hope for the flat tires out there

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seekeroftruth
Regular Member


Date Joined May 2008
Total Posts : 36
   Posted 9/6/2009 6:59 PM (GMT -6)   
hi guys,
i had my one yr ck up last week negative zero sept 5 was the date of my surgery one long yr.


i have had on and off success ed wise this whole time. big improvement at 9 mths. but here is what im saying to you guys from 1

to a couple months out it looks bleak i was there why doesn't the damm thing work i feel your pain.

now the goods

i still have nothing on its own

i have 50% with stimulation no pills pumps nothing

with viagra or cials or levitra every time 90%to98% every time

with the pill and a cheap penis ring from adam and eve 100% to you can hang a towell on it just like before

now here is the best part

as god is my witness better then before orgasms im telling you i feel like a woman lol wave after wave of pleasure

and when you think your done another wave hits i love it

only downside i miss the mess i liked it.


so guys keep your chins up i was there IT GETS BETTER THINK POSITIVE TRUST ME

ALL THE BEST

rick
new jersey
age 45 hi im rick
first ever psa 4.5
dre negative
biopsy june 08 1 0f 12 cores positive <5% score 3+3 =6
Davinci robotic surgery 9-5-08 philly pa Dr Stephen Boorjian {great guy made me feel so comfortable }
Fox Chase Cancer CTR
home 9-6-08
first 7 days very painful bladder spasms very tough getting up or down
9-12-08 final path report
still 3+3 6
total confined to prostate
margins negative
seminal vesicles negative
lymph nodes negative
dry from day one not one leak
usable erections week 8 with 50mg Viagra although the orgasms are nothing to write home about

1st psa 10-29-08 at 8 weeks post op <0.1 undetectable
2NS psa test 1-29-09 <0.1 undetectable
dr said six months till next one everything's great
no erections without the pill still 4 months out
have usable ones but cant maintain it
awesome orgasms much better then before i know its hard to believe but its true


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/6/2009 8:25 PM (GMT -6)   
Rick, congrats on a year of Zero's, the reason you went through all you did. As far as the orgasms go, I preach the same story myself, much more intense and long lasting, but in my case, don't miss the mess anymore. Hope you keep improving.

David in SC

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 9/7/2009 8:16 AM (GMT -6)   
way to go Rick this is good news. I am trusting you that it gets better. I have waited two years and so far nothing works. That darn radiation fried everything I suppose.
Welcome to the zero club and by God's grace I pray you will be with us forever.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 9/7/2009 5:07 PM (GMT -6)   
Congratulations Rick! Now, what's the name of the ring from Adam & Eve? I went to the site and there are so many I am not sure which one is cosmetic and what's for folk like me with 'basic' needs!
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.


Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 9/7/2009 11:45 PM (GMT -6)   
You stud if I had a towel hanging it would because it was stuck in my zipper and it would be a small towel anyway that includes before the surgery

Timmy 77
48 yrs old
Robotic RP
6-15 2009 Da Vinci surgery
8-10 2009 almost dry big step
Still ED
Recovery is a process not a switch to turn on and off.
Using support groups like this and in person to make it through
Surviver

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