6 month update

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nasso
Regular Member


Date Joined Feb 2009
Total Posts : 27
   Posted 9/15/2009 5:51 PM (GMT -6)   
Hi just had my 6 month PSA test and phone call with Dr Walsh.
 
He said next PSA check/call to be in 6 months and then we will go on yearly PSA checks. I feel great, just wish the ED was progressing faster.
 
Dr Walsh also said new studies suggest taking cialis / viagra should not be done for rehabilitation purposes and I should only use the meds when attempting intercourse (I am sure he never tried intercourse with a 50% erection :)). Until now I was using 25 mgs Cialis every 3 days, and now will stop that.
 
I havent myself seen the studies that he is referencing, but Dr Walsh said taking cialis all the time/for rehab can have even adverse effect on the ED side. Anywone knows what studies he has in mind ?
 
I wish everyone here good PSA numbers and high spirits. I cant express my gratitude for the help and support I have received from those forums in the dark times pre surgery.
Age at DX: 43
PSA: 11/08:15.6, 01/09:16.6, 02/09:17.1
Biopsy 12/08 at USF Tampa
8/12 cores positive, GS 3+3,
perineural invasion in 2 cores
Staged T1c
CT, Bone, XRay negative
03/04/09 - Open Surgery at Johns Hopkins by Dr Patrick Walsh
Path Report: GS 6, Tumor Contained, margin clears, nodes+vesicles clean
Both nerves spared,
Catheter Out: 03/18/09
Incontinence : Resolved from day one
ED : after 3 months at about 20-30%
ED : after 6 months at about 40-50%
Diet : Vegetarian, No-meat, no dairy diet since 01/09
Post Op PSA: 05/22/09 - 0.01
Post Op PSA: 09/10/09 - less than 0.03 (undetectable)


P-Ca-duceus
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 9/15/2009 5:57 PM (GMT -6)   
Congrats from another relieved board member with a fresh zero result. We both get a reprieve for another six months.
12/2005-Age50-PSA 4.2-Biopsy negative
01/2008-Age 52-PSA 8.0-Biopsy negative (I should have known then)
01/2009 Age 53-PSA 17.8-Biopsy positive-Gleason 4+3, 1 of 24 cores!
Time to become my own best advocate
Special protocol MRI with Gadolinium dye at Brigham and Women's Hospital-
main tumor (1.9cm) is ANTERIOR (transitional zone), not accessible by biopsy. All is now clear.
04/02/2009-open RP with bilat nerve sparing- Dr. Jerome Richie (experience is #1)
Pathology- Stage T2cN0M0,Gleason 4+3, margins clear.
05/13/09 First post-op PSA 0.1
09/01/09 PSA below assay, <0.1


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/15/2009 5:59 PM (GMT -6)   
Congratulations on the great report.

I would be very interested in finding out about the study as well. Seems like all the Dr.s prescribe some form of meds for rehab.

Let us know what you find.

Good News On You,

Sonny
60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 17th, 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/15/2009 9:13 PM (GMT -6)   
Congrats on your second zero, that's the name of the game. Hopefully your ED will continue to improve over time. Not familiar with the study by Walsh you mentioned.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 9/16/2009 5:33 AM (GMT -6)   
Greetings, Nasso.  I'm not familiar with the study - I've been taking levitra a couple of times a week for about a year now.  Seems to work fine.  Congratulations on the psa result - keep those zero's coming in!  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

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