1st injection = priapism

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AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 9/13/2009 6:01 PM (GMT -6)   
As my sig indicates, I had prostate surgery in January. I've been on the various pills at max dosage since then with little to no effect. I've been using a vacuum pump - it works, sort of. Ideal it's not.

Last wednesday (9/9/2009) I met with a new urologist who is supposed to be some wiz-bang ED specialist. They did a color doppler sonogram, which includes a injection to make you erect (I think it was PGE1). The injection worked, but it resulted in a *very* painful erection that lasted about an hour. The sonogram was apparently fine as the sent me home with a script for Franck's.

My (bimix) script arrived Friday - in an unchilled FedEx box. I thought this stuff was supposed to be shipped chilled??? There were also 20 syringes with needles that looked way too long for the job (1/2" diabetic). The "info" sheet that's included with the Franck's order is less than complete - two poor quality drawings just isn't enough information for a first timer. How the hell do I even load this syringe up? How much is 0.5ml on this syringe - all it has is numbers from 10 to 100 in increments of 10 and "cc" at the bottom?!?!

As usual, Google is your friend. I find how to load the syringe, how far to insert the needle, etc... We wait until Saturday as Fridays wear us both out. Saturday evening the wife and I gather my new toys, hold our breath and I inject myself with the minimum dosage as written on the bottle - 0.5 ml (or 50 units on the syringe). It works, and it works *very* well. I develop the closet thing to a real erection that I've had since January.

An hour later I can't help but notice I've still got a rock hard erection. I'd read about ice packs, so I did. No change after 45 mins. I call the urologist office and get the oncall guy. He tells me to go straight to the ER. I made up a few new curse words, collected my stuff and headed out.

We get to the ER and they hook me up to an IV and dump some terbutaline in me. The attending asks me if I'm in pain, I answer "yes" and the next thing I know they're pumping morphine in the IV. I know that sounds drastic, but to be honest with you I never felt the effects. So, they dumped some dilauded in next. That dilauded stuff really works well...

After about an hour I achieved detumescence, which was really wonderful as the oncall urologist showed up at about that time. What I didn't know prior is that the cart (full of really big needles) they rolled into my room was going to be used by that oncall guy to drain the blood from my penis! Holy freaking christ! They don't say anything about *that* when the commercials warn you about that 4 hour issue...

My issues/questions are this:

1) The oncall doc stated that since I had priapism with the first injection that meant I was not a candidate for further use. That seems extreme to me, given the dosage amount I was prescribed (0.5ml seems high with what I read of others).

2) The bimix arrived unchilled - is that a problem I need to address with someone?

3) In my opinion, the doc/staff did not prepare me for this medication. I was given no in-office instruction or demonstration, there was no base line testing, no advice regarding how long an erection should last and what to do if that time was exceeded, etc.

I guess the first problem I had to address is whether I want to ever again deal with that urologist again. I'm not happy with being given a script and "sent packing". Should I stop with this guy now?

Dazed and confused in Florida...
cheers & beers,
Chris


Diagnosed on 9.23.08, age 47
Gleason 6, T1a
da Vinci LRP performed 1.22.09 at Moffitt Cancer Center by Dr. Pow-Sang
Catheter out on 2.4.09!!!!
Pathology: Gleason 7 (3+4), T2c. Tumor 15%, fully contained, margins clear, lymph clear.
5.13.2009: PSA of zero!
5.20.2009: Cystoscopy all good.


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 370
   Posted 9/13/2009 6:48 PM (GMT -6)   
Well I have to agree with you on your wonderful experience. My first injection was similar to yours although not quite as bad. At least my urologist gave me a test injection in his office by his PA to establish the dosage. The PA showed my how to do it but I learned a lot more by going to web sites googling trimix injections. When I did my first injection I did 20 units or .2 ml. My needles are 5/12 length and very small guage, can't remember size right now. Anyhow I did have a great erection, but after 3 hours it didn't look like it was coming down either. And it hurt like heck, I packed myself in ice and got ready to go to the ER. Finally, after almost 4 hours it started to come down.
     I called my urologist the next day and told him I was cutting way back on the dosage. I still kind of blame him for what happened, it seems like we should start at a very low dosage and work our way up. Anyway after a lot of trial and error injections, I finally have got the dosage right, which for me is 14 units, or .14 ml. The pain of the injections has gone away, and if I want to bring the erection down after about 90 minutes because I have to go do something I take 2 sudafeds and that speeds up the process. I don't think you need to give on injections, just start out low like I did, at 5 units (.05ml), then move up 2-3 units with each following injection until you get what you need. As to firing your urologist, that's your call. I didn't fire mine because he had all my records and is following me with PSA's, I didn't feel like switching horses in midstream, so to speak........
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 672
   Posted 9/13/2009 11:07 PM (GMT -6)   

