone picking them or eating them.

David

JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 9/4/2009 2:34 PM (GMT -6)   
Dave and Geezer,
 
Thanks for your wisdom!
 
I'm retiring within the next six months because frankly I'm tired of working. However, I've pushed it because I want to do a lot and up there on the to do list is to get back in the shape I was in 30 years ago. That includes shedding about 25 pounds AND.....changing my diet. My wife wants to change her diet too so we will be able to work together on this.
 
I certainly will keep everyone posted because more and more is being said about the positive impact of a good diet not only with cancer but for the ol' ticker too. 
 
Dave...no way in the world would I ever be able to eat or drink those pomegranates. And to think they now have pomegranite wine coolers...its a fad but those things may really have some value (the pomegranates, not the wine coolers smilewinkgrin  ).
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation

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