Results of todays visit to Radiation Oncologisit

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 11:45 AM (GMT -6)   
Got back earlier from my visit with the 3rd Radiation Oncologist.  We spent a full hour together, nothing rushed.  I really liked her, probably late 40s, early 50s, I am a bad judge of age.  She was very serious minded, but had a good dry sense of humor like my uro/surgeon does.
 
She too, feels I am in a serious situation, mostly because of both my pre-surgery psa velocity, and post surgery psa velocity.  She feels the surgeon did an excellent job on his end.  She strongly feels that HT is gross overkill at this point, and she would rather reserve that for the future, if needed.  Now that makes 2 out 3 rad. oncologist that didn't reccomend HT, my own uro/surgeon and my own GP, and myself.  So I am comfortable with that.  She surprised me and did a DRE, first for me by a woman doctor, she laughed and said relax, that she had tiny narrow fingers.  It didn't hurt a bit, but that makes the 4th DRE since surgery, so boys, don't think it's over with.
 
I go in Sept. 21, next Monday, for CT's and mapping and testing.  She did give me a throrough physical exam too, which surprised me, as the other 2 rad. oncolg. didn't bother.  BTW, she has 28 years experience, and has a lot of experience with prostate cancer.
 
She said the big mistake would be in waiting at this point, there is too much risk of my psa of taking off and racing past the safefty point.  In her experience, she said she sees the most agressive PC in men in their 40s and 50s, and that most of the indolent cases are men in their 60s and 70s.  She, too, believes that Gleason 7s can be very dangerous, and that they shouldn't be treated lightly as if they were lesser Gleason 6 cases.  It is the "4" cancer cells that make it so unpredictible and dangerous in her opinion.  Often Gleason 7 cases are undertreated or not given the correct and most agressive primary treatment.  She said they often act more like Gleason 8/9, then they would ever act as a 6.
 
From studying my case in detail, she too, said she would have reccomended surgery as a primary  treatment.  That makes all 3 radiation oncologist having that same opinion, just for the record.
 
I will be getting 70-72 grys, spread over 35 sessions.  Hopefully they will be over with by Thanksgiving.  She said I could be assured I will have continual and future blockage stictures, and will be working with my uro/surgeon to come up with a game plan to make it less painful and tramatic as what I have been through.  She even mentioned a pre-empt possibility of going ahead and installing a suprapubic catheter, to make it through the treatments and for the weeks immediately after.  She is going to consult with my other doctor on that.
 
She was a straight shooter, I like that and wanted that.   Told her all about HW, she's going to check us out.  So guys, I do have re-accurance, the post doubling time is steep in her opinion, but she is hopeful that it is still in the prostate bed.  So my next battle is ahead of me, this SOB PC is going to get clobbered with tons of radiation, hope it dies.
 
I will ammend this post as I think of more she said and look at my notes later.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/14/2009 11:57 AM (GMT -6)   
David,

Thanks for bringing us up to date. I have been checking back throughout the day for your after visit post.

As I have not had surgery yet and am one of the relative newbies here at HW, I can't add a lot to the discussion abt treatments and alternatives.

I do however have the opportunity to be of service to you and HW. As you know, after my surgery this Thursday, I will have a Supra-Pubic catheter for 7 days. I will try to provide you with as much info as I can abt the experience for future reference.

You continue to be in the prayers of me and my wife. We pray for your success in kicking this things but as well as for peace, serenity and comfort as you once again go into the breaches of battle.

Sonny
60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 17th, 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 12:01 PM (GMT -6)   
P.S. before there are any answers to this post. The doctor asked a lot of ED questions, she was totally amazed at my total lack of ED. My surgeon had told her about that , and she said she never heard of an instance like that, especially when one entire nerve bundle was spared. She said it was in the miracle class. However, she did say, the radiation could mess up my good fortune ultimately, or give it a major setback. But for those of you that ponder such dilemeas, I would rather be alive with a flat tire and a wife that loves me, then to be king of the stiffies, and in a pine box with a wife crying over me..

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 12:02 PM (GMT -6)   
Thank you Sonny, remember I am with you too with your upcoming surgery.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 9/14/2009 12:04 PM (GMT -6)   
Hi David,
Sounds like you've got a good plan for your next battle. Glad that you found a good medical Pro that you can trust and have confidence in.
Wishing you all the best and great success in beating the beast.
Your friend,
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 9/14/2009 12:09 PM (GMT -6)   
David,
I will be following your success with great interest now that you have a plan together. It seems that our numbers are very similiar and I will be getting my first post surgery PSA on Oct. 17th. Having a nice good looking Lady doctor sounds good to me! Also don't try and quess her age women don't like that unless you quess real young!