Well Chris, sorry to hear of your misadventure.  However, don't give up.  I have been using bi-mix for over a year with great success.  Yes, it can be shipped without refrigeration, even stored that way, but I have been told that it will last longer if you store it in the refrigerator.

The on call doc was wrong about one experience of priapism making you a bad candidate for bimix use.  The problem appears to me to be that you used too much.  Some syringes are confusing and it sounds like you should have used much less.  My erections last several hours, but start to get softer within a much shorter period of time.  My urologist told me that was ok, that I should only worry if I stay rock hard for several hours.


PSA up to 4.7 July 2006 , nodule noted during DRE
Biopsy 10/16/06 ,stageT2A
Very Aggressive Gleason 4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8 with no extension or invasion
no long term continence problems
Post surgery PSA continues to be "undetectable"
One side nerves spared
Bi-Mix for ED 
born in 1941


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 9/13/2009 11:34 PM (GMT -6)   
There is good news there, although you might not think so -- at least you know that bimix will work well for you. Now the trick is to refine your techniques and reduce the dosage.

My uro has an "ED Clinic" as part of his practice, and I after excellent first impressions, also discovered that the nurse who looks after the injections is far from expert in this area. I rather suspect that your experience is fairly normal.

For bimix, 0.5ml is not a huge first dose. My first dose was 0.3ml, but they gave me six syringes with doses all the way up to 2.0ml. However there can be huge variables:

1. We all vary greatly in in how we respond.

2. Exactly where you inject has a large bearing on the response -- I think! My theory is that if you happen to inject near near an outflow vein, the drug is swept away before it does much good. Conversely if you are far from such a vein, the drug will have maximum effect. As we should be varying the placement of the injections, it's a crap-shoot what the effects will be for any particular injection.

My this reason, I am a strong advocate of constriction around the base of the penis at the time of the injection and for a few minutes after -- this forces the drug to hang around while it does it's magic. In the absence of anything better, I find a few office rubber bands doubled over work fine. That single change has given me 100% reliability -- prior to that my results were very erratic, and early on, I had a string of six failures.

Another technique that others here advocate is a pre-plumping technique -- pump up a little before-hand. I tried this once, and it did nothing for me -- but it helps others and may help you too.

To answer your specific issues/questions:

1. The oncall doc was wrong -- you are a bimix candidate. What you now need to is to find the dose and injection techniques that work for you. In this regard, don't confuse recommended trimix dosage with bimix. Trimix is much more potent. Based on my experiences, I suggest start with 0.1ml (cc) bimix and work up from there. With constriction, I am on 0.2ml of bimix, which is a low dose for bimix.

2. There is no need to keep bimix refrigerated but I do -- if nothing else, it discourages bugs from growing. Although bimix has a nominal shelf-life of three months, my last batch has run 9 months and is still going strong.

3. I agree -- your uro's office was very slack. Demonstration/instruction on the first injection, instruction sheets, discussion of what to do in the event of priapism (a common risk) are the minimum we should expect. Your call on whether you stick with him, but first ask yourself this: will the next one be any better? :-)
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.

Post Edited (Piano) : 9/13/2009 11:37:03 PM (GMT-6)


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 9/13/2009 11:44 PM (GMT -6)   
Your Uro dept should have been very detailed in showing you how to administer the shot

My Dr had a nurse come in and show me on a rubber penis then made me walk through the process myself, both on the rubber dummy, then on myself so that both she and I were completely confident i knew what I was doing

I use Trimix .10cc's and find a few pumps and holding the base to prevent blood from escaping with the Trimix for a minute works perfect, 1-2 hours every time

Not sure if sudafeds help with Bimix but I was told to keep them handy if the Trimx lasted 4 hours, it never has
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 9/14/2009 3:45 AM (GMT -6)   
Thanks everyone.

