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New Member

Date Joined Sep 2009
Total Posts : 5
   Posted 9/10/2009 11:52 PM (GMT -6)   
I had a biopsy 8/21/09 and I guess I'm now a member of the club. I was schocked, I had a low PSA, no sympthoms other than an  abnormal feel to my prostrate during a digital exam. I am totaly ignorent on this subject. I guess I'm a Tc1, my Dr. did not give me a lot of information, just a booklet to  read. I had no idea what to ask.  He said he was goinng to take a wait and watch approach and do another PSA test in 30 days. I could use some advice.  Thanks, Bob

Regular Member

Date Joined Jun 2008
Total Posts : 407
   Posted 9/11/2009 12:06 AM (GMT -6)   
I'd be firstly inclined to say, "Sorry that you have to be here," but, actually, I'm glad you found the forum . . . and I think you should be grateful that your physician followed a "hunch" and proceeded further with diagnosis . . . and that you'll now have the opportunity for treatment and a better and longer life.
I, too, was shocked when I was given the "news."  Today is the 1st Anniversary of the removal of my cancerous prostate and I visited with my surgeon/Urologist.  I feel great and appreciate the work of the medical professionals who have been advising me - and my life is good.  This "news," shocking as it is, doesn't have to be doom and gloom.  Yes, it takes some time to get accustomed to the situation but, thankfully, for many or most of us, there are treatment options that'll take care of the problem.  My wish for  you is that you'll fall amongst the group of us for whom the prognosis for a long life is excellent.
Take the time to read through the many prior discussions here to gain a better perspective of the road ahead, options to consider, after-affects of the various forms of treatment, etc.  But I urge you to place your confidence and guidance in the professional medical community - the people who will know you, your past medical history and the disease as it sits in you at this moment . . . and allow them to do the testing and analysis sufficient to make recommendations for your situation. 
As you read through the discussions on this forum and also receive suggestions to your posting in this particular discussion make some notes of things you want to ask your professional advisors about so that you don't get rushed or forget when you meet with these folks.  From what you've told us in your brief introductory remarks it seems your physician(s) don't have concerns about the immediate future, and that's a good sign.
After I was diagnosed and the schedule was set for surgery, I flew to Rio de Janeiro for a pre-surgical visit . . . and lived it up . . . because I didn't know what the future held.  I had a hell of a time in Rio.  A year later I can stand in front of anyone and be proud that I'm alive, that I think I made the right treatment choice for me . . . and that I just returned from a 12 day trip to Istanbul . . . to celebrate my first anniversary free and clear.
Best wishes for a healthy future.  Keep us posted along the way.  There are lots of folks here who will offer support, and no question is too "stupid" to ask.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0


Veteran Member

Date Joined Aug 2009
Total Posts : 2448
   Posted 9/11/2009 12:08 AM (GMT -6)   
Bob, welcome to the club nobody wants to belong to.

You will find a lot of knowledgeable guys on this forum that will be able to answer your questions or lead you in the right direction.

I myself was just diagnosed in July and am having surgery next Thursday.

There was a lot of information left out of your post that guys will need to be able to answer your questions. Usually we put it in the signature line where it is easy to find.

See mine at the end of this post.

Good luck in your search for answers. We are a supportive group and will do all we can to led you through this time.

God bless you and your family,

60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 17th, 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.

New Member

Date Joined Sep 2009
Total Posts : 5
   Posted 9/11/2009 12:41 AM (GMT -6)   
I really don't have much more information, I'm 58. If a Gleason score is from 1 to 10 my Dr. said I was a 3. I won't have much more info. until I see my doctor again... Bob

Veteran Member

Date Joined Apr 2008
Total Posts : 847
   Posted 9/11/2009 1:52 AM (GMT -6)   
Your Gleason is probably a 3+3=6, which is the lowest level that would ring any alarm bells. If so, there is no rush, and it is a valid for you and your doctor to watch and wait.

There a surprisingly high numbers of men our age who have low level PCa and most of us don't even know about it. Now that you do know about it, you still have plenty of time to consider all the options. For a low level PCa such as yours seems to be, the watch and wait (also referred to as AS -- Active Surveillance) may be a perfectly valid treatment. This is not a "do nothing" approach, rather it means regular PSA tests, DREs, and biopsies when indicated.
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.

