Final SRT Planned told to me

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 5:04 PM (GMT -6)   
While waiting 1 1/2 hours for the pre-op for Thursday's surgery, the radiation clinic called me and told me the final plan they came up with.  Was disapointed, because it's longer, not shorter.  My radiation oncologist decided it will be 39 treatments, not the original 35, so might as well call it 8 weeks, and the final gys. will be 74.  That is higher than the 70-72 range she said a week ago.
 
Not sure how to interpet this new information.  Does this mean she sees things more serious and agressive than she first did and worse than my uro/surgeon saw my reaccurance?  Or is she going on the high side just because she can, and wants to slam it with all she can give it?
 
Got to be at the hospital at 0830 on Thursday, barring any delays.
 
The closer I get to this SRT, the more I don't like it, but can't come up with a better plan on my own.
 
David in SC
 
The dose I am getting is what some people get for a primary treatment, not a salvage treatment
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 9/29/2009 6:33 PM (GMT -6)   
Hey, if the plan is Bash the B*st*rd then why not. You aren't going to give up, so aggressive seems to match your style.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 6:40 PM (GMT -6)   
Normally I would agree, geezer, but 10 years ago, that kind of thinking about did me in with radiation, still bearing the scars.
But honestly have no reasoanble choice but to push ahead with this path.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/29/2009 6:41 PM (GMT -6)   
Mine was 38 treatments. I thought yours was weak or I was a lot tougher than you...:-)

I'll have to make up a better self serving reason now...lol

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 6:55 PM (GMT -6)   
Tony, appearently, my rad oncol. must think i am super man after all i have been through. Don't often say this, but am thankful I even have choices, have the insurance to cover the bulk of this, and live somewhere where I dont get put on months of holding patterns just to be fitted into the system. When I have the surgery this Thursday, it will have been only one week to the day, late in that day at that, that we decided on that course of action, and here it has all been lined up like ducks.

The rational side of me knows it could be much worse, but not to complain or whine a bit would't be human, and would almost seem insincre on my end.

David in SC

Fall has arrived on cue in western SC, so the temps been dropping, will make having warm urine filled catheter bags less of a burden than in the summer time, that's a plus since I will be on it for 2-3 months this time around.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 9/29/2009 7:41 PM (GMT -6)   
Hi there David, I had 38 treatments too, hope all goes well, it's a bit tiring 5 days a week, the only side effects I had were some bowel probs, a red backside, and a bit of fatigue. Go for it!

Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 9:10 PM (GMT -6)   
mal, hope you don't mean a red backside like a baboon, lol. Not sure I could handle that.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/29/2009 9:21 PM (GMT -6)   
David,

Hang in there my man. Gotta look for the bright spot. After Thursday the SP is bound to make life a whole lot more comfortable for you. Take the little victories as they come and before you know it you have won the battle.

On another note; My wife and I are planning a little traveling beginning next week. The plan is to drive from Orlando to western TN to visit her aunt and uncle. Then travel to eastern TN to visit some friends that have moved up there. The way I figure it, it is just a few hours away from Easley, SC, where I can stop and shake the hand of a true fighter (maybe have a little BBQ) then travel on to Atlanta to see my sis.

What do you think, you up for a little BBQ in somewhere around the 15th- 16th? Look forward to meeting you in person.

Prayers and blessings are with you my friend,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 9:35 PM (GMT -6)   
Sonny, that would be an honor and something to look forward to. I have told my wife all about your journey thus far. One thing good about South Carolina, there's every variety of BBQ you can imagine. Being a local for 16 years, I know the good places that the tourists never find. Let me know when things firm up, and we will roll out the red carpet for the King of Orlando and His Lady's visit.

This suprapubic cath couldn't come any sooner, flow been steadily reducing since the weekend, lots of bladder neck pain, so it will be nice ot have a reprieve from that worry and horror when I go through the SRT.

Look forward to meeting you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 9/29/2009 9:40 PM (GMT -6)   
David,

Look forward to meeting the strong lady behind you as well.

Good luck with the interview tomorrow. It is still on, isn't it.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 9/29/2009 9:44 PM (GMT -6)   
She's one tough red-headed nurse, trust me.

Yes, thanks for remembering, interviewing with the defense contracting firm at 1000. Even got a regulation haircut today, not that I have much hair left, lol.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 9/30/2009 12:45 AM (GMT -6)   
Hi David, yep, bit like baboon, sure did look strange, but then again nobody saw it but me....lol

Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6

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