Larry
Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 9/14/2009 12:37 PM (GMT -6)   
Thank you David for your detailed post. I'm firming up my action plan as I read your progress and others in the forum who have found themselves facing subsequent treatment. I will still have my bone scan and psa done in October. My surgeon has indicated a visit to a radiation specialist if the .2 in August is confirmed again. Based on these results, I'll move forward with treatment as soon as can be scheduled. I had hoped to delay a bit due to healing of a broken ankle, resultant backaches and upcoming holidays but this doesn't seem wise.

I'm pulling for your smooth treatment and for everyone on the forum. I appreciate every bit of information.

Best regards to everyone,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 9/14/2009 12:47 PM (GMT -6)   
David,
You must have been a good student as you sure do your homework well at this stage of your life. Sounds like you and your Physicians are coming up with a plan and you are active in that as well. I didnt know that about the DRE. shoot, I thought they were over with. My primary Dr. is a woman and the first time she was going to to the DRE I told her I wasn't comfortable with that. She showed me a cartoon on her wall that had a patient and a female Dr. and the punch line was, "So your telling me you would rather have a man do that.?" Anyway best to you and thanks for the update.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 9/14/2009 1:31 PM (GMT -6)   
Good Luck!! And keep us posted on how your doing with your treatment!!!

Will keep you in my daily prayers.

LIVESTRONG!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
4 Post OP PSA's from 9/2008 to 6/2009: <0.1
 
 
 


CharlieTuneA
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 9/14/2009 1:44 PM (GMT -6)   
David, my thoughts are with you as well.
 
I finally realized the significance of your forum handle. Purgatory-on-earth is exactly what this experience must be like for you. I know that's what it feels like for me.
 
Good luck, and vaya con dios.
 
-Charlie
Age at diagnosis 59, PSA 1.4
Biopsy 12/08 12 cores, 6 positive
Gleason 3+3=6
CAT scan negative.

DaVinci surgery 6/14/09
After 10 days, cystogram revealed fistula
Catheter Removed 7/17/09
Fistula still evident week of 8/24
PSA 0.03
Catheter Reinserted 8/28/09

Continence is a future goal.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 1:46 PM (GMT -6)   
Magaboo - thanks, don't want to do it, but seems to be in my best interest

Larry, thanks, I am no fool, if she had asked, I would have said 29 regardless, lol.

Jake, I had suggested to waiting to the first of the year myself, but the new doctor thought it was too risky, so I am going to listen to her

Michael, never thought of that way, of course I would rather have a woman do it, certainly not gay on this end (no offense to anyone), and she did have small, slender fingers and soft hands, thats a swtich. My GP when he did them, always felt like he was panning for gold up my aXX.

shu93, thanks for your kindness

david in sc, a man with a new plan
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 9/14/2009 2:12 PM (GMT -6)   
Wow David, you sure are loved here! I come in to see if you've reported in, which you did an hour ago, and already 11 folks have replied.

It sounds like you're in good hands, and speaking of hands leads to the DRE. It reminds me of a patient telling a proctologist he didn't like the sigmoidoscopy (where the doctor peers down a 'pipe' at the last two feet of bowel.) The doctor's reply was, "It isn't the highlight of my day either, I can assure you!"

I don't know if I mentioned it before, but a former business partner had much the same issue you're having, David. He had the radiation and is now in perfect health --- and that radiation was 18 years ago.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/14/2009 2:12 PM (GMT -6)   
Good for you David,
Now for the tattoos and treatments. Many good days ahead, I'm sure...C'mon zeros...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 9/14/2009 2:39 PM (GMT -6)   
David,
Good luck; radiation will be a breese.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 9/14/2009 2:40 PM (GMT -6)   
 
 
David,
 
Sounds like you found a good doctor that you feel comfortable with and can trust.  My thoughts and prayers are with you, I know you can beat this thing.
 
Jerry1
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  3+3= 6 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
6/12/09 new gleason score of 4=4
Developed stone in bladder may require surgery
 


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 9/14/2009 3:01 PM (GMT -6)   
David,
What techonology do they use for their radiation treatment? IMRT?

BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 9/14/2009 3:33 PM (GMT -6)   

David,

Excellent post, especially the second part about being loved and alive rather than Mr. Stud and dead. I'm with you on that one. Not embarrassed to confess I am in the "flat tire" club, but I'm also in the zero club. I'm blessed with a wonderful wife who understands and support me through this journey. PC has a way of sorting out what is really important in life.

BTW, my surgery was 52 weeks ago today - the same day Bear Stearns took down Wall Street.