Veteran Member

Date Joined Jul 2009
Total Posts : 504
   Posted 9/11/2009 4:10 AM (GMT -6)   
Hi Bob,

Glad they caught yours extremely early, a Low PSA does not mean a lot. They felt a nodule on mine and the Biopsy showed cancer cells, yet my PSA was very low

While waiting is an very valid option there is a lot more to it than doing nothing, regular PSA, regular DRE's and regular Biopsy sampling

You have a lot of options, and a lot of time to decide. Catch your breath and learn what your options are, it will help you fell better about what you need to do

If you decide on Surgery, the younger you are the better your recovery will be

Naturally, going into get treatment Before you have symptoms also helps greatly
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0

Forum Moderator

Date Joined Sep 2008
Total Posts : 4271
   Posted 9/11/2009 6:47 AM (GMT -6)   

Dear Bob:

Sorry you have to be here but we are glad you found us.  I have a couple of immediate suggestions:

1.  Go out and buy the book by Dr. Patrick Walsh, "Guide to Surviving Prostate Cancer".  This is an excellent primer and will give you a lot of good basic information about the disease and treatment options.

2.  Visit the many links at the top of this forum.  Our excellent moderators have put a lot of time into identifying resources that are particularly useful to the new patient.

3.  Get your pathology report from your biopsy.  Do two things with it:  (a) see your urologist and demand that he/she go over it in detail with you and explain what everything means and (b) post the details here with your signature so people on this forum can help you interpret it and make suggestions.

4.  Get ready to be proactive.  You said that your doctor was going to take a wait and watch approach.  You will find that YOU will need to be the one that gets educated and makes many of the critical decisions.  Yes, you need to depend on your medical experts but...this is a complex disease and one where you need to be personally very educated.

5.  Be prepared to seek multiple opinions.  You will want to talk with a prostate oncologist, both robotic and open surgeons, a radiation oncologist and perhaps seek the option of proton beam therapy doctors.  If your stats allow, you may also want to consider active surviellance aka watchfull waiting.  But, if you do that, you will need a doctor who is experienced working with those type situations.

This is a big deal but, if you caught this at an early stage, you have a lot of options and should be cured and - potentially with minimal side effects.  You will find lots of help, eduation and support on this site and I would encourage you to keep us up to date and ask anything you want...someone here probably has an answer.

Good luck.


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Regular Member

Date Joined Jul 2009
Total Posts : 384
   Posted 9/11/2009 7:24 AM (GMT -6)   
I also recommend buyint the book by Dr. Patrick Walsh. I read three other books before having the robotic surgery and then purchased Dr. Walsh's book after surgery. He has lots of good useful information.

Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex

Regular Member

Date Joined May 2009
Total Posts : 215
   Posted 9/11/2009 7:44 AM (GMT -6)   
Dear Bob,
I am sorry that you have had to join the club, but welcome aboard to a place where you will obtain lots of answers and support.  Obtaining a diagnosis early in the game, as you have, is fortunate and leaves you in a good position to research the options available for treatment. Take your time and get all the answers that satisfy you before making your decision. It is a personal decision and only you and your family can arrive at the correct one.
Patrick Walsh's book is an excellent start in the education process.  As well, keeping a positive attitude and your sense of humour will be a great help at this time.
Good luck and keep well,
Age 64. Diagnosed with Pca January 2009, PSA 5.6, Gleason 3+3=6, T1c, TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear. Robotic Assisted Laparoscopic Prostatectomy surgery for treatment - September 29/09.

Veteran Member

Date Joined Jul 2008
Total Posts : 966
   Posted 9/11/2009 7:48 AM (GMT -6)   
Hi Bob...just wanted to welcome you to Healingwell. You have already received excellent advice so far and I have nothing additional to add. Keep us posted and ask any question you can think of as you gather more information in your new journey in life.

Again welcome
You are beating back cancer, so hold your head up with dignity
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 9/11/2009 8:07 AM (GMT -6)   
Hello and welcome to the club, Bob. Ignorance just means you don't know something, it won't take you long to gain knowledge on the subject. Good suggestions above were givien. Dr. Walsh's book is a good primer, and there are many others. The internet is full of good sources on learning about prostate cancer.

Your doctor's willingness to wait a bit is a good sign to me, that you probably have a low grade case of PC. Good thing about that, is you probably won't have to rush to make any decisions, and you should be open to most if not all primary treatments, or it may be low enough and slow enough to watch and observe carefully over a longer period of time.