To be clear: This urologist and I have no history. One office visit - that's it. This guy comes highly recommended by Moffitt as an ED specialist and has a 5 month wait list. The folks at Moffitt are monitoring my PSA and recovery - not this guy.

Sudafed: I've read that a few times on the net - which kind of Sudafed? The "new" off-the-shelf kind (Sudafed PE) or the good old stuff that they now hold behind the counter and make you provide your first-born before the sale? How much to take? I've read everything between 10mg and 60mg.

location: I injected about 1/3 to 1/4 up from the base, on the right side at about the 3'oclock position. Compressed for about 1 min after. I used instructions on this web site to guide me: http://www.infertility-male.com/erectdys/injxn1.htm

Dosage: Searching around here seems to indicate that many are dosing in the 0.1ml to 0.2ml range. Those dosing higher seem to have started in that range. Starting out at 0.5ml doesn't seem all that common. Then again, I don't even pretend to play a doctor on TV - and I didn't stay at a Holiday Inn last night...
cheers & beers,
Chris


Diagnosed on 9.23.08, age 47
Gleason 6, T1a
da Vinci LRP performed 1.22.09 at Moffitt Cancer Center by Dr. Pow-Sang
Catheter out on 2.4.09!!!!
Pathology: Gleason 7 (3+4), T2c. Tumor 15%, fully contained, margins clear, lymph clear.
5.13.2009: PSA of zero!
5.20.2009: Cystoscopy all good.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 9/14/2009 6:26 AM (GMT -6)   
Does not matter that you have no history, you contacted him for a service correct ?

The Sudafed that is behind the counter (not the PE version) , you may have to just show your drivers license, thats it, really no problem at all getting it. I have not had to use it so far. Maybe this winter it will come in handier for a cold
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 9/14/2009 7:26 AM (GMT -6)   
Most guys use the Sudafed for the Edex or Caverject injections. And it is the behind the counter one. I found that I would have to take two (2) Sudafed to get soft from Edex. I have read of guys taking three Sudafed and they would get soft in 30 minutes but that many Sudafed will raise your blood pressure.

Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/14/2009 8:52 AM (GMT -6)   
Sorry you had such a bad first experience but, sadly, that happens more than we realize. Your doctor did fail you, big time. He should have taken the time to show you how to inject, then watch and assist as you did so in the office, even if it required a return appointment to do so.

I suspect you may have used a larger dose of Bimix than needed, hence your problems. It takes several times, usually, of experimenting with dose to get it dialed in. Like several have mentioned here, start small and work up. I'd begin at .10 or 10 units on the insulin syringe, then step it up to .15 or 15 units, and go forward by 5's until finding the ideal amount. You can get cheap other size syringes at the pharmacy. Maybe use a 5/16th length, 31 gauge needle and see how that feels. By the way, Bimix is shipped unrefrigerated and doesn't require it, bu I do keep mine in the frig, just to keep it in a controlled environment. If the heat during shipment had affected it, it would have lost strength, not gained it, so I don't think this was the problem. When reading of others experiences using it here, be sure to keep in mind that Bimix will be a weaker drug, and take more, and Trimix will be much stronger, usually , and use much less.

It's recommended that you use the old version of Sudafed, not the newer, yes- the one kept behind the counter. I usually use 3 or 4 of the pills to reduce, if I need to. Again, I am sorry you had such a bad first experience, but we got lots of very experienced guys here who is more than willing to help you have a successful result.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: ED- 50 mg Viagra 3X week, pump daily,
Bimix-30/1/20-.20ml 2X most weeks continues using plump and ring technique
PSA's: .04 each test since surgery


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 9/16/2009 7:13 AM (GMT -6)   
Thanks everyone. I'm off to the pharmacy to get some real Sudafed's and then I'll be running an experiment. I figure I'll do this test during the day (i.e. office hours). That way, if things don't go the way it should, I can go to his office instead of the ER. At least that sounds like a good idea now... we'll see.
cheers & beers,
Chris