Bless you, my brother

Bill in SD


Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/13/08) (3/13/09) (7/10/09): all <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 3:42 PM (GMT -6)   
charlie tuna - been using purgatory as a handle for more than 10 years, way before my PCa. being catholic is part of it, and writing horror is another

sheldon, i love hearing that occasional success story, gives me hope and the other fellows too.

tony, thanks thats what i and my family are hoping for, i got a 10 month rest from my surgery war, now off to the newest battle, oh how we all hate the PC beast

johnt, usually that is the case, but the new dr. and my uro/surgeon are teaming up for possible blockage complications and will tag team together.

jerry, thank you, i cant ever stress the comfort factor a person has to have with any doctor, they may be equally skilled in a technical sense, but you have to click with him/her to some degree. its funny, the 2nd one I met about a month ago or so, I didnt like, thought he was a game show host, very full of himself. must have hurt his feelings, as I was waiting to see the new dr, same clinic of course, he walked by me, slowed looked me in the eyes, and I was about to say "hello doctor so in so, and he looked angry and wouldnt say a word and left. not very professional in my opinion. then i heard him talking to a patient in an adjoining room, and he sounded just like the ass clown that i thought he was, and i thought, i sure made the right decision about him.

squirm, imrt i believe she said, i will have to check my notes. she said it was great to see a patient with a note book, i went in with a page of questions, of which she patiently covered all of them, and i walked out with two pages of notes from listening to her

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4278
   Posted 9/14/2009 5:06 PM (GMT -6)   

Hi David:

I just got home and wanted to check in as I knew you were seeing your doc today.  Sorry that she agrees that you need to have additional treatment but I know that was not a surprise to you.  It sounds like you have a great plan and a great doctor...I wish you all the best and will pray for your treatments to be fully successful.  I know you will keep us posted and I will look forward to hearing about your continuing journey.

Tudpock

P.S. The "small, soft hands" part almost started to sound good...I guess we all have to make the best out of these situations...LOL


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 6:30 PM (GMT -6)   
bill, sorry you are still a flat tire, but i would trade some inflation for a row of zeros and not need to go through this salvage radiation, hope you continue to improve "down there".

tudpock, thanks for checking in, i think under the circumstances, its a good plan, i really dont want to do it, but i know the clinic first hand from the past, liked the doctor a lot. and the alternative to fooling around isnt in the cards for me. yes, having an attractive woman doing that was not an unpleasant event. besides, its my 4th or 5th post surgery dre, and when you dont have a prostate anymore like me, there's not much for them to be poking around, todays didnt hurt a bit. hope you are holding your own.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 9/14/2009 6:35 PM (GMT -6)   
Hi David, all the best for your upcoming treatment, the treatment made me quite fatigued, but I had a nap in the afternoon,hope it all turns out ok for you, on the subject of doctors, when I met my Urologist and Oncologist, they both walked out called my name and shook hands with me, introducing themselves as "hello I am Dr so and so" they still greet their patients like that, and it makes you feel good and comfortable.

God luck, Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 9/14/2009 7:50 PM (GMT -6)   
David, thanks for getting back to us on everything. Small narrow fingers. What a delightful change that must have been. I think I'll be going down the same road as you soon, doggone it, so keep us informed and best of luck to you.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/14/2009 7:52 PM (GMT -6)   
Mal, know wha you mean, despite what some think, there's a lot of really good doctors out there, I have had my share of some great ones in the past 10 years.

Hope you are doing well now too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 9/15/2009 7:12 AM (GMT -6)   
David, you have touched more lives than you could ever imagine. Rather than hug your own experience to yourself, you have consistently shared what you have learned with anyone who needed it. Thank you.

I wish you nothing but the absolute best outcome with the next phase of your journey. Sounds like your rad onc is going to do right by you. With your positive attitude and the care and understanding of your doctor, you will get through this.

Husband has his 1 month PSA this week and we're praying for good news. In the meantime, thinking of you and sending our prayers for a successful - and uneventful - outcome.

Peace be with you and your family.

Sephie and Family from New York
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a due to minuscule extraprostectic extension in posterior left. Margins, bladder neck and SV clean. Gleason 3+4 (no change from biopsy). PSA of 0.0 every 3 months since surgery. In August 2009, PSA reading of 0.1 - urologist will retest in 4 weeks. Hoping this is a blip. Incontinence good to excellent but still having issues with leakage. ED is a work in progress (with the help of Viagra).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 9/15/2009 7:36 AM (GMT -6)   
Sephie and your husband, greetings to the Empire State from the Palmetto State. Nice to hear from you. Fingers crossed for your husbands next psa, hopefully it is just a blip, and it will give you breathing room. That is what I hoped for at the time for myself. What was your husbands pre-surgery PSA record like? I can't honestly remember.

Please post when you do know, and I will be thinking of you guys as well.

May the peace of the Lord be with you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9

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