You are officially a member of the club by default now, glad you are here, it sucks that you had to join. But if you are going to be dealing with PC, this is a great place to be. We are here for you brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out after 38 days

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 9/11/2009 8:13 AM (GMT -6)   
I can't add to anything the rest of the guys said, just Welcome and educated yourself about the disease and your many options.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: ED- 50 mg Viagra 3X week, pump daily,
Bimix-30/1/20-.20ml 2X most weeks continues using plump and ring technique
PSA's: .04 each test since surgery

Veteran Member

Date Joined Feb 2008
Total Posts : 655
   Posted 9/11/2009 5:35 PM (GMT -6)   
Greetings, Bob.  Not much to add - just want to add my welcome to the club.  It does apprear you have lots of time to make a good decision.  Explore all the options, make your decisions and don't look back.  Just press on to getting well.  Look forward to hearing from you from time to time. David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2460
   Posted 9/11/2009 5:45 PM (GMT -6)   
Hello Bob,
Sorry that you had yo join us on this forum. As you get more information from your doctor, please post them here and you will get a lot of information from those of us with similar numbers. PC is not the same for everyone. There are those with aggressive PC, who need immediate and aggressive attack, and there those like yourself who have a lower grade PC who can take their time and look for the best approach with the minimum side effects.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1

John T
Veteran Member

Date Joined Nov 2008
Total Posts : 4268
   Posted 9/11/2009 5:51 PM (GMT -6)   
Welcome, I don't have a lot to add to the advice you have been given here. "A Primer on Prostate Cancer" by Dr Stephne Strum is the best book out there when it comes to evaluating your options.

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.


Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 9/11/2009 6:34 PM (GMT -6)   
Welcome to the site Bob, I to wish you did not have to be here. I would encourage you to tap into the wealth of knowledge that is here. I see there have already been so great responses. I look forward to sharing this journey with you and what ever emotional ups and downs you have we want to hear it. Everyone at HW cares deeply about its members.

peace and love
My PSA at diagnosis was 16.3
age 47 (current)

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores

Regular Member

Date Joined Jan 2008
Total Posts : 338
   Posted 9/11/2009 9:01 PM (GMT -6)   
Sorry your here but welcome,
Get and read "You can beat prostate cancer ( and you dont need surgery to do it) by Robert J. Marckini
I assume your in califiornia and if so you close to the oldest Proton Center in the US, Loma Linda.
My story is on my website
Stay positive, do lots of research, then do what cha gotta do and don't look back.
Biopsy 1998 = Neg Bio 2000 = Neg with PIN Bio 1/10/08 Gleason 10, Stage T1C 8 of 12 samples positive all < Than 5%
Bone Scan, CTs and MRI Negative early 2008
March 2008 MD Anderson - No Surgery or Proton = No Action
Feb & Mar PET (Possilbe Lymph Node Involvement  & Prostacint Scan Negative
March 2008 U of Florida Proton Therapty Lupron & Casodek May 08 for 2 years
Completed 25 IMRT and 17 PBRT U of Florida Proton Therapy Institute 7/24/08
Latest CT June 08) showed no trace of tumor in lymph node area
7/24/2008 PSA .21, free PSA .08, Percent free PSA 38.1, testosterone 14.6
8/1/2008 2nd Lupon Shot -- 10/27/2008 PSA <.01 -- 12/9/2008 3rd Lupon Shot
12/11/08 MRI Suspicious for Metastic disease L5 & S1 -- Bone Scan 12/19/08 Indicates No Bone Mets Spinal Stenosis and Neropathy in my legs
2/06/09 PSA = < .01  -- 4/09/2009  PSA <.01 --4th Lupron shot 7/02/2009 PSA <.01 Lupron
Our Journey is on WWW.GLEASONSCORE10.COM

Regular Member

Date Joined Jun 2009
Total Posts : 131
   Posted 9/11/2009 9:34 PM (GMT -6)   
Since your levels appear to be low, check out the PCRI web site. It might ease your mind just a bit.

Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4119
   Posted 9/11/2009 10:12 PM (GMT -6)   
Bob, Welcome to HW. This place is full of info and you can always ask any question.

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next

Worried Guy
Veteran Member

Date Joined Jul 2009
Total Posts : 3739
   Posted 9/13/2009 6:45 AM (GMT -6)   
Hi Bob,

Low PSA, Tc1, Gleason 3! You can sell those numbers to 95% of the guys here! Heck I'd trade in a second. Oh.. wait... never mind. My prostate was yanked out 7 weeks ago... My numbers look much better now.
I was too lazy to read a whole book about PC. Mine was so aggressive my p*nis would have fallen off before I finished reading. My wife got "Prostate Cancer for Dummies" out of the library and I looked at specific chapters. Also there are lots of medical sites. I just did a quick search and found this one: It tells you what the grading means.
Most important - you found this site. By reading the signatures, you'll be able to see where you stack up. (You should also add yours to the pile to help the next guy.)
Good luck. Looks like you got it early.
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
One Month Status:
Potency - 9/7 7 weeks Still no activity
Incontinence - 8/20 3-4 full pads per day
9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea, I know)
Post Surgery PSA - 9/3 6 weeks - 0.05

Post Edited (Worried Guy) : 9/13/2009 5:57:12 AM (GMT-6)

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