GFMPH Weekend Retreat, Rochester NY 2009 - Meeting minutes.

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Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 9/27/2009 6:18 PM (GMT -6)   
What happens at the GFMPH (Good For Men's Prostate Health) event, stays at the event but IRS tax code requires a brief summary in the form of meeting minutes. I am therefore including some (but not all) of the noteworthy activities and discussion items from the Sept 25-27, 2009 meeting held in Rochester NY.

Prostate Health and related activities.
• The merits of various VED designs were discussed. Low cost, $30 unit, vs. High quality, high cost, medical grade, $400 unit.
• Training videos for Trimix intracavernous injections, trimix gel, and transurethral therapy, were watched and the merits of each discussed.
• The Medical Grade VED Video was shown and transferred to another member for inclusion on the website.
• There was a demonstration of macrosonic acoustic energy and its effect on the body.
• A medical grade Incontinence Clamp was studied and compared with two alternate low cost designs. One of the alternate designs was found to be very similar in function but at significantly lower cost.
• A medical grade TENS unit was demonstrated and the appropriate settings for a potential incontinence treatment were discussed.

Weather did not permit lighting of the traditional signaling bonfire so the alternative plan was initiated, possibly including:
Attendance at an estate sale and tour at one of the summer homes of Ingrid Bergman.
Attendance at the Manhattan shorts Film Festival
A brief tour of the Port of Rochester and Lake Ontario shoreline
The discharging of a couple of firearms. (A first for one attendee)
A visit to the local farm market were we watched apple cider being pressed and tempted fate by consuming copious quantities the freshly pressed and unpasteurized nectar.
An occasional nap in front of a warm TV.

Food was superb and voluminous in order to keep the energy up for such a strenuous weekend.
Two of the local restaurants were visited which afforded out of town guests the opportunity to study the local community and cuisine.

On site meals included:
Locally prepared stuffed olives, cheese curds, and peppadew peppers.
Strip steak (one attendee might have consumed more strip steak than the daily ration of an entire third world country), locally baked pumpkin pie with whipped cream.
Breakfast included half yolk scrambled eggs with the addition of cheese and shrimp to bring the cholesterol level up to specifications.

One attendee enjoyed a St. Francis of Assisi experience by surrounding himself with several chickadees while hand offering shelled sunflower seeds.

The conversations were great; the company even better. A good time was had by all.
Let’s do it again.

Meeting minutes respectfully submitted by,
Jeff (aka Worried Guy)
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
Post Surgery Status:
Potency - 9/17 2 months, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day. At this rate I'll be fine in 2011.
Post Surgery PSA - 9/3 6 weeks - 0.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/27/2009 6:45 PM (GMT -6)   
Jeff, after reading your report, I know for a fact I missed a heck of an event. Glad it went so well, sounds like a good mix of things going on. Perhaps the one in your area can be a yearly event.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/27/2009 7:12 PM (GMT -6)   
Jeff, sounds like a great event.

I am sorry that I missed it. Also I am a little sorry that I qualify for such an event.

But the one thing I do not regret is meeting the wonderful folks here at HW.

Thanks for bringing us up to date. We need to plan more events and spread them around the country. As I said in an earlier post, Orlando might be an option.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4237
   Posted 9/27/2009 7:34 PM (GMT -6)   
Sounds lke you guys had a great time. How were the nurses David hired?
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/27/2009 7:39 PM (GMT -6)   
John, I got a partiall refund, as they said there wasn't any mess to clean up when they were through
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4110
   Posted 9/27/2009 8:42 PM (GMT -6)   
WOW what a great event. Make this yearly and we can start planning now for next year!

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 9/27/2009 8:49 PM (GMT -6)   
I am surprised in reading the minutes of the meeting, especially as they are intended to keep the IRS happy with the deductability of certain items, that no mention of the ED repair clinic at Rosie's was mentioned.

I only have the report, third hand, from a friend of a friend of State Partolman Henerson, but it certainly sounds as if significant research was conducted and I'm sure U.S. taxpayers would be glad to pay their fair share.

In the light of the Henderson report I was afraid my wife might forbid me from attending future events. However, she's booked me for Rosie's in two weeks. Hope springs eternal and all that.

Three cheers to all,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"  


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 9/27/2009 10:36 PM (GMT -6)   
Note at the time of this writing the IRS safe harbor (i.e. no record keeping) mileage rates are $0.24 cents per mile for medical and moving , and $0.14 cents per mile for volunteer. If you keep receipts you can claim whichever is higher. If you lease a car for the weekend you can write off that expense with gas and tolls.

And despite what Chiquita told Officer Henderson, it was consensual.