Diagnosed on 9.23.08, age 47
Gleason 6, T1a
da Vinci LRP performed 1.22.09 at Moffitt Cancer Center by Dr. Pow-Sang
Catheter out on 2.4.09!!!!
Pathology: Gleason 7 (3+4), T2c. Tumor 15%, fully contained, margins clear, lymph clear.
5.13.2009: PSA of zero!
5.20.2009: Cystoscopy all good.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 9/16/2009 8:30 AM (GMT -6)   
As others have written, try a smaller dose, say .20 or .30 and see how you tolerate that and what results you achieve
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


MIKE W.
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 9/17/2009 1:17 PM (GMT -6)   
Reading everyone elses experience is very interested. I had Da Vinci bilateral nerve sparing on April 17, 2009 at UCLA. My local urolgist tried me on viagra, ceialis, muse and finally Bimix. I did the first injection about 1 month after surgery in his office at .15. I am using a 1 m. syringe with a 30 guage needle that is 1/2 inch long. The first injection seemed to work fine. I achieved about an 80 % of presurgery erection - enough for intercourse but not like presurgery. However, since then, I have gradually increased the dosage and am now injecting .34. It seemed like it is still a hit or miss. Sometimes it produces an erection. Othertimes, I get nothing. I don't know whether I am simply getting use to the medication or what? I am 59 years of age and had a very very good erection prior to surgery. I probably use the bimix twice a week sometimes 3 times a week. My injection last night produced again produced an erection that was useable but in 10 minutes it was no longer useable just chubby. Sometimes it feels like the bimix goes in easy and at other times I have to push the syringe plunger in harder to get the bimix in. Can anyone make suggestions as to how much they are using, what is the best site for them to inject at and whether it is hit or miss at times for them too.

Mike

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/17/2009 1:33 PM (GMT -6)   
Mike, welcome to the Forum. First, I can just give you some pointers. They work for some, and not for others.
Try a 31 ga., 5/16 inch needle. I had the same trouble with resistance and failure when using the 1/2 inch needles. I was shooting completely thru the cavity and into the seperating middle tissue, because the cavities had closed or deflated. Once I switched to the 5/16 inch combined with a technique I am gonna tell you about, I have had very successful injections. Have you read of the pump plump, ring and inject method used here by several of the guys? Using a penis pump, or maybe old fashion milking of the penis, you want to get some blood into the penis, enough to open the cavities inside that you put the drug into. The cavities in a lot of men will stay collapsed, like a deflated balloon, and the blood helps inflate it, and allows for a larger target. So pump up a little, place a penis ring on, and then inject. Inject into the 9 and 3 o'clock position midway from the head to the body. You should feel the needle 'drop' into the correct cavity, by the resistance dropping off. Inject, then very gently massage the penis, spreading the drug throughout and into both cavities. Do this for 3 minutes or so. The intent is to hold the blood containing the drug into the penis long enough for the tissue to adsorb it. Remove the ring, continue the massage or stimulation until a full erection is reached. This method usually results in no pain, a full erection that has used less drug than otherwise. Some guys use rubber bands for rings, if the don't have a penis pump and rings, but the key is to get some blood into the penis and something to hold the blood in, while the drug is being adsorbed. I hope this helps. It's all a matter of experimenting until you find a technique that works for you. I only recall one guy who this technique didn't help, so chances are good that this will solve your problem.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery


MIKE W.
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 9/17/2009 4:47 PM (GMT -6)   
James:
 
     I have a pump but I have to shove it all the way to the base before I can get good suction.  It then does inflate the penis but how do you get a ring on with the pump still on?  Per the instructions of the pump I place lube on so I can get the darned thing off after the penis inflates.  However, the second I pull if off, the penis deflates.  Any suggestions?  Am I doing this wrong?
 
   Mike

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/17/2009 5:46 PM (GMT -6)   
Mike, the ring is placed on the end of the pump, the pump is placed on the penis and pumped up, then the ring is 'rolled' off the end of the pump onto the peni. In theory, that's how it works. In practice, you need to trim the hedge down to about 3/8 or so, use good lube and get a good seal on the pump. The rings are stretchable silicone and will fit over the barrel end of the pump. Didn't your pump come with instructions or illustrations? Here's a link to the Osbon site, which shows how to us the OSbon. This site uses a man, not a plastic model, so it is real.


www.osbon.com

Look for the instructional video button.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery


tedgard
Regular Member


Date Joined Feb 2008
Total Posts : 104
   Posted 9/19/2009 4:08 PM (GMT -6)   
I agree with everyone that says; “The important thing is that I am now cancer free!” All my post-op PSA’s have been “undetectable” and for that, I am truly thankful.

