Back From The Uro/Surgeon - New game plan and a good compromise, I think.

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 5:08 PM (GMT -6)   
My wife and I just got back from the appt. with my uro/surgeon.  He was very positive, had obviously given a lot of thought to my situation, and had talked again with the radiation oncologist.  No procedure was done today.  I will be having another, my 3rd this year, mini-surgery at the same hospital one day next week.  Should know the arrangement in the morning.
 
When I am put under, he will install a suprapubic catheter  (like Sonny just had), but this one will be in for a min. of two months and as long as three possbly.  Best part, is that it doesn't come through your penis.  Once it leaves your abdomen, it works like any other catheter.  Also, when he has me knocked out, he will do another dialation procedure.  He said that we can't afford to have my bladder neck completely close over during the 2 months of radiation.  He admited that the dose of rad. that I will be getting will swell it shut regardless.  It won't matter to me, as I will be in the next world.
 
He said the rad. oncl. may or may not want to delay the start of the treatments by a week, said it would be her call if she thought a week of healing from these procedures might be better for me.
 
He also said, that he will have to do at least one or two more dialations over the course of the radiation treatments in order to keep the opening open.
 
He said during those dialations, he will knock me out with demerol.
 
Another advantage, I won't have to drink water during the rad. treatments, as they will simply inflate my bladder full during the zaps, then drain them when under.  I won't have to worry about an ER session due to blockages during this time.
 
It's not like this makes me happy, but its the lesser of evils, and may make my salvage radiation time more endurable.  So far, my path has not been easy, but hopefully these pre-emptive moves will take some of the fear and pain out of proceeding.
 
I figure by the time this is all done, assuming nothing else happens.  I will have spent between 6 and 7 months on catheters during the past 12 months.  For those that like to keep track, this will be catheter #8.
 
Never would have dreamed it would be this way when I started my PC journey, but this is how it is for me.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


geezer99
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Date Joined Apr 2009
Total Posts : 990
   Posted 9/24/2009 5:39 PM (GMT -6)   
David
It sounds like you got the attention that you wanted from your doc. You are a special case and need that sort of special attention. It seems like you are prepared for what comes next and that is all that any of us can hope for. Of course we all hoped that they would re-evaluate and discover that you were cured, but lacking that you seem headed for treatment that meets your needs. God bless you and thank you for your courage that enCOURAGEs all of us.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 9/24/2009 5:52 PM (GMT -6)   
David,
Now you know what the game plan will be which was half the battle just trying to get it figured out.

One thing I don't understand is why the dose of radiation would swell your bladder neck shut, is that normal? How many Gy's do they plan on administering?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 6:16 PM (GMT -6)   
geezer,thanks, looks like I got to keep fighting each step to move forward in the game of PC. BTW, my uro/surgeon was not happy when he found out that the radiation clinic folks stuck a rigid metal catheter up me Monday to insert a dye/isotope. He should have been called, thankfully I was angry enough to insist that the rad. oncologist herself was the only one that touch me during the insertion.

squirm, for most men, it would swell it there, but not shut it down, due to the original surgical complications with my bladder neck, I am another small percentage club (4% Ive been told) where this is a persistent probelm. Gee, I only ever get incredible odds for bad things, too bad that doesn't work on the Powerball. My doctor said that its the nature of radiation to cause edema or swelling, and we are talking about an area on me that is already touch and go at any given time.

my comfort in todays consultation, is that I know in advance that I won't be tortured with pain by surprise, or have to worry about another terrible ER situation late some weekend night, that alone will let me rest better, mentally and physically.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


60Michael
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Date Joined Jan 2009
Total Posts : 2243
   Posted 9/24/2009 6:39 PM (GMT -6)   
David,
Glad that you walked away today with some sense of comfort, and really that helps mentally for the challenge that you face. Having watched my grandaughter go thru a number of operations in her young 13 years, I have often wished that it was me and not her in that operating room. She somehow comes thru them like a champion and continues to inspire me. And I know I cant take her place and it is a test of my faith knowing and hoping that she will be okay.
 
So my thoughts and prayers continue to be with you, and as anyone who has been on this forum for any length of time knows, you are a champion in your own right.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/24/2009 7:10 PM (GMT -6)   
David, I just got into Orlando and am at home with my wife. We had dinner together and some great conversation.

She came into the computer room with me and was looking over the posts.

Reading this latest development and plan of yours dang near brought me to tears. It for sure gave me goose bumps and raised the hair on the back of my neck. I am so glad your doc has agreed to use the SP for you.

You deserve the comfort it will afford you. And it will give the rest of your track a much needed break. You may have swelling from the treatments but it will get a break from the wear and tear of daily use.

I am absolutely convinced that my recovery was greatly hastened because of the SP. I walked miles during my recovery and totally without any kind of pain. I am sure I could not have done it with a Foley.