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 9/28/2009 7:19 AM (GMT -6)   
Well, that sounds like it was a great weekend for sure! So close to me and yet so far..............(I live in Niagara-on-the-Lake Ontario, across the river from NY State). My thoughts were with you guys as I made a new BFF ( best friend forever)yesterday, the toilet bowl. I thought of you often as I drank Citromag and prepared my bowels for tomorrow's da Vinci. I bet your food was a lot better. tongue
 
Kudos to all who organized this event for I am sure it lifted everyone's spirits in this club that we all don't want to be a member of. Reading the minutes sure lifted mine.
 
Keep well,
Regards,
Bill
 


Age 64. Diagnosed with Pca January 2009, PSA 5.6, Gleason 3+3=6, T1c, TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear. Robotic Assisted Laparoscopic Prostatectomy surgery for treatment - September 29/09.  Pre-op PSA down to 5.28 which I atribute to visualization techniques and a new vegetarian diet.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/28/2009 7:35 AM (GMT -6)   
Bill,

Good luck and best wishes as you are about to have your surgery. Look forward to seeing you on the other side, the recovery side.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


mjluke
Regular Member


Date Joined Jan 2009
Total Posts : 189
   Posted 9/28/2009 7:51 AM (GMT -6)   
Worried Guy said...
What happens at the GFMPH (Good For Men's Prostate Health) event, stays at the event but IRS tax code requires a brief summary in the form of meeting minutes. I am therefore including some (but not all) of the noteworthy activities and discussion items from the Sept 25-27, 2009 meeting held in Rochester NY.

Prostate Health and related activities.
• The merits of various VED designs were discussed. Low cost, $30 unit, vs. High quality, high cost, medical grade, $400 unit.
• Training videos for Trimix intracavernous injections, trimix gel, and transurethral therapy, were watched and the merits of each discussed.
• The Medical Grade VED Video was shown and transferred to another member for inclusion on the website.
• There was a demonstration of macrosonic acoustic energy and its effect on the body.
• A medical grade Incontinence Clamp was studied and compared with two alternate low cost designs. One of the alternate designs was found to be very similar in function but at significantly lower cost.
• A medical grade TENS unit was demonstrated and the appropriate settings for a potential incontinence treatment were discussed.

Weather did not permit lighting of the traditional signaling bonfire so the alternative plan was initiated, possibly including:
Attendance at an estate sale and tour at one of the summer homes of Ingrid Bergman.
Attendance at the Manhattan shorts Film Festival
A brief tour of the Port of Rochester and Lake Ontario shoreline
The discharging of a couple of firearms. (A first for one attendee)
A visit to the local farm market were we watched apple cider being pressed and tempted fate by consuming copious quantities the freshly pressed and unpasteurized nectar.
An occasional nap in front of a warm TV.

Food was superb and voluminous in order to keep the energy up for such a strenuous weekend.
Two of the local restaurants were visited which afforded out of town guests the opportunity to study the local community and cuisine.

On site meals included:
Locally prepared stuffed olives, cheese curds, and peppadew peppers.
Strip steak (one attendee might have consumed more strip steak than the daily ration of an entire third world country), locally baked pumpkin pie with whipped cream.
Breakfast included half yolk scrambled eggs with the addition of cheese and shrimp to bring the cholesterol level up to specifications.

One attendee enjoyed a St. Francis of Assisi experience by surrounding himself with several chickadees while hand offering shelled sunflower seeds.

The conversations were great; the company even better. A good time was had by all.
Let’s do it again.

Meeting minutes respectfully submitted by,
Jeff (aka Worried Guy)

Hey Jeff;
 
Any chance that these training videos can be accessed online?
 
63 years old-tumor discovered on digital exam- biopsy December 2008-
4 of 12 samples positive-all on right side
Gleason 3+3=6
PSA-3
Otherwise excellent health.
Brachytherapy- May 19, 2009 -so far, so good.
 
  "There may come a day when the courage of men will fail, but it will not be this day."


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/28/2009 9:03 AM (GMT -6)   
Start planning for next year. The secon annual GFMPH retreat will be held in September in Hilton NY. For those Geocachers, there will be a geocache planted exclusively for PC club members. Reserve early, because campsites are limited, but extremely beautiful.

Meanwhile, the Hilton chapter is inviting Sonny of Orlando to begin the winter retreat planning for the January event. Nude sunbathing will be optional.

Words can't describe the atmosphere of meeting with fellow PC'ers who understand what we are going through, and giving constructive help to each other.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 9/28/2009 9:13 AM (GMT -6)   
goodlife,

Nude sunbathing? Why not, everyone else in 4 counties has seen and touched me below the waist in the past year, got nothing left to hide and no pride. The icing on the cake, was the woman taking a picture of my weiner area at the end of my radiation mapping session a week ago, said they needed it for identification. I guess the pictures of my head/face weren't good enough. They musth have to worry about matching weiner to face or something like that.

I asked the woman with the camera, I sure hope that these don't make it out on the net.
She laughed and said, Don't worry, that's not going to happen. Hmm, because of privacy laws and hippa laws, or because she knew I had such a pitiful looking weiner. lol. I will never know.

