Sonny is on the Other Side

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted Yesterday 1:15 PM (GMT -6)   
Well HOwdy Folks.
 
It's Friday, 2pm and I have hi-jacked one of the computer terminals from the nurses.
 
I am waiting on the nurse to come in and change the dressings, show me how it's done and then I can leave to go to my apartment.
 
I have a little abdominal discomfort, but not what I would call real pain.  I have not had any pain meds since I came out of the revocery room.
 
I was surprised to wake up in recovery having only the Supra Pubic Catheter.  The doc. said that the surgery went so well they didn't feel it necessary to put the Foley in for the one day in the hospital.
 
The Dr. came in last night and again this morning to make sure I heard and understoon what he had to say. 
 
From physical appearances the cancer appeared to confined to the walnut. I will know in five days. 
 
He was successful in sparing all the major nerves and quite a few of the minor.  On a scale where 100 would be the best you could ask for , he gave me a 94.  I'll take that result any day of the week.
 
Just clear food yesterday. This morning was oatmeal and scrambled eggs. Lunch was baked fish, masked potatoes, cooked carrots, iced tea, banana pudding and Italiam Ice.  Not bad huh?
 
More later when I can sit a little longer. Gotta go do some laps.
 
Sonny

60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 17th, 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted Yesterday 1:24 PM (GMT -6)   
Congratulations Sonny!!!
 
It sounds like it could not have gone better.
Dr. Menon did my surgery 3 years ago, but I didn't see him after the surgery.
I stayed in the apartments by the hospital too.
How do you like their program there?  I thought it was a very smoothly functioning system.
Dave
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted Yesterday 1:27 PM (GMT -6)   
Sonny,
Sounds like it could not have gone much better, and I didn't use a computer for 4-5 days after my surgery. And your eating a gourmet menu compared to my popsicles. Keep us posted on your progress, but so far it is impressive. Best to you and your family.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted Yesterday 1:51 PM (GMT -6)   
Wonderful News Sonny! Sounds like you are not only back on the other side, but feeling pretty darn good for someone that just had a major complex surgery. Hard to believe you don't need pain meds, and great news on the nerve sparing. Had good feelings about your surgery episode. Don't forget to rest too, brother, the walking is great for you, but your body still needs to rest and heal.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted Yesterday 2:00 PM (GMT -6)   

ITS ALIVE...Run Forest Run.....Ooops. Wrong movie.

Glad you made it to the other side.

 


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted Yesterday 2:15 PM (GMT -6)   

Great news Sonny!! First post I have seen post-op from the hospital.

Good luck with your recovery...dont forget to eat some prunes or prune juice helps everything get out easier....

LIVESTRONG!!!


Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
4 Post OP PSA's from 9/2008 to 6/2009: <0.1
 
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted Yesterday 2:17 PM (GMT -6)   
And life goes on..................Good to hear you had an easy procedure and so far a normal recovery. Walk, drink, walk, drink tongue
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted Yesterday 2:39 PM (GMT -6)   
I agree with James C. But I'd add "pee" in there too. If you hook your cath to 50 ft of tygon tubing you can plumb it right to the sump pump. That way you'll sleep through the night with no worries. ;-)
Looks like you did great. Congrats!
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
Post Surgery Status:
Potency - 9/17 2 months, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day. At this rate I'll be fine in 2011.
Post Surgery PSA - 9/3 6 weeks - 0.05


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted Yesterday 3:13 PM (GMT -6)   
Great news. It sounds so good that you might become the poster boy for “recreational prostectomys” a new form of vacation fun.

As to Jeff’s 50 feet of tubing, well, we can be glad that he was trained as an engineer rather than a zoologist. Otherwise he might be suggesting that you train a bucket brigade of monkeys.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted Yesterday 4:44 PM (GMT -6)   
Glad to see you on the other side Sonny. Rest and don't over do it. You have been through alot and it will take sometime to fully recover.

Take care,
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08


huey
Regular Member


Date Joined Jul 2009
Total Posts : 27
   Posted Yesterday 4:59 PM (GMT -6)   

Sonny,

Congratulations on your successful surgery and recovery. Glad to hear that you have made it out of surgery with little pain. Stories like yours are encouraging for us that still need to make the trip. I've scheduled my dance with the Dr. Menon for Nov 17th and hope I can say the same after my surgery.

Good luck and have a good trip back to Fla.

Huey from Detroit


Age: 64
Dx: 6/2/09, Age 63
G: 3+3
PSA: 2.04
Samples: 12, 1PC, 20%
DRE:positive
Stage: t2a
Still trying to decide on treatment.
New PSA 7/28/09: 1.3. I don't understand it???
9/8/09: Surgery is my decision for treatment.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted Yesterday 5:23 PM (GMT -6)   
Sonny,

Wow, you make it sound so simple. Couldn't be happier for you. Maybe it's those great surgeons we have up north here !

(no, no, not another North South thing )

Have a safe trip home, and good luck on your path report. Maybe you can stop by New York on your way since you are doing so good.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted Yesterday 5:36 PM (GMT -6)   
LOL...Nice hijacking!
Good to hear from you. Now get well...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted Yesterday 5:55 PM (GMT -6)   
Hi Sonny,

That's just super! It's very heartening to hear news about the results of your surgery being so positive!