David, 'YOU ARE THE MAN'.

Our prayers and blessings are upon you,

Sonny and Lynn
60 years old
PSA November 2007 3.0
PSA May 2009 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

Surgery done on September 17th by Dr. Menon, Vattikuti Urology Institute, Henry Ford Medical Center, Detroit.


RacingOyster
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 9/24/2009 7:25 PM (GMT -6)   

David,

If I'm understanding your situation, there's still every expectation that you'll come out of all this whole and cancer-free. Radiation knocks out the cancer, the supra catheter comes out, and you're back on the road to recovery. It must be hell to have to go through all that you are facing for many more months, but it's good there's a light at the end of the tunnel. I'm looking forward to hearing good progress from you.

 


Living in the northern Atlanta suburbs.

Good health and no symptoms when my annual physical uncovered an elevated PSA.

Diagnosis at age 55: PSA 4.6 - positive biopsy 3 of 12 cores - Gleason 3+3=6.

Open Radical Retropubic Prostatectomy with bilateral lymphadenectomy on 6/18/2009.

Pathology report after surgery showed negative margins, cancer contained in capsule

(60 gram sample, Gleason 3+3=6, T2c N0 MX).

PSA at 4 weeks after surgery <0.1 (all other problems are minor considering being cancer-free).

Catheters required on-and-off for 34 days after surgery due to recurring urinary retention.

Anal fissure due to trauma to rectum from biopsy, surgery, and antibiotic-induced diarrhea.

Using 1 pad during the day for occasional stress incontinence, dry at night (12 weeks after surgery).

Taking 2.5 mg daily Cialis for ED with no joy so far.

 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 9/24/2009 7:39 PM (GMT -6)   
Greetings, David.  Sounds as if you have a plan - and a good plan at that.  Glad they decided to go with the Supra since you have had so many foley's.  Look forward to hearing some good news very soon on your progress.  Keep fighting the good fight my friend - you are an inspiration to all of us.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 8:00 PM (GMT -6)   
Michael, thank you, and I hope your granddaughter is ok and doing well.

Sonny and Lynn: thank you both, so happy you two are back together again, as it should be. Continue to heal, my Florida brother.
I did do high school in both Zephrhills and Brooksville down your way if you know the towns. Did college at St. Pete Jr. as it was known in its day, and Univ. of South Florida, Tampa. Wife is from St. Petersburg.

Oyster, my mollusk brother, lol, that is the game plan, if the salvage radiation really knocks what left of my PC for good, then all these travails will be worth it. Soon as I am able, let's reschedule that half-way meeting.

David/CPA - thanks, I was so apprehensive going into this meeting and possible procedure today, but it turned out good, and it really made me respect my dr. for the time and obvious homework he did prepping for it. He has been slammed in his practice, yet still found time to be patient with this patient, me. lol. best to you and your wife too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 9/24/2009 8:41 PM (GMT -6)   

Squire David:

Well, I'm glad you've got a plan.  Dude, you continue to have one hell of an interesting story...I don't know what I would do without my daily dose of "As the World Turns for David"!

Seriously, I hope and pray that this works.  I know you will keep us up to date and I'm sure you know we are all pulling for you.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 9/24/2009 9:08 PM (GMT -6)   
David, I am happy that the Dr is going to us the SP. I feel that this is going to make all of this next jurney more comfortalbe, less tramatic and hopefully very successful. As always you are in my thoughts. Best wishes.

Your friend in PC

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 9:29 PM (GMT -6)   
My Good Subject Tudpock, if I wasn't living first hand in this adventure called "My Personal PC Journey", I might not believe what I write half the time, but I assure you, its all true with its twists and turns. Like to have an entire month go by in a completely boring and mundane way, it would be refreshing. Everything has had to been a fight so far, so why change now? Some people live and love a simple life, I have always thrived on making things complicated, so perhaps its payback time for me, lol.

Jeff, thanks, I honestly don't like all the drama, pain and suffering part. Just trying to do my thing and move on with my life. Already I have spent way too much time dealing with PC and its complexities, not use to dealing with so many complications. As mentioned above, if this ends up being the knock out blow to my PC and its evil cells, then this entire war has been worth it to me. I beat my other cancer bouts (3x) and have been cancer free and sympton free from it for 10 years now, and I want to beat this one too. Hope you are doing well yourself. Looking at your states, did you ever try the MUSE on the ED front? Once I found out how it was applied, I would never have tried it myself, tired of people wanting to stick anything up my weiner. Was reading some interesting things about the Trimix Gel, sounded promising but don't know of anyone that uses it. I was in the rare luck club of having no ED from my surgery, but I realize that a heavy dose of salvage radiation may take that away from me in the future, so trust me, I don't comment on the ED front ,but I read all the posts for the day that I might be dealing with it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Michelangelo
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 9/24/2009 10:21 PM (GMT -6)   
I'm so glad to hear the good news regarding the SupraPubic catheter plan.
I was discussing you and your situation with my partner and we were both rooting for you on this one.
I hated the catheter and there wasn't a day that I didn't wish it gone.
You sir are a trouper!
(And now soon to be a Supra trouper... sorry couldn't resist that one.)
Well done and good luck next week.