I am so happy for those men that fully recover after PC surgery, and don’t have to worry about getting an erection because all their equipment works just like it used to before surgery. Unfortunately, for many of us, that is not the case, and we need to find a solution for that side of the side effects. I still consider myself a man that is young at heart, and frankly I was not ready to give up on a solution that provides me with a satisfactory sex life, and a solution that will work for the rest of my life.

I used Cialis, Viagra and Levitra. Cialis worked best, but none of them alone provided an erection that was equal to pre-surgery. I used Tri-Mix shots, and those worked almost too good. I eventually settled on using the ErectAid pump in combination with Cialis and that worked the best for me. Regardless, anyone that has used the pump, the oral medications, or the shots, knows that they all come with their own issues.

Frankly, none of these solutions provided me with a solution that I wanted to use for the rest of my life. Therefore, I eventually decided to go for the "ultimate" solution in March '09. I decided to go for a Penile Implant. I can’t tell you how happy I am with this decision. This has been the only solution that has given me the ability to have an erection that feels “normal”, works “every time”, and allows me to maintain my erection for as long as I (we) chose for it to last. I never have to worry about “losing it” any more. It is actually as easy for me to get a satisfying erection, every time, as it used to be 40 years ago.

Pre-op Diagnosis Results – Oct 31, 2007;

 

  • Age – 53 (turned 54 in Nov 2007)
  • PSA is 3.83
  • Gleason's Grade - 3+3=6, T1C
  • One biopsy core (Right mid) was diagnosed with carcinoma, which was less than 10% of the tissue submitted.
  • One other biopsy core (Left apex) had a "high grade parostatic intraepithelil neoplasia” (atypical cells, otherwise called pre-cancer cells).
  • All other biopsies benign.

Post-op Results – Surgery Dec 11, 2007;

 

  • Gleason's Grade - 3+3=6, T2C
  • Cancer confirmed on Right mid and Left apex
  • Both nerve bundles spared, some damage to the Left bundle.
  • 30 day PSA, .01
  • 90 day PSA, .00
  • ED treatments: Levitra, Cialis, Trimix, Erect Aid pump, Penile Implant on 3/12/2009
  • Happy


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 9/22/2009 6:32 AM (GMT -6)   
Update:

I spoke with the nurse @ the urologist on 9/16. She suggested I cut the dosage in half to 0.25 cc's - I suggested 0.10cc's and we agreed on that as a starting point. I should go up by 0.10 per dosage until I find a "good place" as she put it.

I tried the 0.10 dosage - almost no effect. Great - I now know where the bottom is. The next night (Thursday 9/27) I tried a dosage of 0.20cc's. PRIAPISM!!! Insert a few very choice curse words here. I'm sure I even made a few new ones.

There's a lot more to this story, but the bottom line is I'm dropping the "famous" Dr. Carrion (in Tampa if anyone wants to avoid this quack). I'm scheduled to meet with another uro on Wednesday.
cheers & beers,
Chris


Diagnosed on 9.23.08, age 47
Gleason 6, T1a
da Vinci LRP performed 1.22.09 at Moffitt Cancer Center by Dr. Pow-Sang
Catheter out on 2.4.09!!!!
Pathology: Gleason 7 (3+4), T2c. Tumor 15%, fully contained, margins clear, lymph clear.
5.13.2009: PSA of zero!
5.20.2009: Cystoscopy all good.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/22/2009 8:24 AM (GMT -6)   
In an area as large as Tampa, there will be several offices specializing in ED. This might be the way to go, if you have the other areas of your disease under control. One thing I found, using the pump and ring method, I was able to really control and calibrate the exact dose, repeatable each time with the same results. It likely can't hurt and may help your sensativity situation. But I'd be looking for a Uro that specialiazes in PCa and more importantly ED, if you are gonna change docs.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery

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