Happy landings,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Three PSA tests undetectable, latest July 18


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted Yesterday 6:31 PM (GMT -6)   
Greetings, Sonny.  Glad to hear your trip to the other side went so well.  Take it easy but do get your walking in.  Don't forget your stoll softeners!  Look forward to hearing about a good path report.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted Yesterday 7:36 PM (GMT -6)   
Sonny: Welcome to the other side I am so happy that things are going so well. Just remember you have had a major surgery and you must take time to heal. Don;t over do it.

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted Yesterday 8:19 PM (GMT -6)   

Thank you one and all from the bottom of my heart.  Your blessings and supoort have meant so much to me and my wife.  I think she may be lurking on the site from home but she hasn't fessed up to it.

 

You guys are the best.  I sure hope that I get the chance to meet you in person as time goes along.  I would have gone to the weekend gathering, but it is just a little close to my surgery.

 

Maybe we should think about having some sort of gathering in Orlando.  I'm sure we could figure something out.

 

Thanks again for the blessings,

 

Sonny


60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery set for September 17th, 2009 with Dr. Mani Menon at the Henry Ford Medical Center in Detroit.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted Yesterday 9:24 PM (GMT -6)   
Sonny --- thanks for checking in. I logged on from the office this afternoon shortly after you posted and was going to reply, but our VP Sales came in with some good news, and these days sales good news gets my attention!

So, here I am back to leave this note of thanks, best wishes, and congratulations.

One thing my surgeon said to me which I found very helpful was I was to remember that although the surgial scar might be an easy heal, my post op energy high because I'd only lost an ounce of blood, my ability to move without pain good because he hadn't sliced open a large muscle mass, these were but mostly surface events. In my belly the robot had "inflicted the same Massive assault my scalpel did when I did open surgery."

Isn't it wonderful to be out the other side and know the #%&*! is gone?

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 9/20/2009 8:46 AM (GMT -6)   
Great news Sonny. Good to see you in so positive a frame of mind and progressing so well. Be Well,
Regards,
Bill
Age 64. Diagnosed with Pca January 2009, PSA 5.6, Gleason 3+3=6, T1c, TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear. Robotic Assisted Laparoscopic Prostatectomy surgery for treatment - September 29/09.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/20/2009 9:48 AM (GMT -6)   
Sonny, please keep me posted on what you think and how you are doing with the suprapubic catheter. To my knowledge, you are the only brother here that had one coming out of surgery, as opposed to the standard foley cath coming out of the weiner area.

From what I understand, once it exits your side, it works like any other cath, with the leg bags and what we call the big bag, and there is a "y" where it exits, one for the exit tube and one to inflate/deflate the balloon. I will be interested in when its time to have it removed, how that goes, etc.

Are you getting much if any irratation from where it exits? Does it hurt at all at that point? I assume its bandaged?

There's still a likely chance in my ongoing saga, that the next step for me might to have one installed, could be cath #8 since last November, but this time, it would stay in the entire time of radiation and perhaps 2 months after, meant to ease some suffering and act as a pre-emptive strike against blockage and retention issues that both the rad. oncl. and my uro/sur know is going to happen.

Hope you are still healing well, my brother. You have done great, and should be a good future source of hope and encouragement to any new brother considering your path.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 9/20/2009 12:34 PM (GMT -6)   
Woohoo! Guys, you saw his comment 4 notes back. Everybody to Sonny's house in Orlando. I hear they don't have snow down there.
(Sonny, Of course you're welcome to come up here next week but you probably want to rest a bit.)
Enjoy the catheter. It doesn't cost you anything to pee while it's in. Get your money's worth out of it. Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
Post Surgery Status:
Potency - 9/17 2 months, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day. At this rate I'll be fine in 2011.
Post Surgery PSA - 9/3 6 weeks - 0.05


Bonedoctor
New Member


Date Joined Aug 2009
Total Posts : 11
   Posted 9/20/2009 7:38 PM (GMT -6)   
Congrats Sonny on getting to the other side. I also had the Supra Pubic cath and it worked well. Dont forget to walk and I used one stool softner each day, two was too much.
 
Congrats and good luck.
 
Bonedoctor
56 years old
Diagnosed 1-15-09
PSA 4.6
Gleason 3+4=7
DiVinci Surgery 3-18-09
Bundles spared
Superpubic cath removed after 6 days
No pads after two weeks
Still rehabbing ED

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 10:35 AM (GMT -6)
There are a total of 3,004,633 posts in 329,159 threads.
View Active Threads


Who's Online
This forum has 161747 registered members. Please welcome our newest member, Daf.
318 Guest(s), 17 Registered Member(s) are currently online.  Details
Georgia Hunter, SoMuchFun, bobmars, Rainy cloud, JoHnGaMeR90, mattamx, Octobergirl, ToddPaul, sebreg, ceebs13, Skypilot56, Lynnwood, 61Impala, InTheShop, RunJerRun, Traveler, Normal59