Brian and Rachel.
Age: 54 (53 at diagnosis - June, 2009)
PSA: 10.6
Biopsy tested positive: Gleeson 3+4
Surgery: DaVinci Robotic prostatectomy (31st July 2009)
Northwestern Memorial Hospital, Chicago, IL
Dr. Robert Nadler, Urologist/Surgeon
Textbook procedure.
Catheter: Removed after 10 days.
Incontinence: Currently, no. (Slight leakage for three days after Catheter removal. Wore pads for physcological boost).
ED: Intermitent. Bad reaction to Cialas. Currently experimenting with Levitra.
PSA: Currently 0.1 (25th August 2009)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 10:40 PM (GMT -6)   
Thanks Brian and Rachel,

Supra-Trooper, that pretty choice, lol. Loved the movie Super Troopers.

When I woke from my open Surgery in Nov of last year, I was shocked to find out that I had to have the original cath in for 30 days, that upset me more than anything, little did I know at the time that the 4th catheter wouldn't be taken out for a total of 63 days after surgery. And that was just the start of the fun.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 9/24/2009 10:57 PM (GMT -6)   
David, sounds like you've got a good plan and every reasonable expectation of a cancer free future. Bravo!

I admire your guts, gumption and outlook on life.

And, Sonny, nice to know you're home and back in the loving arms.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/24/2009 11:03 PM (GMT -6)   
Thanks Sheldon. And yeah, glad our new super star Sonny of Orlando FLorida is safely back home. What an amazing surgical experience he had. Hope he continues to do so well.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 9/24/2009 11:44 PM (GMT -6)   
Hi David I feel for you and I wish that I could give you some words of advice but I am relatively new to this PC thing so all I can say is do not take any SH** form any of the doctors and try to keep happy and as normal I will keep on watching your story develop from afar and pray for a happy ending
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
 First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms
Gleason upgraded to 3+3 Tumour not closeto prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 9/25/2009 7:37 AM (GMT -6)   
Hi David,
Looks like you've got things well in hand and the SP will give you an extra 2-3 inches of H2O pressure. And we physics students know how important that is!
Good luck. I'll save a spot for you in Lake Ontario.
J

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/25/2009 8:45 AM (GMT -6)   
Colin, thanks. Hope you are still doing well over there in Thailand. I treat doctors and nurses with the greatest respect. However, I don't feel I have to agree with every word out of their mouthes, they are but human too like me. It pays to be compliant most of the time, unless you know something to the contrary, and then you need to communicate freely to the doctors about your concerns. Some of my worse fears in this journey have been quickly calmed instantly by a kind and caring doctor that takes the time to explain something.

My entire nature and philosopy in life is peaceful co-existence, non-violence, pro-life, etc. What I have had to learn is to become more pro-active when I need to be. And I have always preached that is it always ok to agree to disagree, that is what inteligent people do.

I have found it interesting in my life travel, that agressive people think that passive people are weak. I truly don't think they understand, that there is amazing strength in passivity. I have a brother who is the full blown Type "A" personality, he's tall and large, noisy, rude, and crude, a bully (you get the picture), and you know what, everyone that knows him only thinks of him being the ultimate "A******". Gee, that will be some legacy to put on a tombstone. I was hated by everyone I came in contact with in my life. Sad but funny.

Mutual respect works best in the real world, and it sure works better here when practiced in our group in HW.

My best to you ,Brother Colin
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/25/2009 8:48 AM (GMT -6)   
Worried, not sure all the solder and welds in my plumbing are sound any more, so not too much pressue on me, might spring some leaks I dont have
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 9/25/2009 9:25 AM (GMT -6)   
David,
Glad you got the supra pubic catheter. I'm sure it will make things more comfortable for you during the rad treatments. Hope you get through them like a breeze. I'm about two months out from my last treatment and doing fine. You will too. Good luck.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/25/2009 10:13 AM (GMT -6)   
Thank you Bootheel, that's all I want out of this deal. Is to get through this and for it to work. Hope that's not asking too much out of the PC gods.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 9/25/2009 11:19 AM (GMT -6)   
David,
It sounds like things are coming together. It is good that your doctors are aware of your situation and are cooperating to minimize the risk of any bladder problem. Hopefully after all is done you can have a big smile ad a big zero for ever.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/25/2009 3:07 PM (GMT -6)   
Thanks Ed, not to be crude, but still hoping to pull a natural piece of wood when I need it like I can currently do, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9

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