David in SC

PS. I very well might be able to make it next time around
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, mapping on 9/21/9, 9/24 - mtg & procedure? with uro/surg, IMRT starts 10/5/9


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/28/2009 9:19 AM (GMT -6)   
It was the sunburn I was worried about, not the assault with a dead wepon charge that I made it optional !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 9/28/2009 9:33 AM (GMT -6)   
Hey mjluke,
One of the members is working on a project to organize and consolidate the training videos. There is definitely a need for this kind of Frank talk. Clearly you can't post the videos on an open site as, by some community standards, they can be considered indecent. At the very least, they are not for the feint of heart. (I must confess watching the transuretral trimix application made weak at the knees. ) One training video was on a DVD which he now has.
We'll work on it and let you know.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
----------------------------------------------
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
----------------------------------------------
Post Surgery Status:
Potency - 9/17 2 months, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day. At this rate I'll be fine in 2011.
Post Surgery PSA - 9/3 6 weeks - 0.05


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/28/2009 9:47 AM (GMT -6)   
Goodlife, planning has started for the January event. Is it 2010 or 2011 you are looking for?

I have placed a call to a good friend who has membership and residence at a Naturalist (read nudist) resort in Kissimmee, FL. It is of course clothing optional and the shy and clothed are not looked down upon.

It is minutes from Disney and less than an hour from Orlando and beaches. It is fully equipped with RV sites, on site lodging and well you get the picture.

Is this what you had in mind?

Let me know while there is plenty of time to move the event if I read more into your post than was seriously meant.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/28/2009 3:50 PM (GMT -6)   
Sonny,

We are serious, except for the nude thing. I think it would be GFMPH to go to Orlando for a long weekend sometime in the middle of winter. Plus, there are several guys that I know of that are closer to Orlando than NY.

If you are interested in finding a hotel or other lodging facility that would be available at the height of tourist season, and would be somewhat reasonable, I'm sure many guys would jump at the chance.

Maybe some other FLA guys would volunteer to help you.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/28/2009 4:18 PM (GMT -6)   
I will start working on it right away. BTW gotcha, I was not remotely serious about the Naturalist resort. My wife would not attend and she would not let me go, not even for GFMPH.

Because of our cancers, my wife and I have some good contacts at the MD Anderson Cancer Center here in Orlando. I will reach out to them for possible guest speakers, materials, videos, whatever I can lay my hands on. Know a few people in the lodging industry also and am not proud about going up to some I don't know and sharing the word about the gathering.

We may get a big help in this area due to the drop in tourism here because of the economy.

You did not respond to the question about when. Are you looking for 2010 or 2011?

Waiting to here from you,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3734
   Posted 9/28/2009 5:26 PM (GMT -6)   
Sonny, You had me too. I was imagining sand trails stuck on my legs from pee dribble. Not a pretty sight.

I'll chime in and say 2010, not 2011. If we wait, we'll never do it. It sure was fun and educational.
The conversations are so interesting. We talked about pumps and motors, radiation resistance of tardigrades, acting in the theater, private schools, living in Japan, football, singing in synagogues and churches, camping in the wilds of Michigan, perfect pitch, heating with wood, importance of reading to your kids,... And discussed some interesting HW posts.
We all come from such a diverse cross section of the population you can't help but learn something as soon as the conversation begins.
(And no one blinks an eye when you have an accident and pee your pants from laughing - or in my case, breathing.)
How can you beat that?
Jeff

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/28/2009 5:45 PM (GMT -6)   
Okay then. I'll put it out here in a new thread. Let's see how many are interested and see if we can nail down a date. What do you think about sometime in February to let everyone get over Christmas til say mid March.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 9/28/2009 8:00 PM (GMT -6)   

Greetings, everyone.  Sounds as if a great time was had by all - really sorry I missed it. 

Sonny, I have an event in Orlando 11 - 14 Feb, 2010 and plan to stay on an extra few days.  If it happened to be over that weekend it would really work well for me.  Realize Feb 14 is Valentines day but maybe some of our sweethearts wouldn't mind a trip to Florida in Feb. 

Really glad the weekend worked out well.  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/28/2009 8:24 PM (GMT -6)   
One thing for sure these days, whatever date we pick will have conflicts for some folks. Feb is fine for me. Thanks Sonny !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 9/28/2009 8:35 PM (GMT -6)   
Goodlife- CPA,

I am going to put the thread out for the GFMPH Valentines Extravaganza the weekend of Feb 13 and 14. We can plan additional days for the 12th or the 13th or both.

My wife thinks it would be a great idea to have it Valentines Weekend. ED or not what a way to treat your lady to a special weekend. As we all no we could not go through this without the love of our significant others.

What do you think?

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 9/28/2009 9:23 PM (GMT -6)   
Romance gets me every time. We can send the ladies to the spa while we sit around the pool and talk about the issues of life !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)

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